All Blog Posts (5,825)

Hair Up

Has anyone used and had good results from a product from Israel called Hair Up?

Added by andrea leclerc on December 6, 2013 at 12:30pm — No Comments

Support groups in Orange county for kids to teens

We live in Newport beach and are looking for a support group in the Orange County area???

Added by andrea leclerc on December 6, 2013 at 12:30pm — 1 Comment

What's the best wig tape that won't pull out new growth?

Hi! I am hoping someone can help us. My daughter is 9 and was recently diagnosed with Alopecia.  Her hair loss was quick and she now has a partial wig or topper that must be taped in every morning and removed every night.  (She was not comfortable with the full wig topper, felt it was too tight and itchy.) The partial was cut from a  100% virgin human hair wig and is very nice and was quite expensive, but she is upset daily because as we remove the tape, she is finding regrowth stuck to the…

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Added by Tckava on December 5, 2013 at 4:00pm — No Comments

New to the site

Hi! I am new to Alopecia World and glad to have found it. I have scarring alopecia caused by LPP. I am wondering if there are any members who live in the Edmonton area (Alberta, Canada) that have scarring alopecia? I was diagnosed in September after finding my first bald spot in May. Would love to chat with someone from my neck of the woods. 

Added by kathyd on December 3, 2013 at 8:36pm — 1 Comment

Hard times

I first noticed my alopecia in Sept 2012. Fast forward to Dec 1, 2013, and I have lost all but a 1 inch strip of hair on the top of my head. I have a head full of regrowth, not too long ( A few inches), but still regrowing. In the last week, I have noticed probably 4 little finger tip size spots of baldness again. I have come to terms that I am starting this process over. This has been devastating for me because I have held out so much hope that I would get that beautiful head of hair back…

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Added by Sierra D on December 1, 2013 at 10:00pm — 9 Comments

How to step up to happiness

I recently came across this poem and it just spoke to me, so I thought I would share it with you.

Stepping up to Happiness

Everybody Knows ~

You cannot be all things to all people

You cannot do all things at once

You cannot do things equally well

You cannot do things better than everyone else

Your humanity is showing just like everyone else’s.

So ~

You must find who you are and be…

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Added by Cheryl, Co-founder on November 26, 2013 at 3:30am — 1 Comment

Alopecia is a journey

I am a 34 year old male who has alopecia universalis. In my early twenties I was in a car accident which seemed to trigger alopecia. Within months I was completely hairless. It was a very difficult transition for me. I had trouble dealing with the change as well as self esteem issues. I would become angry if someone stared at me or asked questions relating to my new appearance.

That is now old news. I am thankful for alopecia. It has helped me learn to deal with change in my life. I…

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Added by Christopher on November 25, 2013 at 10:00am — 1 Comment

Laser Comb

Have any of you tried using a Laser Comb? They are expensive and I'm trying to decide whether it would be worth it. I have female pattern hair loss. I would not expect re-growth, but I'm considering trying the laser comb to slow down the hair loss.

Thanks,

Renee

Added by Renee on November 19, 2013 at 8:09pm — No Comments

Alopecia Mommy

Hello Alopecia World!

I'm a new mommy (two babies under 2 years old!) and I started losing my hair shortly after a minor car accident while I was pregnant with my son. I gave birth to my daughter last summer and experienced about 90% hair loss following delivery.  I'm curious if there are any other moms out there that have had this happen to them?  Or anyone that struggles with alopecia and wants to share...

I started writing on wordpress:…

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Added by alopeciamami on November 18, 2013 at 1:02pm — No Comments

And the votes for the best wigs online goes to...?

  I'm going to have to get a wig this week. (Ordered online to start, I think.) I am blonde and have always worn my hair long since it grew back 30 years ago. Now, here I am again facing the same challenge but in a much more advanced world than it was and as an adult. I am not ready to sport the real hairless me. I am always cold, and I work with children and think that hair would be the best option for me at this time. Can you wonderful people give me some suggestions on a good wig company…

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Added by Shweetie on November 18, 2013 at 12:30am — 3 Comments

Finally, my band's original tunes are online!

Making music is one of the many things I do when I'm NOT thinking about hair loss.  My band, ZILLIOX, has finally finished our first four-song EP of original tunes.  "Z1" is now available at Bandcamp.  Give it a listen?

