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Old memories resurfacing

I found out today that my brother is moving from Ontario to here in Alberta. My mom has been discussing with him for a while now about making the move. I'm truly happy about having him closer as its been many years since I have seen him. But with this move comes old memories and securities. You see he was the kindest when I was first diagnosed with alopecia and in fact he was the one that told all the kids at school that I was Bald and wore a wig. I know we are now adults and have fought our… Continue

Added by Bald and Fabulous AKA Terri on May 14, 2011 at 9:00pm — 13 Comments

AlopeciaWorld.COM is back! :-)

We are immensely pleased to announce that the domain name ALOPECIAWORLD.COM is back with Alopecia World!

Just to remind you, it was recently seized by a cyber-squatter who attempted to sell it for $18,000.00 or the highest bidder.

Thanks to the intervention of Alopecia World’s very able legal team, the cyber-squatter's efforts were thwarted and the domain name was transferred back to Alopecia World…

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Added by Alopecia World on May 14, 2011 at 5:00pm — 13 Comments

Sauna and wigs

Hello all, I was hoping someone could help me with my dilemma. I am a newbie to wearing hair and I bond with supertape all the way around the perimeter. I am going on my hols to Turkey early June, where I know the temperature will be hot hot hot! (yes)!



One of the nice things about Turkey is the Turkish baths, but as it is a steam room/sauna can I still go in with my wig on, or will it loosen up? I am going to 10 days so was hoping not to have to re bound while I was out… Continue

Added by dannii on May 13, 2011 at 5:00pm — 4 Comments

Alopecian families

I finally have a little more time for Alopecia World now that GEMS is done (a girls group I volunteer with). It really is a shame life tends to get hectic from time to time and certain things that are close to your heart take a seat on the back burner. My heart has been filled with passion for so many things as of late and yet I haven't the time to do anything about it. I'd like to get back into hosting alopecia meetings, go on another mission (perhaps leading some youth), go white water… Continue

Added by Carol on May 12, 2011 at 9:00pm — 1 Comment

Did something well

Today was my second day through my therapy and to my surprise it was my turn to talk, I spoke of my bad childhood and adolescent life and brought up "alopecia" I asked who here knows what that means? they all answered NO so I explained what it was and they told me I was very brave to share something like that. and that they couldn't even tell I wore a wig.But they were very supportive of it.

my counselor is going to help me raise awareness in Oshawa about alopecia when I have done my… Continue

Added by Lisa-Lynn Marini on May 12, 2011 at 6:30pm — 2 Comments

WHY?

I was ok today got some sun and now 'm like "WHY ME? what did I do wrong to the man upstairs to give me no hair???WHY LORD WHY ME??????]
All I want to do is cry and stay in bed and never come back out
I'm sorry to vent here but i didn't know where else to go share my thoughts

sad Lisa

Added by Lisa-Lynn Marini on May 11, 2011 at 8:00pm — 6 Comments

Looking for a new wig!

So, my newest $500 synthetic wig that I've had for only 2 months is starting to frizz & look "old" - go figure ugh - so I need a new wig. I'm looking for a bob style synthetic wig with monofilament top, any suggestions? Not too pricey if possible. I looked online but didn't find anything, yet.

Added by Sophia on May 11, 2011 at 5:08pm — 9 Comments

7 pm

There's a television show called "The 7pm Project". It's like a news program, but run by comedians. Its very clever. They have a "guest expert" on each night, the Bondi Vet, a very handsome doctor, social commentators, financial dudes, whatever. Tonight the doctor was on.

They had a story on "Bald Fear", what men in their twenties apparently go through. I immediately went to their website and posted the following.



"I saw tonight your story on "Bald Fear" and had to comment. I've… Continue

Added by Georgia Gardner on May 11, 2011 at 6:00am — 3 Comments

Meeting another bald woman in public

I recently had a wonderful experience. I was standing in a long line at customs at London's Heathrow Airport after a long flight from the US. We ended up in the midst of a plane load of people from Israel - I recognized the lilting Hebrew words. Ahead of me I saw a bald woman, about my age. As the line twisted back and forth around the rope barrier, she and I came face to face - I said hello. She didn't speak much English, and I know only a little Hebrew. I motioned toward her face and head…

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Added by Mary on May 11, 2011 at 5:30am — 10 Comments

"You stuck to your guns and...."

"You stuck to your guns and....." was the topic given to my husband to deliver an impromptu talk this morning at our Toastmasters club. He began by describing his dismay at seeing my newly coiffured hairdo on our wedding day 42 years ago and compared it in derogatory terms to how he loved how I usually wore it which was long and straight. Could he go through with marrying a woman with a beehive? Then he stated how he stuck to his guns and married me anyhow little knowing that 30 years later… Continue

Added by Pat on May 11, 2011 at 12:30am — 5 Comments

Reaction

I was on the trolley the other day and a guy asked me if i have alopecia and that's the first time someone asked me that before but i answer the question very truthfully. then he said he wasn't imagining it. i was so weirded out afterward. how would you react if it happen to you?

