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hmm

i have had AA for a looooonnnnnnnggggggg time now and only started talking about it 3 years ago when i got to the point that i couldn't hide it as well and needed a wig. ok so today i goy my first negative reaction when i told this one person about my AA. some of you know me,i can't repeat what was said quiet yet but would like to know what some of the nagative comments you have gotten and how you handled it.
hugs and kittens,
Lolin

Added by Lolin on July 8, 2008 at 11:25pm — 4 Comments

Acceptence

I discovered this site by doing a web search and came upon it. I would like to share with you how I deal with this condition. As a boy growing up into my teens I had bald spots here and there, the hair grew back, but the being teased part I never fully understood why it happened. I had a head of curly hair, at times wild looking. I started losing my hair in my 30's thinking it was stress, I lost my eye lashes and eye brows. It was until later in 2003 when I was working at a lumberyard doing… Continue

Added by Wesley Marr on July 8, 2008 at 5:45pm — 3 Comments

Owner of a Lonely Heart

Just an update:

So I only wore my wig to work for a week. It was long enough for me to feel uncomfortable. While the new wig made me feel very pretty, I just couldn't stand the feeling of wearing it all day long! I'm away from home for 11 hours a day including my commute and by the end of the day it was just so dang hot and uncomfortable! So I've been wearing bandanas to work now. I feel so much better and more like myself this way. In a way I felt like wearing the wig was just not… Continue

Added by Mandy on July 8, 2008 at 4:15pm — 8 Comments

Kids

I was down at the Jersey shore with my family. I guess I was 13 or 14 years old, the oldest of 4 kids and AU for ten years by then. We had just reached the Jenkinson's boardwalk when this kid of 8 or 9 comes up to me and says, "Hey! You have funny hair!" (I wouldn't knock off the fuzz for another seven years) I replied, "You're right! I'm from Mars!" This didn't phaze him in the least. "You are not!", he exclaimed. I put on a frightened expression, glanced left, glanced right. Then leaned down… Continue

Added by Steve on July 8, 2008 at 8:17am — 4 Comments

i know im beautiful, but i still have a problem..

so i have had au now for about 7 months.. i know my hair is probably never going to grow back and i am slowly feeling a little better about it every day.



but i still need some advice.



i feel so body concious around people who dont know about my condition and i dont know how or if i should even tell these people. i dont just want to be like "hey guess what? i dont have any hair." but at the same time when i meet new people i want them to know who i really am. im not trying… Continue

Added by Amanda on July 7, 2008 at 9:57pm — 8 Comments

USA part II.

Sitting here. Planning another trip to USA later this year. Where should I go??? Hmm...Ive never been to NYC. That will be number one on my list. Think I will go to California and San Francisco after that.

My neighbor whos born in Chicago and living here in Sweden now told me...Roger you have to go to "my" city Chicago too. Sure why not ;)

Added by Roger on July 7, 2008 at 7:03pm — 2 Comments

IZZY

Some tragic news.

On Wednesday, minutes after arriving for our afternoon walk with our dogs, Izzy passed away, enjoying what she loved most, chasing a ball. A fatal heart attack. She was only 12 months old, and has devastated Claire, her owner.

All us dog lovers, are deeply shocked at the turn of events, and are still coming to terms with it.

Poor Claire, is inconsolable, but with her friends around her, she will cope.

Claire is so young and has gone through alot in such a… Continue

Added by JOAN on July 6, 2008 at 5:12am — 1 Comment

Independence Day...

Saturday was my day of Independence, after having AA for more than 40 years, I decided to shave my head bald, thus freeing myself from wigs, weaves and haircovers. The feeling was exhilarating, it was a celebration of all that I am, especially, a "free bird". My 4 daughters, my son, 3 grand daughters and 2 son-in-laws were all a part of the celebration, each taking a turn to cut strands of hair from my head before my son, shaved it bald. I will post before and after pictures shortly. My bald… Continue

Added by Linda on July 6, 2008 at 2:03am — 7 Comments

What is Alopecia World to you?

Alopecia World member Willow recently wrote us and gave our beloved community a wonderful compliment. She wrote, "I think your web(site) is a miracle to some people, a helping hand to some, but it's an extended family to us all."

We are grateful beyond words that Alopecia World has come to mean so much to so many people. Not just the more than 1,200 amazing individuals who are now registered members, but also the thousands of…

Continue

Added by Alopecia World on July 6, 2008 at 1:00am — 16 Comments

New Hair - YEAH!!

I have recently discovered some little white hairs on the top off my head and had it confirmed by my brother - i am always a bit wary that it is my imagination and that i am seeing things - I promised myself i would try not to get excited by it because as we all know this can be short lived so while i am preparing to find it gone i am still hoping that it will grow longer and then turn into proper hair, so much so i felt i had to blog this. However i know this may be a bit silly my arm and leg… Continue

Added by Emma on July 5, 2008 at 7:00am — 2 Comments

Down - but getting optimistic

So, I recently broke up with, for a second time, the man whom I thought was 'the one' - this time ... I completely blame myself. I won't go into details, but I acted atrociously and now follows the shame and the guilt that should.



