May 2012 Blog Posts (44)

8 mile run x

hey everyone
i did a eight mile run on the 26th of may 2012 and i did a eight mile run it was fun and i raised over £800 all the money has gone to alopecia uks charity

Added by ilovethewayiam on May 31, 2012 at 2:46pm — No Comments

Who are you?

I had an interesting moment over the weekend. My daughter and I ran a 5K in my hometown. Her question was simple, yet lead to a more meaningful conversation about Alopecia. Her question, "Dad, why did you start running?"

My running life began at age 10, much like my daughter (who is now 15). In my hometown, I am known for running a lot and running fast. It wasn't always so. In fact, like many of you, I discovered at a very young age that I had Alopecia (age 5) and soon discovered the…


Added by Tim Irvine on May 30, 2012 at 12:00pm — 3 Comments

Well at least you will save money not having hair...NOT!

I am sure you all have heard this comment by someone trying to get us Alopecians to see the bright side of not having hair. Well I dont know about the rest of you but this has been very expensive for me.

I was only diagnosed 4 months ago and lost my hair rather rapidly. I went from buying every scarf & hat i could find to hide the bald spots on the top of my head, only to find in a matter of weeks I needed a full wig.

I buy hats, scarfs,glues, combs, full wigs, halo wigs…


Added by Klo on May 29, 2012 at 10:00pm — 13 Comments

The coolest thing happened to me the other day!

I have had AU since January of this year. I was wearing a wig or wraps most of the time because I felt self concious but I recently decided to go around everywhere without anything. It was scary but I am so glad I did. I was out with my husband, who is also bald. We make a funny pair. A woman that worked/owned the restaraunt came over to us and asked me very nicely if I had alopecia or cancer. I said I had alopecia and she says, "Me too," and pulled off her wig right there!! I was shocked…


Added by kathie on May 29, 2012 at 9:43pm — 11 Comments

This might save your hair!

Alright, firstly i must say that I'm really excited to be here. Because i want to share my story (on-going) with you..and i really REALLYYYY REALLYYYYY HOPE it might help you..somehow. Because i've been through HELL for the past 2 years.. it was worst last year. I've cried so much..and i practically spent every single day last year and half of this year, trying to figure out what caused my hair loss.. almost every minute,all i'd be thinking my hair..and hair alone. even if i got…


Added by Jamie on May 29, 2012 at 6:30am — 2 Comments


I just had mine tattooed this weekend, didn't hurt too bad but my eyes were swollen for three days.

I did a lot of research about a year before I got comfortable with a place,cost and recovery. I had mine done at Carrollton Spa, in Texas and it was $200.00 complete, with revisit after a month.

They come out very dark because of the bleeding, however after a few days it peels and you don't have to bother with them at all. Yea

I have found the price from $125.00 to… Continue

Added by Laurie Price on May 28, 2012 at 2:23pm — No Comments

Time to shave again!

I wrote a blog maybe not that long ago about my hair which had grown back few months earlier had started to fall out again. I am going on holiday on friday and have lots of patches but my hair is still falling out which is a pain and i dont want to be leaving hair in the pool ect. It looks like i have to shave it off but its a awful feeling that i have to do this again as its definatly back to square one!

I got my wig couple of weeks back and wore it once and hated it, I hate having to…


Added by lynne on May 27, 2012 at 3:00pm — 2 Comments

Update on steroid shots

So the last blog I posted I told you all about how I was recently diagnosed with Alopecia Areata. I tried the Saline Solution and it did not work, I then tried the 7 steroid shots into my head. Unfortunately it did not work for me. In fact it has only gotten worse. I still encourage others to try the shots. They were not that painful to me but I still say if you have not tried them yet defiantly do try. I was recently told to try tea tree oil. Have any of you tried it and had success? I also…


Added by Erika on May 26, 2012 at 10:00pm — 2 Comments

Just a little sad

Well I went shopping with my daughter the other day and all was well until....wait for it....a teenager laughed at me when I passed. I tried to ignore it and brush it off. Deep down inside it hurts and still does. So, since then I have been wearing a wig or covering up. Today, I put on my scarf and my daughter said why are you wearing that? Of course I came up with some lame excuse, but she lovingly said, you look better wearing nothing.

