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Hi everyone,
My daughter has been diagnosed with AA aged 2 years. As you all appreciate it is very confronting and I have been through sooo many emotions. She's had it for 6 months now and continues to develop new patches ( she now has about 5 patches on her head- 4 of which I can cover). I feel I'm Now ready to begin talking about it on this website and I have to say... My hat goes off to all of you. You are all such inspirational souls and if my daughters AA continues or gets…
Added by Mayo on September 13, 2013 at 11:30pm — 19 Comments
I've been trying to handle my hair loss, taking the bull by the horns so to speak. Telling my self "I can handle this", "I'm going to be fine" (fine as in all right not as in it's going to grow back). Pragmatic, realistic, positive. It's very typical me.
But I'm fed up, tired, like i got the wind knocked out of me. I'm not fine, I'm sad.
It's been a year since I lost my hair and I feel like my life hit a wall. Someone pressed the pause button that day, and I can't find play. I…
ContinueAdded by Marinetta on September 12, 2013 at 12:00pm — 2 Comments
I also think that since this is an autoimmune disease it is better to live with it not change it. Good food, healthy lifestyle ,meditation and de-stressing activities will help .
I lost all my hair in my twenties(I'm now 56 ),got it back at 30 due to a combination of Ayurvedic treatment and just old-fashioned grace of God and parents' blessings. However, the good times are slowly ebbing as there are huge patches all over and postmenopausal period is not conducive for hair growth.…
Hello everyone, I just wanted to introduce myself. I am very happy I found this group so I have people to talk to who actually knows what it is like to talk to people with alopecia and the way it effects you mentally and physically. Lots of beautiful people on the sight and I look forward to meeting everyone.
Added by Ken Johnson on September 10, 2013 at 10:27am — 7 Comments
Added by Candace on September 10, 2013 at 10:07am — 4 Comments
I have had AA for 2 months now. I have lost a lot of hair but by the grace of God he gave me a head full so it still looks like I have a ton of hair. I can cover my spots with my remaining hair but I have to zig zag my part and hair spray it like a helmet so the wind doesn't blow it to reveal my spots. The spots on top are coin size so "it isn't that bad" but I hate fixing my hair. It is torture. I do have a spot as big as my palm in the very back...and growing but that is covered. So do I…
ContinueAdded by Mindy on September 9, 2013 at 3:32pm — 13 Comments
Added by Bernadette on September 9, 2013 at 1:18pm — 3 Comments
When I think of the word Alopecia, I feel an intense feeling of loss. It’s more than a loss of hair; it’s a loss of self-worth. The discouragement it brings takes every breath of courage and suffocates it. I wanted to write about this disease so people will grasp the severity of what’s happening to over 5 million people in this world.
I started losing patches of hair when I was six. At this time I lived in a different country, Wales. I remember the kids teasing me, saying that a dog had…
Added by Emily on September 6, 2013 at 8:30am — 7 Comments
Today at my blog, I wrote all about the Cabbage Patch Kid I got as a child and how, 30 years later, it's helped me to come to terms with my Alopecia.
http://theycallmemummy.com/2013/09/05/the-ugliest-doll-in-the-shop/
I'd be so thrilled if it helped someone to read this.
With love!
Michelle
Added by Michelle L on September 6, 2013 at 5:30am — 2 Comments
I have wondered if a study has been done into what conditions Alopecia sufferers develop in later life, as Alopecia may be an early indication of something going awry. And how many Alopecia sufferers take vitamin and mineral supplements? I have been taking zinc, chromium and Vit D for a few years. I have just discontinued these but it is too early to see if it improves things. I know accumulation of certain vitamins and minerals can be toxic.
Added by Sweet Pea on September 6, 2013 at 4:30am — No Comments
Hi everyone! hope this blog find you all ok, maybe confuse or a litlte bit frustrated but ok...! I'm writing, because i've some good news that I want toshare with you... I was diagnosed with alopecia on May, by June i shaved my head, by end of July my lost was about 70%, i lost some parts of my eyebrows and the grow was instable on my pubic area. I decided not to do the corticoinjecions, i decided not to continue with the quimical medication. I began acupuncture, meditation, yoga and began…
ContinueAdded by Catia on September 5, 2013 at 12:30pm — 2 Comments
Could Celiac be the underlying cause?
