All Blog Posts (5,832)

How to explain to a 10 yr old?

It's been very hard for my son who is only 10 yrs old. how do i answer his questions?

Added by Iris Mendez on February 5, 2013 at 1:00pm — 6 Comments

My daughter

Hi my name is Krystal and my soon to be 14yr.old daughter has A.A.she's losing her hair at a faster rate than we anticipated. I don't think the full aspect of what's to come has hit her yet and I want to shelter her from it but I know that I can't as much as I want to.when does the feeling of utter uselessness and not in control go away or at least fades and gets Better? Please help an emotionally behind closed doors mom.any and all advice welcome.

Added by Krystal on February 3, 2013 at 12:30am — 4 Comments

Bald and burning scalp sensation

Help - anyone who has experienced this place respond.

It is almost two years since I had the little bit of hair I had left cut, shaved and I began to live my life as an alopecian (I barely had hair). Last week I developed a burning sensation on the back of my head. It looks like I have a sunburn. Initially it looked like a rash, but that went away in two days. It burns like I have a sunburn. I went to my regular doctor thinking perhaps I had shingles. I had chicken pox at 34 years of…

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Added by Lili Añel (aka Eulalia) on February 2, 2013 at 2:18pm — 8 Comments

Genetics

Hello...

Wondering if anyone has this auto immune disease and had it passed on through their family? I have been dealing with this all my life off and on since I was around nine years old. Then things became even worse, where I've had to wear a wig for the last 18 years. But I don't care about me, its my daughter. She's a beautiful 21 year old with gorgeous long hair and yesterday she showed me a bald circle on the nape of her neck the size of a 50cent piece. I instantly became sick to my… Continue

Added by Hope on February 2, 2013 at 12:58am — 4 Comments

My head is cold

WOW it's suppose to be summer here in Sydney Australa. Woke up this morning and it's raining NO problem went outside and oh my goodness my poor little head is fresszing I had to come inside and get a beaney to cover it up. I don't usually feel the cold but wow my head is not used to being bare. So much for global warming!!!!!!! I hate to think what my head is going to feel like in winter. But because my hair is growing back I might have enough to keep it warm by winter. You don't realise how…

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Added by Annette on February 1, 2013 at 4:30pm — 3 Comments

Alone in Alopecia World

I've never "blogged" before so be patient as I must learn as I go.

I feel like I'm an outsider in Alopecia World, which saddens me because I thought here was a place where I'd find people who would be more accepting and understanding than anywhere else. Please don't misunderstand; I'm not making accusations, nor am I criticising anyone in here. I am "different" from most people with or without alopecia. I've always marched to the beat of another drum, not concerned with what others…

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Added by Larry Barbee on February 1, 2013 at 2:56pm — 3 Comments

Son with alopecia. Anyone from NJ?

hi! my name is iris i have a son that has alopecia is there is onyone from nj?

Added by Iris Mendez on February 1, 2013 at 11:30am — 6 Comments

Courage to Believe

I wanted to share a piece of my personal journey with Alopecia. When I need to work through things...I write. The process is healing.

Courage to Believe

Standing within a shadow of illusion

Not knowing my desir

A journey lacking fulfillent

A soul without the fire

Suddenly I realize what a waste of time

How miserable my world has been

Searching for reasons to understand

What haunts me deep within

Then I found the person within me…

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Added by Emily on January 31, 2013 at 12:30pm — 2 Comments

Stare

When people stare I makes me so sad and stressed I learned to ignore it but when your a bald girl with patches all over your head it gets hard. I wish I had the alopecia where your hair doesn't grow.because I get so use to my hair I get happy and excited.not that many people stare.but then it grows then falls out again I always wonder why me?

Added by Mercedes Maria Butler on January 27, 2013 at 3:51pm — 8 Comments

Australian fake eyebrows/lashes?

Hey guys just wondering if there is any magical clinic in Australia that can do fake eyebrows and maybe even lashes that look real and last?

Added by Walker on January 26, 2013 at 3:30am — 2 Comments

Is there a comfortable wig?

