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Ha-ha hair

Now my hair has been growing, yes I was kind of happy, but not for long...It's falling out again, I know everyone had this kind of thing happen to them, but for me it's the first. It always grew back and stayed for years, but not now...

I'm a bit lost on how I am supposed to feel. I used to be optimistic but I guess alopecia tends to wear out a lot of optimism...

Now I'm thinking if I should just shave it off again or wait a bit. I'm sooo frustrated and tired of looking like this,… Continue

Added by Calipso on July 28, 2011 at 6:00am — 14 Comments

Desiderata

Go placidly amid the noise and haste, and remember what peace there may be in silence.



As far as possible, without surrender, be on good terms with all persons. Speak your truth quietly and clearly; and listen to others, even to the dull and the ignorant, they too have their story. Avoid loud and aggressive persons, they are vexations to the spirit.



If you compare yourself with others, you may become vain and bitter; for always there will be greater and lesser persons than… Continue

Added by Tallgirl on July 27, 2011 at 10:32pm — 7 Comments

How it all began?

As maybe you have seen on my profile it all started when I was 11, starting what we call in Mexico Junior High School or Middle School I guess.. so I was having this Instruction course before classes, you know, to meet other students and see how it all works at this new level. So it was kind of harder for me because I studied for 6 years in the same school and I loved it, I didn't even want to accept that I was growing up, you see when you start puberty you're only caring about how your face… Continue

Added by Gabby on July 27, 2011 at 4:30am — 3 Comments

Insensitive comments

I have been wearing the bald head for about 1 month. It still takes a lot of courage to face the looks every day. 7 out of 10 comments from people are they like the way I look or the way my hair is cut. The other times I have received comments said is jokingly fashion "You need to change your shampoo", or"Who scalped you?". I am trying to become not so "thinned skinned" about the comments. It is hard. I normally reply quickly with "you must be jealous" or "you have jokes today". I can imagine… Continue

Added by Ericka on July 26, 2011 at 8:35pm — 7 Comments

Feeling beautiful :))

Today I was amazed when I went to my psychologist for the first time and we spoke and I told her of my alopecia, it was sooo nice that she knew what it was and she just looked at me and said, why are you covering your beauty? I love your hair peice but you are soo pretty i'm sure you'd look stunning if you had no hair, you know what? my heart just melted i've never had anyone tell me this before and this woman I just only met. I for the first time left and felt soo wonderful about myself and… Continue

Added by Lisa-Lynn Marini on July 26, 2011 at 7:50pm — 3 Comments

Longing for a cure - Defeated by alopecia

It is amazing how many emails and messages I get about other organizations dealing with alopecia. My canned response has always been, "We are stronger together then we are apart." I mean this, I am not just saying it to be politically correct. When I founded CAP I did so because I wanted more for my daughter then what was out there. The oldest and largest is NAAF and was the only thing I could fine in 2003. They had the annual conference but that was all until they incorporated Charlie's… Continue

Added by Children's Alopecia Project on July 26, 2011 at 6:00pm — 3 Comments

Interesting experience

I was in Florida for vacation with family this past weekend. We rented a condo by the beach. We decided on Saturday to have a shrimp boil. We had to go grocery shopping for everything to make it. My Mom and Aunt were going to the store to get everything. At first, they were just going to go by themselves. I wanted to make a dessert so then they decided to have me go along also.



We went to the register to check out. We had bought a 24 pack of water, and the employee asked us to hold… Continue

Added by Alliegator on July 26, 2011 at 10:30am — 9 Comments

Venting

So only three months ago I had a small patch, the size of a quarter missing from the back of my head. I was undergoing extreme emotional stress at work and when I went to the doctor, she expressed her concerns that this stress has triggered my hair loss and that I have Alopecia areata. A few weeks go by and more and more hair starts falling out. I finally get an appointment with the dermatologist and by this time the patch size has tripled and expanded to other parts of my head. I have started… Continue

Added by Missyannemissy on July 24, 2011 at 6:00pm — 8 Comments

Have a little compassion

I have heard from people with Alopecia that we need to be strong. Stop being so weak minded and move on. It may be easier for those who have had to deal with this condition for most or all of their lives. Of course they have adjusted and moved on. For some, Alopecia is all they know. Let's have a little compassion for those that have went their whole lives with a full head of hair and then lost it within a few short months. In my eyes there is no comparison. I consider myself to be an extremely… Continue

Added by Michelle on July 23, 2011 at 9:00pm — 17 Comments

Run away from me?!

There's a line in the movie Eat, Pray, Love that really hit me. It is when Liz is walking away from a boat trip to a private island. After the Brazilian man says this, he follows with, "You are going away from the great possibilities of your own life." This was significant, because she had been searching for her life, and balance, throughout her whole three-country exploration of food, faith and personal peace.



