Making music is one of the many things I do when I'm NOT thinking about hair loss.  My band, ZILLIOX, has finally finished our first four-song EP of original tunes.  "Z1" is now available at Bandcamp.  Give it a listen?

WWW.ZILLIOX.BANDCAMP.COM

Those of my Alopecia World friends who are still coming to terms with your Alopecia, take heart and know that there are wonderful things on the other side of it.  If Alopecia can be a jumping…

Hello

 I have two kids with alopecia. My 8 year old son Filipe has had alopecia totalis since he was 1 year old. My daughter Olivia got areata last November, and now in October she turned into totalis. She has also started to loose her eyelashes. We have accepted that Filipe never will get his hair back, but does anyone have any experience with children and regrow? We hope she will get her hair back, but at the same time it is difficult to always live in a constantly hope.. on her head…

Hello fellow alopecia friends!

Let me start with the history of my treatment. At age 11 I was diagnosed with alopecia areata. they started me out on tropical creams and foams, after a year and half of that I moved up to injection. I went every 6 weeks for a few years until 2006 when I accepted the fact I was never going to have a full head of hair again. Before I stopped the injections I was wearing a wig. I embraced my baldness and defended my right to still be pretty! I had alot of…

Grrr!!!

Ok...

So I'm going to get straight to the point.

I think my sister tries to be "extra cute" when around my male company.

So this guy I'm talking to is pretty cute.

He is both me and my sisters type when it comes to looks.

He shows very strong interest in me or my panties...Still trying to figure that one out.

But anyways...He's likes to mention  my womanly figure[Red flag 4]...Which is a reason I feel like he's only about my private…

Hello everyone,

I would like u to meet Anna, she is my new wig.

Anna is brown with a few highlight's.

She likes to tickle me and loves to poke in my eye's.

I'm really clumsy with this thing, I dont know where or how to put it.

This wig is not made of real human hair but she's synthetic.

I look like a whole different person and people also treat me different.

An example of that, every day in school people take a bow around me (without wig) and now they're…

I am a Speaker, Trainer and Published Author. I empower women through workshops, seminars and keynote speaking engagements. I am also a fellow Alopecian. I have put my Speaking career on the back burner while I have been learning to live as a woman who is losing her hair.

I finally chose to shave off what I had left and wear a wig. The thought process was "I want them to hear my message and not be distracted by how I look."

Getting ready to start speaking and conducting…

it all started a year ago with a bald spot and not knowing what caused it but I realized I was getting a rash on the side of my head but stubbornly I kept using it and then 4 more spots showed up!  I was horrified!  I didn't know what to do! I had to figure out what was causing it then I came up with a conclusion that I started using hair dye for a year and now it's causing this horrific side effects! To make long story short, I stopped using the chemical ridden hair dye such as Clairol and…

I was diagonosed with Alopecia Universalis in June of 2007. Within 3 days after I was diagonsed, all my hair was gone including eyelashes, eyebrows, and all body hair. I was devastated. My mother told me I could wear a wig. I denied. In the hope of my hair growing in by August of that year, I wouldn't be bald in 2nd Grade. I wore the hat shown in the picture I put up recently. In fifth grade, kids starting asking if I had cancer or chemotherapy, or going all Britany. I was homeschooled from…

For 26 years now I have had hair on my mind. I sometimes dream of having hair. I grew up with a very full head of thick medium brown hair. Sometimes I wished I didn't have so much hair as it took me so much time to care for it. So after the hair loss began, I started searching out wigs that would make me feel more like "myself".  It took we a while to get used to them as the ones I first tried were synthetic and didn't feel like real hair.  After about 20 years I was able to afford real…

Hey people,

Sometimes i wish my life is a fairy tale and in the end my hair will grow back and i marry this handsome bratt pitt lookalike.

I dream about it a lot but in the end, in the real world, my hair will never grow back.

At least thats what the docters told me last summer. My hormonal cream didnt work. So i had to start accepting my boldness.

Almost 4 months later (now) i only wear hats or scarfs for fun sometimes. But most of the days im just bold, at home, at…

Hi everyone,

My name is Michael, (ankle Mike) to my beloved simone aka Chimz my lovely niece. I'm a store manager at the Home Depot in the westend of Edmonton, AB, Canada. I'm wanting to offer a kids workshop at my store on a Saturday to drive awareness around alopecia and to have some fun with the kids. I will be providing all the kids workshop materials, aprons for the kids, a tour of my store and a snack for the day. This will be open to families that have kids with alopecia and…

So sad today - my son (9 years) got one spot 10 weeks ago - now it starts getting bigger - I am just so sad and scared.... we can´t do anything about it - he is already my 3. child with alopecia...... need some positive Words........ :(

I haven't attempted at a new relationship since my last. 

And I'm scared to try.

Should I tell you later?

Say I do open up and get to know you, but the constant thought of my secret is on the tip of every word I've said.

I don't want to reveal my secret just to have you run the other way.

But if you run then that lets me know it wasn't meant to be, right?

No?

Yes?

Should I tell you sooner?

Well I've asked that question to a ex bf…

Hi all,

If the link does not work then the article was on Yahoo news and is called "Bald woman wins beauty pagent, Also our hearts

Yahoo! Shine

On occasion while I am at work, commuting, or just outside I will cross paths with someone else who has alopecia.  Usually they don't really notice me but when they do notice, I sometimes feel their curiosity.  I can sense that they are curious to see if I also have alopecia areata or something else or perhaps I have male pattern baldness and I look young for my age.  When I was a little bit younger, strangers with alopecia would see me and silently acknowledge me with their eyes like, "cool…

Thank you for all your comments.  They are all very positive and have helped to give me a boost.  I see that I must try not to dwell on what men (or anyone else) might think but just grab the bull by the horns, so to speak.

Anne

Sorry if this topic has already been covered, but I obviously missed it.  The topic is that I've noticed that a lot of people on this site do have partners, and I'm glad for them - BUT if, for whatever reason, you are just starting to experience hair…

When you're eating an improper diet, your "illness" genes are brought into the forefront. Just because you have the gene does not mean that gene is expressed. Try to think of genes as genetic suggestions. It's mostly what we eat that decides our fate."

NOTE: My testimony is based on anecdotal evidence and is for educational purposes only. I am not making an attempt to prescribe any medical treatment, since under…

Hello everyone,

I have recently joined this group.  My FFA was diagnosed (finally) in October 2013.  However, the road to get this diagnose has been long. 

I started losing my hair and eyebrows in 2010, but since I was in menopause, I thought this was probably part of it.  However, the loss continued and in April 2011 I finally had my eyebrows tattooed, as I had completely lost the lateral part of them.  I have also lost the hair on my arms, legs and armpits.

In March…