Along with these feelings, of course, comes the kick you when you're down 'alopecia is a terrible thing to have' thoughts - you know - the feelings you get when you don't want to inflict your appearance on other people, and you can't seem to drag yourself… Continue

Added by Dominique on July 4, 2008 at 8:13pm — 1 Comment

Bad Karma?

So I often joke that my alopecia is a result of bad karma. "I must have been someone terrible in a past life.." But I don't really feel that way.



Now I'm starting to wonder, if maybe I really was a bad person! Yesterday afternoon a buzz started through the hospital I work at about money missing from bank accounts. The whole thing was very mysterious and there were no real details. One person heard $12,000 went missing in an hour, another heard $12,000 was missing from contracters… Continue

Added by Erin on July 4, 2008 at 10:13am — 1 Comment

wahey..

well steroid creams and various ointments haven't really worked for me. i couldn't get steroid injections because my AA is quite severe. however i'm still hopeful even though my eyebrows are disappearing as well as the eyelashes because i'm booked for PUVA light therapy very soon. worth a try ehh?! :) x

Added by Nick on July 3, 2008 at 7:02pm — 7 Comments

LOSING MY BABY

TODAY HAS BEEN THE WORST DAY OF MY LIFE, MY PUPPY IZZY SHE HAD A HEART ATTACK AND PASSED AWAY WHILST OUT OVER THE PARK, IM TOTALLY DEVESTATED, I CANT BELIEVE THAT SHE HAS BEEN TAKEN AWAY FROM ME LIKE THIS.
WHEN I COMPARE LOSING MY HAIR TO IZZY I WOULD RATHER BE BALD FOREVER THAN GO THROUGH HOW I FEEL RIGHT NOW
SO IM LOGGING OFF TO GRIEVE OVER HER,....................................................................

Added by claire on July 2, 2008 at 4:00pm — 4 Comments

hey

hey iam happy the way iam and i dont care how iam..and iam going to stay random for ever ^_^ muahaha

Added by Max on July 2, 2008 at 1:55am — 2 Comments

No, I'm not Superwoman!!

This weekend, I woke up on Saturday to see that both of my eyebrows were gone.



Just like that -- no shedding, no unusual thinning (other than that caused by my perpetually underactive thyroid) -- just gone -- and it has upset me in a way I never could have expected.



I'm used to losing my hair; I even take somewhat of a fatalistic approach to the whole alopecia thing. I'm even used to the spots that appear like nomads on the rest of my body and used to losing my eyelashes.… Continue

Added by kastababy on July 1, 2008 at 9:33pm — 9 Comments

Discharged from my consultant!!!!!!!!!!

The weekend was pretty poor really. Daughter trouble! How they can make life difficult! Who would think that a 16 year old girl who is loved and looked after so well could cause so a bad weekend but she did!



Regardless of the problems it was going to be a low key weekend really apart from a concert in Manchester on Saturday evening. I had shaved my head on Friday morning and then left it for the full weekend as I was going to see my consultant on the Monday morning. By Monday morning… Continue

Added by Ray on July 1, 2008 at 1:00pm — 1 Comment

Dancing in the rain

The steam rose from my second cup of coffee as I sat at the table composing the day’s “to do” list. The day was far too new for the sun to have risen. Nevertheless, the skies were bright with the anger of the approaching storm and the house echoed with the resounding claps of thunder. The door from my youngest daughter’s room swung open and out strode my sleepy eyed princess into the kitchen. Fourteen going on 30, still a child but not. The thunder, her nemesis from childhood, had rocked her… Continue

Added by Tony on June 30, 2008 at 11:55am — 2 Comments

Sunday morning inspiration -- Please pass it on!!!

The older I get, the more like my father I become -- and that's not a bad thing at all!! One thing in common that I notice that I have with Daddy is that Disney movies make me cry -- they're guaranteed tear-jerkers, no matter what movie it is (yes, even Fantasia!!)



At the end of Meet the Robinsons, there is a quote from Walt Disney that I found to be very inspiring, and SO appropriate for the members of this community. I'm going to share it with you, and feel free to… Continue

Added by kastababy on June 29, 2008 at 10:38am — 3 Comments

Is it just me?

It seems like I'm so comfortable being the bald girl... my self image completely identifies with that, but it's every other tiny little thing that is driving me nuts. That little mole, the width of my fingers, my second toe is longer than my first, HEY is one breast smaller than the other? If there is anything wrong I can find it ... "drop ten pounds CAR - no better make it 20, LOVE - CAR". I think I'm starting to lose it.
Hope you're all far less crazy than I am
XOXO
CAR

Added by Carmella on June 28, 2008 at 8:30pm — 1 Comment

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