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Haven't been on here in forever!

I barely ever get on here, mainly becuase I forgot I even had an account until I got an email from them. So I guess I will talk about what's going on with me currently. With alopecia, I have not had any hair growth in more than 5 years. I am actually used to it and just wear a wig full time. It's kind of like a security blanket for me and I barely ever take it off, which is totally fine with me because I don't feel a need to not wear it. I haven't had eyelashes or eyebrows in a couple of years,… Continue

Added by Whitney on November 4, 2009 at 12:35am — 5 Comments

Frustrating update

To those that actually keep up on my sporatic blogs and more specifically those who were interested in the discrmination lawsuit against my old workplace, I finally got a response!! After a two week delay, I finally have it and these people haven't the slightest clue! They mentioned things that I had apparently said but didn't, things I had done but had permission to do and here's the biggest kick in the pants: I wasn't given my promotion because they hired someone else out of prejudice… Continue

Added by Carol on November 3, 2009 at 4:07pm — 5 Comments

Shedding like crazy! Is there anything that I can do?

Hey Ya'll!! I'm just wondering, is there anything know to you that would help stop or slow down the shedding?!! I can't stand it anymore! I think you AT and AU people are almost better off because you don't have to deal with it!! I cant stand it and it's driving me crazy!! Is the only thing that I can do is shave my head?! I'm just not there yet!! My doctor told me that after I got the steroid shots, it should slow down, but it has not!! I'm so worn out by this, and knowing that I will have to… Continue

Added by Melissa Harris on November 3, 2009 at 12:00pm — 15 Comments

I Look Sick

"This disease must be doing wonders for my appearance, because people keep telling me how good I look."



I saw that on a sight called http://www.butyoudontlooksick.com which is created by a young woman with Lupus. For anyone living with a chronic illness that can't explain it to your friends and family, she has a story called "The Spoon Theory" which you should read. I didn't think I looked sick when I was able to do makeup, etc, just… Continue

Added by Andrea on November 2, 2009 at 12:13pm — 5 Comments

Just curious

My older brother and I were both blessed with very thick hair and cursed with AA. (Ok so it doesnt always feel like a curse but today it does!)
I've had it 10 years (most active the last 5) and his just started this year, and I'm curious does Alopecia affect more people with thick or thin hair Or am I just over tired and thinking too much lol

Added by Dawn P on November 2, 2009 at 12:10am — 9 Comments

RE:Statistic: AT and AU are 5-7% of the 1-2% (4million) people that have AA??

Het Ya'll!
Have you guys heard of this statistic before? That would mean that only about 200,000-280,000 people actually get AT or AU and the rest never do?? So where are those people??? I have not really met any on this site or anywhere else on the internet. Could this be a wrong statistic? It seems like to me, mostly everyone that has AA, eventually gets AT and or AU after a while. Thanks for any feedback!!

Melissa

Added by Melissa Harris on November 1, 2009 at 9:03pm — 11 Comments

Dating?

Ok, so no major deal - I've been single for the past year now, after an 11 year relationship. The truth is I hate being alone but I also don't get much of an opportunity to go out and meet people because I have the kids at home. It's hard enough to meet the right someone when you have alopecia let alone with a few kids at home and I'm starting to wonder if I'll ever get to meet someone special. It's not that I'm totally dependant on someone but I'm a snuggler and I really miss having someone… Continue

Added by Carol on November 1, 2009 at 11:00am — 7 Comments

Regrowth

I thought that it was about time that I posted another blog. I haven't blogged in a while, mainly due to feeling so low about my hairloss that I didn't want to post another negative one.



Everything is still far from rosy, but I thought that I'd try to post a positive blog focussing on the regrowth that I am having in my original spots.



It's quite hard to get decent pics but I took some today which turned out ok, not brilliant but ok.



The first one is the patch… Continue

Added by Robert on October 31, 2009 at 10:30am — 5 Comments

Eyebrows and eyelashes?

I am brand new to this site. I have had alopecia for 30 years and still have not accepted it. Although I am much better now than I have ever been. I have never met anyone else with it and was wondering if anyone had some good ideas about how to make eyebrows apear natural and also eyelashes as well as any tips on wigs. Even though I have been wearing wigs the whole time I thought other people might know alot more than me. I would love any comments or support from anyone. I want so badly to… Continue

Added by Jacquie C on October 29, 2009 at 5:04pm — 3 Comments

Out of the mouth of babes

sunday after church my friends 2 kids came running to give me a hug after service. one is 5 and the other is 4. the youngest one said "auntie you didnt wear your wig today?" i reminded her that auntie only wears her wig to work. so then she says " we didnt wear our wigs either, i have a pink one and my sister has a yellow one!" i laughed sooooo hard! so then the oldest one reached for me to pick her up for a hug, when i did she took her little warm hand and rubbed my head as she hugged me with… Continue

Added by Pat on October 27, 2009 at 10:08pm — 8 Comments

Getting hairy

So I'm looking at my head in the mirror and for the last few years I have ever so slowly been getting regrowth after years upon years (about 17) of having no hair at all whatsoever. I haven't done anything differently or taken any meds so this is completely occuring on its own. About 10 years ago I stopped wearing wigs most of the time and in the last year when I've seen the most growth is the time I've started becoming more involved in helping others with alopecia. Crazy… Continue

Added by Carol on October 27, 2009 at 10:41am — 3 Comments

Brand New!

