Ethan (my son) is scheduled to begin a treatment with diphenylcyclopropenone (DCP). I've have been reading up on this sort of treatment and noticed the horrible side effects. My son already suffers from exzema and so afraid this will really effect him.. Can anyone please share your DCP treatment experience with us. I'm not sure if I want to put Ethan through this. I'm so new to all this. Seems like we just woke up one day and his hair was all gone from one day to the next.
What is… Continue
Added by Andrea & Ethan Talamantez on March 31, 2010 at 3:33pm —
Scene: Dining-in at a fast food restaurant. 8 year old or so boy bounces past my table. He takes 3 steps backward and stops. Deep stare. I smile. He bounces on with balloon in hand.
Hopefully he'll become a little more discreet in the future or at least stop long enough for me to explain that yes, I am a bald girl.
Added by Jill on March 31, 2010 at 12:08pm —
I definitely can feel a turning point in this entire process. I have been so aware of myself going through each of the 7 stages of grief.
Stage 1 - Denial
Losing my hair has been a process. Last year, I was at a sales conference in Chicago and I felt a smooth spot on the back of my head. When I got home from my business trip, I asked my boyfriend to check it out and he said it looked like someone had taken a lock of my hair. This was the first of many times that I used the two… Continue
Added by Brandy P. on March 31, 2010 at 2:37am —
Hello everyone or should I say Aloha.
My husband Vince & I just received our 2010 2nd Annual NBO tee shirts. I must say the Cafe Press has done a fabulous job with a great selection to choose from.
I ordered a white tee for Vince & a Pink one for me. They arrived today, I/we are so pleased, they look, feel & fit great.
I am so very excited & looking forward to celebrating the 2nd Annual NBO, this wonderful celebration will take place while Vince & I are… Continue
Added by Pamela Rosse on March 31, 2010 at 1:00am —
Don't feel ashame of being bald. It's a disease, called alopecia, an autoimmune disease which the hair follicles were attacked by the host immune system.
I didn't learn about the fact until last year. well, I am ,kind of, knowing a little bit about it, but just not really tried my very best to find out the information, even I am a nurse.
I know it won't be me only in this world has the problem, but I didn't like to talk about it. Because I need to explain and tell people about my… Continue
Added by dawn on March 30, 2010 at 1:24pm —
Emotions are crazy things. I haven't felt this out of control of my emotions since I gave BIRTH! I start off the day feeling strong, then a little thing happens that really shouldn't affect me, but LOOK OUT! I get full of adrenaline and anxious and ANGRY! I get s-o-o-o-o-o-o-o-o-o angry sometimes and I just want to cry and rage, but, of course, I can't! I actually visualize myself throwing a tantrum: kicking furniture, throwing tables, punching walls, screaming, etc. Then I wanna cry. and cry.… Continue
Added by Kelly D on March 29, 2010 at 7:22pm —
Oh alopecia, how you do frustrate me....
I was so angry at you when you first took my hair - and I got in first and shaved what was left off before you could take it. I was especially mad at you for taking my eyelashes but I slowly adjusted. I didn't mind that you took away my body hair and relished not having to shave my legs anymore. I was actually happy when you took away the rest of my head hair because it meant I didn't have to shave it off anymore to wear my vacuum… Continue
Added by Karina Louise on March 29, 2010 at 7:14am —
ok soo i have alopecia i was dianosed at the age of 7 and ive had it ever since then... thourgh the years of having this coniditon or "disease" as some people may say...i have been thorugh alot and i mean alot i know most of the people understand what i mean when say ALOT between the people around me that use to constantely pick at me calling me things such as freak,baldie, ugly,patchie(the worest one ever!),mistakeing my gender,making fun of me for wearing femine looking outfits,getting told… Continue
Added by ashley mcmullen on March 28, 2010 at 8:30pm —
My grandmother was visiting for a week and she demanded that I bring her out on shopping sprees almost everyday. As I am merely an underling grandchild, I had to oblige. Besides, she bought some stuff for me. :D
The first day of our outings, I wore that wig I bought, out. FOR THE FIRST TIME. It was nerve-wrecking really. The people on the streets were staring. I was hoping that it was because my hair looked fabulous, but I think it is because it looked fabulously wiggish. :/ But I… Continue
Added by Nikki Claudia on March 28, 2010 at 2:07am —
Since hairy apes walked the earth many years ago,small changes have occured in each genration,they gradually started walking upright and using tools and finding shelter and got better at keeping warm,so generation by generation the need for body hair was reduced which brings me to my point- that we alopecians are obviously the next step in this evolution. Our bodies have realised that the need for hair for warmth is no longer needed ,so it doesn't waste the energy growing it.I know its… Continue
Added by pat j madden on March 26, 2010 at 9:58am —
A friend of mine recently emailed me asking me what I thought of permanent eyeline and eyebrows for a guy.
