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The BeBold Alopecia Camp 2010





On Friday 30th July 2010 Cowboys and Indians from across the UK decided it was time to meet together at the first ever Childrens’ Alopecia Camp. Some travelling day and night to get there, everybody was pleased to return home to our roots in Scarborough’s Wild West, Pinewood Holiday Park.



The view was wonderful and it was amazing to see how life has changed with a lovely camp site now filled with Cowboy Shacks and Indian Tipis… Continue

Added by The Be Bold Team on August 13, 2010 at 2:30pm — 1 Comment

Hair loss and regrowth pattern?

ok quick question!! In order for my hair to grow back will it ALL fall out or will it start growing back before it falls out?? I found some new hair by my temple where they said was completely dead and my husband found some we think in the back!! Just wondering!!

Added by amy on August 13, 2010 at 10:55am — 3 Comments

Whew!

Well, it's been 8 months and it seems that my hair is growing back in. Not all of it...there are still some pretty thin places. Honestly, though, it's like I stopped caring about it. I used to try to hide the spots, then I finally stopped. Life is still stressful, but at least I recognize it and can deal with it. WHEW! The worst is over.

Added by Suzanne Kennedy on August 12, 2010 at 11:42pm — 2 Comments

Have You Seen This Wig!?!?!

Getting ready for the big shave and trying to find a good wig.



I love Ginnifer Goodwin's hair...honestly, it's kind of like my pre-Alopecia hair but with better volume:…

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Added by Kara Donaldson on August 12, 2010 at 11:16am — 3 Comments

That Answer in the Night

Isn't it remarkable that in 2010 we can put out our alopecian thoughts and fears (be they medical, personal or social) online...and that someone, somewhere, whom we have never met, from anywhere in the world, may be reading and answering at any time of the day or night? That someone, somewhere, may be putting out a little thought of hope or prayer for our situations, or have the very answer we need? Imagine how amazing it is for those of us who went through MANY years of no computer at all… Continue

Added by Tallgirl on August 12, 2010 at 10:45am — 35 Comments

Accept the things you cannot change

My mom has been asking for years that we take a picture, all four of her kids in the same room together…. Ha! I’ve always said hell no! I am not a photogenic person plus I’ve always been insecure with my weight and physical appearance, plus not to mention all of us work and never really have time for anything. This year I finally decided its time, were getting older and it may be the last time we ever have a chance to slow down and do something good for the person whom gave us life. So I called… Continue

Added by Maria on August 12, 2010 at 10:44am — 1 Comment

Our wedding day

So much can be said about our special day....our wedding day! A joyous celebration with family, friends, and a man who knows my heart. We could not have asked for a more beautiful and spirit-filled event.



I lead a "bald life" on average 363 days out of the year. I went back and forth on whether to wear a wig on my wedding day. I was not living in my hometown when I lost my hair.… Continue

Added by Jill on August 11, 2010 at 6:00pm — 16 Comments

Work

Now everyone that I work with knows that I wear wigs. It feels great! It is good to know that everyone knows about it. We only have 7 people in the office so its not like I work with a big group of people. And there is only one guy in the office. I went to lunch today with the one coworker who I had not told yet. We had gone to happy hour together a few times and had lunch a few times so I decided it was time to talk to her about it. She said she had no idea that I wore wigs. That felt good! I… Continue

Added by Alliegator on August 11, 2010 at 5:45pm — 3 Comments

Hair Donation

I would like to know how I can donate 19-20 inches of virgin hair to the alopecia foundation.

Added by Tina Hall on August 11, 2010 at 12:08pm — 1 Comment

Internal Medicine

Hi.. I am seeing an Internal Medicine doctor on Thursday because the scalp pain is driving me to near suicide. I can't touch my hair or head and it is worse than the hair loss at times. Are there any questions that I should ask the doctor? Any specific tests? Thanks!

