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Why alopecia makes me a better person

Hi, if you have read my other two blogs you know I am pretty good with my AU, that I actually in some ways like it at this point. Here are some reasons why



1. I am stronger- this is kinda obvious, we are all stronger because of this, we go through a life changing thing really, especially in our culture where looks are so important, where hair is a billion dollar industry, we are thrown into this and we must deal, we must be ok, and we are. it is only hair. I repeat that to myself… Continue

Added by Erin on January 25, 2010 at 1:00pm — 9 Comments

I'm scared!

it's been a year since this problem stared again!! and i'm really scare because it's getting worse!!! the first bald spot it's already full of new hair :D it was really big!! but i have new ones!! and they are not that big, but they are big!! and i notice that i have like 3 new littles spots, and i don't like it, on the big spots i can notice some regrowing, and i some of the old spots are getting bigger, and don't like it, but i'm really scare because i can still cover it, but i don't know how… Continue

Added by brenda j on January 25, 2010 at 1:00am — No Comments

NIH Funding for Alopecia Areata Ending in Sept 2010

Hello Friends,

I wanted to put the word out there that 10 years of NIH funding for alopecia is coming to an end this Sept.

Please help be part of the cure It's free and painless.

www.alopeciaareataregistry.org

Sending all the best to all!

Jeffrey

Added by JeffreySF on January 24, 2010 at 10:00pm — 5 Comments

Dotty's Inspirational/Motivational Reflection

"A good friend is a connection to life - a tie to the past, a road to the future, the key to sanity in a totally insane world."

Added by Dotty on January 24, 2010 at 9:52pm — No Comments

Freedom Wigs

Hey Ladies

I could use your opinions. I have been considering Virtual Reality Hair but have seen so many good things said about the Freedom Wigs...a special thanks to Natalie for all her help!! I would like to know if any of you that have a Freedom Wig think it is hot. I'm not real physically active but I do walk on the treadmill and like to go camping (not tent...trailer.) I'm really interested in the wig but I'm afraid it will be hot and i will not want to wear it in the summer or when i… Continue

Added by Joy on January 24, 2010 at 8:59pm — 7 Comments

Horoscope

I'm not the kind to put much stock into horoscopes, but I checked mine today, and it made me smile.



From Real Detroit Weekly.

Cancer: You can't fix everything all at once. Just because you've seen the light, it will be awhile before it starts reflecting itself in your outer reality. For the moment, all you can do is trust the fact that the seeds for change have been planted and try to keep them watered. Don't look for results or think that the results from this will be what you… Continue

Added by Andrea on January 23, 2010 at 10:07pm — No Comments

1 year alopecian anniversary...isn't this the paper anniversary? I'll take hair instead:)

So about one year to this day I found my first spot...I remember being in complete shock, getting verification from the hubby and thinking "What the heck is this?" I remember going to my 1st doctor is somewhat of a panic and being told "alopecia" and thinking alowhat??? I remember a second spot starting while we were at the cabin and this is where the story turns ugly. I remember that weekend just bawling as I had more and more hair fall out and felt tingling all over my body. I remember just… Continue

Added by Jennifer Krahn on January 22, 2010 at 10:52am — 7 Comments

Swimming cap?

Joined the gym here in Spain, went swimming this morning, after 2 lengths got called over by the lifeguard. He said "This might sound absurd but you need to wear a swimming cap. It's the rules of the pool." Erm...what? What would be the reasoning of this rule? I would hazard a guess at the fact that hair gets trapped in drains and they want to avoid that. So why would I need to wear one? I looked at him a bit perplexed and he said "I've got one here you can borrow." So I sighed and said "OK"… Continue

Added by Hayley Burton on January 22, 2010 at 9:56am — 5 Comments

Knowing when to walk away

Hope is a very powerful ingredient in one's life however so is a realistic point of view. I can hope that today will be a sunny day, I can hope that I'll find the greatest man on earth and I could certainly hope that my hair would come back BUT (and that's a big but) reality must come into play at some point here. Hope will not change the forcast for the day or bring me that great man and hope has nothing to do with making my hair come back. Hope is like daydreaming or wishing. Now I'm not… Continue

Added by Carol on January 22, 2010 at 9:27am — 3 Comments

Meditation and health

Last week I attended a meditation workshop. I've meditated for several years on my own accord and figured the workshop would teach me something new. First off we sat around and talked about stress and meditation, something I was already quite aware of. Stress is generally the source of changes in diet, sleep patterns and tension which lead to other health problems such as obesity/malnutrition, fatigue, heart attacks, and weak immune systems which make us prone to infections and disease. Knowing… Continue

Added by Carol on January 19, 2010 at 4:44pm — 1 Comment

To wig or not to wig

I don't really enjoy using the the wig. I find that it uncomfortable. I always feel like it going to fall off or someone's going to pull it off. I used to be able to not wear a wig because I had enough hair to cover but now it can be noticed. So I am considering shaving off what's left and just being natural. My mother thinks i should invest in a different type of wig that will fit better. Am not sure what to do. Any ideas ?

