May 2015 Blog Posts (20)

"Rules of the game"...Take 20

I've had alopecia for 10 years now.  The past five have been alopecia universalis.  This school year, I changed school districts to be closer to home.  It turned out to be a much less stressful job and very fulfilling.  Two or three months ago, we started noticing "peach fuzz" on my face and part of my head.  When I had alopecia areta, it was common for fuzz to come and go, so I didn't think much of it.  But it hasn't gone anywhere this time, and it is getting longer.  My sidewalls are still…


Added by Bonnie on May 30, 2015 at 6:41pm — 1 Comment

Hair loss can quickly become a obsession

As I sit here writing my first thought down on the Alopecia network, my cat trying to get me to get off the computer so she can have all the attention, I wonder , is God trying to tell me something? I still can remember the day when I was 16, my mother took me to see a endroconologist (if thats how you spell it) because I was experiencing abnormal hair growth where hair should be growing on my body, acne, and (surprise) hair loss.

"Your hair is thinning." He said. No, duh.



Added by Dragongirl on May 29, 2015 at 9:34pm — 1 Comment

My very good no hair day

I did it! I went out to Panera with my 28 yr old daughter with nothing on my head! We had a bad storm and I had on my really good wig today. So I decided just to go in "topless". And life went on. The girl behind the counter looked a little wide eyed at me but I just looked straight into her eyes and gave my warmest smile. She asked how I was doing and seemed stunned when I said, "I'm doing great, how about you?" I do think I look better with hair, but I also think I look better with makeup. I… Continue

Added by Bridgid Weber on May 26, 2015 at 11:37pm — 4 Comments

No shame

I just changed my screen name from blondie49 to my real name. Instinctively I have tried to hide my hair loss for so long that I never considered just using my actual name. It's ironic that my first response would be to hide even on a forum such as this. I recently "came out" on Facebook about my hair loss. I have met with nothing but support and encouragement and I wish I'd done it sooner. Why oh why for so many years did I feel shame about my hair loss? I didn't choose it. It chose me and by… Continue

Added by Bridgid Weber on May 25, 2015 at 6:26pm — 1 Comment

First time in public without a wig or hairpiece

Yesterday I rode a roller coaster. For the first time in 20 years I did something super fun and active without worrying that my scalp concealer(dermatch and Fullmore spray were my favorites in the early yrs of my hair loss) was running down my face as I sweated or that my expensive hair would fly off my head. I did wear a turban because it was a sunny day in Gatlinburg TN where I was vacationing. I am very fair skinned and can get s sunburn just thinking about the sun too much. I did mentally… Continue

Added by Bridgid Weber on May 25, 2015 at 12:30pm — 1 Comment

Tingling feet!

I have recently been diagnosed with FFA and have learnt a lot from reading members' posts - thank you everyone, especially Debs for the very useful factsheet.

Alongside my hair loss (eyebrows and about 1.5 cm at hairline so far), for the last 9 months or so I have been suffering from tingling of the soles of my feet.  Blood tests have not identified anything, and I just wondered whether it might be linked to the FFA.  Has anyone else experienced this?

Added by JanS on May 23, 2015 at 2:00pm — No Comments


Hi All,

Who's going to the NAAF Conference this year?

Hoping to meet lots of new people there.

NAAF's always a good time!

June 25th-28th 2015 in sunny Southern California.

Added by JeffreySF on May 13, 2015 at 9:00pm — 6 Comments

NPC national level bikini competitor with AA. Don't let anything hold you back! My story.

Hello fellow AA friends,

I just wanted to share my story. I have had AA since I was 8 and every year it gets worse! I now have to wear a full wig everyday. I use a lace wig that I glue on and sleep in. Like most people with AA I was nervous around new people and most of the time just wanted to hide! One day in 2011 I decided I'm not going to care what people think anymore! I signed up for NPC bikini competition. I was so nervous not to go up in front of 100's of people in a swimsuit but to… Continue

Added by Elaine on May 13, 2015 at 12:55am — 9 Comments

Xeljanz for alopecia

Some doctors are now prescribing Xeljanz (Tofacitinib) for Alopecia, with great results. Problem is it's cost. It can run upwards of $2k per month or $24k per year, and most insurance plans won't cover it because its not yet a recognized treatment for Alopecia. But the more people who try it and get results, the more likely the medical community will recognize it as a legitimate treatment and insurance companies may start covering the cost. I urge everyone to discuss with their…


Added by Anisha on May 12, 2015 at 9:00pm — No Comments

Chronic telogen effluvium after IUD birth control and stress

here we go again! round 2. I was in a domestically abusive relationship about 5 years ago it kicked off hair loss it was extreme stress at its worst!!! a year after the relationship ended i noticed my hair texture was changing, it felt weird so weird i would keep running my hands through it the density of it changed, it felt weak and fake then came the shedding :( i was so miserable it shed all the time i could not take it anymore i figured hey i will shave it and it will grow back. I shaved…


Added by Hosch on May 12, 2015 at 2:30am — 1 Comment

Anyone who has had patchy hair loss for a long time... total hair loss?

