Cheryl, Co-founder's Blog (128)

Calling all Alopecians—Help Sasha secure a spot in the Once Upon a Tutu calendar





Sasha mother wrote me and said:

"This is my gorgeous girl sasha aged 4, the way she handles her alopecia is inspiring and brave and makes me so proud to be her mummy.

My wee girlie is currently in a competition to be Once Upon a Tutu calendar girl on Facebook I am hoping people could please vote for my gorgeous girl.

To vote go to…

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Added by Cheryl, Co-founder on October 3, 2015 at 1:30am — No Comments

"Gotham’s” Anthony Carrigan talks acting, alopecia, and learning to love his look

I recently came across this interview on Buzzfeed.com and thought I would share it with AlopeciaWorld.com:

The alopecian actor stopped by BuzzFeed to share his thoughts on body positivity.

You’d recognize Anthony Carrigan if you saw him on TV, right? Not necessarily. The up-and-coming actor has been popping up…

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Added by Cheryl, Co-founder on March 10, 2015 at 10:00pm — 1 Comment

My alopecia has prepared me for this

As my 50th birthday approached, I occasionally thought about the fact that much was about to change for me. I struggled with the thoughts of impending possibilities such as weight gain, wrinkles, aches and pains, and the gradual waning of my physical abilities. But I also thought about my journey with alopecia over the past 24 years.

With alopecia the questions were…

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Added by Cheryl, Co-founder on February 13, 2015 at 3:30am — 9 Comments

Girl bullied after cutting hair short to donate to charity

Fox News reported:

An Ohio mother is speaking out after she says her 10-year-old daughter was bullied at school because she cut her hair short to donate it to charity.

 FOX45 reported Tuesday that Jetta Fosburg decided on her own to cut 14 inches off of her long blonde hair and donate it to Wigs for Kids, a charity that helps children with cancer and other hair loss issues.

“I have some family members who have cancer so I thought it was the right thing to…

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Added by Cheryl, Co-founder on October 22, 2014 at 1:30am — 8 Comments

Your presence may mean far more than you think

Recently, a mother whose beautiful young daughter has alopecia said to me, "I always tell my daughter that you are her twin. I tell her when she grows up, she's going to look like you."

The emotions that statement elicited in me were very strong: I was honored and extremely humbled.

Our reach as alopecians is far beyond us. We may be just living our lives and, at the same time, encouraging a neighbor, a person on our morning commute, or perhaps someone we least…

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Added by Cheryl, Co-founder on July 31, 2014 at 12:00pm — 10 Comments

Rob Ryan denied head coaching jobs because of his hair?

In January 2014, Foxsports.com reported:

"If you got it, flaunt it. But not when it comes to long hair for NFL coaches, apparently.

"According to ESPN's Chris Mortensen, Saints defensive coordinator Rob Ryan will have to cut his long locks before being considered for a head coaching gig in the NFL.

"After 'mistakenly'…

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Added by Cheryl, Co-founder on July 6, 2014 at 4:00am — No Comments

"Beautiful Henna crowns bring confidence and joy to women experiencing hair loss"

I recently came across the below article on the Huffington Post website:

"One organization is using all-natural ingredients and artistry to help women coping with hair loss.



Henna Heals was started by Canadian photographer Frances Darwin in 2011 as a small group of volunteers in Toronto, and has since grown to a community of 150 artists worldwide. Those…

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Added by Cheryl, Co-founder on May 19, 2014 at 3:30pm — 2 Comments

Girl banned from school for shaving head

ABC News reported:

A 9-year-old girl from Grand Junction, Colorado will be allowed to return to school after being banned for shaving her head.

Kamryn…

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Added by Cheryl, Co-founder on March 26, 2014 at 12:30am — 18 Comments

The angry art of alopecian superhero artist David Finch

 

I recently read an article about David Finch, an alopecian super hero artist.  When asked about his emotional details in his drawings Finch responded:

"It does come from both personal…

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Added by Cheryl, Co-founder on March 21, 2014 at 5:00pm — 4 Comments

New year, new challenges, new opportunities

As another year begins, my thoughts are on moving forward.  I don’t officially make resolutions but I do think of the past year and what changes I can make to improve my new year.

This year I’m going to continue working on three things:

Get off of auto-pilot.  Try to do things a bit differently every day.  For example, drive a different way to the store or anything that just makes me think before I act.

