All Blog Posts (5,826)

Update

I haven't been on here in foreverrr! I'm horrible. So here is a little update! My last blog was in September. I'm happy to say my hair is still growing! I'm not sure how long it is,but I'll post a pic soon. I have a few bald spots but they are small. I noticed itty bitty hairs where the one spot is. : ) I'm hoping my hair will stay in but right now I'm just enjoying having my hair again. I feel bad that I haven't been on here. My life has been crazy. Alot of things have happened and I…

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Added by Mackenzie on April 27, 2012 at 12:31am — No Comments

Kids are funny

I work in a preschool and one day I was working with a group of 4 year olds. One of the boys at the table looks deep into my eyes and says "You don't have any eyelashes".(He is the first one to even notice after a year.) I said, "Nope, they all fell out". His response, "Did you make a wish?" I said, "Yup, I made several." Kids are too funny.

Added by Michelle on April 26, 2012 at 8:30pm — 1 Comment

Scarves on Etsy

Just found this seller on etsy--these scarves look so cute and comfy!

http://www.etsy.com/shop/NinisNiche?ref=seller_info

Added by wendizzle on April 26, 2012 at 1:30pm — No Comments

I am me!

So, just wanted to share a little grievance with you all and then you can all tell me I'm over reacting - but it's really got my back up.

Toni Warne = fantastic singer currently on talent show 'The Voice'. She's beautiful, talented and by appearing bald and talking about her alopecia - she's raising awareness for our condition which is totally lordable. However, If one more person tells me she reminds them of me or vice versa, I think I may scream!!!! Just because we have no hair, I'm…

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Added by Emily Horsley on April 26, 2012 at 12:12pm — 3 Comments

How damaged are our immune systems??

Hey all,

It's been a while. How y'all doing?

I've never really been interested in the medical side of alopecia. I've never bothered with any medications or injections so I've not done too much thinking on it.

At the moment, I'm doing a little research. Does anyone have some good information on how alopecia affects the fuction of the immune system? I mean, on its affectiveness against infections and viruses? I know that I tend to get sick a lot more than any of my friends,…

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Added by Georgia Gardner on April 24, 2012 at 11:25pm — 1 Comment

Steroid shots

I was diagnosed about six weeks ago with Alopecia Areata. This disease is very new to me. I tried the steroid solution and it just irritated my skin. Yesterday (4/23) was my first time getting the steroid shots. I was given 7. So how many of you have tried the steroid shots? If these shots do not work I am considering getting a biopsy done just to see what is going on and making sure there are not any other auto immune disease effecting my system. Also what has everyone been trying for their…

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Added by Erika on April 24, 2012 at 5:00pm — 13 Comments

Need some advice plz

As usual I wear many wigs due to many patches and having to keep shaving my head.
My question is this: I am a smoker the only one in my home while i am wearing a wig, does anyone know if its safe to put the wig outside to air out to keep the smoke odour out?

Any suggestions would be great ty:)

Added by Lisa-Lynn Marini on April 23, 2012 at 12:30pm — 6 Comments

Looking for a job

Hi folks,

I thought that I managed my baldness and that I had not any more to think about it, as I am going bald now for years. But I am searching a job now and I have had some interviews, but each time, they choosed the other person. Was it for the skills or for the 'first better impression' of a 'hairy' competitor? I want to believe that it was for better skills, but two (hairy) persons around me made me doubting... I guess the next challenge will be to add or take off a wig during…

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Added by Christa M. on April 23, 2012 at 3:56am — 4 Comments

Newbie

Hello

I am new to this support site, but not new to Alopecia Areata. I have had Alopecia for 7 years, but this is the first time that I may actually need a wig. I am so stressed every morning pulling out handfuls of hair. I am no hesitant to make that step. I just don't want everytone looking at me noticing I have a wig on. I am taking Methotrexate - anyone tried this treatment?

Added by BMG on April 22, 2012 at 8:19pm — 1 Comment

AFP News: Japan study raises hopes of cure for baldness

TOKYO, April 19 — Japanese researchers have successfully grown hair on hairless mice by implanting follicles created from stem cells, they announced yesterday, sparking new hopes of a cure for baldness.

