All Blog Posts (5,832)

Interesting experience today

In my circles a wig is worn when marriage occurs, until then it is not considered the norm (This explains why they were talking about a wig during the wedding/marriage)

I work for my mom in a special education preschool in the summer. My mom told me one of the teachers who is about 3 years older then me uses the fill in powder I use in my hair (I dont know if she knows I know that she uses it, most people don't know she uses it ). I have been debating on/trying to get the courarge to…

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Added by You can do it : ) on July 24, 2012 at 11:01pm — 2 Comments

Just want to be normal

Depression is settling in once again...

I've never wondered "Why Me?" Until now.

I don't know why, but this condition is bothering me more than ever before. I've dealt with it since I was born. I'm 18 now and still nothing has change. I have 2 younger sisters, they both have a full head of hair, everyone in my family does. So some thinking has gotten me to the point to ask "Why me?"

I know I shouldn't be all sad about this because there are other people out there probably…

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Added by Julie on July 24, 2012 at 5:30pm — 7 Comments

Giving up on treatment

I've had AA pretty much my entire life. When I was little I had a patches of hair that just never grew. That went into remission for a few years then came back when I was in high school. I've been doing scalp injections for the last decade probably. It keeps the AA in check, but I never have had full re-growth. My AA has always been pretty easy to cover up, until the last six months when I developed a patch towards the top of my head. My hair is noticably thinner (to me anyway) and I'm…

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Added by AshleyK on July 24, 2012 at 1:00pm — 4 Comments

My parental struggle to accept my son's AU

My son has only been recently diagnosed with AU. It was quick too. in a few months he was completely hairless.

I know he is healthy and i thank god he is, but it breaks my heart knowing he is different, and he knows he's different. And after being upset about that i feel guilty that i should embrace his bald headed cuteness! I am not ashamed of him in any sense of the meaning i just fear for him, growing up in a smaller town, people are cruel and ignorant. I am mad at the world for…

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Added by Jordan's Mom on July 24, 2012 at 12:00pm — 25 Comments

"I'm gonna miss this place"

This past weekend, I attended the NAAF Conference in Washington, DC. It was my first conference as an ‘adult.’ I have been to about 10 other conferences since 1994, but I was always in the kids’ camp. I loved every minute of that camp: I met a ton of people and was able to hang out with all of the friends I have made over the years. This year was different, though. I was able to go to meetings and talk about how having alopecia affects me. That was a rude awakening in itself. It was so nice…

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Added by Alex on July 23, 2012 at 6:30pm — 24 Comments

Still don't know how to handle work

So I just got a new job a few weeks ago and a probable diagnosis from my doctor (waiting to see my dermatologist) but all the tests so far support her conclusions.

Still this is very new to me and my hair gets worse every day. I will probably not wear a wig around family or friends but I've been fitted for one just in case I feel I need it.

The issue is now how do I tell people/boss at work, do I tell them. I don't want them to jump to conlusions about my health but I also feel…

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Added by Marinetta on July 23, 2012 at 8:00am — 11 Comments

Visit to the hairdresser

After 3 years of cutting my own hair because I was embarrassed by my hairloss I finally went to get my hair cut by a professional. Since my hair started falling out I have been too ashamed to sit in front of a mirror and have someone else touch my hair...all those people starting and judging me. Last week I decided that I was probably being paranoid and that I should just get over my fears and go...so I did. The result is great! My hair looks so much thicker in my new bob style. It was still…

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Added by LN_DARK on July 23, 2012 at 6:00am — 3 Comments

New to alopecia

Hi everyone,



I just wanted to introduce myself here. I'm Jennifer and I recently developed alopecia areata a couple months ago. I joined this site because it looks like a great support group. I'm only 17, about to go into my senior year of high school. I'm most nervous about going back to school because I left school not having alopecia, but will be going back with now noticeable patches on the back and top of my head. I'm also on a dance team in the fall seasons, and am nervous…

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Added by Jennifer on July 22, 2012 at 10:30pm — 6 Comments

Daughters of alopecia mom

I have 3 daughters.

The 2 youngest ones, 8 and 3 were playing dress up and were role playing.

Of course as usual I like listening to them, while I do my "stuff' (you know, what mom does in a house)

And so imagine my surprise when my 8 year old dressed up as a queen and had my youngest one ceremoniously bow to her and call her 'Queen Alopecia"....Of course I was startled but I was also cracking up to hear my 3 years old call her like that.

