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Losing my eyebrows

I lost most of my hair end of February beginning of March of this year, 2011. In the past month I have begun to lose my eyebrows. I am losing them at break-neck speed. Its incredible. When I go out,when I have a gig (I'm a musician) I have to beef them up, pencil/draw in.



I'm finding it incredible how fast they're going. Anyone out there have any info on if they grow back? I didn't think I'd lose them because they stayed intact. All part of the disease. I've learned to pencil in well… Continue

Added by Lili Añel (aka Eulalia) on September 26, 2011 at 2:00pm — 2 Comments

Regrowth and wigs

Anyone out there wear a freedom wig or vacuum piece that still has hair to shave? I would love to wear something that I don't have to glue/tape but am worried that regrowth will compromise the vacuum.

Added by Beemarie on September 26, 2011 at 11:00am — 2 Comments

I'm not alone

A few days ago, I confided in the members of my fellow worship team at church about my Alopecia, and they could not have been more supportive. What really touched my heart so deeply was how God managed to take care of the things that concerned me the most, people's reactions. The worship leader of the church instructed the members of the choir that if anyone in the church asks what is wrong with me, they should respond, "God is healing her", and that nothing else should be mentioned. Everyone… Continue

Added by Elizabeth on September 24, 2011 at 11:30pm — No Comments

A thank you to Paula Young

Thanks for finally making a wig with some nice length to it in a PETITE cap size. The Chantel is SO my new favorite hair!! Frames my face well, I think.
Chantel Wig

Added by Laura Adams on September 24, 2011 at 1:09am — No Comments

Trusting in God

A few days ago, as I was combing my hair, tears started to fill my eyes, because I saw the strands of hair again, getting tangled up in my comb, and also littering my bedroom floor. It's hard not to get angry at even my hair strands for falling out. My hair piece gets the best treatment, I lovingly run my fingers through it's strands, while my God given hair, get's tossed around, without any attention. I have realized that I've let Alopecia make me a bitter woman. A friend of mine, while I was… Continue

Added by Elizabeth on September 23, 2011 at 10:30pm — 8 Comments

Finally shaved my head

It has been several years since I posted. I check in once a month because it reminds me that I am not alone. I have worn wigs or weaves full time for the last two to three years. I finally shaved my head today and that is why I am posting. It feels freeing but I am not ready to let the world see me like this and don't know that I ever will. Even though I have come along way I am not there yet. I must say that I am grateful that there are so many options for women with this condition. I have… Continue

Added by Diane Holland on September 23, 2011 at 10:00pm — 2 Comments

Your opinion of support groups

Do you think support groups are helpful and what do you expect of them?

Added by PC on September 23, 2011 at 1:00am — 2 Comments

Alopecia and surgery

Hi, I’m Diane. Well, I’m slowly coming to terms with my Alopecia. I have Alopecia Areata with 3 bald spots. I’ve decided that I will probably never be able to accept going bald and I will never be one of you brave woman that go without a wig. I could never see myself as pretty or beautiful without my hair! My best friends and I used to joke all the time about me being vain and about how my hair always had to look perfect (even in a rainstorm or water park LOL). Now I would be happy to have a… Continue

Added by FANCY1024 on September 22, 2011 at 10:30pm — 6 Comments

Thank you, Alopecia World!

Just when I think I'm getting somewhere - that I'm ok with this losing hair malarky, I'm over being upset, life goes on, I've accepted it now, etc etc - it seems another bout of anguish comes from no where!

I hadn't cried for ages - even when I realised just recently that during my blissful mini break from obsessive daily checking (while I'd happily convinced myself that having just one bald patch meant I must only have a mild case of alopecia, and therefore it would all be over and… Continue

Added by AJ on September 22, 2011 at 7:30pm — 6 Comments

The morale is not any more there

Today I am bad, both months, a new disease adds in the others, since June it is a sarcoidose and the syndrome of laufgren I have not realized my alopecia, then the other disease yet moreover, I cannot it any more, my morale is in zero, I find help(assistant) or nobody who is in the same situation as me how make you? To have the air(sight) so happy in spite of the disease:-(

Added by coccinelle on September 22, 2011 at 8:16am — No Comments

My experiences with Alopecia

I'm a 24 yr old Indian guy with AA. It's been 2.5 months since I discovered and frankly it's been hell.

I'm a part-time writer (besides being a software engineer in Bangalore) and writing about my experience with alopecia has been almost therapeutic.

