I can’t count the amount of times I’ve heard those words. It seems like daily I have to explain to someone about the disease, which really isn’t that big of a deal as I pretty much have the whole explanation down. But I have had a wide variety of responses, some of which have been surprising including making a grown man who is the husband of one of my elementary teachers break down into tears.
The one response I keep getting though regardless of whether the person reacts in a…
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Added by Drew on June 17, 2008 at 10:35pm —
5 Comments
Hi all.
I wanna wish everyone whos going to Louisville a safe and nice journey.
See you there.
Roger.
Added by Roger on June 17, 2008 at 6:18am —
1 Comment
Some time ago I started a group in Alopecia World called "Men Who Don't Mind." Presently, this group is discussing the problem of bald fetish and how Men Who Don't Mind can avoid treating or making an alopecian woman feel like one. Please
join the discussion and help us think through this important issue.
Added by rj, Co-founder on June 16, 2008 at 3:00pm —
No Comments
Father's Day is a very bittersweet day for me. Since I've lost my own beloved father 6 1/2 years ago, I tend not to celebrate this day like I used to. However, since my own brother has become a father, I can't help but feel pride and joy over how he has become so much like our father in raising his son. I can only hope that my nephew will grow to be as wonderful and loving a father to his own children as my father was to my brother and me.
In honor of Father's Day, I wanted to repost…
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Added by kastababy on June 15, 2008 at 11:30am —
2 Comments
Okay, so as everyone knows, I was in a wreck and got arrested 3 months ago because unbeknownst to me my drivers license had been suspended because I didn't notify the state of Georgia in writing that my insurance had changed. Well, it took 3 months, lots of bus rides and carpooling, and $3, 192 dollars, but I finally got my license reinstated and my tags renewed -- but what an adventure it was!
I drove from Memphis to Nashville, and picked up my best friend Maurice, who was the…
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Added by kastababy on June 14, 2008 at 11:30pm —
2 Comments
Great responses from all really. I just wanted to clear up that even more stunning (to me at least) was the fact that we both are AU. I wonder if she was just passing through?
XOXO
GIA
Added by Carmella on June 14, 2008 at 10:50am —
No Comments
So I went wig shopping for the first time...it was actually pretty fun. Got to learn about different types of wigs and try on different hair. I didn't buy yet, because I wanted to sit on the info for a bit to make a decision. But I'm pretty sure I know what I'm gonna do. The purpose of this 1st wig is just to have one that looks as much like my natural hair as possible...have it at home so that when that day comes that I wake up and realize I can't pull off the ponytail anymore, I'll have the…
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Added by Mandy on June 13, 2008 at 11:31am —
10 Comments
Day 7 with the new hairless do. The response has been better than expected. Most have been complimentary; some have shown surprise; only the village idiot went someplace he shouldn’t…something about how I should tell folks my hair loss was due to chemo. I could hear the sighs and mutterings of those who were within earshot of the ignorant suggestion. Discretion being the better part of valor, I simply shook my head then walked away.
Yesterday was a tough day, marking the first time…
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Added by Tony on June 12, 2008 at 12:02pm —
3 Comments
Louisville!!! Im counting the days now...and tonight im attending at a meeting with my Stockholm alopecia group. Im the only male there *LOL*
Roger.
Added by Roger on June 12, 2008 at 10:42am —
2 Comments
So as promised, here is my blog on shaving your head. I'm thinking about posting this on the forum too. Let me just start with some background info: I got so sick of thinking people were staring at the spots and tired of running my hand through my hair only to have 20+ hairs stuck in-between my fingers when I pulled them away. I also got sick of wearing a hat every single day and not going to functions that I couldn’t wear the hat at because I felt that the spots stood out more than I did as a…
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Added by Drew on June 11, 2008 at 11:36pm —
7 Comments
Hello friends,
I am writing to ask that you all take a miinute to send up a quick prayer for my daughter Kristin. Yesterday at 3:15 p.m. she was in a severe car accident. Her car went off the road, over an embankment, went airborne and hit 2 trees before it came to rest in a pile of trees. She was ejected from the car at some point and landed 20+/- feet from the point of impact. She has many injuries including 2 collapsed lungs, 6 broken ribs, a broken collar bone, bruised kidney, and a…
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Added by Dotty on June 11, 2008 at 7:00pm —
22 Comments
the new songs on my profile were recorded and mastered by my artist signed to ONE STEP AHEAD PRODUCTIONS,
a record company of Future Entertainment Records Division or Future Grounds, LLC, check them out the artist name is Brandon
Added by Kelly Fineman on June 11, 2008 at 12:30am —
No Comments
Dating can be scary at any age.