Handout picture taken on April 13, 2012 and released by the Tsuji Lab Research Institute for Science and Technology of the Tokyo University of Science shows a hairless mouse with black hair on its back at the laboratory in Noda, Chiba Prefecture. — AFP…

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Added by Joshua on April 19, 2012 at 10:34am — 5 Comments

I hate injections

I went for my injections today. I should really be happy they work and not complain. And I should be proud of my self when the nurse says I am a pro/amazing. I wish I could tell her that on the outside I may seem tough but on the inside I feel lost/mad/angry/physical pain.... I come home and take a shower because maybe it will erase these feelings. I don't like these feelings, I don't want to feel angry at G-d and sad. I don't want my head to be sore for the rest of the night. I know…

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Added by You can do it : ) on April 18, 2012 at 6:10pm — 9 Comments

About me

Well I had this alopecia since I was 2. I have never felt comfortable with myself because of it. I prefer not to talk about it and try to hide it. I have hairloss under my hair no eyebrows and no eyelashes on 1 eye WTF anyways. The hair on my head the back and sides has never grown back. Im just happy i found this support here, cus I have never met any1 else with alopecia...

Added by jenna on April 18, 2012 at 3:50pm — No Comments

Latest research on MPB and FPB: Proteins!

ScienceDaily: Hair Loss News

prevention, treatment options for alopecia, male pattern baldness, ...
http://www.sciencedaily.com/news/health_medicine/hair_loss/

Added by Tallgirl on April 17, 2012 at 9:30am — 1 Comment

Out of the mouths of babes- conversations with kids about alopecia :-)

I have had some great conversations with kids in the past 24 hours about my alopecia and wanted to share.

Last night I met 3 adorable kids, and this was my conversation with them:

Adorable little boy#1:" I thought youd have long hair" (he had been told about me and that I was going to babysit him and his siblings during a kirtan)

Me: "Nope, I dont have any hair"

ALB#1: "You have some."

Me: "Yes, I do"

ALB#1: "Why dont you have any hair?"

Me: "…

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Added by Christine Peck on April 15, 2012 at 2:01pm — 2 Comments

The Question

It’s been fifteen days since I shaved my head.

I knew it was going to happen sooner or later. For some reason, I thought it was going to happen later. Well, yesterday I got “the question.”

I knew it was going to happen and I was still taken aback by it.

I guess it’s because the person who asked me wasn’t a friend. It wasn’t out of concern. She was just being nosy. I assume she was asking because I shaved my head because didn’t even mention my new look. She didn’t even…

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Added by sks on April 15, 2012 at 12:56am — 4 Comments

Words of wisdom?

"To the Dalai Lama, suffering and adversity are the necessary conditions for developing patience and tolerance. These qualities are vital if we want to reduce negative emotions like hatred or anger. When things go well, we have less need to be patient and forgiving. It's only when we come across problems, when we suffer, that we truly learn these virtues. Once we internalize them, compassion flows naturally."

I read these words while reading The Wisdom of Forgiveness. One of the many…

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Added by Bald and Fabulous AKA Terri on April 13, 2012 at 8:30pm — No Comments

So this happened at work today

Customer: Oh my gosh, you're so beautiful.

Me: Oh, thanks

Customer: But why aren't you wearing a wig?

Me: Umm what?

Customer: It's really deterring from your beauty. You could be truly beautiful if you wore a wig.

Me: I'm completely comfortable with who I am and don't feel the need to hide it by wearing a wig, thanks.

Customer: Oh you're just being stubborn.

Me: No, actually I've been bald since I was two years old and I like myself the way I…

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Added by Erika Vincent on April 12, 2012 at 11:00pm — 29 Comments

My new wig is fabulous! :)

Well, I must say that I'm loving my new wig. My cousin went with me to pick one out at the beauty supply. I'm not really a "bangs" type of girl, but she asked me to try one on with auburn highlights and a "swoop" bang. I actually loved it! The nice thing about wearing wigs is that you don't have to worry about styling your hair...you just go with the flow...what sucks is what is underneath...I've been battling alopecia for the past 4 years. I manage to get it into remission for a while, and…

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Added by Chari on April 12, 2012 at 10:59pm — 3 Comments

Days later

days after being called a liar, i understand why it hurt me so bad. i wish i could lie about this situation i'm in. i wish the simple truth was that i wanted to draw attention to myself, and that i could stop at any time. but the truth is still there - i can't grow hair. i don't shave my arms and eyebrows off like i was accused of doing. i wish that i did, because i could stop and they would grow back. but they don't, i have alopecia. this is my fate. unlike theirs, mine doesn't involve hair…

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Added by jamie on April 12, 2012 at 9:30pm — 3 Comments

Found one

Well I have finally found a new wig, I loved the new place I found the owner Angie was brilliant, experienced, had family with alopecia and had the patience to help me find the right one, had just what I was looking for waiting for me ready (after I'd suggested what I wanted) and picked me a nice new ROP wig. One issue I found was she very sneakily kept the tag so I don't know what she got me lol but she did everything cut it to suit, adjusted the cap to make it smaller and fit my head…

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Added by KFlame on April 12, 2012 at 8:00am — 2 Comments

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