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Oh My God!

I've been altering my life bit by bit since I got alopecia. First, it was no meat or dairy ,then no gluten or eggs, excercising everday too.

Just recently I went off the birth control pill the doctor prescribed to regulate some girl troubles. I went through some terrible withdrawl from having virtually no hormones, and now things have gotten better. So good infact I've gotten some regrowth, Small patches of sparse hair. That hair wasn't there before, I'm sure of it.

I'm not getting… Continue

Added by Amber Lounder on February 3, 2009 at 1:24pm — 3 Comments

Random Meeting

So i headed to Las Vegas for the super bowl and UFC fight this weekend. And one of my friends got us in a club at a diffrent hotel. So we are dancing having fun and i see this bald head in the crowd. I see them all the time but this was for sure a alopecia bald head. I was like cool some one else with alopecia is here. a little but later i see him again and i'm like wait i this face but wasnt sure why. Then ding he regonizes me too. I knew him from the NAAF conference in DC 2 years ago. We sat… Continue

Added by Jennifer on February 2, 2009 at 8:35am — No Comments

steroid creams: good or evil?

So. I'm turning 20 in two days.

a few weeks ago i thought my hair stopped falling out around the patch, finally..

i was stoked!

but i guess i was terribly wrong... the last few days it's been falling out around the bottom like crazy!



i decided to stop using the fluocionide steroid cream... i have a gut feeling that it may be the cause.

i haven't developed any new patches or thinning... but what's next? what's the score here? when is my hair gonna stop falling out?… Continue

Added by tat on February 1, 2009 at 2:11pm — 2 Comments

A lot going on

I don't know if it's a blessing or a bad thing, but over the last several months, I've kinda' put my alopecia in the back of my mind (as much as I could) to focus on the holidays and work... And a bout of stomach flu.

I just haven't had much time to sit and do anything but work.


I got a new wig from Revlon, and I LOVE. It. I'll post pictures soon, I promise.

Added by Stephanie on January 31, 2009 at 1:55pm — No Comments

New Dermatologist :-)

I went yesterday to a new derm due to ins changes. I like her, and she said this: my 2nd spot will probably respond well to treatment since the other one is almost completely grown back (it's about 4 inches long). She said she is giving me a new cream/gel which is a Category 2 on the strong scale, my other cream she said was like a 6 (1 being the best). She also said that due to my age of onset and the circumstances surrounding the hair loss, it is highly unlikely I will lose all of my hair. So… Continue

Added by Amy on January 31, 2009 at 1:14pm — No Comments

New to Alopecia World!!

Hi Everyone...

I'm new to alopecia world and I'm open to making new friends and hearing everyone's story...Add me as a friend...I would love to share my journey with alopecia with you all....!!!

Added by Montoya Grant on January 30, 2009 at 10:24pm — 3 Comments

Bathroom crying

Today was I really great hair day. Otherwise not so good.



Came to school where I have work-practice on the schools TV-station. All the editing rooms were taken, the girl who is suppose to help me with the things we filmed didn’t want to and I had a Italian test that went really bad. Nothing was going smoothly and in the middle of it I started to think back to high school and probably one of the worst things that happened there. And I feel I have to get it out… Continue

Added by Johanna on January 30, 2009 at 11:57am — 3 Comments

a little about my life!!

Firstly I just want to say, this is an awesome site! Wish I would have found it much sooner!



anyhow........

I don't know what its like to have ever had hair. My parents have told me, that I did have some hair when I was born. Apparently, I was nearly 7 weeks early when I made my splash into the world. Shortly afterwards the doctor came to my parents room and said we need to talk.

Ofcourse with that statement, my parents were terrified. The doctor explained that I have some… Continue

Added by Theresa on January 29, 2009 at 10:05am — 4 Comments

A new start

Wow. I googled my disease and found this community, full of people going trough things I've experienced too. I've never met someone who been diagnosed with alopecia, I've never met a person who actually heard of it before! Exept for the doctor I went to when I was thritheen and wondering what the h*ll was going on with my hair.



In the spring 2003 my friend was going to braid my hair during an artclass and found a naked spot above my left ear. The feeling under my… Continue

Added by Johanna on January 29, 2009 at 8:00am — 2 Comments

Good News Maybe

I had mentioned before that I had Alopecia as a child and had complete regrowth until I was 30 years old. Well as a child my mom had taken me to a tricologist and she was able to help me. Since then she (the tricologist ) has passed away. Since this has all happened to me again, I have found that her son has continued her business, not exactly in the same fashion, but for the most part. Anyway, I looked him up and talked to him for a while, I sent them some bloodwork and talked to him today, he… Continue

Added by Jamie on January 29, 2009 at 1:49am — 6 Comments

Normal Teen

I am a teen suffering alopecia areata. I almost try to live a normal life.even though i suffer AA my friends except me so does my boyfriend.he just cares that i don't have an asthma attack because i also suffer from chronic asthma .but for teens who does have alopecia its okay people will like you for who you are.
Kids who have AA or different alopecia should be proud of who they are.

