Featured Blog Posts – June 2009 Archive (81)

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Today I realized.

This morning when I woke up, the scalp was feeling very itchy. I was scratching it all over just before I went into the restroom to take a look in the mirror. When I got there I was not surprised to find three spots in addition to the infamous spot in the back. I didn't even think twice. I took the clippers and took off what was too long for my razor and then it was back to blade on scalp again, as I clean shaved the head to once again be completely bald. I took my shower to take my mind off of… Continue

Added by Kristen Viveros on June 13, 2009 at 10:00pm — 3 Comments

itchy

i have some hair growin bak on my head which im hopin its comin bak for good, but just to have some growin is a great feelin, but can any1 tell me if wen hair is growin bak in it gets really itchy, my head is itchy all the time, and can hair grow bak on my head but still lose hair in other places, as my eyebrows have thinned out, still have my lashes so far, but confused how hair is growin on my head but fell out my eyebrows,

Added by lynne on June 13, 2009 at 3:54pm — 3 Comments

Treatments for eyebrows and eyelashes so far... new nutrition findings.

It has been quite a number of weeks since the last post and Ithought I would update my progress for those following this thread.



Well I discontinued the Lumigan for my eyelashes. The Dr. said to keep trying it, but I felt there was absolutely no change in the area at all. No fuzzies or anything so I elected to stop treatment.



On the happy side, my eyebrows have come in about 90% and they are thick and dark like I used to have before the Universalis kicked in. The Kenalog… Continue

Added by Craig S on June 13, 2009 at 2:30pm — 5 Comments

National Bald Out day is next month!

Sunday, July 19, 2009 is the National Bald Out!

Wherever you live, you can take part by organizing an event, getting together with other women with alopecia, and proudly going out in public without a wig or scarf.

Join the National Bald Out group on Alopecia Worldto share ideas for NBO events, find out what's happening where you live, or start a discussion to organize a gathering:

Watch and share…

Continue

Added by Alopecia World on June 13, 2009 at 2:00pm — 1 Comment

Random stuff

I went out last night and had a great time- took myself to a local tea house and did their Friday night tea tasting. I sat at the bar across from a mirror, which at first thought was a bad idea, but I now see it wasnt. I have been becoming increasingly(as if I wasnt enough already!) self conscious about losing my eyebrows, my alopecia has turned from areata to totalis this time, I am losing hair everywhere, not just my head and a few places on my arms and legs.



The loss of my… Continue

Added by Christine Peck on June 13, 2009 at 9:20am — 8 Comments

The ReGrowth

Its been about 8 months now since I lost all of my hair...I never want to relive those moments again.Hair falling out all over the place.Crying every night and depressed all day.Just running my fingers threw my hair i'd get a hand full.Around the third month my hair started to return.Every visit to the dermo was an emotional one.I kept thinking "why is this happening to me?". I feel everyday its gets a little longer and a little healthier and my dermo says hes surprised at how fast its growing… Continue

Added by Simone La Sure-Clark on June 13, 2009 at 12:52am — 5 Comments

Because I Have Alopecia, Something Wonderful Happened

After all the anger and tears and depression that I've come through to be where I am, something amazing and positive happened as a direct result of my losing all my hair!



I have a friend who is battling cancer, and she's having a very tough time physically and emotionally. She's undergoing chemo, and recently lost her beautiful hair. I had given her several of my Turkish scarves, but today when I called her, she started crying and asked me if I have a wig she could borrow. She's lost… Continue

Added by Mary on June 12, 2009 at 4:20pm — 5 Comments

August 11 : (

ugh... On august 11 my life is going to change!!!! I have one person in my life who keeps me completely sane and now he going to leave for deployment!!! If life isn't hard enough dealing with au and now I have to deal with this...Sometimes I just think life isn't that fair to me!!! I don't know what to do I feel like my heart is breaking. He is the one at nights when I'm upset are sick holds me and says everything will be ok!!! Now that he is about to leave for Afghanistan, I'm scared, I'm… Continue

Added by Izzy on June 12, 2009 at 3:47pm — 3 Comments

Two Foot Teen - A Touching Story

I watched a really touching story last night regarding a teenage girl of 16 who lives in Najpur, India. Joyti Amge suffers from a condition similar to a Dwarf syndrome. She was born weighing only 3 pounds and now at the age of 16 she is only a mere 9 pounds and is 23 inches tall.



What touched me the most about the story is that Joyti is such a happy girl. She smiles and laughs alot. She has a positive attitude towards life. She mentions that at the age of 3 she knew that she was… Continue

Added by Salmezan on June 12, 2009 at 1:03pm — 2 Comments

Interesting to read others feel the same as me. Really miss eyelashes and brows, and haven't yet come to accept "bald is beautiful"! Don't like being bald but my wig (a quality number) feels too hair…

Interesting to read others feel the same as me. Really miss eyelashes and brows, and haven't yet come to accept "bald is beautiful"! Don't like being bald but my wig (a quality number) feels too hairy! However, rest of body can stay bald forever, love that. Hair started falling out after stressful incident, and happened very quickly. Anyone else lost their hair to stress/shock that they can pinpoint? Continue

Added by Cheryl Lemmon on June 12, 2009 at 3:38am — 7 Comments

Can a telogen effluvio turn into alopecia totalis?

