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I’m a 32 year old South African female. I have lived with Alopecia Areata since I was 22 however for the most part I didn’t worry about it as it was just small patches here or there that came and went and were easily hidden.
For the past 2.5 yrs one patch has become a second patch & a third and they have all become friends…spreading up from my neckline and sides to the top of my head. Daily I am losing more hair and its getting more and more difficult to hide. Basically I have…
ContinueAdded by Kim on July 17, 2013 at 8:00am — 39 Comments
So I return to my dermatologist this week to see what he has next in his bag of tricks for me. We have just tried a round of steroid injections once a week for three weeks to try to "trick" my immune system and shut it down with zero improvement. He mentioned that next time we will try to take the opposite approach and "rev it up"??? Anyone tried this and what does it entail. I haven't been able to find any information on the internet. I was only diagnosed five months ago so I am still…
ContinueAdded by bamakelly on July 16, 2013 at 3:00pm — 3 Comments
Added by Jen on July 15, 2013 at 9:01pm — 2 Comments
Added by Petra on July 15, 2013 at 5:28am — 3 Comments
Hi,
Pease take one day at a time. It is not the end of the world. You will survive this one. I wish you great luck to fight this and get the best of it. You can talk to me any time you like to.
Nick
Added by Nick Saund on July 13, 2013 at 5:59pm — 1 Comment
I keep finding more bald patches, the most I have had in years. I feel it's coming from last year when I had a very stressful time, nursing my beloved Grandad and Auntie in my home, who died from cancer.
But strangely I don't care, I have been through so much that hair loss seems so unimportant now. If anything I am using it like a badge of honour, yes I have seen through hell but I have survive. And if I loose all my hair. I will be fine, because over the last year I have found out who…
It's days like these when I really need support. I don't really know what to do with myself. My family needs me, and they are constantly upset by my lack of contributions to the household. As a teenager, I'm sort of at the whim of the adults in my household, and they don't always understand what's going on. I have cried countless times today, and probably will again.
I was diagnosed with alopecia in May, and it has progressed to about 60% loss. I also have diffuse hairloss, and my…
ContinueAdded by Madeline on July 12, 2013 at 8:00pm — 23 Comments
Anyone else tired of seeing hair collect all over your floor, bed, hairbrush? My hair has gotten to my lower back, but I still have large patches over the entire back and sides, with some smaller patches on top. So, of course, my long hair sheds and it becomes very obvious that there's hair everywhere. The worst is when cooking! I'm always scared someone will find a hair in their food and be disgusted.
Makes me want to shave it all off -- a thought that's been around for a few months.…
ContinueAdded by okiegal on July 8, 2013 at 5:11pm — 5 Comments
Hi Folks,
Well...It's been 6 years today since I found that little bald patch on me...Picture it, July 5th 2007 I thought an ember of my independence had fallen upon me. But no it was Alopecia. i had never heard of it before.
It was pretty tough to lose all my hair within 3 months. I lost my identity and my self confidence.
I slowly started accepting what had happened after a year of turmoil.
How does a person deal with such a crises?
Luckily for me I found…
Added by JeffreySF on July 6, 2013 at 12:00am — 2 Comments
This site is both empowering and triggering for me - while it's great to find my bald tribe, the amount of trauma/shame/worry people have about their alopecia is difficult to witness. I've been totally hair-free for the past 11 years, and it has been one of the BEST teachers of my life. I'd really love to find others who have made peace with, and even celebrate, their baldness (while always remember that looking different is hard, but not necessarily bad).
Added by Brenna on July 4, 2013 at 6:00pm — 3 Comments
So, I'm tired putting myself out there when it comes to dating! Men in LA are so shallow, you know in life somebody should like me for who I am! it just makes me sick how this guy I met he asked me, and I told him on third date and showed him my head, and he ran but the funny thing he said it didn't matter, its what's in the inside. Sorry Jermey you are shallow and think you are perfect when all you are is fake!
