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San Francisco Venting

I spent the last six days in SF. My husband grew up there and we had an ... alright time. I felt like we spent hours just driving around and trying to make other people happy. I didn't notice anyone with alopecia. I did notice that not a single person gave me a sideways look. The whole time I wished we were back in SLO, but his mother cried and then we ended up there. For a six day holiday it wasn't bad though really the only thing that sucked was his mom throwing a fit that the kids and I were… Continue

Added by Carmella on August 14, 2008 at 2:41pm — 3 Comments

I'm not Charlie Brown

“It looks good…you have a nice round head.” A nice round head? What the heck is that suppose to mean? My mind immediately equates my appearance to that of Charlie Brown, the round headed bald kid from the comic strip. Sigh…tell me I look handsome, tell me that the style suits me, tell me that I could be a male model…OK, the last one is a stretch but please, please don’t compare me with some inept, always depressed, bald headed kid with low self esteem.



My own acceptance of the… Continue

Added by Tony on August 14, 2008 at 12:02pm — 1 Comment

Got the new hair!!!

I named this one Cassie...cuz she's a little bit sassy. ;o) It's a Jon Renau synthetic mono top. I'm IN LOVE with this wig!







Added by Mandy on August 13, 2008 at 5:32pm — 9 Comments

Right to Know...

Why do people think they have the right to know what happened to your hair? I mean, I understand family members and close friends, but not people you see while walking down the street or shopping or going to a movie. Why do people think they can come right up and demand "what happened to your hair"? Concern is one thing, nosey is another. It's like they stare, then they walk right up and ask, when you give them a flippant answer they are hurt. They never think about how embarassing it may be… Continue

Added by Linda on August 13, 2008 at 3:46pm — 14 Comments

It just feels so hopless..

Everywhere I read about alopecia everyone has lost all their hair and started to wear a wig or a scarf around their head.

I don't want that,I wanna keep my hair, I wan't it to grow back.
I can't see a future without my own hair, it might sound silly, but for me it's not.

I just wanna crawl in to bed and cry right now.
I'm having a hard time facing the throuth.

Added by Pamira Jakobsson on August 12, 2008 at 4:51pm — 4 Comments

Dotty's Inspirational/Motivational Reflection

Added by Dotty on August 11, 2008 at 12:37am — No Comments

Gail Porter's hair growing back

Gail Porter's hair growing back TV presenter Gail Porter says her hair is starting to grow back, three years after she developed alopecia.

"I have brows and lashes again, after so long," she told the Sunday Mirror. "Isn't it fantastic?"

"I've just been on holiday and I feel wonderful," she added. "I was so relaxed they started to grow back."

The 37-year-old lost almost all of her blonde, glossy hair overnight in…

Continue

Added by rj, Co-founder on August 10, 2008 at 11:00pm — 1 Comment

"Sad" Mother

Hi all.

My mother is not taking my hair loss well. To be perfectly honest, she's an emotional wreck over it. It is not enough for her to know that I've adjusted to the fact that some day I might be bald and wearing a wig. It is not enough for her to know that I've managed to overcome my sadness. She says that she's proud of how well I'm taking it, but sometimes she finds it hard to believe that I can truly be as accepting of it as I claim to be. The truth is, I was depressed at first. When… Continue

Added by Alexandra on August 10, 2008 at 5:22pm — 2 Comments

Me and Alopecia

When I was 14 I found my first spot on the back of my head. I didnt know what it was and of course freaked out. My mom, knowing what it was (her half brother had Alopecia) took me to the dematologist and I was diagnost with Alopecia Areata. My hair kept on falling out, it progressed into AT. We tried ALL the treatments which resulted in alot of irritated inflamed skin (hurt like hell) and oh yes the 2nd degree burn on my head. It was a bunch of hoping and waiting and in the end being… Continue

Added by Casey on August 9, 2008 at 11:29pm — 1 Comment

Does anyone have androgentic alopecia?????

I have read so much on here and I cannot find if anyone has androgentic alopecia. Am I the only one suffering from this? I do not know what to expect and I am scared. I do not even know if it can change into something else! My doctor has so little to say and I do not know where to turn. What gives??