Be the change I want to see.  Many times I think of…

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Added by Cheryl, Co-founder on January 10, 2014 at 3:30am — No Comments

Have wig tape, will travel

I do not know why, but I have this one roll of double-sided tape.  I have not worn a wig in over 15 years, but this tape has been traveling with me.  I have moved three times since I stopped wearing hairpieces, including from Canada to the USA, and each time I pack and bring this roll of double-sided tape with me.  I have no idea why I don’t throw it away.  Perhaps it’s…

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Added by Cheryl, Co-founder on December 18, 2013 at 5:04am — 7 Comments

How to step up to happiness

I recently came across this poem and it just spoke to me, so I thought I would share it with you.

Stepping up to Happiness

Everybody Knows ~

You cannot be all things to all people

You cannot do all things at once

You cannot do things equally well

You cannot do things better than everyone else

Your humanity is showing just like everyone else’s.

So ~

You must find who you are and be…

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Added by Cheryl, Co-founder on November 26, 2013 at 3:30am — 1 Comment

September is Alopecia Awareness Month

What special activities do you have planned for Alopecia Awareness Month? Please be sure to list them on Alopecia World's events calendar. We also welcome you to make suggestions and discuss your plans in the comments section below.



Below is information on what the National Alopecia Areata Foundations has planned for the month.

NAAF - Team Up for Alopecia Areata…

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Added by Cheryl, Co-founder on August 29, 2013 at 5:30am — 3 Comments

Alopecia World makes top of the list of alopecia resources!

According to the Josephfleischer.com Blog:

"Dealing with alopecia can be an isolating experience, even when you have a strong support system of family and friends around. It’s hard for people to commiserate when they aren’t sharing the same types of personal experiences that you are.

Luckily, we live in an age where information, advice and…

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Added by Cheryl, Co-founder on August 20, 2013 at 4:30pm — 1 Comment

Student with fear of heights will skydive to help alopecia sufferers

According to an article in The Bolton News:

"A UNIVERSITY student with a fear of heights has just signed up to jump from an aeroplane at 12,000 feet.

Twenty years-old Joe Slack from Westleigh is doing a sponsored skydive on May 11 to raise fund for the support group (Bebold.org.uk) that has done such a lot to help his younger sister, Kim, who…

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Added by Cheryl, Co-founder on April 10, 2013 at 1:36am — No Comments

New “bald” friend of Barbie causes controversy

U.S. toymaker Mattel created a “bald” friend of Barbie doll named Ella and donated a limited quantity of the dolls to the National Alopecia Areata Foundation (NAAF).

However, the bald doll has created some controversy in the alopecia community because Ella is packaged with a wig on.

Some feel that it is not a real representation of a person with alopecia and…

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Added by Cheryl, Co-founder on February 5, 2013 at 11:00pm — 54 Comments

A pink shirt oughta cover the pain

Years ago I was in a changing room at a gym and a woman walked in and thought I was man because I was not wearing a wig to cover my alopecia and had my back to her. When I turned around she could obviously see that I was a woman, but I still felt shame after I saw the look on her face and she apologized for mistaking me for a man.

That was very painful experience for…

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Added by Cheryl, Co-founder on November 13, 2012 at 1:59am — 4 Comments

Using my head

Last week I was grocery shopping and, when I went to check out, a woman approached me to say she thought I was beautiful and that she wished she could do what I do. She went on to explain that she lost most of her hair due to alopecia. I told her I was familiar with alopecia and, in fact, have it myself. She was fearful of what others might say if they knew about her condition, but she really liked my look.

She was wearing a wig and said she normally wears one, so I suggested she…

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Added by Cheryl, Co-founder on November 13, 2012 at 12:51am — 13 Comments

'Looking at my sister, I saw my loss'

Mailonline.com, had an interesting article about twin, in which one had alopecia and the other did not. Below is an excerpt:

“As girls, they insisted on matching outfits, right down to the ribbons in their blonde pigtails. And as teenagers, identical twins Gwennan and Elin Thomas were inseparable, even going to the same university.

‘We were, and are, best…

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Added by Cheryl, Co-founder on September 7, 2012 at 9:19pm — 6 Comments

Joanna Rowsell: I Hope To Inspire Girls With Alopecia After London 2012 Gold

According to BBC World News:

"Star cyclist Joanna Rowsell hopes to be an inspiration to other alopecia sufferers after winning Olympic gold yesterday. Joanna Rowsell (centre) has become a role model for girls with alopecia (Picture: AFP / Getty Images) The 23-year-old was first diagnosed with the hair loss condition when she was 10 and her victory alongside Laura…

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Added by Cheryl, Co-founder on August 10, 2012 at 1:30pm — No Comments

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