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Looking for Philadelphia alopecians

Hi . . . my name is Kari and I'm new to alopeciaworld but NOT new to alopecia . . . it's been 15 years since I lost my hair, back before there was really anything out there online to help out.



I am currently working on a national alopecia awareness project, and need a young woman with alopecia in the Philadelphia area for about 4 hours of work . . . it's for a music video to go with a single my friend wrote about a young woman with alopecia.



We have to get this piece of… Continue

Added by Kari M on April 6, 2010 at 1:55pm — 1 Comment

Enjoy yourself and have fun

what i have learnt is that what ever anyone says or dose to me,u and or anyone is that we all can choose to let it effect us or we all can choose to not let it effect us.we all can just have fun be normal in ower owen ways not what anyone elce thinks is normal its ower appinion that counts not theres.

so yeah that is now my way of dealing with what other people think of me :)

so just remember what ever is wrong just have fun and enjoy your self :)

Added by tahnie elizabeth grant on April 6, 2010 at 8:00am — 1 Comment

My lil Urban Garden

Today I thought I'd share about my new friends, some beautiful plants that I acquired over the weekend. Since I've stopped obsessing about my hair loss, I've been able to move onto and focus on more positive activities. Most of my friends know that I find plants creepy and yet, I have a desire to keep a few, select ones, carefully chosen for my climate, apartment, oh, and how I feel about them :) They make me happy and it keeps me calm when I look at them. I don't hate plants, I just feel… Continue

Added by Clara S. on April 6, 2010 at 2:46am — 4 Comments

Stress - hair is falling out agian

i really just give up theres to much stress i really do hate it nobody understand the only people that do is the people that are on here the wonderfull people i wish there was womderful people to be with where i live i have no frineds im a lie at skool the one friend i hvae uses me my hairs fallin out fast and i cant stop stressing i have metal breakdowns every other day i cant sleep at night theres just no way to avoide it i cant leave my past behind me those so many people that have treated… Continue

Added by ashley mcmullen on April 6, 2010 at 1:00am — 4 Comments

Help With Fake Eyelashes (:

Heyy if you wear fake eyelashes. Can you please give me some tips because i have been wearing them and im going to the beach soon and wanna be able to wear them in the ocean and pool without having to be paranoid the whole time about them. :) Will someone please tell me how i can do that? It would help me tons and remove some stress so i can have fun on vacation with no worries. :))

Added by Rachel Taylor on April 5, 2010 at 7:30pm — 2 Comments

Love yourself

it is allwayes hard to move on but the best thing to do is love the new you.
if u have doughts just look in the mirror and see how beautiful you are no mattere how much hair you have :)

Added by tahnie elizabeth grant on April 5, 2010 at 12:59am — 1 Comment

Wigs and Toppers

Living with Alopecia for over 15 years now I can read my patterns to some degree. I know my hairloss this time is going to be extremely bad, probably the worst its ever been. But, I don't know if I'm going to lose all my hair. I've read that areata can lead to totalis or universalis, so there is always that fear in my head. Is this it? Will it all fall out this time? Currently, nobody can tell that I have bald spots yet.

Since my hairloss is progressing at a really fast rate and the spots… Continue

Added by Jessi on April 4, 2010 at 8:00pm — 1 Comment

Happy Easter

Hey guys, long time no see. I hope everyone's had a good day. I just had an Easter egg hunt. As for my progress with Alopecia, I've been off the hormone meds and hair is still growing back thick and long. Inside I still feel insecure now and then, and paranoid that I'll lose it all over again. I guess the first battle's the toughest. But keep on being strong everyone. You may have Alopecia, but Alopecia doesn't have you. Be strong, because you're all beautiful!

Added by Sofia on April 4, 2010 at 7:08pm — 1 Comment

Help request for 16 year old girl

It's been a while since I reached out for advice here but recent events have brought me back. My daughter will be 16 next month & is struggling with her alopecia. She is depressed, feels alone & is close to being hospitalized for treatment. She has been in therapy for at least two years, but has not come to the point where she can accept her condition & eventually take control of her life again. I have tried to get her to visit this site & the amazing peoiple who have determined… Continue

Added by Tony Polzin on April 4, 2010 at 12:07pm — 5 Comments

I finally did it - I shaved my head!

Last night I caught sight of myself in the mirror with my real hair pulled back in a pony tail with my many bald spots showing through. And I thought, that's it - it's time, I look hideous. I discussed it with my hubby who played devil's advocate and stressed to me that there was no turning back once I did it so to make sure I was sure. As he put it, I can still throw on a hat and go to the store (with my real hair) or around the house.....but you can't hide bald!



