All Blog Posts (5,826)

It's just hair

Its JUST hair. We have all heard this. My personal opinion is YES. It IS just hair. It is not needed for daily life. It serves no purpose other than esthetics. Im talking about the hair on our heads. As someone with alopecia unversalis, I do miss having natural hair protection for my eyes and nose. I also know that after 29 years of alopecia with the loss, regrowth, loss, regrowth never ending cycle; I am much more content not having hair. The lessening of the stress is overwhelming.…

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Added by Bald and Fabulous AKA Terri on May 6, 2012 at 8:30pm — 6 Comments

Stepping out with confidence!

Today was the day. I decided to go out without any covering on my head. I stepped out my home with my head held high, got into my car and drove to a department store. I sat in the car a little while and got up the nerve to get out and go in. What a relief! No one gasped or took a double take. Everyone I encountered were very pleasant and cordial. Well, I passed that test. My next test was to pick up my college age daughter and go to shopping (to the mall). The same experience happened at the…

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Added by Angela on May 5, 2012 at 10:30pm — 11 Comments

New wig!

...and my first wig. It's a little poofy at the roots at present compared to my natural hair shape. I was told to give it a few days to settle down and then come back to have it thinned if it's still too big. It was REALLY full on top when they first put it on my head-- I looked like an 80's hair band rocker dude, but they thinned it some and used the flat iron, and this is the result. Better than bald patches by a long mile, but I still dearly miss my long hair and just being natural. It…

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Added by Tracey on May 5, 2012 at 9:00pm — 19 Comments

Grateful

I’m filled so much gratitude right now. The dermatologist just called with my test results. Everything came back normal! At first I was a little disappointed then I was relieved and grateful. I accept that no one is able to give me a definite cause. I’ve also seen my endocrinologist. It’s funny how last Friday I was so anxious and worried that the dermatologist was going to tell me my hair would never grow back. While waiting for those test results this week, I had all sorts of thoughts…

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Added by sks on May 4, 2012 at 10:18am — No Comments

Grumpy n irritated

Call me grumpy but I am extremely irritated with my aa right now as I had to have treatment on my neck today which means lifting up my wig a little so the nurse can get to the right area and I felt so vulnerable, exposed and even embarrassed to some degree. Nothing was said and today I lacked the confidence to be upfront. I'm sure this is because whenever I'm not well my aa bothers me more than usual and I feel miserable and then annoyed with myself for feeling this way. So just getting it off… Continue

Added by Pat on May 4, 2012 at 3:00am — 10 Comments

A bit of an intro

I am interested in quality of life for people with alopecia areata and am involved with the Alopecia Areata Support Association in Melbourne Australia http://home.vicnet.net.au/~aasa

Added by Pat Crotty on May 2, 2012 at 10:48pm — No Comments

Hello. My name is Emily

hi i am new to this i have had alopecia since i was in kindergarten and ma now in year 11 i have tried a few different treatments but none of them have worked for long or they have a had major side effects that if i continued the treatment it cause harm to my body i would love to hear from anyone if they have any ideas of treatments that they know of

Added by emily5 on May 2, 2012 at 9:30pm — 2 Comments

Curse my pea-sized head!

For years I've had trouble finding cute shoes in narrow widths and now a similar frustration with wigs-- small caps were discontinuted 60 days ago on my top wig pick. And do not even get me started on hats that will not stay on in the wind!! If only I could shift some fat up north.... Grrrr

Added by Tracey on May 2, 2012 at 12:14pm — 14 Comments

Been good for 4 years- now it's back!!

I first felt an ich on the back of my head reach back to scratch it and felt the all to familiar - SMOOTH PATCH. Oh, Crap not again.

Yep, after some looking I have found two bald spots on the back of my head, about the size of silver dollars. Didn't even realize I was loosing it again until I felt the spot. It's not bad just makes me self concous when i'm walking outside and the wind is blowing. UGGHH, This is not what i really need right now, but such is life.