Added by Aja Eliazar on January 28, 2009 at 5:30pm — No Comments

a friendly alopecia scenario

Hey all,

In my posts I wrote about how my hair is coming back. However, right now I'm as bald as can be! All of the hair growing progress is gone.

Its a relief to not have patches to shave off anymore. Its official... I enjoy being bald more so than having hair.





The Story:

Yesterday, my professor, fellow students, and I were waiting in the hallway for a classroom to open up. My professor made a comment about nicely groomed eyebrows. I explained that I drew them… Continue

Added by Stacie Duda on January 28, 2009 at 4:48pm — 2 Comments

Bald is BEAUTIFUL!!

I'm so proud of my Jessica and how well she is handling loosing her hair. I'm thankful that the process has been slow (allowing her time to slowly adjust), that she has this place to come to see photos of beautiful people so she isn't feeling so alone, and that she's completely healthy! As problems go in this world I'll take ALOPECIA any day of the year.

Added by KIM - Jessica's Mom on January 27, 2009 at 3:33pm — 5 Comments

Poem.

Yesterday i found what looks to me like a new spot ..after months of not having any!:(

This is a poem i wrote about Alopecia i apologize if it is a bit depressing.

here it goes...

Back to Before



Just as my life began to feel whole again there you came trampling back in.



How am i suppose to have faith or even believe? When it is you that can make every bit of happiness leave.



The fear you evoke my mind you provoke. How my heart fell to the floor.… Continue

Added by Lacey on January 27, 2009 at 9:58am — 8 Comments

Bald at last!

Here's something interesting... before I shaved my head, I had thought that the moment that I finally did it, I would come scurrying over to Alopecia World and post pictures and try to get support from everyone. But something strange happened... I found I didn't need the support.



With the advice of my mom, I did the head shave in steps. First, I got my mom to cut off my pony tail (I saved it so I could match my wig to it) and lived with that short hair for a week or so. I went to… Continue

Added by Christine on January 27, 2009 at 12:30am — 13 Comments

People are so ignorant

So I went out on Saturday night with some girlfriends. We had dinner and then went to go see a band we like. I'm having a good time minding my own business following my friend through the crowd to the dance floor when someone pulled my hair. (By the way I wear a wig) This was no accident, it was obvious someone grabbed a handful and jerked my head backwards. I immediately turn around to two guys standing behind me and asked, "Who did that and what is your @#*%ing problem?" They are both… Continue

Added by Jill on January 26, 2009 at 11:54pm — 10 Comments

Still Bald and All is Well

I am a member of many organizations and sit on the board of several non-profits in my community. I am taking the time at each meeting to discuss my...well...baldness. Everyone loves my wig, and so comments are always made about my "great new hair." That's the perfect time to mention that while it IS my hair (bought and paid for, thank you very much) it isn't exactly MY hair in the true sense of the phrase.



I explain what alopecia is, what little is known about its origins, treatments… Continue

Added by Nants the Rebellion Dog on January 26, 2009 at 3:12pm — 1 Comment

Afraid to face reality

A while back I was wondering about getting a wig instead of getting a weave again. Well, I got the weave again still cant wrap my mind around the wig. I am thinking that this will be my last time getting the weave and I will start to wear scarves because I really really really dont want to wear a wig.



The last time I looked in the mirror I saw that my hair line in the front looks splotchy like really small dots of scalp instead of hair so I guess I am losing more.

I was sure… Continue

Added by Tamara Dixon on January 25, 2009 at 4:15pm — 5 Comments

Tibetan folk tale: The Story of the Bald-Headed Man

One time, when the world was young and men and women were ill because an evil spirit possessed them, there lived a man and his wife who were very poor. A devil came and took possession of each of them and made them both sick. As they were not rich, they could not invite a holy lama to read prayers for them, so invited a lay-brother in his stead. After a while, the man who was reading began to get very hungry. It was the custom to give the priests the best of food, but this man and his wife had… Continue

Added by rj, Co-founder on January 25, 2009 at 7:00am — No Comments

New privacy options on Alopecia World

Dear Member,

Starting today, you have the option of setting your Alopecia World profile to private.

When you do so, only members of Alopecia World or just the people on your friends list will be able to view your entire profile.

Please note that everyone, including non-members, will still be able to view your main profile photo, name, age, city, state and country. However, they will not be able to see the rest of your profile if you have made it accessible only to…

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Added by Alopecia World on January 23, 2009 at 12:00am — No Comments

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