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Hope!!!

I just need to share with someone, so I picked everyone :) I took my son to the doc yesterday ready to tell her we were ready to take a break from the treatment as he has had such significant loss, especially in the last week. He had lost 70% in about 2 month since it started and the last to go is the top. He lost about 1/4 of the top in the last week. IKES!!! We have been using a steriod ointment that leaves his hair so oily he has to wear a hat even though he really doesn't want to. Anyway,… Continue

Added by Margie on September 21, 2008 at 12:34am — 3 Comments

Another Day..

I havent written a blog on here for awhile. Not much had gone on, until now.

In one of my other blogs, I had mentioned that I was going through a mild chemo for Molar Pregnancy.

Well, the treatments havent been working..So Im going on a stronger chemo, one thats going to make me sick, and tired, and yup..lose my hair. Im so scared. There's a few complications with this treatment that terrify me.

I also wonder how this is going to affect my alopecia. What if after it all falls… Continue

Added by Chelsea McGee on September 20, 2008 at 1:19pm — 3 Comments

A little advice please

Ok so Ive had AA my entire life(im 15) and never went completly bald. Now im getting really close to being bald but it still looks like i have not a lot of hair but enough so i look semi "normal" when I wear a beanie. So I was wondering when other people decided to shave their head and if it was difficult or something like that and I have been considering it for a while but im really indesieve so if you guys could give me your opion and or some advice that would be awsome.

Added by lauren on September 17, 2008 at 9:29pm — 8 Comments

I didn't even recognize you...

Well I’ve decided to try and be a little more frequent and shorter with my posts…



First let me just apologize for everyone that’s left me comments. I haven’t had the chance to reply because I’ve been so busy, but I have read every comment and I appreciate it. And I also hope everyone is doing well.



I’m sick of people saying that they didn’t recognize me at first because of my bald head. Does hair really change you that much??? It seems like everyone I run into that I… Continue

Added by Drew on September 17, 2008 at 12:00am — 1 Comment

Kind of sad life is returning to normal after Hurricane Ike

This may sound crazy, but I'm kind of sad life is returning to normal after the hurricane that just hit Houston. Please don't get me wrong, I wouldn't wish this devastation on my worst enemy! But for me, once the hurricane was over and we were on survival mode for several days, it was a nice diversion from my consuming thoughts about hair loss. I liked not having power as I couldn't see my receding hairline in the mirror. I liked having an excuse to 'not look your best' every day. We were too… Continue

Added by Laurie on September 16, 2008 at 9:58pm — 1 Comment

Stress

I hear so much about stress being a major factor in alopecia. I've heard alot that it was probably a stressful event that set off my son's alopecia. I've talked with him and we can't come up with anything. Anybody have any thoughts on how stress factors in on the developement or continuation of alopecia?

Added by Margie on September 16, 2008 at 8:02pm — 10 Comments

My Hair Club Experience

Today, I just went to the Hair Club. The lady said that she never had a customer with so much hair. Well, they started to put the system on. I asked if they could use maybe the tape, just in case I didn't like it, it could be easily taken off. Well she pulled up my hair and glued the system on the perimeter of my head. It felt like this tape was pulling my hair out. She started to pull my hair through this system and OUCH!! It kept getting tangled and it felt like my hair was being pulled out.… Continue

Added by Dawn on September 16, 2008 at 7:40pm — 3 Comments

My recent silence

Hey guys - I just wanted to explain why I haven't been on here lately. I live in Galveston, TX and evacuated last Thursday from the island. I am staying with friends elsewhere in Texas. We are safe (me, the boyfriend, and the two puppies). I am heading home to hang out with my family in Chicago for a few weeks because they are calling for the island to be shut down for a few more weeks. Ike actually made landfall on the island, so it is a mess down there. Just wanted to let you know. I'm… Continue

Added by Rachel on September 16, 2008 at 5:53pm — 2 Comments

Dotty's Alopecia Awareness Article in the Sunday, September 14th edition of the New Hampshire Union Leader

Photobucket

Added by Dotty on September 15, 2008 at 10:57pm — 7 Comments

Deconstruct your beauty norms

"Beauty must be defined as what we are, or else the concept itself is our enemy."

Beauty must be defined as what we are, or else the concept itself is our enemy Deconstruct your beauty norms

Take a stand against lookism (unfair appearance-based…

Continue

Added by rj, Co-founder on September 15, 2008 at 10:00pm — No Comments

Celebrities with alopecia

I just recently found out the Christopher Reeves (superman) dealt with alopecia beginning at age 16. I showed this info from the internet to my 9 year old son. I told him that he had good company with what he's going through as I personally think that Christopher Reeves was extremely good looking, talented, etc. My son was very intriged and I think he found it comforting to a degree. Do any of you know of any other celebrities (adults or children) who have alopecia?

