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AA history /Writing it down

Wow - This was hard and at the same time soothing. IT made me re-think of where I was and how I got to where I am now. ( yes- even made me re-think the bad times too)

My dates may still be fuzzy for I went thru several depressed states and try not to remember some things....



Bear with me --

Thought I would post it here as well as putting it with the VERY extensive paperwork for the MD. Anderson Research… Continue

Added by Billie on August 3, 2010 at 1:59pm — 3 Comments

Salon

My best friend's sister is a Manager of a hair salon. I went there the other day so that she could trim the bangs on a new wig that I ordered online. Thank goodness it was empty that day. It got me thinking how I miss going to a hair salon. I didn't go that often when I had hair, but when I did go, it was a treat. First, where I went, they gave you a mimosa or a glass of wine... what girl wouldn't like that. Lol. I loved when they would wash your hair and give you a little scalp massage. It… Continue

Added by Alliegator on August 3, 2010 at 10:33am — 4 Comments

Dotty's Inspirational/Motivational Reflection

May you enjoy all the streams of Love that flow into your life;

The Love from family and friends;

The Love from parents and children;

The Love from pets

and the Love from God.

Celebrate Love all day long.

For it is the breath of your existence,

and the best of all reasons for living.

Added by Dotty on August 3, 2010 at 12:50am — No Comments

Love after Love

The time will come



when, with elation,



you will greet yourself arriving



at your own door, in your own mirror,



and each will smile at the other's welcome,





and say, sit here. Eat.



You will love again the stranger who was your self.



Give wine. Give bread. Give back your heart



to itself, to the stranger who has loved you





all your life, whom you ignored



for another, who knows you… Continue

Added by Ade on August 2, 2010 at 3:54pm — 5 Comments

eBay hair

ok... has anyone bought any wigs or know any sellers on ebay?? Ive looked and seen a few nice ones on there,but Im sort of scared to buy them..hmm>.............................



gena,

Added by Gena King on August 1, 2010 at 11:05pm — 7 Comments

Dotty's Inspirational/Motivational Reflection

Be Thankful

By Unknown



Be thankful that you don't already have everything you desire.

If you did, what would there be to look forward to?

Be thankful when you don't know something,

for it gives you the opportunity to learn.



Be thankful for the difficult times.

During those times you grow.

Be thankful for your limitations,

because they give you opportunities for improvement.

Be thankful for each new challenge,

because it… Continue

Added by Dotty on August 1, 2010 at 4:16pm — No Comments

Friendship

Oh, the comfort!
The inexpressible comfort
Of feeling safe with a person,
Having neither to weigh thoughts
Nor measure words,
But pouring them all right out,
Chaff and grain together;
Certain that a faithful hand
Will take and sift them,
Keep what is worth keeping,
And with the breath of kindness,
Blow the rest away.

Added by Tallgirl on August 1, 2010 at 4:00pm — 5 Comments

Regrowth update

So...after round two of patches and bald spots..... Its growing in strong. I have both eye brows and eyelashes!!! Hooray! I even have to shave my legs again. (I could have kept that part hairless) I have even had two haircuts since then! Thank You Jesus that you are the God of the unlikely and the impossible!…



Continue

Added by Rachel on August 1, 2010 at 3:23pm — 3 Comments

Shopping for new wigs

I am shopping for a new wig. I tried the full lace as my first and have really enjoyed the very natural look of it. Most people can't even tell. I have no problem with telling anyone that it is a wig. They are so popular here in Atlanta that it's not surprising to see people wearing them in the Black Community.

I'm thinking about getting bangs since it will be easier to hide the hairline where it's easier to tell. Anyone have suggestions?

Added by Jessi on August 1, 2010 at 10:03am — 2 Comments

Wigging out

So i wear a wig to work.
But when im walking home ill take it off my head.
How surprised someone would be to see someone taking off their hair.
Consider them lucky for experiencing that.

Im looking for alternative for my head, wigs are fine but soooo iritating.
Im heading up to a cottage, what to wear? wraps make me look sickly...
suggestions?

Added by tash on July 31, 2010 at 1:30am — 3 Comments

Real Housewives of NYC: Jennifer Gilbert's son diagnosed with alopecia

This week Jennifer Gilbert wrote on Twitter, "My son is diagnosed with alopecia. A strange AI that causes his hair to fall out. We are devestated. Anyone know anything about it?"

