September 2008 Blog Posts (111)

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I'm going to be in the newspaper for Alopecia Awareness Month

Hello Alopecia Family and Friends,

A couple of weeks ago I sent out letters to some of the local newspapers in NH and Boston, MA telling them that September is Alopecia Awareness Month and asked them if they would post an article with my poem and a few paragraphs about what Alopecia is and how it affects us. I got a phone call last week from a reporter from one of the papers asking if she could come to my home and interview me :-) This will be the 3rd time I have been in the newspaper and… Continue

Added by Dotty on September 8, 2008 at 11:50am — 1 Comment

Dotty's Inspirational/Motivational Reflection

Added by Dotty on September 8, 2008 at 8:28am — 1 Comment

Dotty's Inspirational/Motivational Reflection

Added by Dotty on September 8, 2008 at 8:25am — No Comments

Alopecia World T-Shirts

OMG!!!

I just had a thought...

How better to bring acceptance to alopecia than a T-Shirt?
Not only acceptance... but awareness to the general public.

If I am not mistaken September is Alopecia Awareness Month and I have been raking my brain what to do.

Anyone have an interest in this?
Have a connection?
Hope I thought of this in time...

Jeff

Added by JeffreySF on September 8, 2008 at 12:46am — 51 Comments

Update on my travels

Hello everyone!



Wow, it's been so long since I've been on here, I've been working and travelling in the US for nearly 3 months now & have no had a chance to get on here at all. Hope everyone here is doing well.



It has been an amazing experience so far but very challenging as well. I am now very close to alopecia universalis - I have but a few random body hairs left. I wear a wig most of the time.



I started off my travels working at a summer camp in Maine.… Continue

Added by Karina Louise on September 7, 2008 at 4:00pm — 2 Comments

new wig =)

Finally...a new picture! Hope you're all doing well!

Added by traci on September 7, 2008 at 3:03pm — 6 Comments

:<</body>

im depressed. i miss him! :/body>

Added by Courtney on September 7, 2008 at 2:42pm — 2 Comments

A trip to the salon

So, my brother is getting married next weekend. It'll be outside.....by the beach....probably windy.....*sigh*



Caved in and went to the salon to get some highlights and a cut. My hair lady chose 2 different highlights to use: blond and brown. I'm a strawberry blond.....



I'm pleased that using 2 different shades has given more texture to my hair so as to better conceal the "crisis" I've been dealing with on my head. I hope that it won't be too windy since a lot of pictures… Continue

Added by Georgie on September 7, 2008 at 12:47am — 2 Comments

thanks to every one

I wanna thank everyone who has sent me messages, and comments welcoming to the site, its soo cool to see how nice everyone is here. i can say for sure that there is no other social networking site out there like this,






ttyl


Joe

Added by ☆Joseph Giallombardo☆ on September 6, 2008 at 6:54pm — 3 Comments

I'm not having a good day. My eyebrows are almost all the way gone and my eyelashes are going too. I started losing eyelashes yesterday and by today, there are patches left. Ugh! I don't even look li…

I'm not having a good day. My eyebrows are almost all the way gone and my eyelashes are going too. I started losing eyelashes yesterday and by today, there are patches left. Ugh! I don't even look like me anymore Continue

Added by Rachel on September 6, 2008 at 3:30pm — 8 Comments

It's about time...

I have had Alopecia Areata since I was four years old and have done everything I can think of to hide it from others. I would often times style my hair put on so much hair spray to keep in place.. making sure that no one can see my spots. It worked when I was younger but as I got older the spots got bigger and were not growing anything. I got my first wig when I was 15 and it was really hard to except, but once again I did everything I could to ensure my secret was kept. Only family and close… Continue

Added by Dame on September 6, 2008 at 9:29am — 3 Comments

Is it true?


But we know, of course, that lookism and other forms of appearance-based discrimination is no joke. Therefore, how do you think you can take a stand against the scourge?

Added by rj, Co-founder on September 6, 2008 at 8:41am — 2 Comments

The Big One in California....

We just had a semi big earthquack in SFO 900PM
We almost went down!!! OMG I'll post the Ricter scale magnitude as soon as it's available.

I dont think we are an island yet.

Jeff

Added by JeffreySF on September 6, 2008 at 12:00am — 7 Comments

WIGOLOGY 101

Hello,

I've been thinking about the years I've worn wigs, hairpieces and after reading some of the blogs and pages here, I thought it would be a good idea to share my knowledge, advice, skills, etc with you all. Below are some of the sites I've shopped at and still shop at when needed. Also, I've rated them, please add your sites and advice. I think this would be helpful to those newly diagnosed who… Continue

Added by Linda on September 5, 2008 at 5:20pm — 10 Comments

Good day all

Thanks for those of you who commented/read my blogs, especially for not throwing stones as my complaining and venting had nothing to do with alopecia, here on my alopecia profile. At any rate. I'm going to be just fine. While I can not see the future I know that I will always protect my children, thanks to all of you who pointed out who foolish I was acting. I actually was unable to sleep because I couldn't stop planning for today. I wish I had logged on sooner ... maybe then I would not have… Continue

Added by Carmella on September 5, 2008 at 3:06pm — 5 Comments

Post Script

you know what makes it even worse!? I spent all day doing extra cleaning, taking care of the kids needs and I even gave myself a facial and did my makeup extra sultury for when he came home... and now it's smeared with tears and he wouldn't care anyway.
I HATE MY LIFE

Added by Carmella on September 4, 2008 at 11:09pm — 3 Comments

It all started....

It started with him forgeting to kiss me when he got out of the car. Soon he was spending a couple of nights a week on the couch "so as not to wake me because he couldn't sleep". The next thing I know he's going out for drinks until two am in the morning with 'people from work'. We've never done anything apart in over three years of marriage (I'm not saying this is a good thing) in fact he demanded I cut contact with every friend I've ever had and I complied :(

Now he wants 500 dollars to… Continue

Added by Carmella on September 4, 2008 at 11:02pm — 3 Comments

today

1st period-science: keith and astrid fighting. like always. astrid dives in to hit keith with her binder and missed. ends up on the floor.

spencer: courtney. do u like to draw?

me: ya.

spencer: cuz i saw ur cultural bag project in ms. coudens room. it was really good.

me: thanks. *smiles*

spencer: could u draw me somethin?

me: like what?

spencer: anything, i dog, a cat, whatever.

me: "i need a picture to look at."

spencer (he… Continue

Added by Courtney on September 4, 2008 at 5:37pm — 5 Comments

Stories and Questions

So, I've worn my new wig to work this week. It has been easier than I thought. Its funny because I have had people following me around all week telling me I look 'sassy'. HA! It has also been easier to talk about to the people I work with and go to classes with. I knew that as soon as I wore it, I was going to have to explain to people do didn't already know. It has been better than I expected. But, the first time I wore it out with some friends, I sat in the car and cried before I went… Continue

Added by Rachel on September 4, 2008 at 4:35pm — 3 Comments

FACEBOOK ANYONE???

hey all! i was wondering if anyone out there has facebook? i sometimes forget to check my page here but im on facebook like EVERYDAY and it would be nice to have some friends there too!

find me: amanda raleigh 18 st.paul mn usa!
:)

Added by Amanda on September 4, 2008 at 4:26pm — 2 Comments

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