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Patience

Week 2 since I shaved. Life goes on. What was once considered change is now the accepted norm. Yet, the thought still lingers…how much longer will this continue? The German philosopher Friedrich Nietzsche once penned "If we have our own why of life, we can bear almost any how." The ‘how’ is self evident…my ‘why’ is my two teenage children.



Good times or bad, I need be a positive role model for my children. I dare not wax impatient for fear of the unintentional lesson provided.… Continue

Added by Tony on June 19, 2008 at 12:05pm — 2 Comments

Going out whilst bald

Well last week i went with my friends into Birmingham town centre minus my headscarf and we had a great night, everybody in the pub was staring at me as obviously you dont see a bald girl often but i let it go over my head and thought i will be bald and proud and thats what i did, i think that night helped me realise that i am still the same person just minus my hair and ive excepted that now..

Like everyone with alopecia i have my up days and down ones but being around people who care and… Continue

Added by claire on June 18, 2008 at 3:20pm — 6 Comments

Dating Whilst Bald part one ....

Well i have to say ive had some shocking experiences over the last few weeks whilst dating and i feel its only fair that i share them with you.



Well two weeks ago i went to a alopecia uk meeting at a local pub and met a man who was there with his friend and noticed that we were a group for hairloss so he came over and we began chatting (he had alopecia totalis), and i gave him my number and we agreed to speak later.

Over the next week e chatted on the phone for hours and agreed… Continue

Added by claire on June 18, 2008 at 2:00pm — 5 Comments

This is starting to get really real...and it's scary

I know we all have good days and bad days. Well this is one of my first real bad days. I've been able to stay very positive through this process but I think that was just because I could still hide by pulling my hair into a ponytail. This morning I was like 45 mins late to work all because I was having such a hard time getting my hair to cover my spots. I still succeeded, I suppose, but if anyone were to really look at my head they would see that one worst spot appearing through very thin.… Continue

Added by Mandy on June 18, 2008 at 1:59pm — 12 Comments

Expectations of a NAAF conference newbie

In just over a day from now, I will be attending NAAF's annual conference for the very first time in my life. Of course, I owe this honor to my fiancée and co-founder of Alopecia World, Cheryl Carvery, who has been living with alopecia areata for nearly 20 years. Since it is my pleasure to support Cheryl, and given my involvement with Alopecia World, I am excited to have the opportunity to attend this year's conference. However, this means that I am going to miss seeing my middle daughter's…

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Added by rj, Co-founder on June 18, 2008 at 1:00am — 9 Comments

"You're taking this so well..."

I can’t count the amount of times I’ve heard those words. It seems like daily I have to explain to someone about the disease, which really isn’t that big of a deal as I pretty much have the whole explanation down. But I have had a wide variety of responses, some of which have been surprising including making a grown man who is the husband of one of my elementary teachers break down into tears.



The one response I keep getting though regardless of whether the person reacts in a… Continue

Added by Drew on June 17, 2008 at 10:35pm — 5 Comments

24 hours left before I leave Sweden.

Hi all.

I wanna wish everyone whos going to Louisville a safe and nice journey.

See you there.

Roger.

Added by Roger on June 17, 2008 at 6:18am — 1 Comment

Overcoming the bald fetish problem

Some time ago I started a group in Alopecia World called "Men Who Don't Mind." Presently, this group is discussing the problem of bald fetish and how Men Who Don't Mind can avoid treating or making an alopecian woman feel like one. Please join the discussion and help us think through this important issue.

Added by rj, Co-founder on June 16, 2008 at 3:00pm — No Comments

In honor of Father's Day

Father's Day is a very bittersweet day for me. Since I've lost my own beloved father 6 1/2 years ago, I tend not to celebrate this day like I used to. However, since my own brother has become a father, I can't help but feel pride and joy over how he has become so much like our father in raising his son. I can only hope that my nephew will grow to be as wonderful and loving a father to his own children as my father was to my brother and me.



In honor of Father's Day, I wanted to repost… Continue

Added by kastababy on June 15, 2008 at 11:30am — 2 Comments

1000 miles in 3 days -- Say WHAT?!?!

Okay, so as everyone knows, I was in a wreck and got arrested 3 months ago because unbeknownst to me my drivers license had been suspended because I didn't notify the state of Georgia in writing that my insurance had changed. Well, it took 3 months, lots of bus rides and carpooling, and $3, 192 dollars, but I finally got my license reinstated and my tags renewed -- but what an adventure it was!



