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Cicatricial Alopecia aka Scarring Alopeica!!

Hair loss is hair loss but I notice that ones with AA or Alopecia Areata had smooth skin where as those with CA or Cicatricial have skin that can look like somone burnt it. Having this form of hair loss was one thing that kept me from shaving it all off because I didn't want the scarring to show. I've had cicatricial alopecia for some years now and I wanted to know of others who has the same type.

Added by Leon Johnson on October 15, 2008 at 4:22pm — 5 Comments

The strangest reaction I've experienced...

This may be the strangest thing that's ever happened to me! I was at the store, and I had a bandanna on. A woman that I recognized, but couldn't place, came up to me and said, "why did you shave your head?". I steeled myself and offered the same, polite response that I didn't shave my head, that I have alopecia, which makes my hair follicles "go on strike".



She proceeded to tell me that I couldn't have alopecia. That alopecia would make me lose my eyebrows and eyelashes and not just… Continue

Added by Reen on October 15, 2008 at 1:16pm — 19 Comments

I think I need to join wig-buyers anonymous

Yep - I bought another one. Seriously, I think I have a problem. Buying wigs is SO FUN!! This one is really long!! I'll post pictures of it after I get it fitted tomorrow. And, tomorrow is the big day - I'm shaving my head. Actually, the woman who fits and styles my wigs is going to shave it (she owns her own salon...see previous blogs). I'm going to have her shave it the first time and show me how. I'm… Continue

Added by Rachel on October 14, 2008 at 4:30pm — 3 Comments

Let's make love, not war

It has been said, “Life’s greatest mystery isn’t the meaning of life. To love and be loved is the meaning of life. Now how to attain those is the greatest mystery of… Continue

Added by rj, Co-founder on October 14, 2008 at 12:52am — 1 Comment

More cool stuff for your profile!

Now you can easily add more cool stuff to your Alopecia World profile. Just sign into Alopecia World, click the “My Page” tab to go to your personal profile, and then click the “Add Applications” link that’s located below your main profile photo.

Once you add applications to your page, you can…

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Added by Alopecia World on October 13, 2008 at 10:30pm — No Comments

my day

After the grueling task of picking out a wig, I finally picked one out that I am pretty satisfied with. I returned to work today after taking a week off. I felt like I was going to vomit on my way to work this morning... I was extremely nervous and anxious about my wig. For the most part, everyone's reactions and comments were positive. I was compared to naomi campbell and jennifer lopez, I definitely didn't mind those comparisons, but the attention the wig was getting was driving me crazy.… Continue

Added by Esther on October 13, 2008 at 9:15pm — 4 Comments

A Sigh of Relief

Thank you Thank you Thank you!!!

I'm so happy to see the original slogan back.

"Where acceptance is all there is"

Jeff

Added by JeffreySF on October 13, 2008 at 8:39pm — 2 Comments

WTH?? Is this Normal?

Oh, I am So confussed! I feel like my friends here are the ONLY ones I can turn to for answers!! Cause I'm certainly getting NOWHERE with my doctor(s).



I am going through THE WORST shedding phase IMMAGINABLE! In less than two weeks I have lost nearly ALL of my hair! All I have to do is touch it and it comes out in handfulls! I even think I smell "funny" but who knows? Last night I had to get out of bed just to wipe myself off because I was absolutlely covered in hair!!!! UGGGGGG!!!… Continue

Added by Celeste Edwards on October 13, 2008 at 2:01pm — 4 Comments

Beauty From Pain

Hey All,



I heard this song the other day and just really felt that it explains my feelings exactly.Its more than a little depressing,but at the same time it lifted me up.



You might be familiar with it,its called 'Beauty From Pain' and its by the group Superchick. I especially feel the chorus is appropriate.



Lyrics:



The lights go out all around me

One last candle to keep out the night

And then the darkness surrounds me

I know i'm… Continue

Added by Megan on October 13, 2008 at 12:48pm — 3 Comments

I have to share

Couple weeks ago my mom had a lady that kept coming in to have her blood drawn over and over on her thyroid and then white blood cell count and etc so finally my mom asked why are we doing all this. She told my mom that she was losing her hair again and they want to see if its alopecia , My mom told her oh yea my grandson has that and started explaning trestin whole process to her and she said yea i went through the same things when i was in the 1st grade i had lost all my hair well her mom… Continue

Added by Kami on October 12, 2008 at 12:55am — 10 Comments

To All Men!

Ok, I have a few questions for you guys.

