Hey, I have never blogged on here before, but I feel that it is FOR SURE time. :) I am trying to accept this whole "bald" thing, but it is SOOO hard. I always had BEAUTIFUL hair and out of NOWHERE, I started losing it and two years later, I am fixing to have to get a wig. (so hard). During this time I have gotten divorced. I only really stayed in it because of my insecurities, but have found an AMAZING boyfriend that goes wig shopping with me and lets me cry on his shoulder. I am so lucky, but…
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Added by Lauren on August 5, 2010 at 12:05am —
3 Comments
Well it has been a busy couple months for me cause i have been doing the whole show thing, even tho im just the roadie guy i still really enjoy doing it, music is pretty much my life, i honestly forget i have alopecia sometimes that i get so caught up, i hope all of you are doing well, and if ya feel bad there is no need to feel that way, just do what you love and you can't go wrong, well as much as i hate making these short i got a busy week ahead of me and an even busier weekend cause i have…
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Added by Paul on August 4, 2010 at 1:58am —
3 Comments
I've noticed that for the last three years, my daughter loses the most hair in August - Sept - Oct. Just wondering if there is any connection there... it just seems odd.
Thanks in advance for your insight!
Added by Cari on August 3, 2010 at 11:02pm —
4 Comments
Wow - This was hard and at the same time soothing. IT made me re-think of where I was and how I got to where I am now. ( yes- even made me re-think the bad times too)
My dates may still be fuzzy for I went thru several depressed states and try not to remember some things....
Bear with me --
Thought I would post it here as well as putting it with the VERY extensive paperwork for the MD. Anderson Research…
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Added by Billie on August 3, 2010 at 1:59pm —
3 Comments
My best friend's sister is a Manager of a hair salon. I went there the other day so that she could trim the bangs on a new wig that I ordered online. Thank goodness it was empty that day. It got me thinking how I miss going to a hair salon. I didn't go that often when I had hair, but when I did go, it was a treat. First, where I went, they gave you a mimosa or a glass of wine... what girl wouldn't like that. Lol. I loved when they would wash your hair and give you a little scalp massage. It…
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Added by Alliegator on August 3, 2010 at 10:33am —
4 Comments
May you enjoy all the streams of Love that flow into your life;
The Love from family and friends;
The Love from parents and children;
The Love from pets
and the Love from God.
Celebrate Love all day long.
For it is the breath of your existence,
and the best of all reasons for living.
Added by Dotty on August 3, 2010 at 12:50am —
No Comments
The time will come
when, with elation,
you will greet yourself arriving
at your own door, in your own mirror,
and each will smile at the other's welcome,
and say, sit here. Eat.
You will love again the stranger who was your self.
Give wine. Give bread. Give back your heart
to itself, to the stranger who has loved you
all your life, whom you ignored
for another, who knows you…
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Added by Ade on August 2, 2010 at 3:54pm —
5 Comments
ok... has anyone bought any wigs or know any sellers on ebay?? Ive looked and seen a few nice ones on there,but Im sort of scared to buy them..hmm>.............................
gena,
Added by Gena King on August 1, 2010 at 11:05pm —
7 Comments
Be Thankful
By Unknown
Be thankful that you don't already have everything you desire.
If you did, what would there be to look forward to?
Be thankful when you don't know something,
for it gives you the opportunity to learn.
Be thankful for the difficult times.
During those times you grow.
Be thankful for your limitations,
because they give you opportunities for improvement.
Be thankful for each new challenge,
because it… Continue
Added by Dotty on August 1, 2010 at 4:16pm —
No Comments
Oh, the comfort!
The inexpressible comfort
Of feeling safe with a person,
Having neither to weigh thoughts
Nor measure words,
But pouring them all right out,
Chaff and grain together;
Certain that a faithful hand
Will take and sift them,
Keep what is worth keeping,
And with the breath of kindness,
Blow the rest away.
