June 2009 Blog Posts (132)

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People have no boundaries

I am back in NY for the summer to complete my masters degree and be done with school officially. Just like last summer I have been wearing a scarf around my head and have not been wearing my wig as it's too much bother and gets too warm. I have now, just this week, had two different people come up to me and ask me if I am "receiving treatment".



I think this is so horribly and unbelievably rude. 1) no i do not have cancer 2) when and where did people learn that this was socially… Continue

Added by amanda~ on June 20, 2009 at 9:00pm — 6 Comments

Still rollin'

I have my travel plans for Alopeciapalooza set up now and I'm so pumped for my workshop! I have some more work to do to set everything up and all but it's all good! I also got this email this morning from my website and the Toronto group is in the works of setting up CANAAF (Canadian Alopecia Areata Foundation) and they'd like me to sit in on one of their meetings. I'm hoping they'll let me be as much a part of this as I can be because this is what I've been hoping for for quite some time. I… Continue

Added by Carol on June 20, 2009 at 3:13pm — No Comments

New Member in Tucson, AZ

I just joined and I'm looking for other females in Tucson to talk to. I have been dealing with Alopecia for a long time, but its been the last 4 mos. that most of my hair has fallen out. I really need someone to talk to that can relate! If one more person tells me to try "Rogain" i am going to scream!

Added by Tonia M McCracken on June 20, 2009 at 2:00pm — No Comments

hi

hi all , i am new to alopecia world ,and to alopecia .... i m finding it quite hard getting used to my hair coming out in patches , and im not sure weather or not to get a wig or just to go bare can any one give me any advice ....thnx kyrie x

Added by kyrie ibbetson on June 19, 2009 at 2:08pm — 1 Comment

Always someone worse off

Wow. Yesterday I found out that a friend of ours that we haven't seen since Christmas has been diagnosed with breast cancer, had a double mastectomy, and is going through chemo. Her husband shaved her head for her and her little boy shaved his too. What great souls kids have. Anyway, when I said my prayers last night, I prayed especially long for her, and then asked forgiveness for me being such a selfish person worrying about my own hair falling out while this woman is fighting for her life. I… Continue

Added by Bonnie Ajan on June 19, 2009 at 1:06pm — 3 Comments

I hate people!

Seriously, I am honestly trying really hard to form to form a support group here in Winnipeg. And not having ANY success. its like no one has it, but I know there are a lot in Winnipeg with the disease because our dermatologist says he sees more and more people each month being diagnosed but everyone is damn well hiding. I want for my daughter to meet other kids and have only ONE honest person intrested in this group and meeting, thank you Christine! I have met others through the support group… Continue

Added by Tracy on June 19, 2009 at 12:25pm — 7 Comments

Got a new hat!

Just finished my A level exams yay!

Just thought I'd post what happened to me today. Went into a shop selling t-shirts and the like with slogans about the area with live in. I saw a cap saying 'Shropshire Lass' on it which I thought would be funky for University as I'm goin quite far away. I didn't have my wig on and I think the woman must have thought I was ill because she said they were £10 but only £5 for me and without me saying anything she then offered me the pink one in the window… Continue

Added by Lyndsey Pitchford on June 19, 2009 at 11:30am — 1 Comment

Exercise?

Ok, so last week I saw a different doctor at my GPs, after my blood tests came back clear.

So I wanted to discuss my options with him.

So i asked if I could see a dermatologist and he said i could do, I asked about steroids he said they wouldnt help.

So I asked about accupuncture, and he said that was useless too, so I tried asking about caffeine based potions and minoxodil he said they dont work. He said all that will help is exercise.

Maybe he thinks this will help with my… Continue

Added by christina on June 18, 2009 at 11:44pm — 3 Comments

Oprah got it wrong...

I love me some Oprah, I do. She struggles with her weight. I struggle with my weight. She motivates people. I motivate people. She has a passion for sharing information that can help us improve our lives. I have a passion for sharing such information (though I’ve done it on a much smaller scale). When Oprah ran a marathon, I wanted to run a marathon. And I did run a marathon. Because Oprah inspired me. Because Oprah made me think it was possible.



Oprah usually gets it right. But for… Continue

Added by panuelo girl on June 18, 2009 at 3:01pm — 18 Comments

Chlorine?

My girls want to swim all the time...We have a pool in the back yard. Does anyone know if Chlorine will make Alopecia worse? I love to swim..but I asked my Derm and he said he did not know...Can anyone help me out?

