All Blog Posts (5,826)

Twitter

Hey Everyone! I've decided to take a new step in embracing my beautiful bald head and started a twitter account. It's called Bald_Sarah. What I'd really like to do is start raising more awareness in our community. I would appreciate it greatly if you could follow this account in hopes more people will see it. I'm also creating a new hashtag #nohairdontcare

If you don't want to follow me, use this hashtag! lots of people have told me it's really funny. That's actually where I got the…

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Added by Sarah Bitar on February 12, 2013 at 8:42pm — No Comments

Feeling quite melancholic about my hair loss...and also feel alone

I'm glad to chance upon this site and I've only joined last night. Guess I'll start at the beginning. I used to have a tremendous amount of hair when I was 18 (am now 46) except it was a very fine, frizzy type hair and back in the 80's, there wasn't the kind of hair products or curling iron straighteners we have today and so the only solution was to perm my hair. One day, I got my step mom to perm my hair but she pulled the curlers too tight which resulted in the perm solution literally…

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Added by Meloncholy on February 12, 2013 at 4:30pm — 2 Comments

I'm warming up to this site

Hi everyone!

I'm warming up to this site. I'm happy to have found it and wish I knew about it earlier. I'm nervous, I'm affirmed ... and I'm making sense of them together.

Thanks for being brave enough to share your stories and allowing me to see myself in those stories. I plan to share a photo soon.

Thanks (and please share all your love)

Added by Ann on February 11, 2013 at 9:00pm — No Comments

I shared this with facebook today and the reponse was amazing! MUST READ

I admitted to the world today that I have alopecia and I'm proud and WOW!!! What a response. Through this I have managed to get over 20 people to sign the online petition and i dont know how many but lots of people sent in donations! A friend of mine has also set up a photo shoot, as i am an ex model, to promote alopecia awareness and raise money for Alopecia UK....I feel free and I feel like even though it was only small, i still helped the cause and will continue to do so until we find a…

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Added by Vicki Sampson on February 10, 2013 at 6:00pm — 2 Comments

Today will pass

In my journey of growth and learning I came across a book about Buddha nature or the Buddha way. Simply titled Buddha Nature Now. Im always wanting to take in new information of our world with an open mind.

Upon reading into part of this book it talks about oneness. Simply put we are of one within our own body, we are one with our family, our community, our country and our world. We know that our actions are felt on a small scale within our personal circle, it is harder to think on a…

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Added by Bald and Fabulous AKA Terri on February 9, 2013 at 2:00pm — No Comments

Wig help please:)

im on the verge of getting a wig. i think bald is beautiful, i just dont think its the right option for me. anyways, i just have all of these questions about wigs and i cant seem to find a straight answer online.

how does a wig feel? is it itchy? do you have to wear a cap under it?

how secure does it feel? how do you keep it from blowing off in the wind? is gluing recommended? can i swim with a wig on? how did you feel transitioning into a wig? can you sleep in it? can you be…

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Added by neverthoughtidenduphere on February 8, 2013 at 2:00am — 5 Comments

Total regrowth

Hey everyone

I hope you are all well. I haven't been on here in a long time.

I felt it was important I wrote this blog to let you know how I have been and how my Alopecia Universalis has 'changed'.

Those of you who read my previous blog will know that I experienced my hair loss at quite a fast pace, literally within a few months I had gone from having a tiny bald patch at the top of my head, to having complete hair loss all over my body.

My last blog in 2010 spoke…

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Added by Sarah McA on February 7, 2013 at 9:00am — 4 Comments

Very light blond hairs growing

I am not sure what this means, but I have some white hairs growing on my face and body. Is this a start of hair growing back? My scalp is feeling looser, not as tight. Has anyone else had this happen?

Added by Denise T on February 6, 2013 at 2:00pm — 1 Comment

New “bald” friend of Barbie causes controversy

U.S. toymaker Mattel created a “bald” friend of Barbie doll named Ella and donated a limited quantity of the dolls to the National Alopecia Areata Foundation (NAAF).

However, the bald doll has created some controversy in the alopecia community because Ella is packaged with a wig on.

Some feel that it is not a real representation of a person with alopecia and…

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Added by Cheryl, Co-founder on February 5, 2013 at 11:00pm — 54 Comments

How to explain to a 10 yr old?

It's been very hard for my son who is only 10 yrs old. how do i answer his questions?

