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Love is not a follicle thing

When my boyfriend and I started dating, he nicknamed me ‘Blondie’ and told me he loved my hair.

Three months into the relationship, I discovered my first bald patch. It didn’t even occur to me not to tell him - I rang him in a panic, blurting that my hair was falling out.

He knows more than anyone how important hair can be - he adores his wild mop of curls and spends a small fortune on products. After listening to me freaking out, he gave me a hug and accompanied me to the… Continue

Added by AJ on October 4, 2011 at 5:00pm — 9 Comments

Change hurts. Birth was painful too

Just an introduction blog. I was a bald baby! Haha. My mother said that when I was a new born, I looked her right in the eyes, that the expression in my eyes looked "adult". She used to tell me that she thought I was switched with a fairy baby or was an alien in another life, lol... in fact, she claimed that she once had a crazy lady (who thought she was a psychic, or vice versa) tell her that I was an alien in a past life, from another planet. She always told me this with an added touch of… Continue

Added by Lili on October 3, 2011 at 10:00pm — 10 Comments

Making Strides Against Breast Cancer

http://main.acsevents.org/site/TR/MakingStridesAgainstBreastCancer/MSABCFY12California?px=3056045&pg=personal&fr_id=35954&pg=personal&fr_id=">My Making Strides Page







Hi there -



I know you’re busy so I’ll keep… Continue

Added by jennifer on October 3, 2011 at 12:49am — 3 Comments

Tell tale signs

hi everyone,i was wondering if i could get some advice from your stories about AA when the patches started forming.
i have 2 patches just fully grown and 2 new patches which are completely bald, but before my hair falls out i have tenderness on that area of the scalp as if iv had my hair in a tight ponytail all day.......anyone else have any signs that their hair was about to fall out?

Added by laura on October 2, 2011 at 1:30pm — 5 Comments

We shaved our heads and had a party and it was lovely

Hello beautiful people - so my youngest son and I had our heads shaved yesterday for Alopecia UK and More-2-Life - we raised £2832 - and we had a really great party.… Continue

Added by mabaker on October 1, 2011 at 8:30pm — 2 Comments

The lady that sits next to me!

To the lady that sits next to me on the bus,I would have never known if you hadn't opened up. I'm sure that it was not easy for you to do. I must tell you, you're closer today than you were yesterday, just the fact that you was able to say"I have Alopecia too". Alopecia is not always an easy subject for those of us who has not find the Freedom of being without hair vs being with hair. I too was once in a world of fear,but thank God I'm Free at last. My prays is for you and everyone else to one… Continue

Added by lovelyjan on October 1, 2011 at 8:00pm — 2 Comments

Sick of it!

I am so sick and tired of being depressed. I have had Alopecia Universalis of 11 years now and I am still morning the loss of the old person I used to be. I was finally coming to terms about being bald and my neice had an alopecia scare. She woke up with a huge bald spot on the top of her head. My brother and sister in law were mortified. Everyone was so worried. They took her to Texas childrens hospital to see the dermatologist and they said it was a scalp infection. I was so happy to hear… Continue

Added by Brianne on October 1, 2011 at 12:00pm — 11 Comments

We are Truva Beauty

Hi my name is Troy Mitchell and i am the owner of Truva Beauty. I have been making wigs for 30 years now and over those years a number of my friends and clients have had alopecia. Get to know us by meeting us and a few of our clients at www.youtube.com/truvabeauty. Between our Alopecia clients and our cancer patients we have learned alot about how to be supporters to women going through these types of struggles. We want you to feel good every… Continue

Added by Troy Mitchell on October 1, 2011 at 9:00am — No Comments

The beast is growing





Hey...



So, I can't decide if I'm happy that I haven't lost all of my hair yet, or if I wish it would just all fall out. Which would you prefer?



People stare... they probably don't mean anything by it, but it affects me. My doctor is so ambivalent about the whole issue; He just sorta looks at it every check up and is like "nothing to worry… Continue

Added by Joshua C. on October 1, 2011 at 3:30am — 2 Comments

In the arms of God, it's where I want to be, it's where I want to live, and spend eternity. I wanna hold his hands, cause He's the only man, that can hold the blue print of my life, in His hands.

In the arms of God, it's where I want to be, it's where I want to live, and spend eternity. I wanna hold his hands, cause He's the only man, that can hold the blue print of my life, in His hands.

Added by Elizabeth on October 1, 2011 at 2:41am — No Comments

Back to square one :/

I just need a bit of a vent!



I thought my hair was growing so well, not total regrowth, but at a fairly unnoticeable areate stage. But just lately it seems to be falling out everywhere!



I've booked to see a specialist at the hospital, but thats not until December!



I guess I more worried that now I have to tell people all over again, as Ive just moved back to uni, new people, new circumstances.