I can´t stop my hair falling...two dermatologist affirm me that is nothing serious but stress...what do you tell people about your changes in your hair?

Added by Karina on June 11, 2009 at 2:00pm — 2 Comments

On the alopecia road again

On the alopecia road again or so it appears. Three months of letting my hair grow back were…different. Seems folks were more at home offering comments once I was approaching what they considered ‘normal’. Questions such as “are you better?” became common place and were, for the most part, ignored. On the upside, one lady commented that I looked ‘sexier’ without hair. OK, so it’s been a number of years since a woman offered such a generous appraisal of my appearance so I figure that I’ve earned… Continue

Added by Tony on June 11, 2009 at 1:58pm — No Comments

Anyone have burning sensation prior to AA noticement? Histiocytosis sufferers?

One night I remember waking up with a burning, like a lit cigar held to my head, a few days prior to noticing my first spot, at age 29! Has this happened to anyone else? Maternal grandmother lost all her hair at 14, in the late 1930's. Figured heredity. Since then, I have been diagnosed with Langerhans Cell Histiocytosis. Alopecia can occur from LCH of the scalp, however I was never tested. Wondering if it could have been heredity, LCH, or maybe a centipede bite! Remember waking up with a… Continue

Added by Jeweli Due on June 10, 2009 at 8:22am — 2 Comments

I'm Grumpy Today.

Today my boyfriend warned me that he could see a spot. He knows how I obsess over each new spot and he also knows that if anyone but him pointed out a spot to me I'd probably brake down. I've been dealing with some other health issues so my defenses are way down.

Every since I was diagnosed I've been losing hand fulls of hair in the shower. I've taken to washing my hair less with the idea that out of sight is out of mind but the other day a CHUNK fell out. I felt hope die a little. I know… Continue

Added by Kat on June 9, 2009 at 11:46pm — 5 Comments

Has this happened to anyone else?

Wanted to know if this has happened to anyone else! Had 2 bald spots since Dec, then a third one started.Hair is starting to grow back.Had 1 set of kenalog shots and have been going for acupuncture. All seemed good for the last month. NO hair falling out! The other day I ran my hand through the back of my hair and noticed hair falling out. Then the God almighty terrible feeling came rushing back. Got out the dreaded mirror and sure as I thought another new spot, about the size of a fifty cent… Continue

Added by Katie on June 9, 2009 at 11:07pm — 4 Comments

how much more hair can i lose...

I feel like i just see 15-20 hair every 15 minutes on my clothing.. Not to mention the shower..How long do these episodes last. I get so sad. Waiting for my biopsy to come back in a week..What is going on?? Have to vent can't take it anymore..

Added by Lori Villa on June 9, 2009 at 8:31pm — 5 Comments

Introduction

Hi there, I am Christine. I have had alopecia since 1998- my hairdresser noticed a small bald patch behind my right ear.In 3 years it progressed to me being fully bald on my head, and a couple small patches on my arms and legs. When I had lost most of my hair, all but a thin patch, my parents decided to buy a wig for me for Christmas that year. It was amazing how much it helped. It wasnt anything fancy, just a $35 wig from a local wig shop run by an Asian lady. She helped us pick it out, said… Continue

Added by Christine Peck on June 8, 2009 at 10:46pm — 2 Comments

stupid dermotologist):

so i went 2 the demotologist 2day didnt go so good.....so me and my mom drove 1 hour 2 get there and my dad was working down there so he helped us find are way. when we got there we got in right away everything was going good they told us a doctor would be down there soon but 3o minutes later the nurse came back and say my doctor back home didnt send the blood test to the dermotologist and they had 2 get them so they sent me back to the waiting room and 30 more minutes later they sent us back… Continue

Added by Nikki Mans on June 8, 2009 at 8:45pm — 7 Comments

Performed bald for the first time last night!

I'm a drummer with a couple of Balkan bands and since losing my hair, I've worn one of my Turkish scarves while performing (as shown on YouTube videos - search for "Dromia stoynoff"). Though I've gone folk dancing bald, I've never gotten up on a stage and performed without my scarf since I lost my hair. I just haven't been ready to be up in front of people on a stage, bald.



Last night I did it! It was warm, and I was working hard drumming with some visiting musicians, so I took off… Continue

Added by Mary on June 7, 2009 at 8:03pm — 7 Comments

seem ok

why is it everyone tells me im takin it well, wen im not really, i hate bein bald i hate the fact that my eyebrows and other body hair is thinnin, i am so hurtin inside that no 1 knows' apart from the people that r on this site, i hate it like really hate this havin not hair,no confidence left now, didnt have much before that anyway. people will never ever understand how u feel until they have bn thro this themselfs, i her my friends n family sayin how gd it would be if no one had there hair to… Continue

Added by lynne on June 7, 2009 at 6:54pm — 17 Comments

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