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Locks of Love

Well and update on Jordyn..we made the plaster mold of her head to send off to Rhonda at Locks of Love..She received her plastic mold to fit on her yesterday..she was so excited..now to send it off. And let the wig making begin..I can't tell you how excited Jordyn is that she has the opportunity to have this wig from the locks of love..It is a fabulous organization..Jordyn has very high self esteem anyways and really doesnt let much bother her this just makes it a little better. We have seen… Continue

Added by Jess (Jordyn's Mom) on October 15, 2009 at 10:11am — 1 Comment

so i got an idea on how we can make this chat box work

ok so here is my idea, i figure since a lot of people check to see if anyone is in chat( in which a majority of us may check periodically) well i figure if u wanna chat with someone in chat send them a message(to there inbox) asking if they would like to chat, Me, well i'm always up for a good chat so if any of u wanna chat( if u see me online) im totally game for it, ask me whatever u want, im an honest guy and will give u an honest answer...so lets get to know each… Continue

Added by Paul on October 15, 2009 at 12:06am — 1 Comment

Surprise!

Here's something funny; I just went to see my dermy today and as per usual, a student doc is sent in first. She actually wanted me to point out where I have hair missing on my head. She looked surprised when I said that it's missing everywhere, all over my body. Now that's the true test of a good wig, when a resident can't tell that it's not your own hair! She even had to look closer to see that I had no eyelashes.

Added by Brandy Snap on October 14, 2009 at 6:00pm — 2 Comments

Kenalog shots and blindness?!

Hey all! I was wondering if anyone has experienced any negative eye issues/blindness with receiving the Kenalog shots in the scalp? I have heard that some people have become blind for these shots in the scalp!! I got some more shots this Monday and my eyes feel like they are burning a little bit but otherwise they are ok. Please give me any feedback if you know someone that has experienced eye issues or not! If you have not had any eye issues with the shots, let me know as well!… Continue

Added by Melissa Harris on October 14, 2009 at 2:09pm — 2 Comments

Any suggestions about starting a support group?

I am thinking of starting an Alopecia support group in my area. Does anyone have any suggestions as to how to go about starting one? What materials do I need for the first meeting? How long should the meetings be? Any suggestions would be helpful. Thanks.

Added by Sharon Loden on October 14, 2009 at 9:59am — 3 Comments

Night time headwear

hi evryone!
hope this will be of use to members,this is my first cold spell with no hair.
i decided to browse the internet and found this amazing site that supplies night time headwear,
its called www.headcovers.com hope you have fun looking @ this if you need a warm head like myself at night time.
regards karen.

Added by karen on October 14, 2009 at 5:54am — 3 Comments

Any advice please :)

Hey all.

Do any of you have experience with virtuesse hair replacement for women or with continental wigs? Looking into my options other than vacuum pieces. My biggest problem I am finding is the bangs. Bangs look horrific on me! I usually keep my hair completely off my forehead like my profile picture. Thanks for everyone's help!

Love to all!
Donna

Added by Donna DeHoog on October 13, 2009 at 8:52pm — 1 Comment

Anyone else experiencing technical problems on this website?

Is anyone else experiencing this problem: I go to read a blog or someone's comment on my profile and it kicks me back to the AW home page. Is it me or is this happening to anyone else?

Added by Kelly on October 13, 2009 at 8:06pm — 9 Comments

One more regrowth question...sorry

thank you to everyone who responded to my previous post. just one more question for you (sorry)....when hair does start to regrow, can it be seen right away or does it start as barely visible to the naked eye, kinda like soft facial hair that you can only see if you look in a mirror with the right light?????

Does that fine hair stay on our heads after we lose it all or is this the very early stages of regrowth??? thanks everyone, sorry for the tedious questions....

Added by Kathleen on October 13, 2009 at 6:40pm — No Comments

Pharmacy Drive-Thru

I pulled up to the pharmacy drive-thru and the clerk asked for my name. She came back and forth to the window getting various information. After all the formalities she said, "you know, there's not a lot of women who can pull that off."

People look at you once, then twice, and most likely a third time before going about their business. But I'm very thankful for the few that stop and take a moment to make me smile.

Added by Jill on October 13, 2009 at 6:40pm — 4 Comments

Hair after pregnancy! Was that my cure?

Hey everybody,



My daughter is now 3 months old. My hair started to regrow when I was about 24 weeks pregnant and now I have enough hair on my head to almost go without a wig. It'S still quiiet short, like a guys haircut but it'S growing really fast!



My body hair is growing, too and I had to shave my legs for the first time (in ages) a week ago. My eyebrows and eyelashes are there, too!!