So we started off… Continue

Added by Jenna4 on April 3, 2010 at 9:12pm — 14 Comments

Dotty's Inspirational/Motivational Reflection

"A positive attitude may not solve all your problems, but it will annoy enough people to make it worth the effort."

Added by Dotty on April 3, 2010 at 1:57am — 2 Comments

Dotty's Inspirational/Motivational Reflection

Added by Dotty on April 3, 2010 at 1:54am — No Comments

Wigs and lashes

Hey everyone,



I was wondering if someone could give me some information on false lashes. My eyelashes are starting to fall out and i wanted to know which false lashes are the best. Ideally I am looking for some that are able to stay on for a few days at a time, maybe longer. I'm not even sure if these exist? I am also wondering what wigs would be best if I wanted to wear my hair in a ponytail or something. I have monofilament wigs that I love but I can only wear them in a low… Continue

Added by Sarah McA on April 2, 2010 at 2:24pm — 6 Comments

DCP treatment and me

Just want to share with you and those considering it, I found the information about the treatment is somehow limited to its action. So I want to share with you about the journey I have during the last 8 months...well, I'm still on it.

I found this treatment last year, and the concept or the theory behind is quite understandable. Before I heard of the treatment, I usually find some tiny hairs grow around inflammed area. That the concept of DCP is actually induce a continuous inflammatory… Continue

Added by dawn on April 1, 2010 at 1:44pm — No Comments

Itch, itch, scratch, scratch, scratch...arrgghhh

I'm 'shedding' again, or so it seems as my eyebrows, lashes, and the hair on my chest are slowly disappearing. One forearm is also joining in...well, part of one anyway. The arm looks bizarre not that having a partial an eyebrow is normal. The worst part is the itching which always seems to accompany the fall out...followed by the scratching, then even more itching and feined attempts to not scratch. Now I know how it feels to be a dog with fleas.



I suppose that I was in denial up… Continue

Added by Tony on April 1, 2010 at 12:30pm — 4 Comments

About Me

Hi my name is Kristine and i am student/bartender in Delray/Boca FL. I'm a full time student studying Biology, and i HOPE to be pre-med in about a year or twelve haha. I like the beach,running,hanging out with my friends and going out. I will quit smoking because my ex told me so. To have him back, I'll be true to my self. Aside from quitting for my ex back, i look for tips on… Continue

Added by Kristina D. Jackson on April 1, 2010 at 12:00pm — No Comments

Diphenylcyclopropenone (DCP) treatments for my son

Ethan (my son) is scheduled to begin a treatment with diphenylcyclopropenone (DCP). I've have been reading up on this sort of treatment and noticed the horrible side effects. My son already suffers from exzema and so afraid this will really effect him.. Can anyone please share your DCP treatment experience with us. I'm not sure if I want to put Ethan through this. I'm so new to all this. Seems like we just woke up one day and his hair was all gone from one day to the next.



What is… Continue

Added by Andrea & Ethan Talamantez on March 31, 2010 at 3:33pm — 7 Comments

3 steps back

Scene: Dining-in at a fast food restaurant. 8 year old or so boy bounces past my table. He takes 3 steps backward and stops. Deep stare. I smile. He bounces on with balloon in hand.

Hopefully he'll become a little more discreet in the future or at least stop long enough for me to explain that yes, I am a bald girl.

Big grin.

Added by Jill on March 31, 2010 at 12:08pm — No Comments

My First Bald Blog

I definitely can feel a turning point in this entire process. I have been so aware of myself going through each of the 7 stages of grief.



Stage 1 - Denial

Losing my hair has been a process. Last year, I was at a sales conference in Chicago and I felt a smooth spot on the back of my head. When I got home from my business trip, I asked my boyfriend to check it out and he said it looked like someone had taken a lock of my hair. This was the first of many times that I used the two… Continue

Added by Brandy P. on March 31, 2010 at 2:37am — 6 Comments

NBO Aloha Style

Hello everyone or should I say Aloha.

My husband Vince & I just received our 2010 2nd Annual NBO tee shirts. I must say the Cafe Press has done a fabulous job with a great selection to choose from.

I ordered a white tee for Vince & a Pink one for me. They arrived today, I/we are so pleased, they look, feel & fit great.



I am so very excited & looking forward to celebrating the 2nd Annual NBO, this wonderful celebration will take place while Vince & I are… Continue

Added by Pamela Rosse on March 31, 2010 at 1:00am — 6 Comments

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