So I am heading to a music festival in BC this weekend, which is very exciting! It's a very open and accepting environment, people wear crazy costumes, go naked or whatever...
I had mentioned long ago that I would go bald the whole weekend because it would be easier and people would probably not blink an eye at a bald chick there. My friends are not going to let me take my wig (except my bright pink one!)
Which is all good and well, except that I have a lot of regrowth on…
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Added by Karina Louise on August 3, 2009 at 11:50pm —
2 Comments
So I was diagnosed with Alopecia Aerata this month. My hair is falling out pretty fast. Every time I shower, I get 1/2 a weeks hair in the drain and on the comb. It's falling out in plugs and clumps. I'm a nurse and I wear my hair in a short pony all the time. I'm having a hard time hiding the bald spots. I'm low maintenance and I've never "dressed" my head before, but now I need some quick solutions! Can you please lead the way....thank you!
p.s. I love looking at all your pictures! It…
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Added by Karen on August 3, 2009 at 11:24pm —
8 Comments
Baby fuzz. Say the words and hearts start melting. See that soft, fine hair on an infant’s head and your hand automatically reaches out to touch, pat, or pet. Oohs and ahhs and a drawn-out “aw” spontaneously slip from your mouth.
Now imagine that same soft, fine hair on the balding head of a grown woman. On me.
In my world, talks of baby fuzz mean I have a spot of new hair growth. My baby fuzz is soft, but not cute. Certainly not ooh-and-ahh inspiring or aw-worthy. More…
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Added by panuelo girl on August 3, 2009 at 4:26pm —
2 Comments
So I've been having a difficult time with my Alopecia as of late. Started with one patch in Oct 08 and now it was 3.. the first of the ones i noticed has a lot of regrowth, but the hair seems to be falling out from all over.. more of a difussed state.. is this normal?? I know i may lose all my hair but what of the regrowth in one area... is that just false hope? also, does anyone ever get painful areas on their scalps? not just tingling but an area when you press down it feels…
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Added by JenNy on August 2, 2009 at 5:41pm —
5 Comments
Well, so in the past 3 months, I've discovered that wearing a wig is not too traumatic an experience. I screwed up the courage to start wearing the first one I've bought (the bob cut one) to work at the end of April, and I was just absolutely bowled over by all the compliments and comments everyone had! I think I had the biggest ego of my life that day! (Which honestly, I very much enjoyed as I have not had an overabundance of self-esteem in the last many years).
However, I had a…
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Added by Jenn on August 1, 2009 at 5:56pm —
11 Comments
for the first time audrey has lost all her hair except 1%. we took her wig od and everything just fell off, her hair had been comming in, she's fine except my youngest was so shocked seh ran arounf the house screaming, i couldnt help but cry, but i know god has already healed her.christ paid the price on the cross and alopecia has no place in this world, so now im praying more for every one with alopecia, not just my duaghter.
Added by agnes faux on July 31, 2009 at 10:19pm —
2 Comments
Hi, My name's JOSH.
I just want to start by saying this website truly is wonderful. I don't know why I never joined Alopeciaworld.com before. It's like Facebook or Myspace for bald people! (only I think this is a little cooler) I've been a member for less than 24 hours and many of you (whom I have never met) have welcomed me, and I can't tell you how much that means. The close-knit community that alopeciaworld seems to promote is very cool and once again I'd like to state how much…
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Added by Josh Richards on July 31, 2009 at 2:00pm —
3 Comments
As of Wednesday last week I have ditched the wig and am wearing my bald head with pride. So far the response has been great. All was revealled at work fo the first time on Monday and everyone couldn't believe it but then said how much better and more confident I look!
Walking in to my local shop, meeting my friends at the pub, playing hockey, anythng - I'm not bothered about people seeing the real me - Best decision I ever made!
Added by Emily Horsley on July 30, 2009 at 10:06am —
8 Comments
I recently started working again as a Night Auditor for a swanky boutique hotel in downtown Nashville, and based on past experience when I went to my interview I brought my "alopecia essentials" kit: a letter from my dermatologist explaining my need to wear wigs, hats, and scarves; a printed copy of the Americans with Disabilities Act; and a business card with my lawyer's name and phone number, and my godmother's name and phone number (she works for the EEOC.) My boss was very pleasant during…
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Added by kastababy on July 30, 2009 at 6:45am —
9 Comments
I had AA for 7 years, then I progressed to AT - no scalp hair, but everything else still there. Then, it quickly went to AU. In the past few months, I've started growing hair again, but ONLY on my face. I have eyebrow patches, lashes in the center of my upper eyelids, nose hair, and peach fuzz in places on my cheeks and chin. But, there's not a single, tiny hair anywhere else on my scalp or body.