WWW.ZILLIOX.BANDCAMP.COM

Those of my Alopecia World friends who are still coming to terms with your Alopecia, take heart and know that there are wonderful things on the other side of it.  If Alopecia can be a jumping…

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Added by Marie on November 17, 2013 at 6:00pm — No Comments

Kids and alopecia

Hello

 I have two kids with alopecia. My 8 year old son Filipe has had alopecia totalis since he was 1 year old. My daughter Olivia got areata last November, and now in October she turned into totalis. She has also started to loose her eyelashes. We have accepted that Filipe never will get his hair back, but does anyone have any experience with children and regrow? We hope she will get her hair back, but at the same time it is difficult to always live in a constantly hope.. on her head…

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Added by Anne Katrine Fimreite Fortes on November 17, 2013 at 4:00pm — 2 Comments

Narrow Band UVB?

Hello fellow alopecia friends!

Let me start with the history of my treatment. At age 11 I was diagnosed with alopecia areata. they started me out on tropical creams and foams, after a year and half of that I moved up to injection. I went every 6 weeks for a few years until 2006 when I accepted the fact I was never going to have a full head of hair again. Before I stopped the injections I was wearing a wig. I embraced my baldness and defended my right to still be pretty! I had alot of…

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Added by Unicorn on November 13, 2013 at 8:30pm — No Comments

She flaunts herself because her sister is bald

Grrr!!!

Ok...

So I'm going to get straight to the point.

I think my sister tries to be "extra cute" when around my male company.

So this guy I'm talking to is pretty cute.

He is both me and my sisters type when it comes to looks.

He shows very strong interest in me or my panties...Still trying to figure that one out.

But anyways...He's likes to mention  my womanly figure[Red flag 4]...Which is a reason I feel like he's only about my private…

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Added by Jasmin Flower on November 13, 2013 at 12:30am — 2 Comments

(Anna) my new wig

Hello everyone,

I would like u to meet Anna, she is my new wig.

Anna is brown with a few highlight's.

She likes to tickle me and loves to poke in my eye's.

I'm really clumsy with this thing, I dont know where or how to put it.

This wig is not made of real human hair but she's synthetic.

I look like a whole different person and people also treat me different.

An example of that, every day in school people take a bow around me (without wig) and now they're…

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Added by Karlijn on November 12, 2013 at 3:30pm — 5 Comments

At a crossroads

I am a Speaker, Trainer and Published Author. I empower women through workshops, seminars and keynote speaking engagements. I am also a fellow Alopecian. I have put my Speaking career on the back burner while I have been learning to live as a woman who is losing her hair.

I finally chose to shave off what I had left and wear a wig. The thought process was "I want them to hear my message and not be distracted by how I look."

Getting ready to start speaking and conducting…

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Added by Lynda Hykin on November 11, 2013 at 1:30pm — 5 Comments

I discovered hair dye cause alopecia!

it all started a year ago with a bald spot and not knowing what caused it but I realized I was getting a rash on the side of my head but stubbornly I kept using it and then 4 more spots showed up!  I was horrified!  I didn't know what to do! I had to figure out what was causing it then I came up with a conclusion that I started using hair dye for a year and now it's causing this horrific side effects! To make long story short, I stopped using the chemical ridden hair dye such as Clairol and…

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Added by Cupid on November 8, 2013 at 6:00pm — 35 Comments

I'm choosing to FIGHT for her glory!!

Hello world.

To my mommy's out there of children with Alopecia, including the women who developed the disease at a young age...this is for you. My name is Constance, and my daughters hair begin shedding aggressively Feb.2012. She was later diagnosed with A.T. My daughter at the time was only 16 months old. I shed a tear with every strand of hair she lost. During that time, I was filled with anxiety. My appetite was nonexistent and every time I closed my eyes to sleep, all I saw was an… Continue

Added by Keri's Mommy on November 7, 2013 at 11:15pm — No Comments

My alopecia

I was diagonosed with Alopecia Universalis in June of 2007. Within 3 days after I was diagonsed, all my hair was gone including eyelashes, eyebrows, and all body hair. I was devastated. My mother told me I could wear a wig. I denied. In the hope of my hair growing in by August of that year, I wouldn't be bald in 2nd Grade. I wore the hat shown in the picture I put up recently. In fifth grade, kids starting asking if I had cancer or chemotherapy, or going all Britany. I was homeschooled from…

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Added by Jenna Starstorm on November 7, 2013 at 8:00pm — 1 Comment

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