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My baby

well as most of you know my 8 year old has Alopecia and has for almost a year now. We have decided to stop treatments as they do work but hair just falls out in other places and falls out again in the regrowth, so whats the point. I just wanted to share that we have stopped obsessing over how to treat it and decided to just live with it.

Added by Tracy on February 27, 2009 at 5:39pm — 2 Comments

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Added by Alopecia World on February 27, 2009 at 2:30pm — No Comments

To speak or not to speak, that is the question!!!!!!

Yesterday as I was travelling back from London I stopped at a motorway service station for a coffee. As I stood in the queue another “Alopecian” joined the queue. It was clear that he noticed my Alopecia. It is obvious now that I am not just simply bald as my eyebrows have virtually all gone and so the alopecia is plain to see. He was also completely bald and had no eyebrows so I naturally assumed he was the same as I am, AU.



I was speaking to the person behind the counter but I… Continue

Added by Ray on February 27, 2009 at 12:00pm — 8 Comments

question on hair regrowth

when hair grows back in , does it always grow back in your natural color or white? Does it itch? My hair is growing back and i'm wondering for all of you out there who is going through the same thing is it normal?

Added by Nitza on February 27, 2009 at 11:24am — 6 Comments

Update today 2/26/09

Today I had my first apmt with my sons Endo since the MRI. Welllllllllll that dang nurse gave me the wrong information over the phone. My son in fact does have a tiny tiny tumor 3mmX3mm in size in his pituitary gland. This tiny little tumor is causing his hypothyroidism. The good thing is, no sugury is needed. The dr will re-do the Mri again in one year, unless bloods show it may have grown. Its a microadomena and usually these do not grow. It can in fact mess up his other endocrin organs, and… Continue

Added by Kelly on February 26, 2009 at 10:46pm — No Comments

alopecia areata.

Hi , my name is Katie and I am new to this site. I hope someone can help me deal with alopecia areata. I had one spot in November, the hair grew back. Now I have 2 spots the size of a half dollar. The dermatologist injected the spots about 5 weeks ago, hair continues to keep falling out of the same spots. Will go back to the dermatologist next Monday.

Added by Katie on February 25, 2009 at 6:45pm — 2 Comments

New to this World

I don't know what I'm really doing on this site or why at this point in my life I am so interested in this part of myself. I have been brought up to be proud of who I am and alopecia has never been a major factor in my life. I didn't get my first wig until I was 15 and they are more of a toy than anything else to me. I am still comfortable with who I am although I have encountered a lot of diversity through my life. I don't know why now I am so interested in others and this part of myself.… Continue

Added by Erica on February 25, 2009 at 3:32pm — No Comments

dear life, you're strange

I have an excessive urge to leave detroit. im trying to get a few weeks off work.. gonna bail to vegas and kick it with steve and then have jon pick me up and take me out to long beach, cali.

just... want...vacation ..



havnt thought much about my hair lately.. but im still shedding like crazy! but i have almost complete regrowth on my giant patch on the right side of my head. which is cool... cause i mean, it looks insane. i kind of enjoy looking at it. my friends reassure me… Continue

Added by tat on February 24, 2009 at 7:23pm — 3 Comments

Appearance questions

I have been looking at everyone's pictures and I am noticing that no one has a red scalp. I have been diagnosed with AA and my scalp is red and often feels tingly. Also, I haven't lost my hair all at once. It has been thinning for over a year now. The part that is frustrating is that I keep thinking that my hair is growing back b/c I have hair that is about an inch long around my face (it's like baby hair and it's kind of unmanageable), but as time has gone by I am realizing that my hairline is… Continue

Added by Cathy on February 24, 2009 at 7:00pm — 5 Comments

Shared Birthdays

I am Sagitarius November 29th. Just curious if anyone shares my day.

Added by JoDeanna on February 24, 2009 at 12:37pm — No Comments

Weaning work into accepting alopecia

I've been working at the same place for over 7 months now. For those of you who don't know, I endured wearing a wig during the interview process and for the first probationary three months. After three months I ditched the wig and at my managers suggestion that the "customers" would feel more comfortable with seeing something on my head, I donned a scarf or bandana. Since I've worn the scarf I noticed that people seemed to be more concerned that I was ill. I've been asked if I had cancer and… Continue

Added by Carol on February 23, 2009 at 3:13pm — 7 Comments

Back now...

