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Mean girls/Rude boys (men)

Anyone had any one of these incidents?? I am younger than my years, or was until my hair started falling out. That was 4/08. Maybe it was because I used to go to a club on Saturday nights..my baby fine hair did nothing, so I would always wear a cool blonde wig...it made me feel better about myself..until...maybe it was the alcohol too but women would "look" at me and I would see that they were talking about me, and then their friends would "look"..it made me feel self conscious. The time when… Continue

Added by Lexi on July 28, 2010 at 5:10pm — 13 Comments

Dating with FPB

I am single and really enjoy being single! However, I haven't figured out how to navigate dating and wearing wigs. I am a member of a local dating website and I had an interesting experience a few weeks ago. I met a guy on there and we started chatting. The pictures were down on the website so we emailed each other more pictures. I accidentally sent him one of me wearing a scarf. He asked if I had cancer. I said no, and told him about my situation. He said it was no big deal. I never heard from… Continue

Added by Alliegator on July 28, 2010 at 3:53pm — 5 Comments

Living with alopecia

I shared the post below at the beginning of the year on the UK Alopecia site. Was reading it again a few minutes ago. Wow, what a year it has been. 2010 has certainly been the year i finally made peace with living with Alopecia. I voluntarily left full time paid employment at the end of last year and decided i wanted to spend this year on a journey of self-inquiry, integration and rediscovery. What a journey, what a ride! I have finally learnt to love and accept myself unconditionally and…

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Added by Ade on July 28, 2010 at 3:30pm — 4 Comments

Dreaded wig change

I changed my wig sunday. I usually change it on Sundays because I like to get feedback at church (or no feedback). I brought a bob hair style and it was long. I wore it to church I got comments like you look like your mother to just stares. SO I went home did a little cutting and it came out great. I went to work the next day and the response I got from women were “Did you do something different to your makeup, it looks great but different?” (did not change my makeup). The comments I got from… Continue

Added by Sam Sam on July 28, 2010 at 9:00am — 2 Comments

Bandanas

had a good few days bought some bandanas my wig is annoying lol like the bandanas alot better! My husbands 30th bday is Aug 10th ill wear it when we go celebrate but other than that im a bandana girl all the way lamo!!!! Anyways everyone have a good night and GOD BLESS!!!

Added by amy on July 28, 2010 at 1:21am — No Comments

Dont divorce yourself from your health with stress

unmanaged chronic stressfull events wether internal or external or both are enough to send your immune system into a tail spin that effects you later in life, cause and effect every action has a reaction. Your body is not unlike a marriage you dont just wake up one morning and tell your spouse i dont love you anymore and divorce him or her it takes time to get to that point of divorce, in the same way it takes time to weaken your immune system, just like in a divorce your body sends signals… Continue

Added by George Ortiz on July 27, 2010 at 6:00pm — No Comments

Favorite quotes about baldness :-)

Here are several of my favorite quotes and sayings about human baldness, a few of which are mine. ;-) Please share your own as well as let me know what you think of the following:

"Say it loud: I'm bald and I'm proud!"

- Anonymous

"Bald is the new black."

- Anonymous, but often attributed to Gail Porter

"They say most men are not attracted to bald women. I say most men lie."

- rj, Co-founder, Alopecia World

"Women's liberation will not be…

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Added by rj, Co-founder on July 27, 2010 at 12:30pm — 13 Comments

No more eyebrows

when my hair fell out last year, i said in passing that i would have to kill myself if i ever lost my eyebrows/eyelashes. i had like really fierce eyebrows. but anyways today those eyebrows fell out. like in matter of hours they were gone. no me gusta.

Added by Ellen Chinery on July 26, 2010 at 11:36pm — 12 Comments

intracellular bacterium,cause autoimmune illness and change over 900 genes within body

There is research relating autoimune disease, inflamation, and vitamin D deficiencies may all be related and infact a direct result of small intracellular bacteria that are thought to be the root cause of autoimmune illness.the cliff notes version is small intracellular bacterium invade the nuclei of many of the bodies cells over time

causing inflammation and chronic disease.in other words the invading bacteria stop the body from being able to properly regulate the vitamin d which in its… Continue

Added by George Ortiz on July 26, 2010 at 11:03pm — 4 Comments

OMG!

well today i meet a girl with alopecia and her names alicia shes 12 and shes gonna go to the same school as me she dont like wearin wigs and she lives just up the street from me i thjought it was soooo kool that their was someone like me thats goin to the same school as me... she thinks my moms wierd tho cuz my mom was goin past her house and seen her and stopd her car in the street and was like do u have alopecia and alicia was like ya and so my mom pulld in her driveway! and startd to talk to… Continue

Added by lex on July 26, 2010 at 9:36pm — 6 Comments

Music Therapy

Seems to me we need to come up with some uplifting songs as therapy. Some of you have found great ones for your profile pages, but there isn't one place to collect them all. I wonder if we can list some of the songs that saved us, gave us hope, reassured us, etc. and see if rj and Cheryl can come up with a way to click on them as we do with photos and videos. If not, we can always Google the You-Tube videos or recordings.