Added by Julie Koch on August 10, 2010 at 5:46pm — 4 Comments

EATING DISORDER..SCALP PAIN..HAIR LOSS..SMOKING

Hi everyone.. I was wondering if any of you either male or female have struggled with eating disorders and what your opinion about a correlation between all this is. My doctors said that even though I am way underweight, my labs are normal and the eating disorder didn't cause the severe scalp pain followed by hair loss. Today my scalp burned SO bad I called my dad in tears and made an appointment to see an Internal Medicine doctor on Thursday. I was wondering what opinions people had on this. I… Continue

Added by Julie Koch on August 10, 2010 at 5:43pm — 8 Comments

Irritating people

Why do people have to be so difficult or negative. I am a person who love a good quote or one that makes people respond (well to the quote) no about me. Yesterday I was on my facebook and my quote I found amusing was "loving a man is live loving a child, if you don't correct them when they upset you they will never learn how to treat you with respect", not thinking anything bad about this I received to comments from my boyfriends sister and mother. His sister asks," what is this all about?" and… Continue

Added by Dana Kozlowski on August 10, 2010 at 8:38am — 8 Comments

Headband wigs - seeking advice

I was going to post this on the discussion board, but decided to post here instead. I've decided to try a headband-style wig as an alternative to a hat. Problem is, I'm in Asia (where the chances of finding a non-costume blonde wig are not very good) and my friend in the US is going to send it to me- so I have to choose one just from online pictures.



I'm kind of torn between the Paris Hilton headband fall ($20 on sale, synthetic hair) and a Put On Pieces headband fall ($150 on sale,… Continue

Added by Nari on August 10, 2010 at 6:00am — 2 Comments

Acceptance

hmm i have been feeling good about being bald lately, i dont know why...i guess im in a good place in my life right now. and then i see the likes of amber rose (kanye wests gf) and think shit its okay to not have hair, its hot...amber doesnt have alopecia, she just chooses to wear her hair that short



Right well im going to go shave my head again, am sick of my wig and have been wearing head scarfs as of… Continue

Added by Mjay on August 10, 2010 at 2:21am — 9 Comments

Donating a bone marrow

I really want to donate a bone marrow, I'm going to be 18 this month. I was looking on www.marrow.com and there are some condititons that can prevent someone from donating. Would it be ok for me to donate even though I have Alopecia Areata?

Thanks in advance

Added by Rebeccalynn Morris on August 9, 2010 at 5:19pm — 4 Comments

Not sure if I really am "living" with alopecia

I have been without any hair for 8 years. I turned 50 yesterday and thinking back - I had the most beautiful thick brown hair and I still long to have it back. I still pray every day even though I know better. I still cry sometimes and feel sorry for myself. I even still dream that I wake up with it all back. I really do not know if I will ever really accept this. Oh sure I wear a wig and "paint" on eyebrows every day. I sweat like heck in the heat and itch. It can be miserable. I can fool… Continue

Added by Barbara A Helnore on August 9, 2010 at 3:17pm — 7 Comments

Birth control causing alopecia?

Hello!

About a month ago I noticed redness on my scalp and asked my bf to take a look. We were both shocked to discover 3 bald spots on my head. I work at a salon so went in the next day to make sure I haven't always had them. They confirmed I had not, so was able to get estimate how long this has been going on. (2 months)



I went to doc's and got some cream. When I went to apply, I noticed 4 more spots. AHHHH!!! I have been racking my brain trying to understand what is going on… Continue

Added by Stacy on August 9, 2010 at 1:00am — 3 Comments

Do vitamins/supplements help or hurt?

Hi everyone... I have been taking a bunch of supplements since this hair loss and scalp pain started 6 months ago. I had more blood tests done last week and my Vitamin B12 was very high. This caused me to have hives, itchiness, redness, hot feeling, etc... I did more damage than good. My Vitamin D3 was low and my doc told me to take 4000 units a day to boost it back up. I know Vitamin D has a lot to do with your mood and depression but I also read today it can cause scalp pain and hair loss if… Continue

Added by Julie Koch on August 8, 2010 at 7:45pm — 12 Comments

Message from a friend

Today on FB I received a message from a friend who has terminal cancer and said "it's hard to be without hair" and she doesn't see how I handled it all this time. She is the most amazing person. I remember when she was diagnosed and was worried about losing her hair, I told her not to worry I would come to work bald with her. There is nothing the doctors can do for her now but she is still here and living life. And you know what, that's what we should all be doing as well.

Added by Roslyn on August 7, 2010 at 10:34pm — 6 Comments

Kayla Martell on 20/20 August 6, 2010

http://abcnews.go.com/2020/video/crowning-glory-bald-beauty-queen-11347627

Added by Rhonda on August 7, 2010 at 10:31am — 1 Comment

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