Wow... i was MIA for a LOOONG time. My computer crashed and school has taken away my life... LOL anyway... i'm back.

:-) treatment seems to be working, maybe? I'm trying not to get my hopes up too much. My mom is already convinced that in the space of weeks I'll have all my hair back. I know that's not going to be the case, but I can't convince her of that. Oh well. :-(

Hang in there everyone, hopefully I'll be around more.
Reen

Added by Reen on February 23, 2009 at 12:40pm — No Comments

Stupid regrowth

Why can't my hair make up its mind?



I shaved my head about a year ago 'cos I was sick of having half long straggly hair, half bald head. I got a freedom wig which I love and wear almost all the time.



Then about 6 months ago, I stopped having to shave at all - which was nice.



Now I have more hair than I've had in a while - most of it is white fuzz but some is getting some colour back too. Part of me thinks, what if it all came back?! But realistically, I know… Continue

Added by Karina Louise on February 22, 2009 at 9:17pm — 9 Comments

break in

last night while asleep someone broke out back door and got my handbag and my hubbys wallet and phone

horrible dread is what i feel
all my ID, inc my birth cert
my business documents.
my mobile
my life in that stupid handbag in that stupid burglars hands!

the lack of control.. thats what bugs me
and my own stupidity. leaving my bag on the kitchen table, not backing up my flash drive

the what if's swirl around in my head... why me.

Added by Alison on February 21, 2009 at 9:20pm — 4 Comments

name-calling!

someone shouted "haha cue-ball" at me the other day....ggrrrrr.....

then today, some local idiot took the piss out of my hat.

I can't win! laughed at for being bald, laughed at for my hat. losers!!!

Added by Hayley Burton on February 21, 2009 at 7:51pm — 7 Comments

Eyebrow Tattoo...!

I'm getting my eyebrows tattooed in about two weeks and I just wanted to know what the experience is like...Does it Hurt? Is it uncomfortable?...I'm really excited about it my grandma and auntie are going to pay for it...its their birthday gift for me..I'll be 20 on 3/19! So if anyone can tell me what their experience was like or anyone that they may know experience was like please comment!

Added by Montoya Grant on February 21, 2009 at 3:31pm — 13 Comments

Today I cried

I read a story about a little girl in Mass. with Alopecia. Her cheerleading team and all the pop warner football team wore bandanas on their heads or a T on their helmets to support her during a fundraiser. One of the parents (a coach) and a player shaved their heads to support her.



I read this in the latest NAAF newsletter, and got teary-eyed. Then, I read it out loud to my husband and started sobbing. What an amazing group of people. It made me wish I had that kind of community… Continue

Added by Stephanie on February 21, 2009 at 3:14pm — 2 Comments

Well tomorrow has come and gone again...

I am still sad, stressed and depressed!

I am still confused, tired and hurt!



Sad, because I want to just hide under the covers of my sheets and sleep until my hair grows back!

And now reality has just struck… it may never grow back

I feel I can't go through another day like this…



Stressed because I have been trying to avoid going back to work,

I really do think it was the job and boss I had back in October

I blame him for all this has happening to… Continue

Added by Ursula on February 21, 2009 at 9:30am — 9 Comments

A woman's wig saves her life

Here is the link to this incredible story. Someone was shooting at this woman and the bullet was stopped by the cap to her wig. The bullet was tangeled in her hair. She said the back of her head felt hot but the bullet didn't go through.

http://www.fox2now.com/wdaf-hair-weave-bullet-story,0,3242409.story

Added by Jill on February 20, 2009 at 1:51pm — 3 Comments

Oh boy... definately need some help on this one guys...

It's only been just over a month since it's started falling out for the third time in 3ish years and almost all of it has disappeared. It surprisingly didn't hit me hard this time, suppose I'm getting used to the hair on my head falling out.



Now, this time is different from others though... very unfortunately. I am now blessed with losing my eyebrows and eyelashes... :( I am quite unhappy with that matter. They are falling out from the ends inward and inward to ends so it's starting… Continue

Added by Courtney on February 20, 2009 at 11:12am — 5 Comments

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