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My Girl

I am so glad I found Alopecia World. I know there are a lot of people with alopecia but to be honest my daughter and I have never met anyone in person. I think Carli has done well with it. I am not really sure why. I hope because I love her no matter what and never made her feel like she had to wear a wig or that she was different. Being bald is really the only thing she knows. It is hard to believe that this september 12 she will be bald for 11 years. She doesn't know anything different. Sure… Continue

Added by Kristin Kottwitz on July 13, 2010 at 2:30pm — 2 Comments

Dotty's Inspirational/Motivational Reflection

"Fear less, hope more; Whine less, breathe more; Talk less, say more; Hate less, love more; And all good things are yours."
Anonymous

Added by Dotty on July 13, 2010 at 1:37am — No Comments

July 17 th

I was hoping to find someone in the central florida area having an event, but haven't seen anything posted. I'd love to meet some other people in my area. If your out there and you want to get together email me at mamalc9949@hotmail.comthanks Linda

Added by linda carraway on July 12, 2010 at 6:40pm — 1 Comment

My ongoing journey

I guess it all started when I was 16 and had HORRIBLE acne and went to a dermatologist. While there, my mom pointed out a patch of hair that I lost right on the middle of my part, that was rather large. The doctor said it was Alopecia, and didnt go any further into it. Well the patch grew back (the acne slowly went away) and I went on with my life. Skip up to 2007, thats when life took some bad turns. I had always had a bad stomach, couldnt eat certain things, and spent more time at home than… Continue

Added by Tamara on July 12, 2010 at 12:38pm — 4 Comments

Summer! ♥

Hey everyone ! I hope you're having a great Summer ! I'm having a pretty good one .

On July 4th I turned 16 !!!! Wooo ! lol . My morning started out like this : I woke up to my mom and dad singing " Happy Birthday " to me . : ) My dad went to Mcdonalds earlier that morning & got me breakfast . I went into the kitchen , opened the bag & noticed a plastic bag .So I opened it up and seen that they got me a Tiara ! ( I always wanted one . lol ) After breakfast I got dressed & Me… Continue

Added by Mackenzie on July 12, 2010 at 12:30am — 2 Comments

Kayla's wig

Does anyone know what type of wig does Kayla wear? I heard it was human hair but I wonder when she bought it, it looks so real.

Added by Patricia Wilkinson on July 11, 2010 at 5:59pm — No Comments

I'm just saying

I know some of you ladies on this site are stressing lately over having that perfect man unconditionally love you with your alopecia. Don't forget, however, that YOU are still the princess, the woman, the jewel, the future mother to his children, his future companion, etc....and that there is more to consider than that one-hour initial revelation. HE may be a philanderer, addict, poor manager of time and resources, and so forth...so YOU should be the choosy one, not him! Chances are you have… Continue

Added by Tallgirl on July 10, 2010 at 1:30pm — 4 Comments

Me vs. Pain (physically, psychologically and emotionally)

Hi everyone! I’m charlotte and I'm 25 years old, I've been trying to write something about Alopecia Areata/Universalis in my life, but it’s like something is trying to get hold of me... like something is stopping me. But now, I’m fighting this thing by continuing what I want to do and that is to let it all out but it’s only for the Alopecia World. I'm still not ready to expose my hidden flaws. And I don’t know how to start and when and where to begin with. So here it is, the first time I've… Continue

Added by charlotte on July 10, 2010 at 3:30am — 3 Comments

I just found this site

I just found this site. I lost my hair in 1970...I still have good days and days when I cry . I have always felt alone and never understood. I hope I find a sisterhood and brotherhood of friends through my newest journey! I don't need hope, I need a hand.
Thanks.

Added by Anita Jeanette Schultz on July 10, 2010 at 1:19am — 5 Comments

Dotty's Inspirational/Motivational Reflection

Let me tell you something you already know. The world ain't all sunshine and rainbows. It is a very mean and nasty place and it will beat you to your knees and keep you there permanently if you let it. You, me, or nobody is gonna hit as hard as life. But it ain't how hard you hit; it's about how hard you can get hit, and keep moving forward. How much you can take, and keep moving forward. That's how winning is done. Now, if you know what you're worth, then go out and get what you're… Continue

Added by Dotty on July 9, 2010 at 6:10pm — No Comments

Hairpieces and airport security?

I have a friend that has alopecia areata (I have totalis). She wears a partial hairpiece that has metal clips that attach to her remaining hair. She is about to go on a flight. Has anyone had any experience with going thru the metal detector at an airport with metal clips in their hairpieces? She is terrified. Any ideas, suggestions, thoughts?