Here's my blog.. Comments and feedback are very much welcome.. :)

http://alopecia-anonymous.blogspot.com/

Added by Nachiketa Sanyal on September 22, 2011 at 8:06am — 5 Comments

Mohawk!

Hello! I have alopecia areata and right now what's left of my hair is a sort of mohawk!
I am curious though, have any other alopecians experienced hair loss like me? It started around my ears and gradually progressed upwards and around the back.

Added by Amy on September 22, 2011 at 5:30am — 3 Comments

The Bald Man and the Fly

THERE was once a bald man who sat down after work on a hot summer's day. A fly came up and kept buzzing about his bald pate, and stinging him from time to time. The man aimed a blow at his little enemy, but — whack — his palm came on his head instead. Again the fly tormented him, but this time the man was wiser and said:

"You will only injure yourself if you take notice of despicable enemies."

SOURCE: Æsop.(Sixth century B.C.)…

Continue

Added by rj, Co-founder on September 22, 2011 at 4:30am — 1 Comment

Becoming transparent

Today I took a big step, in my battle with self esteem, something that Androgenetic Alopecia has robbed me of having...I went to choir practice and I left my wig( Hannah, I name everything, lol)at home. I did this, because I wanted to give the Devil notice that my wig and my Alopecia, does not dictate the person that I am. Let me explain...Ever since I purchased my wig 2-3 years ago, it has been my life support. I have used it as a crutch. I have allowed the wig to have power over my thoughts… Continue

Added by Elizabeth on September 22, 2011 at 12:00am — 4 Comments

It's something you need to hear

I am continually impressed by members' willingness to share their struggles, triumphs and insights -- especially since it takes real courage not only to reach out for help, but to also reach back with help.

I see this all the time in Alopecia World and, trust me, I realize as much as anyone that it's this very kind of openness that makes our beloved community so strong and appealing to alopecians from all over the world.

I could never thank each of you enough…

Continue

Added by rj, Co-founder on September 21, 2011 at 8:30pm — 9 Comments

New 'Quick Add' Feature

Dear Member,

Thanks to new feature called "Quick Add," you can now update your status and post other new content from any page on Alopecia World.

To do so, you only need to click the plus sign (+) next to the "Share" button in the "Latest Activity" feed that now appears on every page of the site.

You can quickly post status updates as well as new blogs, photos, videos, discussions, events, and music.

Add a check to the Facebook or Twitter box to notify your…

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Added by Alopecia World on September 21, 2011 at 4:30pm — No Comments

Healing room

Yesterday I was on the bus to work. A bald woman got on the bus and I immediately wanted to go talk to her and ask her how shes dealing with the hair loss and if she wanted to go to the healing rooms ( to get prayed for, for healing) I said "hi, I was wondering, do you have alopecia like me"? She said "no, I'm going through chemo". I felt so terrible. I'm just bald and healthy but she is bald because she has cancer and is going through chemo. I felt absolutely terrible. I then encouraged her to… Continue

Added by Alexis on September 21, 2011 at 1:30pm — 2 Comments

My beloved niece: A gift of baldness

One of my young nieces has a very hard time with the fact that I don't have hair. One day she asked me, "Do you think that you are pretty and you have no hair?" I responded, "No, I know that I'm pretty!" She just walked away.

A few days later, her mother told me that they were riding in the car and my niece emphatically stated, "Mama can you believe that Auntie Jacqui thinks that she is pretty with no hair!"

So the next time I saw my niece, I told her that everywhere I go people walk… Continue

Added by Jacqui on September 21, 2011 at 9:30am — 5 Comments

One in a million!

I get stares everywhere I go. It really bothered me before. But now I embrace it, maybe I like the attention. I also like to let people know about AA because the more people know about it, the more chances a cure will be found. I realized each one of us is literally one in a million and we should not hide it, but be proud of it. I have AA and I sometimes do want my eyebrows and eyelashes back, but if not for AA I wouldn't have what I have now. A beautiful girlfriend that loves me no matter what… Continue

Added by Alex on September 21, 2011 at 4:27am — 1 Comment

Her words were like daggers

I remember sitting in my biology class in high school, front row(Being the teacher's pet I was, always busy taking notes) trying to impress my crush, my teacher, Mr.Suruj. I remember it like it was yesterday, because this was when I really became aware, that others had caught on to my Alopecia. I had my hair in a ponytail, with my ever growing bangs hanging at the side of my face. So there I was, looking studious as ever, with my eyes engrossed in my textbook reading about the Amebas and the… Continue

Added by Elizabeth on September 20, 2011 at 5:00pm — 4 Comments

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