All Blog Posts (5,826)

20 Years Later - My experience with Alopecia

I turned 31 this past summer and it seems like just yesterday I was in 5th grade. 20 years ago was the year that changed my life and set me on a collision course with God!

I was sitting in Mrs. Thorburn’s class in Brookings School. Mrs. Thorburn was an incredible teacher who didn’t put up with nonsense and we got along great because I loved to be the class clown! She was my favorite teacher in 5th grade and that year turned out to be a year I would never forget.

I had semi-long…

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Added by Alex Gomez on October 4, 2013 at 10:21am — 1 Comment

What works for alopecia areata

Hi everyone,

I've just joined and really want to share the things I've found most effective for treating alopecia areata.

1) Go straight to a proper Trichologist. Don't bother with dermatologists as, like G.P's, they tend to just prescribe topical steroids, (which I was uncomfortable using and found to be rubbish)

2) Get your iron level checked. The optimum ferritin level is between 70 and 100, and levels lower than that are associated with fatigue, breathlessness and…

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Added by Madam mim on October 3, 2013 at 2:30pm — 2 Comments

The more I see on here...

Hi! I am about to turn 35 years old and after doing some math, realized I have been dealing with AA for 15 years now. It started my freshman year of college - one morning I woke up and most of both my eyebrows had fallen out. I actually didn't really worry too much about it. As time went on, though, the hair on the right side of my head started to recede all along the hairline, along with the right eyebrow. The left side of my head was perfect! This went on for years. I visited doctors and…

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Added by Mary Anne on October 2, 2013 at 12:00pm — 6 Comments

Rather desparate

Hi, everyone,

How do you deal with potential dates? I have tried wearing a wig and hated it, so am now going to try wearing a bandana while trying treatment with Minoxidil.

I believe that one of my potential 'romantic' possibilities has been put off by my alopecia, and I really don't see any future 'possibilities' while my scalp is getting more bald. It annoys me on two counts - (1) - I obviously don't like losing my hair, but (2) on the other hand, I still have more hair than…

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Added by Anne on October 2, 2013 at 12:22am — 2 Comments

Love is the engine of life

We can live happily without hair if you have someone you love, love is the engine of life, without it we are unhappy even if you have the beauty of Venus and silver Crésus.

Added by Le sage on September 30, 2013 at 8:00am — 1 Comment

Been a good one this year

Well, one day left in September. Alopecia Awareness Month. Been a good one this year, the Liverpool Alopecia Flashmob went up on Youtube and now over 23K views! Yay!

Added by Laura Adams on September 29, 2013 at 8:30pm — No Comments

I'm getting married!

So im getting married and I'm super nervous about my hair. Does anyone have any suggestions about how to style it how to add a veil and a tiara? Im nervous that the lace on my unit will rip during the wedding. Any suggestions? Help!

Added by VanillaPlum01 on September 29, 2013 at 8:28pm — 6 Comments

Sports!

Hey, I was just wondering what are some of your favorite sports to watch/play? I myself enjoy playing softball, soccer, volleyball, and football. (With my cousins not legitimate football!!!) I enjoy watching football, wrestling, and baseball.

Added by Jessica Hoschouer on September 29, 2013 at 5:30pm — 3 Comments

What's happening?

Hi There,

I haven't been on hear for ages. What's happening?

Added by Natalie Young on September 28, 2013 at 4:30am — 1 Comment

How do you explain alopecia to a 3yr old?

My daughter is 3yrs old and she has AT, recently she started putting pants on her head pretending its hair and she's telling me that she wants hair- what should I tell her and what is the best way to approach this? I've always told her that some kids have hair and some don't and would show her pictures and videos of kids with Alopecia. I need advice! Help me..

Added by MychildhasAT on September 25, 2013 at 5:30am — 3 Comments

AA & celiac's?

So a few months ago while reading a passage from a gastroenterology textbook, I came across mention of an association between alopecia areata and Celiac's disease. I have had undiagnosed gastrointestinal issues (primarily chronic abdominal pain episodes) and found this interesting. Does anyone here have GI issues as well? Anyone with confirmed diagnosis of Celiac's disease? I just wondered what the actual prevalence of patients with both conditions was.

