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The inquiring mind of a three year old

My three year old grandson really wants to understand why his grandma doesn't have any hair, or more specifically why my hair doesn't grow. Keep in mind that he's only had about a week to wrap his mind around his grandma being completely bald. So today while watching him at my house he started in with wanting to know all about lobsters so we googled lobsters and we looked at photos, videos and information about lobsters and then it occurred to me....I could answer all his questions about my… Continue

Added by Rose on September 12, 2011 at 11:00pm — No Comments

Update on me...

Wore a Chantel wig from PY for my niece Michele's wedding. pic just got put on FB. I just don't wanna have to be explained in pics years down the road...it was a little hot but...i did not want to stand out. I hope I am being true to myself and not hiding behind a wig like it is a mask.

Added by Laura Adams on September 12, 2011 at 10:03pm — No Comments

Hairspray (Love it! Hate it!)

Hope everyone is doing well! Another question to my alopecia friends: ...well some background, blah, blah, blah...and then my question...



I have come to learn that hairspray and wigs don't really mix. I have a gorgoes human hair wig that looks great after washed for only a few days because I feel the need to load it to the max with hairspray. I don't know if I find myself doing this out of habit from when I used to style my own hair or from fear that it will lose its' shape and… Continue

Added by Beverly on September 12, 2011 at 4:00pm — No Comments

What to do with your hair dryer (besides throw it away)!

I just saw this news item about unusual uses for blow dryers. Mine has been in a bag in the closet (along with my curling iron) since I lost my hair almost 4 years ago.

http://shine.yahoo.com/event/green/15-unusual-uses-for-your-hair-dryer-2539148/

Who knew?

Added by Mary on September 12, 2011 at 2:24pm — 8 Comments

Going to university

I am starting university this year and living away from home and my parents for the first time in my life. Although excited by this prospect I am also incredibly nervous. I have had AA for over 8 years but this past year it has got a lot worse and I have lost 75% of my hair which has forced me to start wearing a wig. I am naturally quite a shy person, but this year my confidence has been hit hard. I'm worried about making new friends at uni and scared about what will happen when I tell them… Continue

Added by Amy on September 12, 2011 at 9:19am — 6 Comments

Why?

I have had au for abt 7 years know....I would like to say I'm ok with it but I am not...its allot to deal...on the positive side. I have a great family that supports me...well today my world came crashing down on me ....I noticed a spot on my daughters head...is it possible to feel like a ton of bricks came down on me and to also feel numb .....I don't know excatly what it is...a small spot where there is tiny hair growing but enough hair is missing I am taking her to the doctor ....I feel like… Continue

Added by maryc on September 11, 2011 at 8:00pm — 7 Comments

Baaack

still hate alopecia and its life stealing ways.



this time I'm applying topical steroids for at least 3+ months. Why? Because now that I think about it I've only really continued on with a cream for about 1.5 max and I did respond to oral steroids giving almost 100% growth and steroid injections always sprout out hairs again after about a month or so after the injection has been administered.



I have also taken up lifting weights, I'm focusing on the things I can change… Continue

Added by Nick on September 11, 2011 at 5:00am — 6 Comments

Envious

Before I finally gave up the fight and shaved my head (sweet surrender by the way) I would find myself envious of girls/women who could put their hair in a ponytail or simply just "throw it up outta the way", however now with my newly shaved head I've found a whole new fixation with girls/women that love their wigs or hairpieces. Why can't i be like them i ask myself. To appease my daughter and to feed my curiosity I went wig shopping and found myself shaking my bald head no to every wig they… Continue

Added by Rose on September 10, 2011 at 1:00am — 3 Comments

WCAU NBC 10! Show - Speaking About Alopecia Awareness and Upcoming Event!

Here is the video to the interview I did on the NBC 10! Show with the head of Children's Alopecia Project, Jeff Woytovich and his daughter Madison. I commend NBC 10! for having us on and helping me spread awareness by highlighting the upcoming Musicians for Children's Alopecia Project Benefit Concert.

Click HERE to see the video!

Thank you!

Lili

Added by Lili Añel (aka Eulalia) on September 9, 2011 at 10:30pm — 4 Comments

I need to get something off my chest

Hey yall.. Well it has been a while since i have "blogged" but i feel like i need to get something of my chest.. First off! YOUR HAIR IS NOTT WHAT MAKES YOU BEAUTIFUL! people kill me when they wake up 2 hours early to fix their hair! lol when people ask me why i dont have hair i say of course lol i have alopecia. people like to reply aww im sorry then i laugh and im like sorry for what? they say for you not having hair . no me not having hair is not a sorrowful thing it is a BLESSING ! god made… Continue

Added by Bre Cobb on September 9, 2011 at 2:00pm — 4 Comments

So sick of it!

