All Blog Posts (5,829)

I got my wig :)

I got my wig ! And I love it ! I am so happy to have it . I was going to get a custom wig ,but we ran into some problems . Our insurance will pay 80% for a wig . That is wonderful but we found out that they will only pay one wig for lifetime . I am blessed that our insurance will cover that much , since so many people have trouble with insurance companies. But it was still hard to hear it because our previous insurance would pay for one every 2 years . My dads work changed the insurance…

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Added by Mackenzie on March 2, 2011 at 10:00am — 9 Comments

Surprising myself

Last night I attended a church activity attended by a bunch of the women from my area's congregation. The lady that put the night together had requested "interesting facts" about ourselves a few weeks prior to the activity and I don't know why, but I decided that I was going to share something about my hairy (or lack thereof) situation. The fact I gave her was "I shave my head on a regular basis." Most of the women that I knew would be in attendance don't know about my Alopecia, and the few… Continue

Added by Amber W. on March 2, 2011 at 9:00am — 4 Comments

A cure

Is it as mind boggling to others as it is to me that there is still no cure for something simple as growing hair? :(

Added by Brittany on March 1, 2011 at 4:17pm — 1 Comment

How do you tell others?

Hi,



First, I have to make clear that I might spell alot of words wrong....so dont mind my grammar, please :-).



Yesterday I told a good friend of mine how I have been feeling the couple of weeks. Lately I have been feeling insecure about mine alopecia areata. I say its mine alopecia areata, because for a while I have been feeling like I am the only one with this disease. I have read stories, blogs and bio's of people on this website. It gave me so much comfort that I am not… Continue

Added by Ashley on March 1, 2011 at 5:44am — 14 Comments

I have decided that I need a wig

I have been bald since August 29, 2010. I shaved everything and stopped shaving in October, no new growth. My oldest son will be start Kindergarten in the fall, he has done really well with my hair loss and even talks to his friends about it. I have decided to get a wig for him though, so that he wont have to answer so many questions. I dont think it is fair for him. I have done fine going bald and mostly scarf and hat less most of the time but I do get the "how far into treatment are you"… Continue

Added by Julia S on February 28, 2011 at 11:09am — 7 Comments

Not sure what to do

So I have been bald since 09/02/10 and haven't worn a wig (except on Halloween) and I don't wear scarves. I have random strangers coming up to me telling me how beautiful I am and how well I pull off my "haircut". Well last night my step father says to me "Maybe you should buy a wig to wear when you go out with Jeremy (my boyfriend). He might feel uncomfortable being out with you without your hair, you should really think about his feelings." First off, I have NO idea where that came from. My… Continue

Added by Tamara on February 28, 2011 at 9:11am — 8 Comments

Transition

I am excited for it to be one week from today. I'll have been "bald" for a full 24-hours by then. Its funny that its been two weeks or so since I noticed my spots got so bad that its time for me to take down what's left of my hair. I decided to go back to my hometown, New York City to my hairdresser of over twenty years to buzz my hair off. It may seem like I'm making a big deal or ritual of all this, but, it is a big deal. I was diagnosed with alopecia areata 18 years ago. Its been slow going.… Continue

Added by Lili Añel (aka Eulalia) on February 27, 2011 at 5:15pm — 6 Comments

Marlene revisited

There have been a number of blogs / discussions recently regarding various aspects of being openly bald. I thought it would be opportune to re-post a blog I posted on another site a while ago. This provoked a furious reaction from a Marlene Dietrich fan. So please bear in mind that I am a fan of Marlene Dietrich myself, and this is in no way meant to be an insult to her memory. You can find copies of her performing the original version of the song on Youtube, and it is highly… Continue

Added by David B327 on February 27, 2011 at 4:45am — 7 Comments

Wigs (again)

Just went to try on wigs with my husband in tow. He liked what he saw unfortunately, the stylist had sold the particular wig I wanted to try on and show my husband!!! She will order one and we will go back next week.



Funny thing is, after all that and a trip out to dinner, I was walking my dogs when a gentleman complemented me on my hair (what little I have still have). So I think I will keep what I have, and wear a wig when I want a change of style or need more cover-up. Feeling… Continue

Added by Anne Williams on February 26, 2011 at 8:54pm — No Comments

What a roller coaster

Hi, My name is Patricia & I am a 30 year old married women with 2 beautiful children aged 2 & 4.

Ok, well this all started out as one tiny little patch that fell out back in 2000. I would say it fell out when my parents separated. Grew back fell out. Thats was the cycle, but I had no concern as it was 20cent piece in size and it was at the back. With long hair it wasnt visible. 5 years later I was getting married & again I discovered another patch appearing to the side over my… Continue

Added by Patricia on February 26, 2011 at 7:19pm — 2 Comments

This is negative. If you're looking for something more positive, don't read!

