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Non Alopecian Thoughts

Sorry about the scattered nature of this (it's late and I'm not really sure why I'm still awake). I've had some thoughts over the past few days regarding supporting my sister with alopecia.



At times my sister is sure she is going to go completely bald. I say to her that even though it definitely could happen - she could go bald - there is also the chance that she will not. If she does, we'll get her a great wig - if that's what she wants. It's all about her. She doesn't have to… Continue

Added by Jols on September 11, 2008 at 10:27am — 5 Comments

Meeting new people

well i'll be the first one to admit that when it comes to meeting new people, i am horrible. well i met this girl online and then i met her in person the other day, and today was the second time we hung out, and she is amazing, and i got to meet some of her friends who act crazy fun. its nice to be around people who are not always about there image. having alopecia i have always been the one with the shyness about my hair "the little that i do have" and tonight i got to break free from the mold… Continue

Added by ☆Joseph Giallombardo☆ on September 11, 2008 at 12:04am — 2 Comments

Trying to Catch My Breath...

I realize I haven’t been on here in a long time. I think the last time I added a blog was mid July. I seemed to have lost track of everything, so I’ve spent the last few minutes catching up with all the posts by people on here for the most part.



As for me, the rest of my summer was spent pretty much working. I finished coaching the summer soccer season with a dozen girls, all under 12, who all became little sisters to me. Even if I seemed like I didn’t I really enjoyed it. It was… Continue

Added by Drew on September 10, 2008 at 11:16pm — 3 Comments

Big Step

I am so proud of my daughter that I cannot even begin to express the joy. She has a serious boyfriend and has been afraid to tell him about her Alopecia. Today she told him that she suffers from it and that she wears wigs because of the many bald spots that she has and he was like "oh that's all? I thought it was something serious." She was so afraid that he would not accept her after finding out but was truly surprised that he likes her for her.

Added by Heather Marie Brown on September 10, 2008 at 9:00pm — 4 Comments

Old Habits

I had one of those days yesterday. Nothing bad, just too many distractions. Somewhere along the line, my mind kicked into autopilot. The hour was late and much to my relief, the day was nearly over. A hot, steamy shower would help wash away the remains of the day. Instinctively, I reached for the shampoo only to have my hand run smoothly across my head. I have no hair to wash. Strange how old habits die hard…

Added by Tony on September 10, 2008 at 6:29am — 5 Comments

A step backwards...

The last few months I haven't been able to come on to Alopecia World and I have to be totally honest but I have taken some recent blows in my self esteem which I find strange for I'm not one to let my appearance get to me I know I don't look like most people in the outside world but at the same time I always thought that when people got past the initial shock of me being bald that they saw what I felt a very attractive woman.

I guess it started when my fiance's sister came to stay with… Continue

Added by Sarah McIntosh on September 9, 2008 at 12:30pm — 12 Comments

another visit to charing cross hospital.

update.

well, i met with my dermatologist again and he said i should continue on with the topical creams & PUVA AND take some tablets called AZATHIOPRINE which apparently has some very undesirable side effects sometimes..

well i guess we'll see how it goes.

Added by Nick on September 9, 2008 at 10:53am — 2 Comments

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Added by Alopecia World on June 23, 2008 at 12:30pm — 2 Comments

Pondering on the last 6 months

Yesterday marked 6 months since we started Alopecia World and although we had a vision for it, I never knew it would be SO amazing.



I look at the photos, videos, advice giving and it is unbelievable how much all of you have inputted and shared your lives with Alopecia World.



I watch adults showing their spots or lack of eyebrows, all to which the outside world they may hide. I watch women happily upload photos of them with a new wig, eyebrow tattoos or post their first… Continue

Added by Cheryl, Co-founder on September 8, 2008 at 4:00pm — 10 Comments

Alopecia World T-Shirts

OMG!!!

I just had a thought...

How better to bring acceptance to alopecia than a T-Shirt?
Not only acceptance... but awareness to the general public.

If I am not mistaken September is Alopecia Awareness Month and I have been raking my brain what to do.

Anyone have an interest in this?
Have a connection?
Hope I thought of this in time...

Jeff

Added by JeffreySF on September 8, 2008 at 12:46am — 51 Comments

Saying Goodbye (for now) to my Dermatologist

I had an appointment with my Derm today. She's a sweet girl (Ack, they do make doctors young these days, don't they?) and she actually had tears in her eyes when she suggested that we stop the cortisone shots.



I had walked in there planning to tell her that I thought today would be the last visit.