So, I think that there needs to be a name for when you have hair only from your eyebrows…
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Added by Mary on July 29, 2009 at 4:38pm —
15 Comments
Hello all,
I hope that this information will be helpful. I had aa once 14 years ago. I had a couple of small patches on the back of my head, I got the cortisone shots and it went away within a year. 2 months ago I noticed a patch on the side of my head. I went to get the shots but they weren't stopping the hair from falling out. Everyone kept telling me to relax and that stress probably caused this. But I didn't feel stressed out and that just didn't ring true to me. My hair falling out is…
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Added by tara on July 28, 2009 at 9:30pm —
14 Comments
Hello,
Visited with a new Derm yesterday here in CA. I didn’t technically go to see him for my Alopecia – I went to discuss my extremely dry, itchy, cracked palm on my right hand. He told me that I had Keratosis Palmaris, gave me a steroid shot and prescribed me some ointment. He advised me that although they weren’t connected in anyway, the meds may also help the Alopecia.
Naturally, I’ve been reading all I can online and have found a link between this and Alopecia called…
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Added by Dana on July 28, 2009 at 6:17pm —
1 Comment
so my second time wasnt much better.... i went to the same mean dermotologist who still insisted i had trichmillia and let me tell you guys i no im 100% positive i dont pull my hair out 100% positive. she said it looks like trichmillia and that she want me to have a biopsy and no way i mean no way am i letting her do that to me. maybe if i trust ed the doctor but not her, so my mom thought i should do it but i said no it would hurt a lot and i dont trust my doctor so my mom said i was going to…
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Added by Nikki Mans on July 28, 2009 at 5:19pm —
5 Comments
This is Lynns husband here
i cannot believe the difference in Lynn since BALD OUT 2009 ONLY 9 days ago and joining Alopecia World
Lynn would tell me off if i left the front inner door open incase any caught a glimps of her - curtains had to be closed and she never went into the garden without something on her head - this week she has done so much wigless and people didn't fall down or gasp -it's given her new life ,she holds her head up and smiles at people not worrying about wind…
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Added by Lynn Herrod on July 28, 2009 at 1:35pm —
6 Comments
http://today.msnbc.msn.com/id/26184891/vp/32169671#32169671
Added by Sheila Levine on July 27, 2009 at 1:20pm —
3 Comments
I think I am at my lowest point. I have almost no hair left and I just cry all the time. I don't leave the house except for doctor appointments. I have stopped talking to all of my friends and have even begun to stop talking to family members unless they call me.
I just can't deal with this anymore. I can't even imagine living the rest of my life with this pain. I can't look at myself in the mirror and just feel like i am not "normal." I don't even feel like a real person if that makes…
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Added by Kathleen on July 27, 2009 at 10:34am —
9 Comments
Just getting tired of having my clean slate in the morning. I imagine myself somedays drawing in my "Angry eyebrows", while other days the "suprised eyebrows", or "sad eyebrows" "happy eyebrows"...add the hair, the eyelashes (which I still have yet to conquer successfully) and there I am...Mrs. Potato Head. It does sometimes give me the giggles when I think of it that way.
Looking for eyebrow tattoo advice, if anyone could give it.
1) What do I look for in a tattoo artist.…
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Added by Jennifer Krahn on July 27, 2009 at 9:59am —
11 Comments
How's that for an Alopecian Fairy Tale title? But seriously almost every day I wake up realizing I've had another dream that my hair returned. It's always the same: I still have some alopecia but my hair is long and covers all of it. When I wake I am a bit surprised and disapointed that it was just a dream. Do any of you have similar sleepy time story lines?. Could the dreams be premonitions, or perhaps my subconscious sending signals to get my hair growing again, or is it just the old stand-by…
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Added by Dominique Cleopatra on July 26, 2009 at 9:59pm —
1 Comment
i dont really kno how to get this going but im 15 years old i have the greatest life anyone can ever ask for . life with alopecia doesnt faze me at all it just looks like i shave my head. but it wasnt always like that . my hair started to fall out around the age of 7 . i didnt realize anything was wrong with me because all my friends just went on with there daily lives not fazed by the fact that i had spots all over my head. i didnt relize that anything was wrong until i noticed the eyes.…
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Added by tom boylan on July 25, 2009 at 10:14pm —
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I'm contemplating doing what I said I'd never do, shave my head. I'm tired of cleaning hair from all over my house on a daily basis, I almost want to cry when I take a shower, and I cant even look at myself in the mirror anymore. I am very depressed I dont want to leave my house unless i absolutely have to. I have very little hair on the top and two growing patches on the sides of my head.
Added by Trixie on July 25, 2009 at 4:24pm —
7 Comments