Added by Toni on June 25, 2013 at 12:31pm — 4 Comments
Added by Claire Eadie on June 24, 2013 at 4:34pm — 30 Comments
I have had alopecia areata since this February and in this time I have lost all of the hair on my head. I remember at the beginning the smallest dime sized patched being the biggest deal and freaking out. Looking back I realize how lucky I was to have 95% of my hair at the time. I am 18 and this is my first wave of it. I have had an extremely stressful year and attest my initial hair loss to excessive stress. I now have over an inch of hair all over my head and have little to no shedding…
ContinueAdded by tree on June 23, 2013 at 9:30pm — 11 Comments
I have honestly come to the conclusion that most dermatologists.... suck. No, seriously they are horrible and don't know what to prescribe they just give any type of drugs and hope it will work. Not cool! Today, I actually had to tell me new dermatologist that no, you cannot give me cortisone shampoo while on squaric acid because it defeats to whole purpose of the acid. So, I have come to the conclusion that in college I will study pharmaceutical science and either become a dermatologist…
ContinueAdded by Sara on June 20, 2013 at 10:30am — 8 Comments
I feel really bad that I didn't keep up with stuff after my regrowth. In fairness I have been in and out of hospital for 18 months with bi-polar and that time was awful, strangely I had a full head of hair throughout all that. But about a week after finishing my uni exams for my second year, which had been deferred whilst I had been ill, my hair has started falling out again. It's been happening for about a week but it's pretty fast like usual.
Luckily I'm pretty ok with it. This is the…
Added by Lyndsey Pitchford on June 19, 2013 at 2:35pm — 2 Comments
I've had alopecia for about 5 months now, not even sure exactly what kind yet ( i'm seeing a rheumatologist soon).
I lost about 40% of my hair, but the last month or so most of it started growing back, i couldn't help but get excited. I had little fuzz covering nearly all my head again. Well the past few days i started noticing smooth spots on my regrowth.
How can i keep from getting too excited when i see regrowth? I don't want to get my hopes crushed, but i also don't want to…
Added by Vane on June 18, 2013 at 1:00am — 2 Comments
So last week Thursday my dermatologist stated that I had Alopecia Areata for sure but wanted to perform a biopsy just incase. So a week later, which is today, they removed 2 stitches that I received from last week. She came back with my results and I actually have Androgentic Alopecia and Demodex Folliculitis. Which in other terms I had human mites eating at my hair follicules which in turn was making me lose my hair. They issued me a prescription for Metrogel and would like to see the…
ContinueAdded by V.R.Alva on June 13, 2013 at 5:30pm — 4 Comments
My daughter just graduated from elementary school for handicapped children, but she has Down´s Syndrome and has had Alopecia Universalis for 5 years. And as a reward when the children got their diploma they also got a picture of the class and teachers.
I was stunned when I realized the picture of my daughter had been photoshopped. The photographer had put hair on her head and she looked like a boy. I was so sad, I found the photographer and the only explanation he gave me was this:…
ContinueAdded by Tinna Ros on June 12, 2013 at 6:30am — 32 Comments
I am 20 years old and was diagnosed with alopecia areata back in November. I've always had long hair so I was used to losing a lot of hair when I washed, styled or brushed it but then I noticed a bald spot. My alopecia had a fast time course, I noticed the spot in October, was diagnosed in November and by January, I was almost completely bald. I barely had any time to learn what alopecia was and accept it. Everything was happening so quick,I hid behind messy MESSY spray and powder cover-ups…
ContinueAdded by Carmen on June 9, 2013 at 9:51pm — 5 Comments
Hi all,
Can anyone give any advice on water wigs or any wigs they have used to play sport (in a pony tail under a cap for example).
I wear a Follea Gripper wig and don't really want to use it for swimming or sport. Am looking for the best options / alternatives.
Would really appreciate any advice on options you have actually used.
Thanks x
Added by els on June 9, 2013 at 3:00am — 3 Comments
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