How long does it take for hair to grow back in the different patches on average? I've found things that say 3 months? I know this condition is unpredictable. I just feel lost in not knowing what is normal progression. My daughter had one very small spot in the end of November that grew to a quarter in January over night. It was then unchanged until the end of March when it again grew. This time much larger and again over night. That same time frame the center of the large spot has minimal…


Added by JessicaU on May 12, 2015 at 12:43am — 4 Comments


Has anyone tried revitalash? Just wondering if it's worth a try ??

Added by Kat on May 7, 2015 at 12:07pm — 2 Comments

Anyone tried this way?

I currently am using DCP .05% for nearly 2months, little improvements(used it ages ago too and had a full recovery) tho this time nothing definite of yet. I heard my friend had a very good result with hydrocortisone cream 1% so thinking of adding this with my treatment... :)

IT WORKED, praise the LORD :)

Added by Humbled on May 7, 2015 at 12:57am — No Comments

Hormones, Chronic Fatigue, PCOS and Alopecia

About 6 months ago I was diagnosed with PCOS - Polycystic ovary syndrome.  About three and a half years before that I started losing my hair in patches and it resulted in total loss all over my head.  This happened twice within one year.  Prior to that I went off birth control and was hospitalized for a terrible staph infection.  All my life I have suffered from Chronic Fatigue which was flaring up during my alopecia outbreaks.

Since then I am happy to report and…


Added by HilEspi on May 6, 2015 at 8:32pm — No Comments

Nails for Christmas

I'm sure that like many people with alopecia I look at my nails sometimes in frustration.

As a female with no hair I like to decorate my nails. But they never grow, they peal, have pits and ridges.

A month or so ago I found a multi vitamin with 300% daily recommendation for biotin. I had read a number of times that biotin helps nails. Although many also say it was unproved.

I took most of the 30 tablets and did seem to feel was some growth. But I think I expected more… Continue

Added by KFlame on May 6, 2015 at 1:45am — 5 Comments

Help for FFA - Does a change in diet help?

In February I was diagnosed with FFA however I noticed my hair falling out in great numbers last summer. In early January before I was officially diagnosed I began an experiment with diet. I tried an elimination diet for about six weeks and around the third week I noticed my hair loss decreased dramatically. I have done some online research about this and found out that gluten may be the culprit to my autoimmune disorder likely triggered by stress (since I've gone back to school at the age…


Added by Linda H on May 5, 2015 at 4:07pm — 1 Comment

My life is hard with alopecia

I'm currently 16, yeah I'm a teenager that's what makes this worse. I struggle constantly with everything going on in my life and I blame it on alopecia. I wonder and ask God everyday why me? Why put more stress on me other than a normal person. I wish people wouldn't judge me or look at me different. I want my hair back, I would feel so normal and happy. I'm not gonna lie but I blame alopecia for everything, I guess you can call it a cover up, but it's one thing I believe that makes me…


Added by autumn on May 5, 2015 at 4:00am — 25 Comments

Can alopecia areata be caused by a dog allergy?

Hi everyone

I bought a border terrier for my children in November 2014 ,all was well until feb when i startted losing my hair in small circles within 4 weeks 70% of my hair & beard had gone ,i went to the doctor's & also paid to see a specialist but was told it just happens & maybe i was stressed (im not at all) i told them the only thing that had changed in my life & environment was the introduction of a dog ,as a child i was never exposed to dogs…


Added by pablonitro on May 4, 2015 at 1:00pm — 3 Comments

Alopecia makes me feel sooooooo bad

Need help friends who can share there experience with alopiciae... I'm soooo tired:()(
I don't feel confedance any more.. :(((

Added by Amouna on May 3, 2015 at 5:30pm — 2 Comments

Other treatments for alopecia besides injections in the head?

First of all may I say "Ouch" when it comes to the injections in your head. I am going to a new dermatologist for the first time and am looking for other solutions besides getting shots in my head. As these were very painful it was the first and last time I will be getting injections in my head.

Any thoughts or suggestions on other treatments and or alternative treatments! Please get back to me! I would rather be bald than go through that…


Added by BarbaraK on May 1, 2015 at 12:00pm — 29 Comments

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