I went for a blood test to check Iron levels and although I am not anemic, my dermatologist did say my levels were on the very low end and that I should see my family doctor for supplements.
Some papers show a link between AA and Low Iron...but others show no connection. The conclusions are mixed!
But what if we are asking the…
ContinueAdded by User306 on September 5, 2013 at 8:30am — 5 Comments
About 2 years ago, I noticed a bald spot on the front of my scalp. Little did I know, this would be a life changing moment. I am Italian in ethnicity so naturally I was quite the hairy man. Once my bald spot started growing, I decided to get it checked out. I found that I had Alopecia Areata. That soon turned into totalis, which then turned to universalis. Once losing all of my hair, I was a little shocked to see it just fall out in the shower, but upon further experience, I realized how…
ContinueAdded by Vince on September 4, 2013 at 6:00pm — 3 Comments
Small mirror in a case for the purse or backpack
Sharpener for eyebrow pencils and liner pencils
Eyebrow pencil and/or brow powder (get demo at fine cosmetics counter)
Eye liner
Wig salon appointment to try on styles, see colors indoors and in sunlight with hand-mirror, find wig with ear-tabs that work with glasses
Hat store trip to try on styles (bring favorite outfit and coat to match)
Make-up appointment at mall or home party to see how to enhance…
ContinueAdded by Tallgirl on September 3, 2013 at 9:00pm — No Comments
Okay so after reading a vast amount of your blogs I have come to a conclusion. It seems there is no simple answer as to what works best for people suffering with FFA. I started using Rogaine back in February 2013. This was before my doctor started treating me for FFA. Once I had seen my doctor she put me on Clobetasol cream. I know Rogaine take about 5 to 6 months too see any results. I just noticed a few days ago that I started getting very small hairs growing mostly on the sides of my…
ContinueAdded by LittleRhody on September 3, 2013 at 8:00pm — 26 Comments
today was one of the most exciting days i had in a very long time i spent my whole day at the mall i never fell so comfortable ii rocked my bald head today but i was looking at scarfs and hats trying them on and from behind me i heard a voice say "you don't need neither one of those hats or scarfs , you are hiding your beauty" its been a while since a guy has hit on me nd all i could do was smile and blush i was so bashful we exchanged number nd havent stopped texting yet im not the one to…
ContinueAdded by butta on September 2, 2013 at 9:00pm — 3 Comments
September 3, 2010... this was the year that I took the first steps to liberation. Liberation from myself, liberation from disease and liberation from society's perceptions of what I should look like and how I should be. This date was the day that I shaved my head. 3 years ago I did the one thing that I never thought I would have the courage to do. I picked up a pair of clippers and shaved what remained of my hair. Alopecia Universalis had taken most of it and I finished the task. Its…
ContinueAdded by Bald and Fabulous AKA Terri on September 2, 2013 at 8:30pm — 2 Comments
Ok so exactly a week ago me, my sister, my mom, my dad and one of my sisters friends went to bring my brothers football team some Peanut Butter Bars that we made. While we were there one of the coaches asked my brother does your sister have Alopecia? Of course my brother said Yes the coach then continued that's what I though because she looks to healthy to be on Chemo I though it was pretty cool and thought you guys would like to here about it.
Embrace it:
<3/Jessica…
Added by Jessica Hoschouer on September 2, 2013 at 1:00pm — No Comments
Added by Hanna on September 2, 2013 at 12:23pm — 2 Comments
I would like to share my story with some readers who might have just recently received a diagnosis of alopecia. This spring I noticed to my horror that I had several bald patches in the front of my scalp. I couldn`t believe it - I actually went and checked it out in several mirrors of my house. I went to work with about a can of hairspray on my head to glue the strands in place and cover the spot.
Over the course of a few days the spots grew bigger and joined up so I was looking at a…
ContinueAdded by Second time on September 2, 2013 at 9:00am — No Comments
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