Added by Margie on September 15, 2008 at 3:54pm — 7 Comments

Thyroid Problems

I know having alopecia makes it more likely that you will have other auto-immune diseases, thyroid problems being one of them. I was diagnosed with hashimoto's at the same time as alopecia 5 years ago. My TSH levels have always been fine and besides getting tire a lot faster than I should, I have had no problems with it until now. For the last weekish I've just felt like my thyroid is enlarged. It kinda feels like someone is constantly pushing on it or just pressure in my throat. Sometimes it… Continue

Added by Kristen Ridenhour on September 15, 2008 at 2:28pm — 5 Comments

I keep meeting her this way

I opened the door to my home late Friday night and saw the most beautiful woman in the world. She glistened as I fastened my appreciative gaze on her and thought to myself, “What a lucky man!” I walked in her direction because I needed to divest myself of the things that were in my hands, but as I approached her and noticed that she noticed me, I could feel the rhapsodic rhythm of love beating in my heart. She did not initiate our conversation. Rather, I did because I was so pleased to have her… Continue

Added by rj, Co-founder on September 15, 2008 at 3:00am — 5 Comments

Teenagers are Crazy

My wonderful teenage daughter is at it again. As we look for new a different style wigs to get, especially with the fall weather approaching, she has her sights set on a jet black long haired wig with red streaks in it. Just when I thought she has outgrown the 'goth' look she throughs me a curve ball. All but one of her wigs is some shade of blonde; the one that is not is hot pink with black roots. I guess I can't say much about the pink since at that time my own hair was pink. She just doen't… Continue

Added by Heather Marie Brown on September 15, 2008 at 2:34am — 3 Comments

I'm talking but do they listen?

Does this ever happen to you?

You are in a conversation with someone and all they want to do is hear themself talk.
I contribute my fair share to the conversation yet the person continues on with a rant without even a bother of listening or even hearing what I have said.

So Annoying....

Thanks for listening. LOL

Jeff

PS I feel better now
PSS Dont let this happen to you

Added by JeffreySF on September 15, 2008 at 12:59am — 7 Comments

omg was my mom right?

o.o weerd. i started eating alota sunflower seeds, and less milk. and weee. hair is growing back.

or is it just doing it by itself?

idk.

my first bald spot [which used to be only one inch, but covers almost half of my head now] has my natural haircolor growing in the middle.

all my other bald spots have soft white hair in them somewhere, except for the edges [around my ears and the bottom of the back of my head]

but i have enough hair to have a short mohawk.

i… Continue

Added by VanessaVandalism on September 14, 2008 at 1:59pm — 1 Comment

Over it!!

Ok so I'm not sure about anyone else but I'm so sick and tired of what comes out of the mouths of poeople who have no idea about Alopocia Areata!

I am new to this disease I've only had AA for about a year and a long terrible year. After shaving it all off and it growing back I'm now left with a cute bob, with a few new bald spots and thinning eyebrows.

So to get back to my story, I've decided to stop treatment it was really working and now not so much. I was talking to my neighbor… Continue

Added by Jessica on September 12, 2008 at 6:15pm — 7 Comments

What I'm going to do - even if it can't change things

So I ready this article earlier about Dale Platts (Thanks for bringing it to my attention Angela). This was the link I saw

http://www.dailymail.co.uk/news/article-1053490/Boy-13-bullied-losing-hair-banned-wearing-baseball-cap-school.html

but I found it on BBC news with a video too and found it to be even more touching in motion with audio.



At any rate my children (now in third and fourth grade) are getting questions about their mom at school now. I explained this story to… Continue

Added by Carmella on September 11, 2008 at 7:09pm — 2 Comments

Alopecia PSA Project. Want to raise awareness?

Hey AW,

My name is Annette and I am studying TV Production at Cal State Northridge in Los Angeles. I have had Alopecia for 8 years now and my idea to make a PSA to support Alopecia was picked as a class project. This project means the word to me because it can help so many Alopecians that don't know that there are support systems out there. The scheduled shooting day is Friday, Sept. 26 from 3pm-7ish. Please if you are in the Los Angeles area and want to help respond or email me @… Continue

Added by Annette Duran on September 11, 2008 at 5:22pm — No Comments

Alopecia Awareness Month

OK so September is Alopecia awareness month and in the past I would just tell my friends and family and just kinda spread the word. But this year I am a senior in College that has about 6,000 students at it. I am recognized all over campus and even outside of it, everyone knows "the girl in the black bandana." So this year my good friend is the editor in chief of the newspaper and I was thinking of writing an article spreading the word and explaining to my fellow students and faculty what I… Continue

Added by Catherine on September 11, 2008 at 2:02pm — 2 Comments

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