Added by Misty Boggs on June 18, 2009 at 2:53pm — 7 Comments

bald dreams

i have been having these weird dreams about bald girls i have no idea what they mean. ill tell you guys a few

Last night -I WAS IN A BIG BLACK ROOM AND ALL I COULD SEE WAS BLACK UNTIL SUDDEMLY A REALLY TALL BALD GIRL CAME IN AND I FREAKED OUT AND I STARTED RUNNING BUT ALL THERE WAS WAS BLACK SO I DIDNT GO ANYWERE.



WEDENSDAY- I WAS AT A BIG FANCY HOTEL AND TWO BALD GIRLS CAME UP AND TALKED TO ME THEY WERE VERY NICE BUT THEY SHAVED THERE HEADS BECAUSE THEY DIDNT LIKE HAIR I… Continue

Added by Nikki Mans on June 18, 2009 at 12:20pm — 3 Comments

What's up?

Well I just held another support meeting and it went well. It was a small turnout but that was okay because someone new to the group needed some in-depth attention and all the right people were there for him - coincidentally. I'm going to go ahead with plans for an afternoon in the park on National Bald Out day which I will add to the events (soon I hope). Other than National Bald Out day (Now International…

Continue

Added by Carol on June 17, 2009 at 10:30pm — 2 Comments

I AM NOT SICK... I AM BALD!!!!!!!!!!!

Once again, being a hairdresser who hasn't any hair....just wearing a variety of cute wigs. I have an issue with people who think I am totally devastated by this disorder, devastated or hiding a terminal disease. I really think some of my clients would rather me be telling them that I lost my hair from cancer treatment, than to accept the fact that I, with hardly an explanation, just lost all my body hair. Today, a dear client of mine who hasnt seen me for a couple months, proceeded to sadly… Continue

Added by brenda kay on June 17, 2009 at 9:58pm — 1 Comment

well poop..

Ok..so i got my biopsy results and yup AA.. I'm like ohhhhweeelll gotta move on with my life and just be positive. My derm wants to do laser.. Has anyone had laser?? I love this site it really helps..Thank you...:)

Added by Lori Villa on June 17, 2009 at 8:47pm — 3 Comments

update

Just wanted to let you all know....since I started taking those supplements I have noticed ALOT of new regrowth!!!! Just got more bloodwork done and it showed alot of improvement. Looks like it may be going in the right direction.
YAY!!!!

Added by Jamie on June 17, 2009 at 5:33pm — 4 Comments

Wednesday 17th June 2009

Hi :)

Thought I should update my blogging, as I haven't written for a while, and I have had quite an interesting day!



Went back into school today for the first time in a good few weeks (Oh the life of a student on study-leave!!) Had to set up my art exhibition in the art room, which was a bit of a palaver, but at least it's done now!! What a relief. Although I had forgotten what the little scum bags in the younger years are like. unfortunately there was a class of year 9… Continue

Added by Lizzie on June 17, 2009 at 5:00pm — 1 Comment

GMTV Appearance with Lorraine Kelly and Dr Hilary Jones

Hi All!

Hope you are all well. Just to let you know I was on GMTV with Lorraine Kelly and Dr Hilary Jones today talking about alopecia, hair loss and wigs.

Check out the video at https://www.youtube.com/watch?v=9rFHri0HynM

I'd love to know your thoughts!!

Love Michelle x

Added by Michelle Chapman on June 17, 2009 at 7:00am — 3 Comments

So far...

Ive been looking online for wigs and I bought 2, one a 2 tone blonde and black, and a pink one. I like to switch my look up quite a bit so Im looking forward to wearing them. I think the patch in the front of my head is getting bigger and starting to become noticeable so Im always in a hat and I dug out a few of my old scarves. The one good thing about this is Im a free spirit and kind of always do my own thing so wigs and scarves wont be to much of a shock to anyone that knows me. I doubt that… Continue

Added by Trixie on June 16, 2009 at 6:33pm — No Comments

I had a great day :)

To day petty great day- At school I got my finaly mathexam mark. And I got 4 :D ( thats C in America) I suck in math but that was really great. Nobody got six, so Im absolutely contented. And at colloquial exam I got 6! ( in America thats A) But back where I started. After school my class travled to the City..There we was on Lazer X, there we played "army" who run around and shooted peoples whit lasers. And after that, I buyd a purple tubetop and a some cute panties.… Continue

Added by Marita Sunshine on June 16, 2009 at 6:25pm — 1 Comment

Thyroid and Adrenal glands

Just wondering if anyone with alopecia areata has had any trouble with thyroid and or adrenal glands? When my alopecia first started after waking in the morning I would sweat and have a very fast heart beat, this happened several times through out the day. I lost weight. Went to our Dr. at the clinic and was told my thyroid test was on the low side but was still considered normal. Just started me on beta blockers for the heart beat! Started taking natural vitamins from my acupuncture DR. All… Continue

Added by Katie on June 16, 2009 at 3:51pm — 2 Comments

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