June 2009 Blog Posts (132)

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Still warm

It's still very warm so tomorrow we are going to a lake and swim. We love to swim in our beautiful lakes during summer. But we have to wait for a few hot days, otherwise it's freezing cold.

Added by Annie Nero on June 25, 2009 at 4:01pm — No Comments

Kenalog injections

Has any one gotten kenalog shots in the scalp for alopecia areata? If so did you notice MORE spots after getting the shots? I got the shots about 2 weeks ago and now I have 2 new spots

Added by Katie on June 25, 2009 at 1:13am — 7 Comments

Latisse for eyelashes

Hi everyone,
Has anyone tried Latisse for eyelashes? My eyedoctor is thinking this will help Lauren, who is loosing her eyelashes again. What do you think, any recommendations? Thanks very much-Nancy

Added by Nancy Schmelzer on June 24, 2009 at 10:16pm — No Comments

does it get any better

hi there im new to this site but would love to make some new friends i lost all my hair at the beginning of this year and i have to say i was devastated i have a few wigs now and feel ok about them still have my of days though what i would give for a bad hair day does it get any eaiser

Added by sharon levers on June 24, 2009 at 5:33pm — 6 Comments

regrowth

well every1, i have lots more hair comin in on my head, woo hoo, im so excited, its pure white and luv it, ha ha
i so hope its comin bak in to stay tho, i really miss my hair and want it bak so much,
i miss blow dryin straightenin and stylin it everyday, keep ur fingers x for me people, i will keep u updated with how its goin, bak to the dermatologist on the 6th of july so will see how things r goin then,

Added by lynne on June 24, 2009 at 5:17pm — 8 Comments

The sun

It's been about 25 degrees in Sweden for two days and we both love it and hate it. We long for it all winter long, but now we complain about the sun. Typical swedish people. No weather is good enough!

Added by Annie Nero on June 24, 2009 at 11:30am — 2 Comments

4:30 in the morning

Hi my name is Ms. Elizabeth and I'm addicted to chocolate (dark chocolate)........ OH Wiat!! this isn't chocolate lovers anonymouse !!!! ok nevermind then. hehe

O.k this is really about a wig.... YES a WIG.. I know I know wigs wigs wigs but I just gotta make my own post about mine. well my Identity too. so here goes. THis may sound irelevent but you know how monkeys swing vine to vine? well my financial status is that of the Stupid monkey that sometimes doesnt make it to the next vine lol.… Continue

Added by Ms. Elizabeth on June 24, 2009 at 6:27am — 3 Comments

temporery tattoo?

ok I was thinking would I be a dork if I put a temperery tattoo on my shiny head? lol I have a real tat on my left hand (froggie) and im siriously thinking about getting one on my head but for now I wonder about a stick on like those you get at the grocery store vending machine. considering most my friends are coverd in tattoos theyd know or understand that im being impatiant rite? lol

Added by Ms. Elizabeth on June 24, 2009 at 5:29am — 4 Comments

Am I still an Alopecian????????

ok, I have had Alopecia Universalis since August 2001....not a hair from head to toe! Last March 2008 I started methotrexate for my Rheumatoid Arthritis, and 6 months later (sept 08) my hair started growing back, I now have what looks like a cute pixie cut, and was able to stop wearing my wigs in April. I have to shave my legs again, I have almost all my body hair back except for under arms and bikini line( yeah) I have eyelashes (sparse) and eyebrows. I have on tiny spot of AA over my right… Continue

Added by Kim Culberson on June 24, 2009 at 3:23am — 19 Comments

Rogaine...?

So, what's the consensus on using Rogaine to help with regrowth???



My dermatologist recommended I get it because where my hair is growing back, I guess it's not as full as the rest of my hair, and just for regrowth in general. I have yet to purchase any due to financial poopiness, but I'm workin' on it.



Has anyone had fabulous and fulfilling experiences with it? Do I get the woman's Rogaine or is the Men's better? Is there crazy stuff in the Rogaine that's not so great for… Continue

Added by eva on June 23, 2009 at 3:56pm — 6 Comments

hey

not much is happening with me my hair is growing back super good. i hope 2 get a short haircut at the end of summer. so i thought i should post a blog and tell all my friends how im doing (: i dont usually wear my wig because it is warm and itchy so i wear my bandanas. i think that it is kinda funny cause this summer im going to the dermotologist and last summer i had to go to physical therapy, one of my legs is longer than the other, i only wonder what next summer will bring?!? so yah im good… Continue

Added by Nikki Mans on June 23, 2009 at 12:27pm — No Comments

Houston is so Close

So again I havent had much of a chance to update on here much, I did throw up a few pictures of me teaching from this past semester at college and also some pictures out with my friends. I figured since my picture before had me with eyebrows I should change it, because I dont have them anymore.



