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Help?

I'm honestly tired of people around me saying "you're still pretty" The point is I don't feel that way. I don't even feel like me anymore. I feel so lonely. Just a few years ago i was 80lbs lighter, working out in the gym and had a full head of hair. Now i'm overweight, depressed and have to wear wigs to leave the house. I can't stand to look at myself in the mirror anymore. If i don't like myself how can anyone else? I had a boyfriend a few months ago but he didn't understand what i was going… Continue

Added by Jennybnkr on September 4, 2011 at 4:00pm — 2 Comments

Scalp Injections/HELP!

Hello!



Here is my alopecia story...



My hair started falling out in April... at first I thought it was from stress ( my dad had a stroke) but, we now found out it is alopecia. It is now September and my hair is still falling out. I got my first steriod injections 2 1/2 weeks ago and I am rubbing a liguid perscription on my spots at least twice a day. I am in my senior year of high school and this is really upsetting me. How long until I can expect some progress? In some… Continue

Added by Devon on September 3, 2011 at 10:55pm — 23 Comments

The end or the beginning?

Dear all,



It appears that 24 will be the most memorable birthday of my life. I have been growing out my hair since February and finally decided to "take the plunge" with a pixie cut. Truthfully, had my long term best friend not been in town, I probably never would have gotten myself into the salon in the first place.



Something amazing happened. Even now, I look back astonished at my actions. As my stylist (who has been with me through two wigs) came out into the waiting… Continue

Added by Jennifer on September 3, 2011 at 8:30pm — 2 Comments

Treatment Progress

I have been documenting my experiences with cortisone shots/prednisone treatments on my blog. I started them in May and have had some surprising results. Visit AmbersInnerMind.blogspot.com to read how it has been going.

Added by Amber W. on September 2, 2011 at 11:58am — 1 Comment

9/02/10 - 9/02/11

Today is exactley a year since I shaved my head. A year ago today I took control over something that I was letting control me and depress me. This year has been full of a LOT of downs...breaking my foot, vertigo, missing 3 months of work, and doctor bills coming out of everywhere, and losing my boyfriend of 3 years because he wasn't attracted to me without my hair. But out of all the bad I do have good...a loving family that is ALWAYS there for me and supports me, and a new amazing boyfriend… Continue

Added by Tamara on September 2, 2011 at 9:00am — 3 Comments

Now completely bald

A few months ago I posted pics of my hair growing back. Ha ha ha. It all fell out and now for the first time I am completely bald. Smooth as a baby's butt. Went to a new Derm and she told me that I could get shots (NO I HAD THEM AND THEY HURT AND THEY DID NOT WORK). Next she told me there was this pill that I forgot the name, but it had side effects like it could affect my liver, give me diabetes, affect my bones, and so on (NO THANK YOU VERY MUCH). So I am bald and bald I will be until the God… Continue

Added by zeida on September 1, 2011 at 4:46pm — 2 Comments

September is Alopecia Awareness Month!

What special activities do you have planned for Alopecia Awareness Month? Please be sure to list them on Alopecia World's events calendar. We also welcome you to make suggestions and discuss your plans in the comments section below.

Wishing you great joy and good success,

Cheryl Carvery-Jones & rj jones
Founders, Alopecia World

Added by Cheryl, Co-founder on September 1, 2011 at 12:00pm — 19 Comments

I'm just lucky, I guess!

Ok yesterday I was having issues with my hair system. (It is a glued on system that I have removed and glued back on every 4 weeks). Well, I had to go an extra week, and I was out of my touch up glue. I had to remove my hair system myself because it was going to come off if tried to sleep in it. My husband was in the restroom while I was dealing with this. Now you should know, I have been wearing this system for 8 months, and my husband had not seen me bald in awhile. He was so great it didn't… Continue

Added by Amber on August 31, 2011 at 9:30pm — 4 Comments

Not wanting to look at bald head

Hi Everyone:



I have noticed since I cut my hair to the scalp, I have avoided looking in the mirror to look at it closely. Except, when it is time to cut it again. I am so critical when looking at my scalp, I can see all my shiny spots and way the scalp looks sick. It caused me to feel depressed. I will say on the positive note, when I shaved my head on yesterday, it seems to be looking more even in texture. I lingered when looking in the mirror under the bathroom lights. I am not… Continue

Added by Ericka on August 31, 2011 at 11:02am — 2 Comments

New kind of happy

I will expound later

Added by Laura Adams on August 29, 2011 at 12:44am — 1 Comment

To all the kids going off to school

I just want to wish all the kids with alopecia heading off to school this week the very best and to encourage them to be strong, successful, and just be themselves. I wish them a wonderful support system at their schools from the faculty to their fellow students. For some it will be their first year going back dealing with hair loss, for others it might be going back with a new wig. Let's keep our little sisters and brothers in our thoughts and prayers and encourage them in whatever way we can.