In my other readings there is…

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Added by Sofia on September 25, 2013 at 1:30am — 1 Comment

A statement

I was in the Marine Corps when my first spot appeared it was 1994 so than I thought no big deal I will just shave my head and I did for 18 years I got diagnosed with alopecia in the 90s went through the shots and creams etc. I just recently retired and decided it was time for me to look like a civilian but it wasn't that easy my hair at this point is not falling out yet I just don't have much form the result of being shaved everyday, but my beard on the other hand has patches and circles all…

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Added by mac on September 24, 2013 at 2:55pm — 4 Comments

1 year anniversary AA

My title is actually misleading. My one year anniversary of diagnosis with AA was on Sept 17. But I've stopped letting AA control my life and have been TOO BUSY to post anything! :-) That feels really great to say. A few months ago I would not have been able to say that about myself. I thank the Lord above for giving me strength and confidence to get through this. I don't remember the day I decided to shave my head, but it was the best decision I have made so far. I am hopeful that my hair…

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Added by Sierra D on September 24, 2013 at 12:00pm — No Comments

Where to order wigs online?

Hi,
I thought I would try to order a wig online since I don't have many options for purchasing one at a store in my area. I placed an order with a website and never received the wig. I have been looking at other sites but am hesitant. I am not ready to go for the custom wig yet...still holding out hope that I am going to regrow. Any suggestions for a reputable site where I can find human hair full lace wigs at reasonable prices? Thanks.

Stephanie

Added by Stephanie on September 23, 2013 at 10:37pm — 5 Comments

Coloring the white regrowth?

I am having trouble with posting in the forums section and thought I would try here instead.

My question: Is it possible to successfully color the white regrowth?

In the past I have only tried Henna and it made my white hairs turn yellow, hence looking more obvious than the white regrowth. I have a large patch at the top of my head up front which has been preventing me from cutting bangs since I need every hair on my head to cover up missing patches at the moment. I use…

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Added by Georgie on September 21, 2013 at 2:51pm — 6 Comments

GAPS diet

Hi everyone,



I know there's been talk of the GAPS diet on this site but I have not seen if anyone has actually trialled it (religiously) and found any benefits. Dr Natasha Campbell-Mcbride (the founder- authour of GAPS) explains why gluten free and dairy free is not enough to heal your gut completely. My daughter 2 &1/2, with gut issues and AA is currently on GF and dairy free diet (it's only been three weeks and although I've seen improvement in her poo no change yet in AA- I… Continue

Added by Mayo on September 20, 2013 at 1:39am — 17 Comments

Finding your "LOOK"

I have "worn" hair for many years. My pieces are custom made and I use tape to secure them. I take it off every 7-10 days to clean and put on new tape. I want the freedom to wear pretty scarves and to feel the wind on my head again. I went several weeks without wearing hair and was shocked how many people asked me if I was battling cancer. I have not had eye leashes or eyebrows for many years, I suppose this makes me look like I am going through chemo to some folks. I wear trendy clothes,…

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Added by Vicki V on September 18, 2013 at 5:02pm — 1 Comment

New chapter in my life

First of all i wanna say that this is my first post on alopeciaworld. I am a part of this community only a few weeks now and while reading lots of posts and responses for the first time i felt like i am not alone.

Since i never met a person with alopecia i always thought than no one can know how i feel and how hard and sometimes frustrating it is to go out in the world with alopecia. Lots of times in these 6 years of battle with alopecia my family and friends told me that it is only…

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Added by Jack Sparrow on September 17, 2013 at 6:30pm — 13 Comments

It was so simple!

today I woke up with so much more confidence. I went to school and at lunch someone asked me why I don't wear my hair down anymore. I told them the honest reason. After I told them I felt 10 times better. if they have to say something they can this is me and this is who I am nobody can every change that.

Added by Ashley ingordino on September 17, 2013 at 3:00pm — 3 Comments

I want my hair back

Having this disease sucks im only 15 years old. I just started 10th grade. People found out that i had this andyhey laughed and made fun of me. It sucks. I wear my hair up every single day. Im gettig treated. Thank god theres something to help. I feel embrassed of it. I just wish it will go away

Added by Ashley ingordino on September 15, 2013 at 6:19pm — 7 Comments

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