Im finding this harder the longer it goes on

Im sick of the looks i get,

Im sick of doctors telling that my problem is in my head and that other people dont notice,

im sick of having to not draw attention to myself

" " " not having confidence

having to explain that its not cancer

sweating,ie my hair on my head used to absorb it, now if im doing any sort of work or if someone asks an awkward question which makes me fluster and get hot under the collar the sweat… Continue

Added by pat j madden on February 26, 2011 at 5:19pm — 56 Comments

A shiny little martian

I had AU when I was first got this, eons ago, but now I have AA (fuzzy regrowth at the back meaning i have to shave it every few days) - and more importantly, eyebrows.

I am so damn glad I have eyebrows and long eyelashes. really.

But now my AA is changing. I can feel bits of my regrowth shrinking over the last couple of weeks. I had a sideburn type thing down near my left ear which is now gone and there's an empty spot right at the crown of my head. Now my patches have… Continue

Added by Georgia Gardner on February 25, 2011 at 7:36pm — 7 Comments

Model scouts

hey everyone!! just wanted everyone's opinion on something--real quick!! there is a modeling scouting event going on next month ( around the end of the month, details aren't clear yet) and I was wondering, should i go bald or wear a wig?? I'm not sure how they will respond to my err 'baldness' lol...so what do you all think??

Added by Alexis on February 24, 2011 at 12:00pm — 9 Comments

Dee Dee Bridgewater - Grammy winning and bald!

I just saw an article in my local San Diego newspaper about a jazz singer, and recent Grammy winner, Dee Dee Bridgewater, and the accompanying photo shows a beautiful bald woman! (And, wonderfully, the article didn't say a word about her being bald!) I immediately looked her up online and found this one of many YouTubes:



https://www.youtube.com/watch?v=1Yr5Oh9kAe8



And here's her website with lots of photos showing… Continue

Added by Mary on February 24, 2011 at 11:14am — 6 Comments

Saying goodbye

Today was one of the worst days of my life. We had to say goodbye to our 14 year old Yorkie, Luxy, aka "Baby Dog". No words can express the pain that I am feeling, nor can anything soothe my heart. I watched as his body became weaker and weaker...his eyes were blind, his ears, deaf. A week ago, he began to loose his bladder control, and wet in his pin at night. But he was still roaming the yard, like he was having an adventure or something. Yesterday, I noticed that he was shivering, and today,… Continue

Added by Diana Carter on February 24, 2011 at 12:51am — 7 Comments

Bald mice get hair - but new discovery may not apply to AA

FYI, I heard about this yesterday on the news. Reseachers stumbled upon something that grew hair on bald mice...but note the comment below. Here are a couple of links to the same story:



http://well.blogs.nytimes.com/2011/02/16/in-surprise-finding-bald-mice-find-their-fur-again/…



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Added by Mary on February 23, 2011 at 3:14pm — 2 Comments

Insurance

I just found out that my insurance policy will not cover wigs even if the hair loss is caused by a medical condition which is covered! How crazy is that????? Oh well, at least I am not going to buy an expensive, custom made human hair wig!

AW Links:  Other discussions on Insurance and Wigs on Alopecia World

Added by Anne Williams on February 23, 2011 at 3:00pm — 1 Comment

My first wig

Well, in anticipation of getting what's left of my hair "buzzed" I ordered two wigs. Both synthetic, one monofilament. I tried to match the color I'd been wearing for a few years now.



I didn't think I'd like it and prepared myself for this. I'm in shock that I actually like the wig(s). Its been a long time that I felt a full head of hair on my head. I may return the shorter hair wig cause I like this one so much. May just get a second one in a different color, same style as… Continue

Added by Lili Añel (aka Eulalia) on February 23, 2011 at 2:30pm — 5 Comments

NAAF conference

I'm just wondering who is attending the NAAF Conference in L.A this summer?!
I'm going to be a counselor there & I am SUPER excited about it again!!:) Hope to meet some of you guys out there!

Added by Lindsay Walter on February 23, 2011 at 1:19pm — 6 Comments

Wisconsin/Minnesota

Hello Fellow Alopecia Members!!
I'm new to this site, but I LOVE it! I know a lot of people with this, but I just wanted to see if there was anybody from close to my hometown of Milwaukee, WI or my college, University of Minnesota Duluth! If so, I'd love to chat!:)
Happy Monday!!

Added by Lindsay Walter on February 21, 2011 at 9:54am — No Comments

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