Added by Rodeli on August 28, 2011 at 7:00pm — 1 Comment

My nightmare

In 08' I received radiation for a brain tumor I had. As a result I ended up with End scarring alopecia. Before going to the Dermatologist i tried EVERYTHING. Biotoin....Naproxen.....pills.....massaging my scalp. Once he took a biopsy and told me there was nothing i could do to make my hair come back i was devastated. Have been ever since. Currently i'm on Anti- Depressants because of this. I've spent thousands of dollars in wigs and head scarves. I just don't feel like "me" anymore. I know my… Continue

Added by Jennybnkr on August 27, 2011 at 5:00pm — 4 Comments

My story

Hi,



I'm new to the site. About 18 months to 2 years ago I noticed that my eyebrows were receding and I developed bald spots on my head. After about 6 months of this my chest, arms and legs were also becoming decreasingly hairy. It took over a year for all the hair on my head to fall out and I have now lost pretty much all body hair, including eyelashes.



I don't know anybody else with alopecia and feel whenever I talk to other people, though they are generally supportive, I… Continue

Added by Tom on August 27, 2011 at 10:26am — 5 Comments

A nice surprise

As some people know I was really worried about my trip to the new university, well mostly because of my looks. I'm really glad that people accepted me and now I have a couple of friends with whom I share my interests.There was a couple of questions - "why did you cut your beautiful hair?", but they seem to understand and no one is bothered by my half bald head:D (p.s I really have to go shave) Still I was hoping to see someone with this illness, someone who could truly understand me, or just to… Continue

Added by Calipso on August 26, 2011 at 3:47am — 3 Comments

Mourning Long Hair?





I saw the Disney movie about Rapunzel called Tangled this week. Seems to me this is your typical comment on the Society of Hair: girl entraps guy with long blond hair; mother gains feelings of youth and status by using the daughter's hair for her own ends; long hair trips up girl on the Road to Progress, Freedom and Learning; and girl becomes her own true… Continue

Added by Tallgirl on August 25, 2011 at 4:00pm — No Comments

Not a good week

As I near my one year shaviversary my depression has come back. Normally I let my hair loss just roll off my back. For some reason this month I just can't. I'm mad, scared, pissed off, and generally uneasy this month.



Maybe because my boys birthday's were this month. My youngest turned 2 and my oldest turned 5 and started Kindergarten. I live for my boys and dont really have time for myself, but I have decided that it is time to go forward with having a wig made for me. I'm tired of… Continue

Added by Julia S on August 24, 2011 at 10:42am — 4 Comments

We are evolved

".. baldness relates to a super sensitivity of the hair roots to the hormone (DHT)..It’s a problem common.. to members of the primate family, and has been referred to anthropologically as a sign of “social maturity” that might have aided the human species evolutionarily."TPJ

Added by Colleen on August 23, 2011 at 7:30pm — 2 Comments

Another privacy tip: Change your profile URL

Dear Member,

In the past we have shared the following privacy tips with you via email as well as on Alopecia World's official blog:

* How to Keep Safe and Protect Your Privacy

http://www.alopeciaworld.com/profiles/blogs/keeping-safe-and-protecting

* How to Protect Your Email Address…

Continue

Added by Alopecia World on August 23, 2011 at 5:00pm — No Comments

Still Happy

Hi my name is Sophie I am 26 years old and found out that I have Alopecia, It was hard to hear at first my doctor was telling me all about the treatment that I could have but I couldn't hear what he was saying it was hard to get my head around this. After getting the news I went home and told my husband then family although they were saying that everything was going to be ok I just counldn't stop myself thinking about losing my hair I started out with having a large patch about 6 cm across and… Continue

Added by Sophie on August 23, 2011 at 4:49am — 1 Comment

It started 8 years ago....

My brother was staying with me for awhile when he was 14. I noticed him getting a bald spot on his thick full head of hair. I didn't think anything of it I thought he was pulling his hair out of his head from a nervous habit but turns out it was beginning of alopecia. He was just starting to get depressed about that situation when my husband and I decided to buy him a guitar. He would play for hours on his guitar in the basement. It was a good outlet for him when he was down. Shortly after that… Continue

Added by Jimmy/I See Stars/Sister on August 23, 2011 at 1:05am — No Comments

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