Added by Lisa on August 9, 2008 at 7:03pm — 12 Comments

Haircuts

I booked an appointment with a stylist who cuts wigs earlier this week and saw her this morning. I was planning on getting a new wig in the near future but don't quite have the money raised yet and with back to school and all, it's not going to happen for a little while longer. I had to cut down on the frizz my wig had though, it was looking real bad and I think most people can actually tell it's a wig. So we shortened it a bit and got rid of the frizz and I got my bangs cut too which is great… Continue

Added by Carol on August 9, 2008 at 12:15pm — 1 Comment

I know I should be used to it by now but after 11 almost 12 years of alopecia totalis it gets to me like the first day I found out about it. Back in April i did the Hairclub thing and wasted 1500 dol…

I know I should be used to it by now but after 11 almost 12 years of alopecia totalis it gets to me like the first day I found out about it. Back in April i did the Hairclub thing and wasted 1500 dollars and Im a single parent thats barely making the ends met but we live okay. Anyways after my unit tore the other day cause Im not a member of the Hairclub but did buy a unit I have to pay 300 more dolars to get it fixed even though Ive had so many other issues with it only stayson my bald head… Continue

Added by Tonya on August 9, 2008 at 10:06am — 3 Comments

Dotty's Inspirational/Motivational Reflection

Added by Dotty on August 8, 2008 at 10:22pm — No Comments

Dotty's Inspirational/Motivational Reflection

Added by Dotty on August 7, 2008 at 8:59pm — No Comments

RE: Is there anyone that did not go completely bald??!!

Hi,

I was just wondering, I have read so many blogs and mostly they are all about people who are mostly all bald that have Alopecia Areata. Is there anyone out there that lost some hair but grew it back?! Most stories that I've read are really depressing to me. I went to see a specialist and they told me unoffically that I have AA. I have been losing for about 3 months now. I heard the stats. 10% of the 2% of the population go completely bald, but there is still 90% that don't. Where are… Continue

Added by Melissa Harris on August 7, 2008 at 6:10pm — 9 Comments

My story...

Well, I thought that I should share with you all about my alopecia.

I found my first bald spots when I was in school and I was 10 years old, turning 11. I had a ponytail and I scratched my neck, where I found a bald spot. I went home and asked my mom about it, and she told me that it was nothing to worry about and that she had a couple of bald spots when she was little that disappeared just a month after.

I dug deeper and thought that my hair was falling off because of my… Continue

Added by Jennifer M on August 7, 2008 at 2:49pm — 3 Comments

A quick question for any of you who could help!!

My dermatologist has had me on a medication, spironolactone, for 9 months to help treat my andr.alopecia. He said although it will not get back the hair that I have lost, it should stop any more from falling out. I do not believe that it is working at all. I wondered if any of you have tried this med. or if you know anything about it. Any info would be appreciated! Thanks!

Added by Lisa on August 7, 2008 at 8:55am — 7 Comments

Positive temporary outcome...

First and foremost thank you to everyone who read and commented on my horrible horrible wig experience the other day. I am both pleased and proud to say that



1) with the help of a truly wonderful friend and some great sales people in other stores I was able to figure out how to "fix" my lace wig and remove almost all of the darn glue & tape that was stuck on it. I also have found a wig place in town that I think might be able to help me with different adhesive options or some… Continue

Added by amanda~ on August 7, 2008 at 12:45am — 2 Comments

Dotty's Inspirational/Motivational Reflection

Added by Dotty on August 7, 2008 at 12:37am — No Comments

I'm New Here! Here's My Story.

Greetings! Although I am not yet bald, I am sort of afraid (make that

terrified) that I will be eventually. For the past year or so my hair has

been falling out at a rather steady pace when I comb it. I went to

dermatologists, endocrinologists, trichologists, and gynocologists to try

to get to the bottom of this. One said that going on a birth control pill

might help, but I've heard negative things about the Pill (increased hair

loss, blot clots, no sex drive) and… Continue

Added by Alexandra on August 6, 2008 at 6:54pm — 5 Comments

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