Added by BBWR on July 9, 2010 at 12:06pm — 3 Comments

Pregnancy and me

so i'm 32 weeks pregnant with a big healthy boy we are calling Eric.

it has been a pretty good pregnancy, my lupus has not been a problem and i've had some hair growth.

my ANA (anti nuclear antibodies) is a lot lower than it has ever been since having alopecia.



so i've had hair growth under my armpits, i have eye lashes again but not enough to wear mascara, a few eyebrow hairs. i have patches of hair on my head that has been growing well but i have been shaving it when it… Continue

Added by Alison on July 9, 2010 at 10:33am — 3 Comments

Trying to break my self-imposed silence

When I first discovered Alopecia World and joined our beloved community, it seemed as if I had so much to say that I couldn't stop blogging, commenting on various discussions, making new friends, comforting others, and generally trying to spread the message of awareness and education to alopecians and non-alopecians alike. I reveled in the fact that for the first time, I wasn't the only one that I could share my experiences with in dealing with this double-edged sword that is alopecia. I fell… Continue

Added by kastababy on July 9, 2010 at 3:33am — 6 Comments

Oral steroids and me

I've been on prednisolone for wow, nearly 4 and a 1/2 months. In a week, I'll be done with weaning off it! So far, i've experienced more than 90% of hair regrowth and while I admit it's rather exciting to see the hair, I know that I'll never know if it'll fall again once I stop the treatment.



Regardless, I've pretty much decided that I wouldn't do the oral steroid treatment again. Simply because of the side effects, I've gotten sleepless nights, upset stomachs, frequency of peeing, a… Continue

Added by Clara S. on July 8, 2010 at 9:42pm — 7 Comments

Can i dye my hair?

Hello, everyone! I am thinking about dying my hair a lighter color so the contrast of the spots and my dark hair is less noticable. Does anyone know if this is could be damaging and possibly cause more balding to occur?

Please tell me what you think!

Love lacey
xx

Added by Lacey on July 8, 2010 at 9:00pm — No Comments

My hair is beginning to grow back again. While I notice that I become happier and more outgoing when this happens I'm now not even wanting to deal with the whole regrowth. You know, the fine hair tha…

My hair is beginning to grow back again. While I notice that I become happier and more outgoing when this happens I'm now not even wanting to deal with the whole regrowth. You know, the fine hair that begins to come in that sometimes doesn't look all that nice for awhile yet you're so happy to get. I'm still kind of wanting to shave my hair off completely. It seems like it would feel so refreshing and like it would be such a release. Like, "There, it's gone. Now who cares if it falls out or… Continue

Added by elle on July 8, 2010 at 2:06am — No Comments

Advertising and Anti-Spam Policy for Members of Alopecia World

Effective immediately, Alopecia World's new advertising and anti-spam policy is as follows:

Alopecia World will not tolerate unauthorized advertising by any business, organization, or anyone affiliated with a business or organization in an official or unofficial capacity.

Every business and organization allowed to maintain a profile on Alopecia World must receive written authorization from Alopecia World before posting any advertisement or promotional material elsewhere on the…

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Added by Alopecia World on July 8, 2010 at 12:00am — No Comments

New job update :)

so i havent gotten to post for awhile... things have been crazy, plus ive been enjoying being a stay-at-home mom for awhile! lol... i started my new job yesterday & i absolutely LOVE it! my new boss is AWESOME... WAY better than that stupid BBBB! my new boss told me i can wear whatever i want on my head as long as im comfortable... thats the BEST! also, a lot of the people have come up and talked to me about them having cancer, or a loved one having cancer & losing their hair, so i feel… Continue

Added by Jennifer Easter on July 7, 2010 at 9:39pm — 8 Comments

Article in the New York Times

Thought I'd share this:

http://www.nytimes.com/2010/07/06/health/06voices.html?emc=eta1

Added by Mary on July 6, 2010 at 11:52am — 8 Comments

How do you find such an idea? \ Как вам такая идея ?

Hi everyone .. I want to share with you my idea. Maybe someone has already done a similar (Then write what were the results). Art therapy for children bald from chemotherapy - hold her bald from alopecia people ... To come to the children with paint, makeup, jewelry and scarves shlyapai. Pair, with the children to create drawings, images to make photo essay and the exhibition "Beauty is alive ".... How do you find such an idea?



Привет всем.. Хочу поделиться с вами своей идеей. Может… Continue

Added by Vinichuk Oksana on July 5, 2010 at 8:44am — 22 Comments

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