I'll start with six:



Don't Let the Sun Catch You… Continue

Added by Tallgirl on July 25, 2010 at 10:00pm — 45 Comments

weak immune system causes AA

Infection,or genetic deffect what ever you want to call it we got it right, ok docs say our own immune system is attacking our own hair follicles right, well why is are own immune system attacking our own hair follicles? docs say they dont know why. Excuse me while I state the obvious..it's because we are not functioning the same as before were not in balance anymore, we have a desease, when people get a desease they stop functioning the same as before they function abnormaly out of balance,… Continue

Added by George Ortiz on July 25, 2010 at 11:00am — 9 Comments

Is long white hair a good thing?

ok I found a long white hair on one of my spots everything is so new to me is this a good thing??? Im excited i found it but i dnt wanna get my hopes up but....I cant help it :). Other than that nothings really been going on. My moms bday was yesterday and I was depressed cause I miss her so much but Im good now. I wish she was here with me so I can let her hold me and tell me everything will be ok. My mom passed away 6 yrs ago and I miss her so much!!! :(

Added by amy on July 25, 2010 at 10:13am — 1 Comment

Lots of questions about doctors

Here you go...



For those of you who go the natural route - how did you find a homeopathic doctor? If I know of someone with a good reputation - is it worth traveling for? How often do you go? Do these doctor's treat children?



Has anyone ever gone to an immunologist - any luck there?



What about a gastroenterologist? All of these things that come up - leaky gut, candida/yeast... can these actually be diagnosed by tests?? Does it require a… Continue

Added by Cari on July 25, 2010 at 3:17am — 4 Comments

Hair is growing and we did NOTHING!

So as some of you may know Mikey started his hair loss journey on oct 16th 2009. By feb 10 he had lost most of it by mid april '10 he had lost all of his long beautiful hair with the exception of his giraffe patch which he still has. Some of you may recall we only did topical steroid ointment for no more than 2 months then decided to let alopecia runs its course. now all of a sudden beginning in mid june he started to grow hair. It isnt alot but hell its growing!! yes its patchy and some is… Continue

Added by jackie estrada on July 25, 2010 at 1:43am — 1 Comment

Einstien was A clock maker?

First, thanks for your thoughtful words of encouragement, they help drive me forward. I will continue because its working, see the way I see it , no matter what the reason, whether it be infection and a immune system too weak to properly dispose of the infection, which intern causes hovok within our bodies as the root cause as I believe. Or whether you believe dormant cells/genes and too much protien machanisms within our genes are the cause, the one fact still remains, our immune system is out… Continue

Added by George Ortiz on July 24, 2010 at 10:23am — 3 Comments

I hate but I can't help but love

i hate it when kids stare at me.

i hate it when they ask their parents whats wrong with me.

i hate it when they ask me whats wrong with me.

i hate it when people assume i have cancer.

i hate all the blank stares.

i hate the snickers.

i hate the pointing.



i hate not being accepted.



i hate not having hair.



i love my friends who never notice im bald.

i love my family who never snicker or point.

i love my dad who has alopecia… Continue

Added by whitney rose on July 24, 2010 at 5:27am — 6 Comments

15 years, 27th birthday...I didn't think it would be this hard

It's been over 2 years since I've wrote my first and only blog on this site. It's also now on very rare occasions, that I'm actually active on this site. But right now, I didn't know where else to go. This month marks 15 years. 15 years ago, at age 12 I lost my hair for the first time. 7 years ago, this month, I noticed my hair falling out again after having had my own hair for a little over 2 years. Here I am 5 days from my 27th birthday and I can't seem to do anything but cry. I cry over my… Continue

Added by Alexandra on July 23, 2010 at 9:38pm — 5 Comments

You Go Crystal!!

Typically, I like to write about hair loss but I just saw an article that caught my attention. Crystal Renn is making a name for plus size models and I think it is WONDERFUL! You go Crystal!! People.com has an artice about her because some photos were recently retouched of her that she did not approve. I think it is so great what she is doing! It seems to me that lately, I have seen more and more articles or pictures of Crystal. Someone in magazines needs to be a positive role model for young… Continue

Added by Alliegator on July 23, 2010 at 2:33pm — 5 Comments

A few questions

Hi ive had alopecia areata for nearly a year now a couple patches have grown back while others are spreading. I have noticed a patch missing from my wrist but unsure whether its alopecia or not. I'm really worried that i may develop universalis. Just wondering of the people who have universalis how fast did your hair fall out or did it take a long time? Did you start with scalp hair loss, than patches on your body or does it normally go from scalp to facial loss eg eyebrows etc? Did the hair… Continue

Added by tim on July 23, 2010 at 8:12am — 4 Comments

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