I just joined this website today and would like to share my experience with my son having AA so far....of course this is just the beginning. Also I would LOVE any advice anyone has to offer!



About 1 1/2 weeks ago my enerjetic, full of life, 3 yr old boy was thrashing around on the floor, just being crazy and having fun. As I was watching him I noticed a bald spot about the size of a quarter on the back of his head. Right in the spot where kids usually rub there hair out as infants.… Continue

Added by Megan and Brody on October 25, 2009 at 3:00pm — 2 Comments

Got a new wig today!

Yeah, read that title again -- you didn't miss anything. I just got a wig today. It's the first new wig I've bought in 4 years. It's a Rene of Paris Amore Monofilament wig. For those of you who like it, the style is Erika and the color is Iced Mocha (which is basically brunette with blonde streaks.) Here's a picture below:





Forgive me if my skin looks a little splotchy; I got sick last night and when that happens my skin tends to show… Continue

Added by kastababy on October 24, 2009 at 8:38pm — 11 Comments

Anyone ever tried the bonded hair systems?

There is a place near where I live....that does custom bonded hair systems.....they are actually glued to the scalf and you go once a month to have them maintenanced and rebonded.......they can be fit in with regular hair if you have some too...................anyone ever done this or heard about it???

Added by Casee on October 24, 2009 at 8:06am — 3 Comments

What keeps me positive

well as i have read some recent post and a lot of us our feeling a little down about our situation well here is what i do to keep myself positive, i do the things i love to do, like playing drums(really good therapy), going to concerts, listening to music, going out of town, hanging with friends, well i do a lot but i take everyday day by day, i'll worry about tomorrow when tomorrow gets here, believe me doing what you love will make you forget about that bad day or week that you had, i find… Continue

Added by Paul on October 24, 2009 at 12:13am — 4 Comments

"Fight or Flight" - lose your hair?

Alright Peeps, so I got pulled over and received a ticket yesterday for talking on my cell phone (yes, I'm in CA). Totally had "fight or flight" responses when I realized I was being pulled over, you know - heart beating like crazy, shaky hands, can't think straight, etc.



WELL, flash forward to this morning - HELLO!, hair coming out like crazy in the shower and HELLO! it looks like my spots have almost doubled overnite! WTF!?!?



Soooo, it got me thinking if there was any… Continue

Added by eva on October 23, 2009 at 1:08pm — 7 Comments

Locks of Love HBO film

We watched the locks of love HBO film that they have out now..It is on demand. It was such a wonderful film and it gave Jordyn the chance to see that there are other girls and women out there with the same disease as her. It also gave her a better appreciation for what goes into the making of the wig she is about to get.

Added by Jess (Jordyn's Mom) on October 23, 2009 at 8:55am — 5 Comments

Feeling low

ive been doing great for a while but have noticed i have bn feelin quite low this week and really wish my hair would just come bak over night, ha if only eh

i still have white regrowth altho im happy and hopin its all gonna come bak for gd i hate the fact i gotta wait a very long time for this,

i miss my hair so much and tho everyone thinks im dealin with this well it really still hurts inside and i dont know who to talk to really, i have a friend at work who im gonna try talk to… Continue

Added by lynne on October 22, 2009 at 6:06pm — 13 Comments

Yaz and the issues

Hello everyone!

there have been recent studies showing that there are MANY side effects from the birth controls Yaz and Yasmin. I was on both of these pills. Yasmin - 6 years ago. and Yaz - a year ago. ...I had hair before I started the first round of pills 6 years ago. Now that i'm seeing all of the negative side effects from the pills on TV, i'm wondering if it could be a contributing factor for some women.



Anyone ever been on Yaz or Yasmin contraceptive and see anything… Continue

Added by Stacie Duda on October 21, 2009 at 10:12pm — 3 Comments

I have so got used to living in a university town

So I'm in a kind of 'I quite like my head' phase and have been wearing little bands with bows on my head with nothing else. I go through phases of wearing wigs then not etc depending on my mood. Now in Lancaster, my university town, there are 2 universities so like 20 000 student and no one bats an eye at a bald girl, what peace! Soon as I went home for a weekend (which is chav central) I got comments. seriously I was there 5 minutes and some idiot pointed at me and said 'what the **** does she… Continue

Added by Lyndsey Pitchford on October 20, 2009 at 10:46am — 1 Comment

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