All Blog Posts (5,832)

Search Blog Posts

Alopecia and gluten intolerance...

I was told by someone that they were doing studies that suggest a link between alopecia and gluten intolerance. I was told by the doctor that I may possibly have a gluten intolerance and to cut out anything with gluten in it. I wonder if there is a connection between the two?

Added by Jaime on July 16, 2008 at 4:47pm — 3 Comments

The land of limbo

I’m in limbo. Not a fun place to be. The large bald spot on the left side is surrounded by dark roots, giving my head the appearance of an ‘8’ ball . There are patches everywhere else; too many not to shave my head unless I want to look like the creature from the crypt. Not much in the way of choices there either. The state of my facial hair falls along similar lines. One side is nearly baby butt smooth while the other still clings to the remnants of what could be considered a beard. My… Continue

Added by Tony on July 16, 2008 at 12:24pm — 3 Comments

Self Image

The strange thing about being bald is that it brings to your attention the whole aspect of self image. Before having Alopecia self image was not something that I thought of very much, I was how I was. Having lost my hair I am in a position of having had a before image and a new image. As such it has drawn my attention to the way I look now and to how I feel about myself.



I look at other people more now with a thought of what they are like in relationship to their self image and how… Continue

Added by Ray on July 16, 2008 at 4:00am — 3 Comments

White regrowth

Hello Friends,

At the present time I have experienced approximatly 1-40% regrowth of hair, depending on which area of my scalp and body we are referring to. So far it is white/transparent in color.

I hope all of you are doing well.

Jeff

Added by JeffreySF on July 16, 2008 at 2:12am — 3 Comments

a master of procrastination.

So I've finally decided to update and add to my profile here at Alopecia World. Time has been so scarce for me lately - I'm a master at procrastination despite the two jobs I'm working and summer school. Moving back down to Irvine the past couple of weeks has taken a toll on me too. Who knew college would become increasingly more stressful as time moves forward?



The week before I moved I went out to SF to see Miss Peggy again to order a new wig. Time for a change, and not to mention… Continue

Added by traci on July 16, 2008 at 2:00am — 1 Comment

Hair Growth During Pregnancy

I was just wondering if anyone had any idea why during my pregnancy, my hair grew back in nice and thick, with very few spots. I thought it was due to the prenatel pills, however I am continuing to take the prenatel after my daughters birth, but my hair is falling out in massive amounts. Within a month and a half after her birth I went from thick hair to almost no hair at all! Why?

Added by Jaime on July 15, 2008 at 3:30pm — 3 Comments

i need adivce!!

this weekend im going to a theme park. all my friends that are going know about me having alopecia. my hair is growing back, not completely gone. but im VERY self concious. im not sure if i should wear my wig to the theme park or not.. and the options of what to do is eating me!! i really dont know what to do. i am Christian so i know that i should be comfortable with however God changes me..but its hard. i dont know what to do..

Added by susan on July 15, 2008 at 9:17am — 6 Comments

NEED help with insurance company!!

If anyone has any input...please help. I am trying to get reinbursed for my hair prosthesis through United Healthcare. I already appealed it...sent them a bunch of paperwork...and they denied it! I'm not sure what to do at this point. Should I try to get a letter from my doctor saying I need a scalp prosthesis, not a wig? What else can I do?

I cant beleive this crap!! Its bad enough we have to go through this...and they have the NERVE to say that this is COSMETIC!!! ; (

Thanks for… Continue

Added by Lee on July 14, 2008 at 8:33pm — 10 Comments

Was trying not to get too hopeful, but....

So I was sitting around watching tv last night and I ran my hand over my head (I love the way it feels shaved!) and realized the bald spots didn't feel so bald... I bolted up off the couch and ran to the mirror (haven't been looking in the mirror much lately) and lo and behold...not my whole head, but MOST of it is covered with a thin layer of white hair! Wooooo!!! Not like before with a white hair here and there...but actual white hair filling in spots! Now, it's hard to tell when it's white,… Continue

Added by Mandy on July 14, 2008 at 12:00pm — 13 Comments

SIGNS OF HAIR GROWTH................HOORAH

WELL I HAVE TO SAY I HAVE WOKEN UP TODAY A REALLY HAPPY PERSON, MY SCALP HAS GONE DARK AND I HAVE HAIR COMING THROUGH, NO PATCHES YET !!!!!

I ALSO HAVE HAIR GROWING ON MY EYELASHES AND MY ARMS........................



IVE BEEN TAKING HORMONE REPLACEMENT THERAPY, DUPHASTON TABLETS AND DIANETTE TABLETS ASWELL AS SOME REGAINE AND SYNALAR GEL.