Added by Tamika Joseph on May 11, 2011 at 12:00am — 3 Comments

So I found another spot

it has been a couple of months since i found the first spot, my hair has been falling out everyday but it had been from all over my head so it wasn't as noticeable except for the first spot that is about the size of a half dollar coin. it has thin little hairs growing out of it but its still pretty noticeable. well today i found another little spot on the opposite side of my head, this one is smaller though its about half an inch in diameter. its super itchy and even burns a little. i have an… Continue

Added by Zayuri Sams on May 10, 2011 at 9:00pm — 2 Comments

My therapy

Today I went to my therapy and Oh my God I was shaking, until I got in there except I was surrounded by men!! I was the only woman there so I was nervous until the end I started to open up, my fisrt
assignment I have is to do something about 15 min before Thursday that makes me happy!!

I'm glad I did it today I made my first step!!!

I went in my pretty curly wig today too and the secretary was saying oh my what gorgeous hair you have, made me feel good and pretty.

Added by Lisa-Lynn Marini on May 10, 2011 at 6:00pm — 2 Comments

Peeved

It's daunting enough when trying to find a wig that meets my needs, but I just get really peeved when dealing with certain 'sellers'. You know the ones. Where they 'understand' because they have alopecia too, so that makes them more 'compassionate' than any other seller. But don't let that facade fool you. They are the most viscous of the bunch, only out for the money. They prey on your weakness, vulnerability and insecurity. It's funny how they're the ones that sell the most expensive wigs out… Continue

Added by Brandy Snap on May 10, 2011 at 3:09pm — 1 Comment

Head acne, stinging and the continued process out in the world as an alopecian

So I wonder if any of you have experienced this, I've been getting what seems like acne near my forehead and around the top of my head. I'm thinking since I don't have hair nothing to absorb skin oil I'm getting these bumps. Any recommendations as to what I can use?



I also have been feeling tingling. I've been bald now since early March; is this part of the process? My eyebrows are also thinning. Any recommendations as to what I should be on the lookout for, do, etc., is much… Continue

Added by Lili Añel (aka Eulalia) on May 9, 2011 at 8:00pm — 3 Comments

Nervous

I thought for a while I was gonna be ok and that I wouldn't be nervous on my trip to my therapy session , however today I find myself a nervous wreck, wondering if someone will stare at my head, wondering if they can figure out I am wearing a wig, I mean alot of folks stare and I guess it's only natural but I'm nervous about it.
Tomorrow is a big day for me and I really hope I can pull through it!
'Nervous me

Added by Lisa-Lynn Marini on May 9, 2011 at 4:30pm — 1 Comment

Regrowth

Hello everyone, I havent wrote on here in a while, but would like to share my good news. I have a full head of hair with just a bit on the top to fill in, :) my hair seems to be growin quickly to, i cant believe it yet it seems unreal. I wont go without my wig yet as i dont like to crop style, lol
It has come back ginger to but still alot darker than my hair was, still some white to change but its all looking good,
really wanted to share my news, :) thanks for reading, x

Added by lynne on May 8, 2011 at 2:30pm — 5 Comments

Finally!

I'm happy to say that after last night showing my family what I really looked like without a turban or a wig and all they said was, it's about time! let your head breath, it looks cute.

I seen my son's face, he just stared and stared and came up to wear I was sitting and said mommy you don't look ugly at all you are still very pretty, it brought tears to my eyes. and he hugged me tight and said I love you mommy even if you have no hair.

We were able to take my "couple picture as i… Continue

Added by Lisa-Lynn Marini on May 5, 2011 at 9:00am — 3 Comments

What do you think of the new look?

Alopecia World has a new look, and we would love to know what you think of it. Therefore, please sign into Alopecia World at your earliest convenience and post your feedback on this blog. We value your opinion and will give honest consideration to your suggestions and concerns. Feel free to post relevant questions, too.

Looking forward to hearing from you,

Cheryl and rj jones
Founders, Alopecia World

Added by Alopecia World on May 4, 2011 at 3:00am — 13 Comments

I need help! plzzz

next week I am starting my therapy for self-esteem and stress and so forth, I am worried which wig I should go in and keep going in ? can you guys plz tell me hrough my photos which one i should wear, i could use some opinions plzzz

confused Lisa

Added by Lisa-Lynn Marini on May 3, 2011 at 6:45pm — 9 Comments

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