Added by Iris Mendez on February 5, 2013 at 1:00pm — 6 Comments

My daughter

Hi my name is Krystal and my soon to be 14yr.old daughter has A.A.she's losing her hair at a faster rate than we anticipated. I don't think the full aspect of what's to come has hit her yet and I want to shelter her from it but I know that I can't as much as I want to.when does the feeling of utter uselessness and not in control go away or at least fades and gets Better? Please help an emotionally behind closed doors mom.any and all advice welcome.

Added by Krystal on February 3, 2013 at 12:30am — 4 Comments

Bald and burning scalp sensation

Help - anyone who has experienced this place respond.

It is almost two years since I had the little bit of hair I had left cut, shaved and I began to live my life as an alopecian (I barely had hair). Last week I developed a burning sensation on the back of my head. It looks like I have a sunburn. Initially it looked like a rash, but that went away in two days. It burns like I have a sunburn. I went to my regular doctor thinking perhaps I had shingles. I had chicken pox at 34 years of…

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Added by Lili Añel (aka Eulalia) on February 2, 2013 at 2:18pm — 8 Comments

Genetics

Hello...

Wondering if anyone has this auto immune disease and had it passed on through their family? I have been dealing with this all my life off and on since I was around nine years old. Then things became even worse, where I've had to wear a wig for the last 18 years. But I don't care about me, its my daughter. She's a beautiful 21 year old with gorgeous long hair and yesterday she showed me a bald circle on the nape of her neck the size of a 50cent piece. I instantly became sick to my… Continue

Added by Hope on February 2, 2013 at 12:58am — 4 Comments

My head is cold

WOW it's suppose to be summer here in Sydney Australa. Woke up this morning and it's raining NO problem went outside and oh my goodness my poor little head is fresszing I had to come inside and get a beaney to cover it up. I don't usually feel the cold but wow my head is not used to being bare. So much for global warming!!!!!!! I hate to think what my head is going to feel like in winter. But because my hair is growing back I might have enough to keep it warm by winter. You don't realise how…

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Added by Annette on February 1, 2013 at 4:30pm — 3 Comments

Alone in Alopecia World

I've never "blogged" before so be patient as I must learn as I go.

I feel like I'm an outsider in Alopecia World, which saddens me because I thought here was a place where I'd find people who would be more accepting and understanding than anywhere else. Please don't misunderstand; I'm not making accusations, nor am I criticising anyone in here. I am "different" from most people with or without alopecia. I've always marched to the beat of another drum, not concerned with what others…

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Added by Larry Barbee on February 1, 2013 at 2:56pm — 3 Comments

Son with alopecia. Anyone from NJ?

hi! my name is iris i have a son that has alopecia is there is onyone from nj?

Added by Iris Mendez on February 1, 2013 at 11:30am — 6 Comments

Courage to Believe

I wanted to share a piece of my personal journey with Alopecia. When I need to work through things...I write. The process is healing.

Courage to Believe

Standing within a shadow of illusion

Not knowing my desir

A journey lacking fulfillent

A soul without the fire

Suddenly I realize what a waste of time

How miserable my world has been

Searching for reasons to understand

What haunts me deep within

Then I found the person within me…

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Added by Emily on January 31, 2013 at 12:30pm — 2 Comments

Stare

When people stare I makes me so sad and stressed I learned to ignore it but when your a bald girl with patches all over your head it gets hard. I wish I had the alopecia where your hair doesn't grow.because I get so use to my hair I get happy and excited.not that many people stare.but then it grows then falls out again I always wonder why me?

Added by Mercedes Maria Butler on January 27, 2013 at 3:51pm — 8 Comments

Australian fake eyebrows/lashes?

Hey guys just wondering if there is any magical clinic in Australia that can do fake eyebrows and maybe even lashes that look real and last?

Added by Walker on January 26, 2013 at 3:30am — 2 Comments

Is there a comfortable wig?

I have had alopecia for over a year now. I am a healthcare professional and encounter patients throughout my 12 hour shift each day. I spend the day assuring my patients that I am not sick and keep the moment light with a short explanation of AU. I have tried wigs and the most aggravating part that I cannot seem to get past, is how the hair feels against my face or when it gets in my eye. The wigs I have worn are synthetic and I was wondering if the real hair wigs felt this way. It feels…

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Added by april on January 26, 2013 at 12:00am — 6 Comments

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