Its been a long time since ive posted but im really feeling sick of alopecia right now. I try to forget about it but it just keeps coming back and destroying me from inside. Im nothing like i used to be when i didnt have this fucking stupid condition. I used to be so happy but now i cant even enjoy anything. Im currently in south america and everyday im depressed. Before i left most of my hair was growing back from injections then boom as soon as i stop them alopecia comes back again and fucks… Continue

Added by tim on September 9, 2011 at 1:00am — 3 Comments

A step in the right direction

Wow so much has happened this summer. My first annual alopecia event that I put to together in my city was a wonderful success. I met many people within my city that also have alopecia. Adults and children. Many of which knew nothing of this wonderful site and all you wonderful people here. It was nerve racking to step out in front of the audience at the baseball game and tell everyone why I was here. And it happened all so fast. My plan was to walk out and tell everyone why I was here and then… Continue

Added by Bald and Fabulous AKA Terri on September 8, 2011 at 8:00pm — 11 Comments

My visit from my son!

I had a wonderful visit from my eldest son, Trent this past weekend! Labor Day weekend. Trent was diagnosed with alopecia areata when he was 3 years old. His hair fell out completely when he was 8. He is now going on 24 years old! I have watched him deal with alopecia over the years. Of course, the beginning was the hardest. I made sure to become involved with NAAF as soon as I was aware of the foundation. Through alot of help from NAAF and our community we dealt with Trent's diagnosis the best… Continue

Added by Anna Seagle Craft on September 7, 2011 at 4:17pm — No Comments

Everyday is a new beginning

I've read just a few of the blogs this morning and it warms my heart. Shaved my head for the first time last night. So little hair left, felt I had to let it go. I've been mourning the loss and yet feeling great relief. I am me, with or without hair. I'm in a 12 Step program that has taught me so much about love and support and now with Alopeica World I have that same support to deal with this disease. I attend my first Alopecia support group this month and I'm very excited about that. This is… Continue

Added by Rose on September 7, 2011 at 11:00am — 4 Comments

Any positive stories here?

Hi,

I discovered I have alopecia about a month back. I have 4-5 patches on my scalp. 2-3 of them pretty big (1-1.5 inches diameter). I've had one steroid shot 3 weeks back and due another one tomorrow.

I'm new to this, can anyone share their experiences who've been cured? How long does it generally take? Do I have any hope at all?

Added by Nachiketa Sanyal on September 7, 2011 at 10:37am — 5 Comments

Sometimes I wonder...

What difference the internet and a site like this one would have made on my Alopecia journey in '95. I know there was internet by then, but it was only in its infancy. The term "blog" hadn't even been coined in 1995 I don't think. I was so alone. I am just so glad we have this resource now, and ironic that it is sponsored by wig ads. lol, just sayin'...

Added by Laura Adams on September 7, 2011 at 1:53am — No Comments

Senior year

This is my senior year and i wear a wig. alot of people know because i dont let people get me i will walk into a store with out my wigg and watch people stare at me. I live in a small town so everyone talks. In Vermont Alopecia is not comon at all because we will do anything for one another in a time of need but everyone talks so if you have it you dont talk about it or if u dont have it you dont take the time to concider the people who have it. i wish i knew someone who lived near me who had… Continue

Added by Katelyn Mariie on September 6, 2011 at 5:00pm — 4 Comments

The holiday

Last week I went on holiday. A week in the sun with old friends seemed perfect, and thousands of miles from home I felt truly relaxed for the first time in ages.

On the way to the airport I'd made a decision - that I wasn't going to look at my bald patch at all during the holiday. Since my alopecia started, a few months ago, I have been obsessively checking it in the mirror almost every evening, watching the borders of the patch spread across the back of my head, and photographing it to… Continue

Added by AJ on September 6, 2011 at 2:42pm — 2 Comments

Spreading Awareness One Step At A Time

I'm thrilled that the courier Post a New Jersey newspaper has run a feature in their health/wellness section in today's newspaper about Alopecia.



I contacted them in the hopes they'd do a piece talking about alopecia and the Musician's Alopecia Project Benefit I organized raising funds for the Children's Alopecia Project taking place September 16, 2011 at World Cafe Live! in Philadelphia.



I'm very excited they did such a great job on the piece. As well, the Honorable Mayor… Continue

Added by Lili Añel (aka Eulalia) on September 5, 2011 at 12:30pm — No Comments

Winter coming

Can't gloss it over, the dreaded cold weather is coming and it can't come slow enough. I have aches and pains and the cold makes my asthma worse and just grrrr...I am a wimp. lol. True Floridian - below fifty AIN'T so nifty. Ha I crack me up. I do wear hats, wigs, etc. merely for warmth during Dec-March. Thank goodness that's when it begins warming up again.

Maybe because it was winter when my hair fell out...Jan 10-March 30 approx. Maybe that's made winter worse. Add in Sciatica plus bad… Continue

Added by Laura Adams on September 5, 2011 at 5:17am — 2 Comments

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