For me, it isn't a choice I've ever thought of - I have been hairless in public sine 1996 when all my hair finally all fell out for good and I REALLY like being a hairless human.
I do know a handful of alopecians who've had their eyebrows and eyelines done. I know some girls who have shaved their eyebrows shaved off and not regrown back, and they Henna them every so often when… Continue
Added by Nathan Paul Prince on March 25, 2010 at 7:10pm —
Before I had alopecia over 40 years ago, I realized how nice it was to meet with family and friends and to enjoy each other's company. They were there to talk about world events, other family members and for me to discuss with friends what couldn't and wouldn't dare talk about with my parents.
This coming together never got more important than over the years when I was trying to learn to cope with having alopecia and not knowing one single person that had the disorder and barely… Continue
Added by Gale Moorman on March 25, 2010 at 7:30am —
I was diagnosed last week with Androgenetic Alopecia by a doctor with the worst bedside manner I've ever come across. He basically said "You have Alopecia and you're gonna go bald, but you'll keep a ring around the back like a balding man and there's really not much you can do about it."
As you can imagine, I was mortified and walked around shell-shocked all the rest of the day. The thing is, it actually wasn't that much of a surprise diagnosis, because I have had thinning hair since… Continue
Added by Michelle L on March 24, 2010 at 11:20pm —
Since I've been more open with my friends about having alopecia, I've been feeling really blessed to have such wonderful friends. They have been so supportive and very caring.
We had a huge night out with a ton of people last Saturday and I was wearing one of my long hair wigs. It was also the first time many people had seen me in long hair instead of my bob. I knew people might ask and that was fine with me. I was just wearing what I felt like wearing.
Sure enough, one of… Continue
Added by Clara S. on March 24, 2010 at 10:00pm —
Whenever the topic of hair loss comes up, people always praise me and are astounded by my attitude about my alopecia.
Its as though they feel it is something so terrible and dramatic... and that the average person would be in crisis.
Am I wrong having a positive/nonchalant attitude toward alopecia?
I was 16 and popular in high school when my hair fell out. I didn't think it was a big deal back then and don't think its a big deal now. Many people told me "High school… Continue
Added by Stacie Duda on March 24, 2010 at 9:25pm —
Ok...so I know the convention is in Indy and I have received the info. on the cost....but the bottom line is I just can't afford it! However, I will be in Indy that weekend and I would love to know if there is any way to just be apart of one of the social events? I have never been to a convention and I know that they are something special, there is just no way we can afford the ticket cost. Any suggestion out there?
Added by Kris Fenchel on March 24, 2010 at 9:41am —
Hello everybody, Just thought it might be a nice idea to write a little someting'.. My computer skills aren't too savy.. And life has been pretty busy.. But I do apologize for my lack of input..
Sooooo its been some time now since the freakesh morning 'something close to a horror movie.. when i discovered i had an obvious looking bald spot apon my head.. Almost a year now..And time has definatley helped the subtle sense of acceptance to settle in..
I am very blessed to have such… Continue
Added by phillipa on March 23, 2010 at 7:19am —
Since kindergarden I haven't been sick. Now I don't know if thats just me or if it's the alopecia. I have AA and last year when I got sick i grew all the hair on the sides of my head, and i was excited. Anyone got any info?
Added by Matthew on March 22, 2010 at 9:16pm —
I bought a new wig today and I really want to wear it to work tomorrow. It is similar in style to my old one but it is two inches longer. I was planning on saying that I got my hair layered and everything. Do you think people will notice the length difference? If anyone can let me know by tomorrow what you think that would be great!! Thanks!!
Added by Dame on March 22, 2010 at 7:22pm —
This morning as I got ready for work and drove here, I had butterflies in my stomach and felt like a kid going to her first day at a new school. All weekend long I dreaded Monday morning knowing I was going to wear my new wig for the first time to work. I never expected the response I got when I walked in the door today. Things like "Who's the new girl?" "You look fantastic!" "Who does your hair, it really looks fabulous" "You look stunning". All positives (so far).
It's not the… Continue
Added by Jenna4 on March 22, 2010 at 3:00pm —