Great minds think alike.



The difference between my response to the injections 12 years ago and now is like night and day. Twelve years ago, I had hair growing back… Continue

Added by Lori Powers on September 8, 2008 at 4:38pm — 4 Comments

Freedom! ...due to circumstances beyond my control.

I went to get a haircut today which is usually a depressing experience. I have a wonderful snd supportive women who cuts my hair and she always tries to do the best she can with what little I have. Well, in the process of cutting, a good-sized chunk of hair fell out. I thought my barber was going to faint! She is aware that I have problem hair but this she was just not expecting. Anyway, after her recovery, we had a long and nurturing talk. She was just so sweet. We agreed that the best thing… Continue

Added by jamie1 on September 8, 2008 at 5:00pm — 16 Comments

Am I crazy?

So I have been growing my hair out since June 26th. I have alot of hair coming in and it kinda got my hopes up, will there be hair in my future? I still have spots and its pretty thin in some places. I just dont know what to do anymore? I want to keep growing it out, I hate to give up so early and shave it again. But when I take showers and run my fingers through it I can see these hairs that still fall out. I wanna beleive it will come back to me! Is it crazy of me to think after 10 years… Continue

Added by Casey on September 8, 2008 at 11:03pm — 3 Comments

SELF DOUBT

Everytime I have to get my hair redone Im reminded of the BALD woman that I am. It's not totally, well always a totally bad experience but I still dread it. Lately everytime I look in the mirror I find a flaw, my face is to fat,too many blemishes, or I can't wear this style (that would look great on me) cause my semi secret will show. I went to get my hair put in again and I tried a darker color under my "usual" light and it only fits me a little. I appreciate the girl that did it for me but… Continue

Added by Tonya on September 8, 2008 at 9:27pm — 1 Comment

Not sure what's going on

Well, it's been several weeks now since we identified that I'm Alopecian. I'm finding it increasingly difficult to hide the spots and seem to have some sparse grey hairs coming in where the spots are (although the spots continue to grow!?)



The summer was horrid. My condo flooded ($15,000 worth of damage and much arguing with the insurers), lost my uncle, found out they're checking me out for cervical cancer, alopecia, sprained my ankle, lost my grandfather ... and now struggling with… Continue

Added by jj on September 8, 2008 at 7:17pm — 3 Comments

Doctors are all alike... or are they???

So a few weeks ago i went with my grandma to see a homeopathic doctor in Wisconsin. They focus more on the entire body as a whole and not just one symptom. which i thought was kind of interesting



At first i thought "this is stupid, this lady isnt going to be able to help me." But when i got in there and i started to talk to her she basically told me that i have gone through so much stres in the last 5-10 years that my body can keep up. it sounds kinda dumb, but she like told me… Continue

Added by Amanda on September 8, 2008 at 5:36pm — 2 Comments

Pictures

Thank you all for the encouragement and tips. I am away from my family down at school and this website is a huge encouragement to me. I will definitely try out some of the eyebrow tips. And, I think I am going to go have my make-up done where they can show me how to do it. Thanks for the idea Bogie!! I don't think I ever would have thought of that, but I think it would help me to feel girlie. Below are some pictures of when I go out without the wig on. The first one, it was an outside barbecue… Continue

Added by Rachel on September 8, 2008 at 1:30pm — 1 Comment

I'm going to be in the newspaper for Alopecia Awareness Month

Hello Alopecia Family and Friends,

A couple of weeks ago I sent out letters to some of the local newspapers in NH and Boston, MA telling them that September is Alopecia Awareness Month and asked them if they would post an article with my poem and a few paragraphs about what Alopecia is and how it affects us. I got a phone call last week from a reporter from one of the papers asking if she could come to my home and interview me :-) This will be the 3rd time I have been in the newspaper and… Continue

Added by Dotty on September 8, 2008 at 11:50am — 1 Comment

Update on my travels

Hello everyone!



Wow, it's been so long since I've been on here, I've been working and travelling in the US for nearly 3 months now & have no had a chance to get on here at all. Hope everyone here is doing well.



It has been an amazing experience so far but very challenging as well. I am now very close to alopecia universalis - I have but a few random body hairs left. I wear a wig most of the time.



I started off my travels working at a summer camp in Maine.… Continue

Added by Karina Louise on September 7, 2008 at 4:00pm — 2 Comments

new wig =)

Finally...a new picture! Hope you're all doing well!

Added by traci on September 7, 2008 at 3:03pm — 6 Comments

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