I FEEL REALLY GREAT TODAY JUST KEEP YOUR FINGERS CROSSED FOR ME THAT IT STAYS IN, AS IVE HAD THIS HAPPEN BEFORE AND IT FELL OUT… Continue

Added by claire on July 14, 2008 at 8:56am — 6 Comments

Ignorance is bliss...

Have any of you ran into someone out and about who is ignorant and rude. Take for instance a trip to the store, minding my own business when someone Barbie doll looking, ignorant somebody started staring at me and commenting to her friend about me. I didn't put my wig on before I left the house, so I was sporting my typical bandanna when apparently me binding my own business was offensive to her. Anyhow, has anyone else run into stupidity, such as this?

Added by Jaime on July 14, 2008 at 3:00am — 2 Comments

A rose by any other name....

This posting was inspired by Annette (aka Crowned Regal)'s most recent blog post about name calling. This particular posting strikes a nerve, I'm sure, with many of us. Even though this may be considered a duplicate posting, I recognize that not everyone reads the postings in the discussion forums, but many of you read my blog postings, so I am posting my response here too. I also encourage everyone who reads… Continue

Added by kastababy on July 13, 2008 at 11:00am — 5 Comments

With the darkness, comes the light!

I have to thank everyone for their outpouring of love and support since I lost my eyebrows. I'm still pretty upset that they're gone, but I'm slowly getting used to it. I see what everyone is talking about now when they get annoyed at the slightest little things getting into their eyes. I thought my glasses would be enough to take care of that little nuisance, but they just seem to make things worse. And if anyone has ever lived in the South in summertime, you know that a more appropriate name… Continue

Added by kastababy on July 12, 2008 at 9:59pm — 6 Comments

Thanks to everyone who was so sweet.

The responses to my last blog were so nice and I really appreciate the calming effect they had. I'm sure that I'm still slightly nuts, but at least everything has worked out in the end and I can breath easy again.
Love you all
CAR

Added by Carmella on July 12, 2008 at 6:03pm — No Comments

Working with kids at a summer camp, and finding acceptance

I feel like I haven’t been on here at all in the last few weeks. It started with two weeks straight of work managing the pizza shop I work at as my bosses went on vacation and then needed other days off. I got through that and on the first day I had off I left for the summer sports camp I work at. The first week is basketball, which is now over, and the second is soccer which I leave to work on Sunday. I have internet access at the camp but I’m basically on duty from 7am to midnight so most… Continue

Added by Drew on July 11, 2008 at 1:18pm — 2 Comments

So pissed at myself right now!

Can you believe it - I would completely over react AND assume?! Well I did and I can't take it back. So sorry to anyone who thinks I'm trying to start drama. I'm not, but I'll go soon if it would make you feel better.
XOXO
CAR

Added by Carmella on July 10, 2008 at 8:41pm — 4 Comments

Haven't seen her since

But I'm still losing my mind.... I have so very many things that come to mind to say right now... best be quite.

XOXO
CAR

Added by Carmella on July 10, 2008 at 5:45pm — No Comments

Where Should I Begin?

Just researching.... I was wondering if anyone knew anywhere that I can get a all natural hair wig where I can actually try them on. I have searched and came up with nothing. Also what are the best ones? If someone could please let me know it would mean very much to me.

Added by Laura on July 10, 2008 at 3:59pm — 2 Comments

Oh the irony.. it makes me giggle inside

so i read a tid bid of Malinda Rode's blog today and i had another epiphany (did i spell that right?)



so this fall i am going to the Aveda Institute in Minneapolis for cosmetology. i have actually had this planned since before i lost my hair, and even though my hair is gone, i still want to go because hair is my passion..



anyways. so i have decided that first day of school.. NO HAIR! not gunna wear it. why bother? my wigs are so hot and i have tried so many and they are… Continue

Added by Amanda on July 9, 2008 at 5:47pm — 7 Comments

alopecia problems medication related?

[ Draft



A few months ago I started losing my hair on my face, and two prominents patches on my head soon followed. Then hair disappeared on the top of one of my hands, and a patch from my neck and back soon thereafter, then a part of my eyebrow disappeared as well. White hair, though, was noted in these areas, and never did go away. Primary MD ran labs, everything was within normal limits. Went to rheumatoid MD to rule out and auto-immune ailments, which she did rule out. One doctor… Continue

Added by JIM DOWNEY on July 9, 2008 at 5:36pm — 8 Comments

Featured Blog Posts

View All

Latest Blog Posts

Most Popular Blog Posts

Monthly Archives

2025

2024

2023

2022

2021

2020

2019

2018

2017

2016

2015

2014

2013

2012

2011

2010

2009

2008

1999

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2025   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service