It's not fair or…

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Added by kat533 on May 2, 2012 at 2:35am — 4 Comments

Wearing my hood

AS WENT TO THE STORE IT WAS RAINING AND NEED MY HOOD ON WENT IN STORE PULLED BACK MY HOOD AS YOU NO WHAT HAPPEN MY HAIR CAME OFF/WIG LUCKEY IT WAS EARLY MORNING AND NOBODY WAS IN THE STORE YET WHAT DAY ALREADY THANK THE LORD IF ANY THE VIDEO IN THE STORE SAW ME LOL

Added by Delena Smith on May 1, 2012 at 11:00am — No Comments

New member

Hello everyone my name is Nicole and I'm new to alopecia world

Added by nicole on April 30, 2012 at 4:00pm — 5 Comments

I really miss my beautiful long hair

A couple of days ago a friend from elementry school messaged me on facebook, hadnt talked to him in years. While we were talking he asked about my lack of hair. When i told him what my situation was he said," Wow really you always had such beautiful hair, i had no idea." makes me cry to think about it sometimes. I really miss my beautiful long hair and now that my eyebrows are gone and my eyelashes are going, it makes me really thankful that i didnt loose all my hair when i was in high…

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Added by Sheena Tha Cody on April 30, 2012 at 12:30am — 5 Comments

Alopecia artwork

Has anyone else created artwork based on your thoughts about having alopecia?

I have a few pieces. One I just finished today. Enjoy!

If you have some work of your own, I would love to see it!! :)

Deciduous- Alopecia

Spring Remission- Alopecia…

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Added by Karli R. on April 29, 2012 at 9:30pm — 2 Comments

Going bold and bald

Recently I had done an interview with the editor with the local newspaper. It was about my alopecia journey and my going boldly to the gym without having any head covering. I was thrilled to see it printed in the newspaper 2 weeks later ( its a weekly paper) and even more shocked to see my picture on the front page. A small pic, but still front page.…

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Added by Bald and Fabulous AKA Terri on April 29, 2012 at 7:30pm — 15 Comments

In denial

Well i wrote a while back that my hair was falling out for a 2nd time and was praying it would eventually stop! Well its still coming out and ive lost alot now and have more patches, it is now getting difficult to hide it and im so paranoid when im out in the wind. i have been and picked a wig for just incase it gets worse but i really dont feel ready to do this again, i dont want to shave my hair off if it keeps falling out even know its better to, i dont want to wear a wig again, i dont…

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Added by lynne on April 29, 2012 at 5:50pm — 8 Comments

"Keep ya head up"

“I know it seems hard sometimes but remember one thing. Through every dark night, there's a bright day after that. So no matter how hard it get, stick your chest out, keep ya head up.... and handle it.” ― Tupac Shakur

Added by RonaldStone on April 29, 2012 at 2:30am — No Comments

How in the world do I open up to my friends about not having hair?

How in the world do I open up to my friends about not having hair?

Added by Natiasia Morales on April 29, 2012 at 12:30am — 1 Comment

Treatments?

I was wondering, I currently keep having dreams that my hair is growing back. I dont know if anyone else believes in "6th senses" but my dreams seem to always come true about a month or two later. So I figured this is a sign to search for new treatment. Also there are a few longer hairs growing on my head that are very very light. Also, my bottom eyelashes are almost in. I have Alopecia Universalis and this normally happens in the summer but I've had my bottom eyelashes all school year. So I…

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Added by Ashley on April 27, 2012 at 4:28pm — No Comments

MRI Appointment

WENT TO HAVE MY M.R.I. DONE FOR MY BACK AND NECK AS I WAS GOING TO GET INTO THE MACHINE IT STARTED TO PULL MY HEAD-WIG I HAD TO TAKE IT OFF BECAUSE THE WIG HAS MENTAL IN IT I HAD TO OFF THANK THE LORD I HAD A HEAD RAGE TO PUT ON AT THE TIME FOR I CAN FEEL BETTER AND NOT NAKE IF YOU NO WHAT I AM SAYING

Added by Delena Smith on April 27, 2012 at 11:30am — No Comments

Funky friend

Today I had a bit of a confidenceboost from one of my good friends and thought i'd like to to share it :)

I am at the moment still walking around with my natural hair but it is getting thinner and thinner each day, and so I will shave it in the not-so-distant future. As this eventuality gets closer and closer, I have been getting a bit worried about what to do in terms of head covering. I am fine with wigs, but not in hot weather, which made me wonder what to do about my holiday this…

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Added by LN_DARK on April 27, 2012 at 11:30am — 1 Comment

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