So I keep finding or having people "tag" me in photos from the past. It's so much of a shock to see how much I've changed, and sometimes it makes it hard for me. I've tried to stay away from… Continue

Added by Drew on June 22, 2009 at 8:30pm — 5 Comments

Touching Tears

I'm not one to "blog" very much, but I feel this deserves proper attention. I had just received my sister's wedding invitation, and in lieu of gifts they each picked a charity. My sister picked the NAAF. Although I did know about this.... (and I cried when she told me)....... seeing it on the invitation just put a big ol knot in my throat ....... and yes, made me cry all over again. So, I thought I would share my sister's thoughtfulness with you all! Have a Wonderful Day!!! I am sooooooooo… Continue

Added by Jennifer B on June 22, 2009 at 3:25pm — 4 Comments

Hit an all time low!

This is only my second time on alopecia world, but I need support more that anything! I was looking at a photo of me

in February and I had most of my hair then , now 4 months later I only have a few strands left. I wear a hat every day, and am going to see about getting a wig this week but its the last thing I want to do. I hope it will improve my confindence as I am usually so outgoing and such a sociable person.

I hope hoping for that 'miracle' cure and the trichologist thinks it… Continue

Added by kathryn ccombs on June 22, 2009 at 9:37am — 4 Comments

just venting

Well I'm headed to work and my head is itching and has sore spots. I really don't know if thats normal. My spots are getting bigger and it is so frustrating that nothing is working! I am wondering if the cortisone shot are just a waste of my time. I have to go back in 2 weeks and get more! Well I guess I'll slip on my hat and head off to work!

Added by Misty Boggs on June 22, 2009 at 9:04am — 6 Comments

Reincarnation

Reincarnation. A rebirth of sorts. Over the weekend, I got to reinvent myself, on the outside anyway, as I once again shaved my head rather than deal with the daily fall out. I know full well that what’s on the inside won’t change much except for that initial period of anxiety and awkwardness as I go out in public. The butterflies will pass in short order. Been there, done that, no t-shirt but lots of hats and bandanas.



The change in appearance presents its’ own opportunities. I’ll… Continue

Added by Tony on June 22, 2009 at 6:48am — 3 Comments

The longest time

i havent written in the longes time. and what i am about to write is happy.

i got my hair peice for the back of my head. its great. looks wonderful im so happy about it. the hair piece made me feel better that in fact more hair is growing back. ive also realized that being happy as much as possible is a good thing. life is too short and i should be happy, i am young still! so my new goal is to be happy and to smile. my report card for the end of the year came in. HONOR ROLL! ive stopped… Continue

Added by lauren on June 21, 2009 at 10:27pm — No Comments

The Sisterhood Fraud

This seems to come up a lot here on the site (and in my life). Here's what I wrote in my personal blog recently. I thought it would be good to share with you all, to see your thoughts.





It happened again.



I am shopping at Macy’s when a curly-haired brunette catches my eye from across the circular clearance rack.



“Chemo?”



“No,” I hold her gaze. “Alopecia.”



“Ah. I know alopecia. Your hair will grow back.”



In my alopecia… Continue

Added by panuelo girl on June 21, 2009 at 3:13pm — 2 Comments

eye lashes and eye brows

Hi everyone...

I have a question about those who lost their eye lashes and eye brows. When you lost them did you lose them all at once or was it gradual? Could you tell you were losing them? Also, when you started to lose them did you have any hair on your head or any fuzz where hair growing in? Once you lost your eye lashes and eye brows did they ever grow back? The reason why I am asking this is because I have AA since I was four and only hair on my head. The other day I noticed some… Continue

Added by Dame on June 21, 2009 at 9:30am — 3 Comments

"Just curious"

Ok..My daughter is 6 years old and I was fixing her hair so I could take her to gymnastics and I found about a quarter size spot in the back of her hair. I feel so sad for her. When I went to the doctor last week I asked him about it and he gave me some gel to start using on her hair twice a day...but he said that it was unusual to see a mother and daughter with AA. Does anyone know if that is unusual? She is very supportive of me though and she always says,"mommy if you lose all of your hair… Continue

Added by Misty Boggs on June 21, 2009 at 12:26am — 5 Comments

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