I don't want to be trapped in the 'hiding it' phase again,… Continue

Added by Lizzie on September 30, 2011 at 12:00pm — 4 Comments

Lost an eyebrow, but still gaining hair and painful lymph nodes

I was sitting at my desk on wednesday when I looked down and saw what I thought were a bunch of eyelashes on my desk... my eyelashes shed a lot, but they have never been completely missing. I grabbed my mirror out of my purse and saw that I lost half of my left eyebrow, on my work desk. I have NEVER had it happen that fast before. My hair on my head fell out in spots in months, not all at one time. But apparently I rubbed my eyebrow the wrong way, because it was right in front of me on my desk!… Continue

Added by Tamara on September 30, 2011 at 10:30am — 9 Comments

Optimism counts :)

Back in May, I had an incredible experience. I was selected as a representative of my school to apply to the Minerva Learn to Lead conference for 24 girls from around BC. I applied, and got it!

At the conference, we engaged in numerous leadership activities, but on the first night we were made to say one thing that had shaped us in the past ten years. We went around my table, and I honestly completely forgot about Alopecia. I came up with some other random thing I'd done, and didn't even… Continue

Added by Heather on September 30, 2011 at 1:30am — 1 Comment

Paranoid much?

I went to church today for choir rehearsal, and once again I left Hannah the wig at home, I wore a beautiful "I love Jesus" scarf instead. One of the members who has no idea about my Alopecia, was staring at my head. I nearly had a heart attack, because I thought he was able to notice my Alopecia, because my scarf was practically hugging my scalp, it was so tight. He then said to me, you have a pretty scarf, and I jumped back as he said it, because he reached over to touch it. I don't know why,… Continue

Added by Elizabeth on September 28, 2011 at 11:36pm — 9 Comments

Blogging?!

Bahaha I'm new at this.... So i'll just start being awesome. As per usual.



first off, I had an awesome day, and I got to see my bestie, whose an upperclassman. Fail. Yee, I'm a Freshman. So much fun, being in an enviourment where people ask you "OMGEE DO YEW HAZ TEH CANCURZ?" My response is usually no, but when I'm feeling extra-sassy, I usually respond with "no, a bunch of freaking unicorns took my hair to purify the world. Derp." And the preppy idiots just bounce off like the… Continue

Added by YuuriBoo on September 28, 2011 at 5:27pm — No Comments

Mother Nature

As a young girl, I was robbed of a good childhood, as a young adult I was robbed of being a young adult having to fend for myself with bills, rent,job etc,then mother nature gave me this wonderful man who is now my husband, whom I adore, 3 beautiful children.

For the past few years Mother nature took my hair, leaving me going to crisis centers, came down with PTSD, social anxiety disorder,depression and feeling all alone.

Having been through all this i've learned to accept who I am,… Continue

Added by Lisa-Lynn Marini on September 28, 2011 at 7:22am — 2 Comments

Dear Diary - Day 1

Wednesday 28 September 2011

Dear Diary,



It has been great since i have been getting all the support i need form Mrs Careswell and Miss Ballentine. Im glad that some of my friends are learning to accept me for who i am.



3 Reasons why i like being bald.



1. I can take my wig off when it gets hot

2. I can have any type of hair i want

3. It has changed me.



Im scared that i will never get a boyfriend because of my wig. I think that no one… Continue

Added by Lucky1000 on September 28, 2011 at 12:52am — 5 Comments

Face control

So I almost got denied entrance to a club in Russia the other day because of a thing called face control. I've got 3 girls with me, diamonds on my wrist, dressed to the T with a US passport. The bouncer takes one look at me and says sorry buddy I can't let you in because of FACE CONTROL. After he realized the girls weren't coming in without me, and a harsh look from my girlfriend to some other people sitting there, probably the admins. They waved me into the club. What a putz, the bouncer was.… Continue

Added by Alex on September 27, 2011 at 5:30pm — 5 Comments

Stress?

hi im new on this site,i came across it by accident while googling alopicia. iv developed alopicia areata while i was halfway through my 3rd pregnancy,the 2 patches fully grew back after a year but now im geting more patches appearing. i have had a pretty stressfull life over the last year or so and im wondering if the patches have came from the stress or if they just hapened to arrive at the same time.

has anyone else had alopicia that they think has arrived from stress directly? any… Continue

Added by laura on September 27, 2011 at 11:00am — 3 Comments

New to this!

Hello and WOW! I discovered this site purely by accident and have spent some time reading through so many brave peoples stories. My name is Leon , from Cape Town ,South Africa and am the only person (up and until now) who I knew had this curse/blessing.Well obviously I know others have it but have never heard or read their stories.So thank you for this place to share. I refer to it as both blessing and curse because while it surely did affect me as a child ( since 13) and I had to fight my way… Continue

Added by LeonJ on September 27, 2011 at 8:30am — 2 Comments

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