Just wanted to share with everyone, I'm still a…


Added by Angela on May 26, 2012 at 12:54pm — 15 Comments

Why do I have hair in the places I don't want it?

my boyfriend just said its a shame that your lip hair doesnt fall out cause i was saying i needed my lip waxed why is that the hair i want is gone and the hair i dont want is hanging on

Added by Sheena Tha Cody on May 22, 2012 at 10:30pm — 19 Comments

I wish I had a crystal ball

I wish I could look into the future and see if I will lose all my hair. I really want to know. Should I prepare for the bald me? Will it ever happen? Will I remain the same with the thin hair I have had for about five years? Will I get enoigh regrowth were possible to sustain my natural hair and style?

With all the steriod shots, my scalp is in rough shape with ridges and dents. Why can't I be the cool girl that has always worn funky wigs and therefore wouldn't seem out of the ordinary…


Added by Amanda on May 22, 2012 at 7:00pm — 4 Comments

When will I go without? I'm thinking...

I can't see me ever go bald yet i don't know society has me bound right now...

Added by Latina Sethman-Benthall on May 21, 2012 at 10:00pm — 3 Comments


After shaving what little was left of my hair off 4 months ago I have had some regrowth, some of it is growing back in really nicely but it is quite patchy and looks awful. For this summer I am in a marching band and there is no way that I will be able to wear a wig, we have cowboy hats but often during warm ups and rehearsals we do not wear these leaving me with nothing to wear on my head during these moments, in it's patchy awfulness I can't bear the thought of going without a wig or a…


Added by Kate on May 21, 2012 at 8:08pm — No Comments


Hi. This is my first post. I do have a tumblr, but I hope that this will be more personal because this is for people with alopecia. I wear a wig to school and when I go out, even though my friends are completely understanding of alopecia. I really don't mind though. It'll be awesome if any one can give me advice or message me.

Stay Strong,

Added by Jax on May 20, 2012 at 10:30pm — 1 Comment

As a Bald Woman . . .

I stand up straight and proud

I feel elegant and unique

I'm cool when other people are hot

I rock my large collection of earrings

I sometimes wear jewels or decorations on my head

I feel special

I feel ME

If you haven't tried going OUT in public bald and would like to, an opportunity is coming up soon. 2012's International Alopecia Day is Saturday, August 4! Join the…


Added by Mary on May 20, 2012 at 6:30pm — 14 Comments

Days not looking forward to, but God has a path for all of us

As I been seeing alot of thing going on in my life it was time for a new wig this is the frist time i war a lace wig and it stay on my head for a week today with native american hair I like it but the glue yes i wear it to sleep in it my safe net all my life they need to make them wear you can wear them to bed swim in everything like real hair I think

Added by Delena Smith on May 20, 2012 at 3:00pm — 1 Comment

Chinese herbal medicine

I just wanted to share something that is working for me to get some of my hair back.

I've started taking chinese herbal medicine called Ban Tu Wan for about one month now. I could see a dramatic change in my head. After loosing 3/4 of my hair last September, I tried several things which supposedly worked. Trying this medicine was just one thing that I thought I would give a try without expecting any positive result. Now after taking one month, lots of my hair are coming back and I…


Added by mmmm on May 19, 2012 at 11:37pm — 9 Comments

How to wear headscarfs?

I have been putting off wearing my wig for weeks now holding on to what hair i have left but just cant hide the patches anymore :( gutted I'm back to wearing wigs again and only just wore it today and was having the same feelings i had last time, paranoid people know, the wind blowing it about mad so thinking people can see the cap, have no proper hairline so it looks like a wig, thats just some of ther anxiety i suffer while wearing it. Questions people ask, where do u get ur hair done,…


Added by lynne on May 19, 2012 at 3:00pm — 9 Comments

20/20 - Make it stop!

So I was watching 20/20 and they were doing stories of people with rare disorders. OH to my surprise, they did a piece on Alopecia. I realize losing hair is nothing compared to eating rocks for a living but I figured, they would do some justice to the topic to educate people of this very serious condition. So they highlight this one woman who used to be a hair model. She had alopecia and lost a good portion of her hair. I have to be honest ladies and gentlemen, she got on my last nerves!…


Added by Surraugeny Sanders on May 19, 2012 at 12:30am — 11 Comments

My life

Well my life is very lovely now!

I had my first exams and they went very well!

Also my hair starts to grow a little bit.

Last month I met this boy and he's kinda cute, it doesnt care him that i'm having alopecia !! So thats very nice!

I'm in a play, and im the Red Riding Hood !

Im sorry for my bad English ..

Kisses from…


Added by Karlijn on May 17, 2012 at 5:00pm — 5 Comments

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