I look back as a 16 year old girl on my first date. I was incredibly nervous as well as wondering what this boy I was in a car with alone was going to do because before then we had only been in group settings. My 3 brothers and 2 sisters had told me horror stories about what dates were all about. They loved to tease me as a child and this continued into my teen years.
After seeing clips of this video
( …
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Added by Billie on June 10, 2008 at 5:00pm —
4 Comments
So today was my first official day at work. I had been in a few times just to see how things work around there and what not. I am teaching a gymnastics "summer camp." Most of the kids are between 7 and 10 years old. A few of them remembered me from when I was in before. I had a feeling that there would be someone who would ask where my hair was and I was right. I couldn't have been there for more than 5 minuets before I got the "what happened to your hair?" The first thing I could think to say…
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Added by Kristen Ridenhour on June 9, 2008 at 10:44pm —
3 Comments
A few years back I was managing my parents' retail tack store. I had gotten to know quite a few of the local equestrian riders who frequented the shop. I'll never forget the day I had knelt down to help this young girl of about 7-8 years old. I was eye to eye with her on her level and she was staring at me quite intensely. Sometimes I get an uneasy feeling when I know that I am being studied so closely....I wasn't sure if she was going to laugh or cry. Eventually she broke into the biggest…
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Added by Orbit on June 9, 2008 at 9:30pm —
6 Comments
So I am totally over the Sunday night blues. I went for a good run this morning and then had a very productive day at work. My brother and I are going to see The Cure tonight, so that should be fun. I'm struggling though with not being in a relationship. I waste so much energy thinking about it. energy that could be used to do a million other things. but I'm stuck focused on it. almost all of my friends are married and many have a kid or two. Part of me thinks I haven't found the right guy to…
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Added by Maidie on June 9, 2008 at 7:18pm —
No Comments
A no hassle look after a summer swim.
More posts.
Added by Jill on June 9, 2008 at 4:03pm —
No Comments
After struggling with Alopecia and several new patches for almost a year now I've gotten that I bought by first wig only a week ago. At first it was the alopecia ophiasis pattern but now my hair on top is really thin and I've got patches everywhere and even in the front. The strange thing is that I've got new little hair on the sides of my head and I still hope that all my hair is going to come back one day.
Anyway. I wore my wig to a wedding last weekend and some people asked me to…
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Added by Zoe on June 9, 2008 at 5:23am —
5 Comments
I was very surprised to see that people noticed I haven’t been on here in like a week. My grandmother owned a cottage (and four more she rented out as a small business) on the river up here and so every three weeks my family gets to stay (the other two weeks my dad’s two brothers get to keep it fair). It was nice to enjoy the nice weather we’ve had. And then on Thursday I turned 21 and somehow (I don’t know how) survived the night with my friends.
So where to start on all that’s…
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Added by Drew on June 8, 2008 at 9:36pm —
2 Comments
I love my life...I really do--even with AU but I hate sunday evenings. they just seem like the time for families but my mom and stepdad live in Florida and my brother typically has his own things going on on Sunday evenings. Monday through Satruday I'm almost always busy with friends, social events, volunteering--sometimes I'm even double or triple booked but Sundays just seem like dead air. like they are interminable. I think I'm going to shut this one down early and go to bed.
Added by Maidie on June 8, 2008 at 9:23pm —
1 Comment