I don't know her son's age or the type of alopecia he's experiencing, but I'm calling on the entire Alopecia World family to reach out to her.

Please let her know that you heard the news on AlopeciaWorld.com and that our beloved community…

Continue

Added by rj, Co-founder on July 30, 2010 at 8:30pm — 2 Comments

WIGS and trying to cover my head!

I have been trying to find a wig that I can afford that doesnt look horriable. I dont have money to spend on this kind of stuff, and Im tired of wearing bandanas and hats. My friend was going to give me one of hers but she can't find it. Any help would be great.

Added by Jeannie Terrel on July 30, 2010 at 6:14pm — 4 Comments

so will wearing hats and bandana add to the hair loss?? Am I just helping it along by covering my head all the time??? Idk just wondering.

so will wearing hats and bandana add to the hair loss?? Am I just helping it along by covering my head all the time??? Idk just wondering.

Added by amy on July 30, 2010 at 2:56am — 3 Comments

Is it time to tell everyone?

There have been waaay too many problems at my school with my wig. I've dealt with it for so long, and I'm caught between just telling my school about AU or continuing letting them point and whisper. I'm just...scared of the little monsters and what will come of me telling them. Should I?? I have asked several people, and the answer is almost always the same. "Just do whatever feels right for you." Here's the problem: Nothing feels right for me. If I tell my school, it could go 2 ways. I could… Continue

Added by Ellison Jane on July 29, 2010 at 5:31pm — 5 Comments

Three ladies, three different experiences with baldness

Yesterday I met and spoke to two women.



The first was a bald black woman in the library and when I asked if she had alopecia she responded that, no, she just liked the look. Thirteen years ago she shaved her head and continued to do so to this day. We spoke for a bit and exchanged shaving tips and our thoughts on living our lives as bald women.



Later on that even while grocery shopping a lady made eye contact with me and then asked if I have cancer. I told her about my… Continue

Added by Cheryl, Co-founder on July 29, 2010 at 1:30pm — 13 Comments

It's FREE - Promote your events on Alopecia World

If you know about any event that might be of interest to Alopecia World's thousands of members and visitors, please submit it here:

http://www.alopeciaworld.com/events/event/new

You may submit everything from support group meetings and special alopecia awareness projects to book signings and information about the upcoming release of documentaries and other media events.

All event listings are subject to approval…

Continue

Added by Alopecia World on July 28, 2010 at 11:30pm — No Comments

Irritated

I'm completely frustrated and irritated w/dismissive doc.

I have sudden swollen/red/painful warm fingers and toes (weird, right?). It freaked me out a bit, so I called my doc and the nurse suggested I be seen and have blood work done. The doc didn't' order anything, and had me make an appt. in six weeks. My last blood work was in March. Since this coincided w/another big shed, silly me . . . I thought maybe they were related. I think maybe there is a "crazy" label next to my name in their… Continue

Added by Lori on July 28, 2010 at 9:25pm — 3 Comments

Mean girls/Rude boys (men)

Anyone had any one of these incidents?? I am younger than my years, or was until my hair started falling out. That was 4/08. Maybe it was because I used to go to a club on Saturday nights..my baby fine hair did nothing, so I would always wear a cool blonde wig...it made me feel better about myself..until...maybe it was the alcohol too but women would "look" at me and I would see that they were talking about me, and then their friends would "look"..it made me feel self conscious. The time when… Continue

Added by Lexi on July 28, 2010 at 5:10pm — 13 Comments

Dating with FPB

I am single and really enjoy being single! However, I haven't figured out how to navigate dating and wearing wigs. I am a member of a local dating website and I had an interesting experience a few weeks ago. I met a guy on there and we started chatting. The pictures were down on the website so we emailed each other more pictures. I accidentally sent him one of me wearing a scarf. He asked if I had cancer. I said no, and told him about my situation. He said it was no big deal. I never heard from… Continue

Added by Alliegator on July 28, 2010 at 3:53pm — 5 Comments

Living with alopecia

I shared the post below at the beginning of the year on the UK Alopecia site. Was reading it again a few minutes ago. Wow, what a year it has been. 2010 has certainly been the year i finally made peace with living with Alopecia. I voluntarily left full time paid employment at the end of last year and decided i wanted to spend this year on a journey of self-inquiry, integration and rediscovery. What a journey, what a ride! I have finally learnt to love and accept myself unconditionally and…

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Added by Ade on July 28, 2010 at 3:30pm — 4 Comments

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