It made me think of the chances one takes to follow dreams,… Continue

Added by Tallgirl on July 20, 2011 at 4:30pm — 11 Comments

My first trip out au naturel

Hiya all...its been a while since I have written anything



I wanted to share with you, my AW family the next big step I took on my alopecia journey. The other day after work I went into a store without anything on my head. Normally I wear a scarf while at work and I remove it upon entering my jeep at the end of the day. Well this day I needed to pick up a few things at the drug store and instead of putting the scarf back on for a 10 minute trip inside, I kept it off. I was still… Continue

Added by Bald and Fabulous AKA Terri on July 22, 2011 at 12:20am — 9 Comments

Looking for guidance when I am so clueless!

Hello to all of the fabulous role models I so strive to become one day :)

This is most first post on the site, although I have read through some of yours whenever I need a pick me up. I am a 32 yr old woman who has alopecia areata for almost 2 years. I was blessed enough to have lived my life with hair, that I used to dye all types of colors and was constantly changing styles. This has been a very difficult 2 years, and although my husband has been the best possible support, there is only… Continue

Added by zoitsa theo on July 21, 2011 at 6:31am — 10 Comments

Oh, the humility of it all!

My hair kept coming out and, as prescribed by our family doctor, my mom began applying cortisone cream, wrapping my head in Saran Wrap, and topping it off with a shower cap. (The idea was to get the head to sweat which would cause the blood to rush to the surface of my scalp and help stimulate the skin and allow the cortisone to do its work.) There would be some success, but it would be short-lived. By the time I was nine, the patches were growing worse and so was my parents' alarm. I can still… Continue

Added by Gigi Peterson on July 19, 2011 at 9:00am — 1 Comment

Eyebrow pencil

This blog is directed more so towards my ladies than gents but gentlemen please feel free to chime in if you can help out!





For about a year now Ive been shading my eyebrows in. In October my eyebrow hair fell completely out so I have been drawing them on. because this is relatively new to me I have tried out several different eyebrow pencils and I have yet to find one that meets my needs. Do any of you have any suggestions as to what brand of eyebrow pencil i can use that would… Continue

Added by Montoya Grant on July 20, 2011 at 12:30pm — 14 Comments

To tip or not to tip?

I just purchased my second wig but this time from a full service salon. My previous wig was purchased at a place that only sold wigs and I didn't even feel like I had to tip when making my purchase (wouldn't have wanted to anyway caused I felt rushed and as though they were forcing styles on me not to my liking.)



Anyway, for the one I recently purchased, which was $800 ($300 more than the last one I bought), I tipped the guy $25 because I felt more inclined to since it was a full… Continue

Added by Nikki on July 20, 2011 at 11:30am — 3 Comments

Why yes, it *is* a wig actually

So my husbands parents came to visit this past weekend. This is stressful enough...I'm particularly depressed when they arrive and the Husband has to coax me out of the bedroom, wanting to all go down to the Wild West days they had at the historical district of town. So I drag myself out of bed and get dressed and go outside to say hello to his folks.



Mother in law notices my blonde hair (the best shape of a wig I currently have) and freaks out, she goes on and on about how much she… Continue

Added by civilizedsavage on July 18, 2011 at 4:16pm — 6 Comments

I just can't move on

i think its gettin worse i still cant get over the fact that iv no hair all my life iv had it and it just aint getting any easyer i got my eye brows cosmeticly done cause i though it would make me fell better i just wont to be able to trow me hair up if im just sitting around but i cant but i cant all i can do with my wig is leave it down my 2yr old son tryed to pull the wig off my head the other day he hasnt got a clue hes still to young to under stand it just kilt me i put on the brave an… Continue

Added by louise malone on July 17, 2011 at 5:30pm — 7 Comments

Maybe it's about choice

lol I've got a few blog experiences but not one as special as this one, I'm 23 and I'm a Mexican girl who is finishing studying at college, I've got Alopecia Universalis since I was 11 and of course just like everyone that has this kind of experiences it's too difficult to find your way through life, when all the questions about life just start attacking your mind, when you don't know even why you are doing what you are doing at that very moment.



But I'm so sure that these kind of… Continue

Added by Gabby on July 16, 2011 at 10:00pm — 3 Comments

My first experience!

Today here in Ontario it is very hot out! I haven't been wearing a wig for the last week at home just walking around my home and yard with my smooth baldie head :)

This afternoon I realized I had to go to the store and couldn't wait for my husband to get home so I had to go no matter what.

I bought a nice looking scarf early this week and thought I'm not wearing a wig in this heat, I put my scarf on and off I went to the store I did this for the very first time!!! I thought I don't… Continue

Added by Lisa-Lynn Marini on July 15, 2011 at 6:00pm — 5 Comments

Need advice plz!

I have to go to my sister's tomorrow I thought about wearing this new carf I bought but I changed my mind i'd much rather wear one of my long hair peices, does anyone know if I were to put my hair peice UP would it destroy the texture of it or shape???
Thnk-you:)

Added by Lisa-Lynn Marini on July 15, 2011 at 9:30am — 3 Comments

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