I have had alopecia for over a year now. I am a healthcare professional and encounter patients throughout my 12 hour shift each day. I spend the day assuring my patients that I am not sick and keep the moment light with a short explanation of AU. I have tried wigs and the most aggravating part that I cannot seem to get past, is how the hair feels against my face or when it gets in my eye. The wigs I have worn are synthetic and I was wondering if the real hair wigs felt this way. It feels…

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Added by april on January 26, 2013 at 12:00am — 6 Comments

Me and AU

I have lived with Alopecia Universalis since I was two years old. Without this disease, I probably would be a completely different person. I consider myself a little stronger, more compassionate, and less judgmental because of AU.

I am scared to show everyone who I really am though. I have hid underneath a wig for almost 13 years now. I'm not afraid to not have my hair on around my close friends and family, but I am very scared to walk out without it. I am trying to build up…

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Added by Catherine on January 25, 2013 at 11:35pm — 6 Comments

Australia Day

Hi everyone in Australia it's Aussie Day time to eat and be merry and to celibrate being an Aussie.

Added by Annette on January 25, 2013 at 8:00pm — No Comments

Wheat Belly

So, I was reading the book, "Wheat Belly," and it said that there may be a connection with Alopecia, along with other autoimmune disorders that are connected to eating wheat. I have gone off of wheat, just to see if there is any truth to it. I will keep you posted!

Added by Jean on January 25, 2013 at 6:25pm — 9 Comments

Our version of events please post yours!

This is my wife's version of events

Hi my name is Ann-Marie, I am Katelyn’s Mum, a founder of BeBold in the United Kingdom.

Katelyn was first diagnosed with alopecia when she was only two years of age. At first her hair started to fall out in only small patches, but naturally concerned about her hair loss, we like so many others visited our local GP. We were very lucky to have a very supportive surgery and our Doctor quickly diagnosed Alopecia Areata. When I tried to find…

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Added by The Be Bold Team on January 25, 2013 at 5:00pm — No Comments

It gets easier

well, i was told i had alopecia areata when i was in the 8th grade. i was always the one with the longest, prettiest hair and losing my hair was honestly the hardest thing i ever had to go through, which sounds pretty selfish. i am now a freshman in college and i rectlenty shaved my hair because i went through a really bad phase of my hair falling out. i couldn't be happier with how things are going and how supportive evrybody is. even though, we have this devestating disorder God has a plan…

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Added by Rachel on January 24, 2013 at 11:00pm — No Comments

What doesn’t kill you makes you stronger

What Doesn’t Kill You Makes You Stronger

Teenage stress is very common in high school; every teen has something that worries him or her, from a relationship to a final exam. At this stage in one’s life, everything seems so complicated, but there are some people who are faced with even more complicated stressors in their lives. A devastating illness in a teenager’s life can alter their persona and sometimes it may force them to unwillingly see life in a different way. I can’t talk for…

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Added by Jackie on January 23, 2013 at 8:00pm — No Comments

Only in winter

Hi People,

I have had AA for 20 yrs. It gets bad only in winter. Ive tried vitamin D, creams and rogaine.The fact is, I get it bad in winter only on my head. Im convinced that if i lived in a warm climate my problems would be minimal.

Do you have the same problem?

Peace to all

Added by iboytony on January 23, 2013 at 8:00pm — 1 Comment

It is okay to replace what's missing

When we can't see: glasses or contacts.

When we need a lift: bra.

When our teeth break or get strange: braces, caps, whitening, bridges.

When a heart fails: stent.

When arches drop: shoe inserts.

To cover nakedness: clothing.

To not be animals: toilets, deodorant, condoms, houses, sweet scents.

To improve color: make-up.

So...why stress over wearing anything new on a head? Seriously! You've already agreed to the inventions of humans, so why not one…

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Added by Tallgirl on January 23, 2013 at 12:30pm — 5 Comments

Human hair wig supplier

Hello All. Can anyone please advise me where I can get a good glueless human hair wig? I am from Mauritius. So, I would like to have a reliable supplier nearest to me.

Added by LUV on January 23, 2013 at 11:47am — No Comments

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