I'm hoping so much that my hair is not going to fall out again after… Continue

Added by Zoe on October 13, 2009 at 3:37pm — 4 Comments

I found this message very powerful,we're beautiful with or without HAIR!!!!!

https://www.youtube.com/watch?v=Rvo3H7r60sI&feature=related

Added by linda carraway on October 12, 2009 at 11:50am — 1 Comment

Alopeciapalooza 2010

Hey everyone!



Alopeciapalooza 2009 was held in Philadelphia and was attended by 52 families with 65 alopecians making our first convention a huge success! A little over 200 people building self-esteem, providing support and raising awareness in the City of Brotherly Love!



We have done a lot of work in finding the next host city of Alopeciapalooza and have norrowed it down to Baltimore and Chicago. Both are great cities with much to offer but only one can be the host city.… Continue

Added by Children's Alopecia Project on October 11, 2009 at 9:51pm — No Comments

Bald! A Hairless Musical! <3

Hello all.... i must tell you all first that I am feeling much better, that bit of depression has past, and I am so thankful :)

Yesterday was a very special day for me and for all my friends with Alopecia!!! I went up to LA to meet Carl Carlyle, playwright, writer of "Bald: The Hairless Musical" He needed actors for his promotional video to show the investors, you know, the people who pay to put the play on, and I was lucky enough to be able to partake.... The score was so catchy!!! The… Continue

Added by Lindsay on October 11, 2009 at 2:23pm — 8 Comments

What I think about you!

I can't help it. I just love this amazing support community and the invaluable contributions that so many of you make to it. Not only do I appreciate each and every one of you, but I truly admire you as well. Your compassion, your courage, your resiliency, and your determination inspire me in more ways than I can count or chronicle. I will always be profoundly grateful, not only for what you've made Alopecia World, but even more so for what you're making of yourself. :-)

Added by rj, Co-founder on October 10, 2009 at 8:30pm — 24 Comments

Lovely Lovely Fuzz!

I will definitely have to upload some new photos, if only to show off my new head fuzz! I can't believe I'm this excited about a bit of stubble but what the hey! It's coming back thick and black! Even though I was a natural blonde! Weird! shame that its not everywhere, darn AA!!! But never mind, still bald (ish) and proud :)

Take Care, Liz x

Added by Lizzie on October 10, 2009 at 6:01pm — 3 Comments

Hair regrowth! What should I do?

OKAY SO THIS IS KIND OF WEIRD FOR ME...VERY WEIRD FOR ME. ABOUT 2 TO 3 MONTHS AGO I NOTICED THAT I HAD SCATTERED PATCHES OF HAIR ON MY SCALP GROWING, AS WELL AS MY EYEBROWS AND EYELASHES WERE GROWING BACK. NOW I HAVEN'T HAD A STRAND OF HAIR ON MY HEAD FOR ABOUT 2 1/2 -3 YEARS. SO WHEN I FELT THE FINE PIECES OF HAIR ON MY HEAD I FELT WEIRD. I DONT WANT TO GET EXCITED BECAUSE THE DOCTORS HAVE ALL FORWARNED ME THAT IF I EXPERIENCED REGROWTH AND MY HAIR GREW COMPLETELY BACK ITS A VERY HIGH CHANCE… Continue

Added by Montoya Grant on October 9, 2009 at 12:49pm — 6 Comments

Any tips to get me motivated on my journey to happiness?

Hello again everyone,



Today I am not sad about my lack of hair, well maybe the eyebrow thinning out!!! yes, definitely the eyebrow, but it's not intruding on my space like my other disorders do.



I have said before and I'll say it again: Give me Alopecia over my mental conditions anyday!!



I know that a side effect of Alopecia is stress, anxiety and depression. In my case though these things already existed. Has the Alopecia made it worse? At times I… Continue

Added by kimberly dean on October 9, 2009 at 5:00am — 11 Comments

Anyone tried Latisse yet?

I have a friend that thinks it works and today at the massage therapist she noticed I had 4 lashes and suggested that I try it. She said a client of hers has been using it on her "normal" lashes and now doesn't even use mascara! She sounded so postivie I'm thinking of trying it, but want to hear if anyone has any thoughts, comments, etc.

Thanks

Added by Leah Larson on October 8, 2009 at 10:25pm — 8 Comments

Hopeless

So this is my first blog on here. I A friend suggested I blog to get out these feelings of helplessness. So here goes.



At the end of June this year, I discovered a small quarter sized bald spot on the back right side of my head. ( A coworker pointed it out.) I ran to my computer and took a picture of it since it's in the back and I can't see it. Naturally, I freaked out. I called a hair replacement specialist, who was kind enough to see me on a free consultation. He took one look and… Continue

Added by Ernesto on October 8, 2009 at 3:52pm — 17 Comments

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