Yesterday marked 6 months since we started Alopecia World and although we had a vision for it, I never knew it would be SO amazing.
I look at the photos, videos, advice giving and it is unbelievable how much all of you have inputted and shared your lives with Alopecia World.
I watch adults showing their spots or lack of eyebrows, all to which the outside world they may hide. I watch women happily upload photos of them with a new wig, eyebrow tattoos or post their first…
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Added by Cheryl, Co-founder on September 8, 2008 at 4:00pm —
10 Comments
Thank you all for the encouragement and tips. I am away from my family down at school and this website is a huge encouragement to me. I will definitely try out some of the eyebrow tips. And, I think I am going to go have my make-up done where they can show me how to do it. Thanks for the idea Bogie!! I don't think I ever would have thought of that, but I think it would help me to feel girlie. Below are some pictures of when I go out without the wig on. The first one, it was an outside barbecue…
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Added by Rachel on September 8, 2008 at 1:30pm —
1 Comment
Hello Alopecia Family and Friends,
A couple of weeks ago I sent out letters to some of the local newspapers in NH and Boston, MA telling them that September is Alopecia Awareness Month and asked them if they would post an article with my poem and a few paragraphs about what Alopecia is and how it affects us. I got a phone call last week from a reporter from one of the papers asking if she could come to my home and interview me :-) This will be the 3rd time I have been in the newspaper and…
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Added by Dotty on September 8, 2008 at 11:50am —
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Added by Dotty on September 8, 2008 at 8:28am —
1 Comment
Added by Dotty on September 8, 2008 at 8:25am —
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OMG!!!
I just had a thought...
How better to bring acceptance to alopecia than a T-Shirt?
Not only acceptance... but awareness to the general public.
If I am not mistaken September is Alopecia Awareness Month and I have been raking my brain what to do.
Anyone have an interest in this?
Have a connection?
Hope I thought of this in time...
Jeff
Added by JeffreySF on September 8, 2008 at 12:46am —
51 Comments
Hello everyone!
Wow, it's been so long since I've been on here, I've been working and travelling in the US for nearly 3 months now & have no had a chance to get on here at all. Hope everyone here is doing well.
It has been an amazing experience so far but very challenging as well. I am now very close to alopecia universalis - I have but a few random body hairs left. I wear a wig most of the time.
I started off my travels working at a summer camp in Maine.…
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Added by Karina Louise on September 7, 2008 at 4:00pm —
2 Comments
Finally...a new picture! Hope you're all doing well!
Added by traci on September 7, 2008 at 3:03pm —
6 Comments
im depressed. i miss him! :/body>
Added by Courtney on September 7, 2008 at 2:42pm —
2 Comments
So, my brother is getting married next weekend. It'll be outside.....by the beach....probably windy.....*sigh*
Caved in and went to the salon to get some highlights and a cut. My hair lady chose 2 different highlights to use: blond and brown. I'm a strawberry blond.....
I'm pleased that using 2 different shades has given more texture to my hair so as to better conceal the "crisis" I've been dealing with on my head. I hope that it won't be too windy since a lot of pictures…
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Added by Georgie on September 7, 2008 at 12:47am —
2 Comments
I wanna thank everyone who has sent me messages, and comments welcoming to the site, its soo cool to see how nice everyone is here. i can say for sure that there is no other social networking site out there like this,
ttyl
Joe
Added by ☆Joseph Giallombardo☆ on September 6, 2008 at 6:54pm —
3 Comments
I'm not having a good day. My eyebrows are almost all the way gone and my eyelashes are going too. I started losing eyelashes yesterday and by today, there are patches left. Ugh! I don't even look like me anymore
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Added by Rachel on September 6, 2008 at 3:30pm —
8 Comments
I have had Alopecia Areata since I was four years old and have done everything I can think of to hide it from others. I would often times style my hair put on so much hair spray to keep in place.. making sure that no one can see my spots. It worked when I was younger but as I got older the spots got bigger and were not growing anything. I got my first wig when I was 15 and it was really hard to except, but once again I did everything I could to ensure my secret was kept. Only family and close…
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Added by Dame on September 6, 2008 at 9:29am —
3 Comments

But we know, of course, that lookism and other forms of appearance-based discrimination is no joke. Therefore, how do you think you can take a stand against the scourge?
Added by rj, Co-founder on September 6, 2008 at 8:41am —
2 Comments
We just had a semi big earthquack in SFO 900PM
We almost went down!!! OMG I'll post the Ricter scale magnitude as soon as it's available.
I dont think we are an island yet.
Jeff
Added by JeffreySF on September 6, 2008 at 12:00am —
7 Comments


Hello,
I've been thinking about the years I've worn wigs, hairpieces and after reading some of the blogs and pages here, I thought it would be a good idea to share my knowledge, advice, skills, etc with you all. Below are some of the sites I've shopped at and still shop at when needed. Also, I've rated them, please add your sites and advice. I think this would be helpful to those newly diagnosed who…
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Added by Linda on September 5, 2008 at 5:20pm —
10 Comments
Thanks for those of you who commented/read my blogs, especially for not throwing stones as my complaining and venting had nothing to do with alopecia, here on my alopecia profile. At any rate. I'm going to be just fine. While I can not see the future I know that I will always protect my children, thanks to all of you who pointed out who foolish I was acting. I actually was unable to sleep because I couldn't stop planning for today. I wish I had logged on sooner ... maybe then I would not have…
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Added by Carmella on September 5, 2008 at 3:06pm —
5 Comments
you know what makes it even worse!? I spent all day doing extra cleaning, taking care of the kids needs and I even gave myself a facial and did my makeup extra sultury for when he came home... and now it's smeared with tears and he wouldn't care anyway.
I HATE MY LIFE
Added by Carmella on September 4, 2008 at 11:09pm —
3 Comments
It started with him forgeting to kiss me when he got out of the car. Soon he was spending a couple of nights a week on the couch "so as not to wake me because he couldn't sleep". The next thing I know he's going out for drinks until two am in the morning with 'people from work'. We've never done anything apart in over three years of marriage (I'm not saying this is a good thing) in fact he demanded I cut contact with every friend I've ever had and I complied :(
Now he wants 500 dollars to…
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Added by Carmella on September 4, 2008 at 11:02pm —
3 Comments
1st period-science: keith and astrid fighting. like always. astrid dives in to hit keith with her binder and missed. ends up on the floor.
spencer: courtney. do u like to draw?
me: ya.
spencer: cuz i saw ur cultural bag project in ms. coudens room. it was really good.
me: thanks. *smiles*
spencer: could u draw me somethin?
me: like what?
spencer: anything, i dog, a cat, whatever.
me: "i need a picture to look at."
spencer (he… Continue
Added by Courtney on September 4, 2008 at 5:37pm —
5 Comments