I drove from Memphis to Nashville, and picked up my best friend Maurice, who was the… Continue

Added by kastababy on June 14, 2008 at 11:30pm — 2 Comments

Thanks to all the replies on my last blog

Great responses from all really. I just wanted to clear up that even more stunning (to me at least) was the fact that we both are AU. I wonder if she was just passing through?
XOXO
GIA

Added by Carmella on June 14, 2008 at 10:50am — No Comments

1st Wig Shopping Adventure

So I went wig shopping for the first time...it was actually pretty fun. Got to learn about different types of wigs and try on different hair. I didn't buy yet, because I wanted to sit on the info for a bit to make a decision. But I'm pretty sure I know what I'm gonna do. The purpose of this 1st wig is just to have one that looks as much like my natural hair as possible...have it at home so that when that day comes that I wake up and realize I can't pull off the ponytail anymore, I'll have the… Continue

Added by Mandy on June 13, 2008 at 11:31am — 10 Comments

7 days

Day 7 with the new hairless do. The response has been better than expected. Most have been complimentary; some have shown surprise; only the village idiot went someplace he shouldn’t…something about how I should tell folks my hair loss was due to chemo. I could hear the sighs and mutterings of those who were within earshot of the ignorant suggestion. Discretion being the better part of valor, I simply shook my head then walked away.



Yesterday was a tough day, marking the first time… Continue

Added by Tony on June 12, 2008 at 12:02pm — 3 Comments

6 days and im off for...

Louisville!!! Im counting the days now...and tonight im attending at a meeting with my Stockholm alopecia group. Im the only male there *LOL*

Roger.

Added by Roger on June 12, 2008 at 10:42am — 2 Comments

Thinking about Shaving the rest? I did!

So as promised, here is my blog on shaving your head. I'm thinking about posting this on the forum too. Let me just start with some background info: I got so sick of thinking people were staring at the spots and tired of running my hand through my hair only to have 20+ hairs stuck in-between my fingers when I pulled them away. I also got sick of wearing a hat every single day and not going to functions that I couldn’t wear the hat at because I felt that the spots stood out more than I did as a… Continue

Added by Drew on June 11, 2008 at 11:36pm — 7 Comments

PLEASE PRAY FOR KRISTIN!!!!!

Hello friends,

I am writing to ask that you all take a miinute to send up a quick prayer for my daughter Kristin. Yesterday at 3:15 p.m. she was in a severe car accident. Her car went off the road, over an embankment, went airborne and hit 2 trees before it came to rest in a pile of trees. She was ejected from the car at some point and landed 20+/- feet from the point of impact. She has many injuries including 2 collapsed lungs, 6 broken ribs, a broken collar bone, bruised kidney, and a… Continue

Added by Dotty on June 11, 2008 at 7:00pm — 22 Comments

new songs

the new songs on my profile were recorded and mastered by my artist signed to ONE STEP AHEAD PRODUCTIONS,
a record company of Future Entertainment Records Division or Future Grounds, LLC, check them out the artist name is Brandon

Added by Kelly Fineman on June 11, 2008 at 12:30am — No Comments

Dating at any Age and Stage.

Dating can be scary at any age.

I look back as a 16 year old girl on my first date. I was incredibly nervous as well as wondering what this boy I was in a car with alone was going to do because before then we had only been in group settings. My 3 brothers and 2 sisters had told me horror stories about what dates were all about. They loved to tease me as a child and this continued into my teen years.



After seeing clips of this video

( …

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Added by Billie on June 10, 2008 at 5:00pm — 4 Comments

first day of work

So today was my first official day at work. I had been in a few times just to see how things work around there and what not. I am teaching a gymnastics "summer camp." Most of the kids are between 7 and 10 years old. A few of them remembered me from when I was in before. I had a feeling that there would be someone who would ask where my hair was and I was right. I couldn't have been there for more than 5 minuets before I got the "what happened to your hair?" The first thing I could think to say… Continue

Added by Kristen Ridenhour on June 9, 2008 at 10:44pm — 3 Comments

China Doll

A few years back I was managing my parents' retail tack store. I had gotten to know quite a few of the local equestrian riders who frequented the shop. I'll never forget the day I had knelt down to help this young girl of about 7-8 years old. I was eye to eye with her on her level and she was staring at me quite intensely. Sometimes I get an uneasy feeling when I know that I am being studied so closely....I wasn't sure if she was going to laugh or cry. Eventually she broke into the biggest… Continue

Added by Orbit on June 9, 2008 at 9:30pm — 6 Comments

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