Added by Tallgirl on August 1, 2010 at 4:00pm —
5 Comments
So...after round two of patches and bald spots..... Its growing in strong. I have both eye brows and eyelashes!!! Hooray! I even have to shave my legs again. (I could have kept that part hairless) I have even had two haircuts since then! Thank You Jesus that you are the God of the unlikely and the impossible!…

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Added by Rachel on August 1, 2010 at 3:23pm —
3 Comments
I am shopping for a new wig. I tried the full lace as my first and have really enjoyed the very natural look of it. Most people can't even tell. I have no problem with telling anyone that it is a wig. They are so popular here in Atlanta that it's not surprising to see people wearing them in the Black Community.
I'm thinking about getting bangs since it will be easier to hide the hairline where it's easier to tell. Anyone have suggestions?
Added by Jessi on August 1, 2010 at 10:03am —
2 Comments
So i wear a wig to work.
But when im walking home ill take it off my head.
How surprised someone would be to see someone taking off their hair.
Consider them lucky for experiencing that.
Im looking for alternative for my head, wigs are fine but soooo iritating.
Im heading up to a cottage, what to wear? wraps make me look sickly...
suggestions?
Added by tash on July 31, 2010 at 1:30am —
3 Comments
This week Jennifer Gilbert wrote on Twitter, "My son is diagnosed with alopecia. A strange AI that causes his hair to fall out. We are devestated. Anyone know anything about it?"
I don't know her son's age or the type of alopecia he's experiencing, but I'm calling on the entire Alopecia World family to reach out to her.
Please let her know that you heard the news on AlopeciaWorld.com and that our beloved community…
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Added by rj, Co-founder on July 30, 2010 at 8:30pm —
2 Comments
I have been trying to find a wig that I can afford that doesnt look horriable. I dont have money to spend on this kind of stuff, and Im tired of wearing bandanas and hats. My friend was going to give me one of hers but she can't find it. Any help would be great.
Added by Jeannie Terrel on July 30, 2010 at 6:14pm —
4 Comments
so will wearing hats and bandana add to the hair loss?? Am I just helping it along by covering my head all the time??? Idk just wondering.
Added by amy on July 30, 2010 at 2:56am —
3 Comments
There have been waaay too many problems at my school with my wig. I've dealt with it for so long, and I'm caught between just telling my school about AU or continuing letting them point and whisper. I'm just...scared of the little monsters and what will come of me telling them. Should I?? I have asked several people, and the answer is almost always the same. "Just do whatever feels right for you." Here's the problem: Nothing feels right for me. If I tell my school, it could go 2 ways. I could…
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Added by Ellison Jane on July 29, 2010 at 5:31pm —
5 Comments
Yesterday I met and spoke to two women.
The first was a bald black woman in the library and when I asked if she had alopecia she responded that, no, she just liked the look. Thirteen years ago she shaved her head and continued to do so to this day. We spoke for a bit and exchanged shaving tips and our thoughts on living our lives as bald women.
Later on that even while grocery shopping a lady made eye contact with me and then asked if I have cancer. I told her about my…
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Added by Cheryl, Co-founder on July 29, 2010 at 1:30pm —
13 Comments
If you know about any event that might be of interest to Alopecia World's thousands of members and visitors, please submit it here:
http://www.alopeciaworld.com/events/event/new
You may submit everything from support group meetings and special alopecia awareness projects to book signings and information about the upcoming release of documentaries and other media events.
All event listings are subject to approval…
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Added by Alopecia World on July 28, 2010 at 11:30pm —
No Comments
I'm completely frustrated and irritated w/dismissive doc.
I have sudden swollen/red/painful warm fingers and toes (weird, right?). It freaked me out a bit, so I called my doc and the nurse suggested I be seen and have blood work done. The doc didn't' order anything, and had me make an appt. in six weeks. My last blood work was in March. Since this coincided w/another big shed, silly me . . . I thought maybe they were related. I think maybe there is a "crazy" label next to my name in their…
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Added by Lori on July 28, 2010 at 9:25pm —
3 Comments