I was diagonosed with Alopecia Universalis in June of 2007. Within 3 days after I was diagonsed, all my hair was gone including eyelashes, eyebrows, and all body hair. I was devastated. My mother told me I could wear a wig. I denied. In the hope of my hair growing in by August of that year, I wouldn't be bald in 2nd Grade. I wore the hat shown in the picture I put up recently. In fifth grade, kids starting asking if I had cancer or chemotherapy, or going all Britany. I was homeschooled from…

For 26 years now I have had hair on my mind. I sometimes dream of having hair. I grew up with a very full head of thick medium brown hair. Sometimes I wished I didn't have so much hair as it took me so much time to care for it. So after the hair loss began, I started searching out wigs that would make me feel more like "myself".  It took we a while to get used to them as the ones I first tried were synthetic and didn't feel like real hair.  After about 20 years I was able to afford real…

Hey people,

Sometimes i wish my life is a fairy tale and in the end my hair will grow back and i marry this handsome bratt pitt lookalike.

I dream about it a lot but in the end, in the real world, my hair will never grow back.

At least thats what the docters told me last summer. My hormonal cream didnt work. So i had to start accepting my boldness.

Almost 4 months later (now) i only wear hats or scarfs for fun sometimes. But most of the days im just bold, at home, at…

Hi everyone,

My name is Michael, (ankle Mike) to my beloved simone aka Chimz my lovely niece. I'm a store manager at the Home Depot in the westend of Edmonton, AB, Canada. I'm wanting to offer a kids workshop at my store on a Saturday to drive awareness around alopecia and to have some fun with the kids. I will be providing all the kids workshop materials, aprons for the kids, a tour of my store and a snack for the day. This will be open to families that have kids with alopecia and…

So sad today - my son (9 years) got one spot 10 weeks ago - now it starts getting bigger - I am just so sad and scared.... we can´t do anything about it - he is already my 3. child with alopecia...... need some positive Words........ :(

I haven't attempted at a new relationship since my last. 

And I'm scared to try.

Should I tell you later?

Say I do open up and get to know you, but the constant thought of my secret is on the tip of every word I've said.

I don't want to reveal my secret just to have you run the other way.

But if you run then that lets me know it wasn't meant to be, right?

No?

Yes?

Should I tell you sooner?

Well I've asked that question to a ex bf…

Hi all,

If the link does not work then the article was on Yahoo news and is called "Bald woman wins beauty pagent, Also our hearts

Yahoo! Shine

On occasion while I am at work, commuting, or just outside I will cross paths with someone else who has alopecia.  Usually they don't really notice me but when they do notice, I sometimes feel their curiosity.  I can sense that they are curious to see if I also have alopecia areata or something else or perhaps I have male pattern baldness and I look young for my age.  When I was a little bit younger, strangers with alopecia would see me and silently acknowledge me with their eyes like, "cool…

Thank you for all your comments.  They are all very positive and have helped to give me a boost.  I see that I must try not to dwell on what men (or anyone else) might think but just grab the bull by the horns, so to speak.

Anne

Sorry if this topic has already been covered, but I obviously missed it.  The topic is that I've noticed that a lot of people on this site do have partners, and I'm glad for them - BUT if, for whatever reason, you are just starting to experience hair…

When you're eating an improper diet, your "illness" genes are brought into the forefront. Just because you have the gene does not mean that gene is expressed. Try to think of genes as genetic suggestions. It's mostly what we eat that decides our fate."

NOTE: My testimony is based on anecdotal evidence and is for educational purposes only. I am not making an attempt to prescribe any medical treatment, since under…

Hello everyone,

I have recently joined this group.  My FFA was diagnosed (finally) in October 2013.  However, the road to get this diagnose has been long. 

I started losing my hair and eyebrows in 2010, but since I was in menopause, I thought this was probably part of it.  However, the loss continued and in April 2011 I finally had my eyebrows tattooed, as I had completely lost the lateral part of them.  I have also lost the hair on my arms, legs and armpits.

In March…

Hi, I have just made the decision to try squaric acid, it is a last resort, I have been doing the injections for 3 years and they worked and kept my hair in a condition to not needing replacement hair, for some reason they stopped working for me, so now I am in wigs.  My question is, I had the first spot of squaric acid put on my head on Friday as the trial at 2% I was expecting all kinds of reaction and nothing has happened, didn't even get red, irritated anything, does anybody know if this…

Hey everyone. I have recently been diagnosed with diabetes & celiac disease! I have done lots of research and found out that diabetes is an auto immune disease & so is celiac disease! I also have eczema & psoriasis (also auto immune diseases). And I was wondering if maybe all of these could be related to my alopecia? Does anyone else have these different diseases ?

In May 2011 I was diagnosed with alopecia areata. A few months after I noticed a large sore under my tongue…

I haven't been on here since February 2012! I have/had alopecia areata & I used topical ointments and had 4 treatments of steroid injections. The injections seemed to work as I had regrowth in those areas. By February of 2012 I had went in to remission! I had a full head of thick hair and I was so happy! Here's the bad part :(

I've noticed 2 quarter size patches on the top of my head and on the left side of my head. And quite a bit of thinning on the top of my head towards my…

I've been using topical steriods for a few months and haven't really seen any difference the next step as per my dermatologist but he also said doing so can leave scars. For those of you that have tried the injections what are your opinions on them.

Must it be assumed that everybody having alopecia as a child (< 10 years) will get alopecia totalis/universalis later in life?

Hi.  Karen  here and I am now in my 23rd year of Alopecia Universalis and I still think..."Why Me!"  occassionally looking at others with 'green eyed envy!' 

I've always wondered IF I had acted on the advice of my first Dermatologist, whether I would still have this auto immune condition or not! I honestly believe that, IF I had FOLLOWED her ADVICE when she said "DON'T  STRESS.  GIVE YOUR HAIR FOLLICLES  THE THREE MONTHS THEY NEED TO GROW and come through" whether I would be blogging…

I made an account on here years ago and never kept up with it but I still get multiple emails every day linking me to blog posts about coping, sadness, loss of hope and other depressing topics about alopecia. I've had alopecia since I was 11 and am completely bald on my head. During the past 9 years if I've learned anything about the disease it's that it's what you make it. For all you beautiful, strong, fierce women out there- show the world those qualities! I know it's hard, but as soon as…