How do you feel about bald women? If your girlfriend or wife was thinning, would you encourage her to shave her hair off if it to preserve her mental health or leave it and let nature run its course, or would you try to encourage her to find a solution? What do you love most about a woman (or YOUR woman, especially if she has some form of alopecia)? Do you think bald women can be as beautiful as women who have their own hair? What draws you to a… Continue

Added by Alexandra on October 11, 2008 at 11:05pm — 13 Comments

OMG ive actually gone and done it!

As some of you may know (or not) I have for the last three years been having an intergrated system, it cost an absolute fortune to get it done first off, then every 6 weeks thereafter i have to travel to London to have it re-adjusted again at quite a large cost, one that my family have been struggling to keep up with, which makes me feel very quilty each time.



So for the past year i have been toying with the idea of getting a Wig instead, a thought that i have been battling with as i… Continue

Added by janet on October 10, 2008 at 1:52pm — 6 Comments

My wifes Alopecia Recurrence

My wife Mistie just left to go to work as she works the night shift at a local hospital here in Orlando Florida.

She has been making comments here and there about how much hair she is losing recently.



I for the most part pretend that I didn't hear what she said earlier tonight when while getting dressed she mentioned getting a wig because she cannot style her hair to make it hold. Other times I keep reassuring her that she is beautiful and her hair looks great. I can tell she… Continue

Added by Hugh Palmer on October 10, 2008 at 12:09am — 8 Comments

why do i feel so alone?

hi, friends...

there were several days passing,

i felt like "ill", but did not want to go to any doctor..

i "just" felt depressed, like something would`ve died inside me..

cannot explain it better.. but i was sitting-around at home, didn´t

want to see or hear anything from my so-called friends around..

i just sat there, or being "put" on my bed, listening to some music,

and felt like, i cannot express it exactly.. i did not want to do anything..

not-even… Continue

Added by SylviaBonin2008 on October 9, 2008 at 6:38pm — 7 Comments

Oh dear.

It's 10:15am and I'm sat here debating with myself whether to get a shower because the amount of hair that comes out in the shower scares me. And it's annoying because the bar of soap gets covered in hair and then I have to pick it all off so that I can wash myself. No one knows how much hair comes out of my head. My Dad says it's coming out just as it always has done. Doesn't he realise how thin my hair looks? Can't he see there's not much hair at the back of my head? That Doctor is silly too.… Continue

Added by Sophie on October 9, 2008 at 5:32am — 3 Comments

UGGGHHHHH!! Just having an emotional day and needing to vent.

If I had a dollar for each time someone has told me that at least my son doesn't have cancer or some life-threating situation going on so "what's the big deal". They say, "gee he's a boy and the bald look is in so he'll be fine". I'm sorry but my 9 year old son is emotionally hurting and so am I. My son loved his hair. In fact, hair has been is security blanket since he was born. When he's wanting to relax he plays with my hair or even his own. I know that even if he gets his hair back (75%… Continue

Added by Margie on October 9, 2008 at 1:29am — 10 Comments

What goes around comes around...

I found this postcard today, which spurred this blog post!



I'm new to AT. In May, I went for a routine hair cut and color, but this was anything but... For years, I've wanted to donate to Locks of Love. I've always had long hair, and I've never had the guts to cut it short. I was bored, and my hair was long enough, so I figured, what the heck, I'll donate it. So I did, and I left feeling WONDERFUL! I loved the short cut, and I was getting compliments left and… Continue

Added by Reen on October 8, 2008 at 6:53pm — 7 Comments

Calling all Comedians!

My daughter, Rachel, is 10 and has had alopecia for about 10 months now. She is almost completely bald at this point. She does not wear a wig or any headcoverings though she has both. She has been dealing with this so incredibly well that she is an inspiration to all who know her. Today, however, after more than a month of keeping this to herself she told me that on the first day of school this year (which was the only time she has worn a wig to school), the kids were teasing each other and… Continue

Added by Betsy Rachel's Mom on October 8, 2008 at 5:59pm — 1 Comment

Hair transplant????

Just a question to throw out there..... I saw Oprah yesterday and the were talking about hair transplants and how they have improved over the years. Does anyone know if they are ever used for AA? Can someone else donate hair for say a family member? Is it not effective because the patients immune system would attackor reject the hair if Alopecia is not in a remission? Thank You.

Added by Mom on October 8, 2008 at 1:05pm — 3 Comments

I got called beautiful!

I'm someone for whom self-esteem has always been a battle, even more now with AT. I'm someone who firmly believes in function over fashion, so wearing a wig all the time simply isn't my top priority. I have better things to worry about than if it's on right and such. I have been trying to wear my wig more, but I just have a tough time because to ME, it looks fake and weird. A few nights ago, my family and I went out to dinner at Outback, and as we went to "check in" the hostess asked me "How… Continue

Added by Reen on October 8, 2008 at 11:56am — 2 Comments

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