Kids have different ways to…

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Added by jenx on July 22, 2012 at 5:00pm — 2 Comments

Theophylline reaction and alopecia

Sorry I hit enter too soon on the previous post. I am just popping in to mention the very relevant fact that Theophylline can cause alopecia, and probably caused mine when I took Cipro with it back in '94. Just putting that into words. Please comment if you think Theophylline could have caused alopecia in a case that you know of, be it yourself or someone else. This medication was given to me for asthma and it helped, but had such repercussions.

Added by Laura Adams on July 20, 2012 at 8:00pm — No Comments

Isn't it weird how when it happens to you it's everywhere

I saw a girl with alopecia yesterday, and a guy the other week on the bus (probably, you never know). Göteborg is pretty small in comparison so for me this was huge. Made my day!

And without my alopecia I wouldn't even have noticed. Or I might have noticed and wondered why they didn't have hair.

I'm just sorry if I stared at the guy on the bus I was so elated. But of course I didn't ask him, I didn't want to bother him, I should have instead of staring as if I was the the…

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Added by Marinetta on July 19, 2012 at 3:21am — 12 Comments

Alopecia areata and the African American woman

My journey with alopecia has definitely been long, hard, and lonely. As an African American female (which I am sure this may be true for other cultures) I have found it very hard to find a beautician who actually understands the considition of alopecia itself. I have been through my fair share of beauticians and most of them I have found do not understand the condition/disease itself. I have had numerous Africann American beauticians ask me how this happens, what am I doing to damage my…

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Added by Jasmine Harrell on July 18, 2012 at 9:00am — 1 Comment

Maile's treatment

My daughter Maile will be 3 this August and has had alopecia for the last year. She doesn't have much hair left and was wondering if anyone has tried the Divine Herbal Hair Oil??? I just ordered it and am very hopeful! Any feedback?? Will keep you all posted on her outcome.

Added by Kim on July 17, 2012 at 7:42pm — No Comments

Another UPDATE on Devin; 2 months later

His little head is covered with hair with the exception of the orginal bald spot he had. That area is still covered with the fine white baby hair. Other than that, he's been doing great.

Keep your head and always have hope=)

Added by Leenda on July 17, 2012 at 5:30pm — No Comments

Oversensitive?

Just this past Saturday I had gone for a nap as I was quite tired, my hubby stayed up to prepare dinner then decided to watch a movie.As I woke up came downstairs my husband was walking into the kitchen and this commercial came on about hair or lipstick whatever it was i stood just at the ramp of the stairs and watched as my husband came out of the kitchen stared with an onion in his hand.I continued coming downstairs and naturally I confronted him and said you must find this girl quite…

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Added by Lisa-Lynn Marini on July 16, 2012 at 4:00am — 13 Comments

Kanikalon? How is it?

I need wig. have heard about Kanikalon fiber, that it's much better and convenient than even human hair..

Found this store in The Internet: www.findwig.com - is anybody deal with this store??

they sell only kanikalon fiber wigs, at pics looks exact as human hair going to order this model…

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Added by Ulyana on July 14, 2012 at 4:30pm — 2 Comments

Hair

Why are men so obsessed with hair, I don't get it.... my hair doesn't defined me!!

Added by Toni on July 13, 2012 at 11:49pm — 1 Comment

Alopecia Awareness Day August 4th

I'm trying get a group together in Los Angeles CA and surronding areas, for a party or pinic and possiably do a walk. Please let me know if you are intrested message me

Added by Toni on July 13, 2012 at 4:36pm — No Comments

Change brings new/return anxiety

Hi Family:

I thought I would blog to get help with the anxiety. I do have a small amount of hair at the top in which I add false hair and wear it to the right (dominant side). I have been wearing that style along with the bald look out in the public for 1 year. I have truly gotten use to the double looks and stares. I have developed a level 1 anxiety for going into familiar places and a level 3 for new places. I decided last night to switch the false hair from the right to the left.…

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Added by Ericka on July 13, 2012 at 10:58am — No Comments

Ok I'm at work and I haven't been wearing my wigs

This ignorant jerk that comes in to get his haircut just asked on of the girls I work with why I shaved my head and she said I didnt and he said oh what does she have cancer and she responded no she has alopecia and it just fell out and he said sounds like cancer to me. When he left she told us what he had said and the other girls I work with almost got as pissed as I did like if I did have cancer that would be really rude and since I don't makes it even more rude what the hell is wrong with… Continue

Added by Sheena Tha Cody on July 12, 2012 at 2:23pm — 12 Comments

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