Added by chani trav on January 19, 2010 at 9:44am — 9 Comments

Negative

I figured if i start off by listing all the things i hate about alopecia, then it can only get better right? Sure i can learn to accept it but maybe i just want to go on hating it for a little while longer.



Things I hate about Alopecia



1. I cannot wear my hair in a high pony tail.

2. My hair style of choice is a low pony tail or a loose plait

3. I feel i cannot get my hair trimmed because i don't want to go to the hairdresser

4. The way it grows back… Continue

Added by Nicole on January 19, 2010 at 2:00am — 11 Comments

Fall hard, come up strong!

Hey you guys, It's been a while since i have talked to you guys. but since i got the human hair i have gotten my life back. But when i shaved my head last year it felt better getting a fresh new start just like the new 2010! But my hair has been growing back over time and most of my bald spots are covered now and its looks nicer then it ever did.
Well you guys its time to go.
See you next NAAF meeting(:
So remember when you fall hard make sure you come back strong!

Added by Aja Eliazar on January 18, 2010 at 10:51pm — 1 Comment

Hurry, don't wait! Limited time offer!

Beautiful People,



If Madison Avenue ever created a slogan for life, that should be it. One of the things I learned through dealing with Alopecia (and having my husband suddenly drop dead of a massive heart attack), is that you can't wait until things are perfect -- or even better -- to meet life full on. If you do, you will always be waiting instead of living, and life is short. Like art, your passions are revealed in the process, not the product.



An analogy (and example)… Continue

Added by Marie on January 18, 2010 at 4:00am — 9 Comments

Regrowth Update

I thought that it was about time that I updated my regrowth blog. I'm really happy to say that the regrowth of hair on my head has been pretty impressive. I've gone from having 20+ patches to them all filling in. Some have still to thicken up a bit.



This is the patch on the back of my head near my crown.





This is the first patch which appeared a year ago. Strangely, it has been the slowest to fill in. It is still filled with… Continue

Added by Robert on January 16, 2010 at 12:20pm — 11 Comments

I'm stoked!

Friends,



I just found out that the Minnesota Center for Book Arts has selected one of my pieces, "Autotomy", for their Quantified Aesthetics exhibition that will run from March 12th to June 20th. MCBA is the largest book arts center in the nation, and I couldn't feel more validated!



THANK YOU! The confidence I have gained from being a member of this online community has contributed greatly to my artistic endeavors. As always, I urge you to go out there and find something… Continue

Added by Marie on January 15, 2010 at 7:37pm — 7 Comments

Que lo que people how ya are you

Check out the new Marina pic on my page, and also full page Marina comics are coming soon Cojelo Suave people

Added by ROCKSTAR: ROCKY MANUEL MARTINEZ on January 15, 2010 at 2:03pm — No Comments

Alopecia in Switzerland

Hi there I was just wondering if there are any with Alopecia living here in Switzerland? I am South African and living here 1 yr already and think it would be nice to hear from you if so. Peharps we could start our own Breakfast mornings or have get togethers like the AW in the States. Look forward to hearing from you soon.

Added by Farial Michaelsen on January 15, 2010 at 11:24am — 3 Comments

You Can All Get an Honorary Degree (Alopecia Universalis)!

I know many of you have had this illness for a while now. Sometimes you feel like you've become an authority. Well, like many others who've spent years in their particular industry -- you've all become SMB (subject matter experts) in your field of Alopecia. :)



You are entitled to: http://www.newagemedia.ca/au/au_degree.jpg



Print one and hang it on your wall -- only a few people around the world have earned one. You… Continue

Added by Drakes on January 14, 2010 at 2:25pm — 3 Comments

Hairpieces

Has anybody ever bought a wig from Best Wig Outlet? I found a really cute human hair piece, Sepia - HB Prom, and it was a really really good price for Human hair. I am so leary about buying online. I have one now that I got thru an area salon. It is supposed to be human hair and it was rather pricy. To put it bluntly, I hate it. I haven't had it a year yet even and have only been able to wear it in a ponytail. It is supposed to be human hair, but it seems to "rat up" in the back just like some… Continue

Added by Mary Sarra on January 14, 2010 at 2:00pm — 5 Comments

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