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And something about the fringe that makes me look like a hippy

My new wig arrived Thursday. Absolutely gorgeous! very very long chocolatey brown colour. I'll post a photo at some point.

I got it, I loved it. It was brilliant.

And I was a total mess all day.

I'd be totally fine one minute, then all panicy and sad and angry the next. Then I'd be fine. I had no idea what was going on for quite a while.



Then it kind of struck me:



Imagine holding the thing you want most in your hand. Imagine getting that thing which will… Continue

Added by Georgia Gardner on March 4, 2011 at 11:09pm — 12 Comments

"I'm a survivor" too!

I had a new "cancer" comment today while at a drug store. The checker was an older guy, and as he finished ringing up my stuff he smiled warmly and said "I'm a survivor". As usual, I had forgotten about being bald, and was taken aback. So, I responded with my usual "Oh, I don't have cancer...I have Alopecia Areata....But, I'm glad you're a survivor."'



As I left the store, it hit me - I'M A SURVIVOR, TOO! The next time someone tells me they're a survivor, I'm going to… Continue

Added by Mary on March 4, 2011 at 5:48pm — 19 Comments

DCP - Alopecia Poetry please comment!!!!!

My skin is torn pierced marked

my fingers, toes, swollen my

veins,coarse



I can feel the toxic wastes running through my body.

The drugs taking there effects

they are helping me cope I guess

with these unnecessary symptoms induced by poison another drug

I am full , with emotion ,with pain, with medicine

it is so vain



They think they can reverse nature, cure a wrong,

what they don't understand is that the more they force it, focus… Continue

Added by Nadine on March 4, 2011 at 3:00pm — 1 Comment

Scene 7 from The Glass Menagerie by Tennesee Williams (best parts for alopecians)

JIM. Didn't we have a class in something together?



LAURA. Yes, we did.



JIM. What class was that?



LAURA. It was--singing--Chorus!



JIM. Aw!



LAURA. I sat across the aisle from you in the Aud.



JIM. Aw.



LAURA. Mondays, Wednesdays and Fridays.



JIM. Now I remember--you always came in late.



LAURA. Yes, it was so hard for me, getting upstairs. I had that brace on my leg--it clumped so loud!



JIM.… Continue

Added by Tallgirl on March 4, 2011 at 1:57am — 2 Comments

I wish my hair would not tease me

I am 6 months pregnant and my hair has started to come back. I know it's only teasing me and will probally fall out after I have baby.. I wish my hair would not do this to me... Grrrr.

Added by Becca on March 3, 2011 at 7:32pm — 6 Comments

Six months later

I cant believe that today six months ago was when I first took a pair of clippers to my head and shaved off what I was desperately trying to hold on to for so long. For ten years I was undergoing treatments. (injections every six weeks and PUVA weekly) I made a promise to myself, No treatments for six months, then decide if I would continue (The answer is no more treatments.) There has been many ups and downs during the entire period. A lot of self-discovery and many tears. A continuous journey… Continue

Added by Bald and Fabulous AKA Terri on March 3, 2011 at 2:54pm — 4 Comments

I did it...first time bald in public!

Went to the beach yesterday, weather hot, water divine. I was bobbing about as I usually do with wig and hat firmly in place casting envious looks at those who let the waves crash over them when I suddenly thought to hell with it I'm taking my wig off! Checked first with my husband - wanted him to feel okay with it too - he was yeah go for it, so off it came. OMG it was heavenly to be able to go under those waves the way I used to so many years ago. Whether anyone noticed I couldn't have cared… Continue

Added by Pat on March 2, 2011 at 11:38pm — 16 Comments

Holiday Hairdos

It’s Halloween.



It’s one month after the most romantic night of my life, of our lives up to this point. One month after my grand dramatic gesture and climatic speech, our movie moment. We’re madly in love (again) and on our way to a costume party. I’m in full gladiator gear: kilt and body armor, feeling powerful in mind and form. I watch you transform into your darker twin: leather, metal studs, stilettos and a black wig. I see all of the parts of you that you hide, and realize as I… Continue

Added by Jackie Summers on March 2, 2011 at 1:30pm — 16 Comments

I got my wig :)

I got my wig ! And I love it ! I am so happy to have it . I was going to get a custom wig ,but we ran into some problems . Our insurance will pay 80% for a wig . That is wonderful but we found out that they will only pay one wig for lifetime . I am blessed that our insurance will cover that much , since so many people have trouble with insurance companies. But it was still hard to hear it because our previous insurance would pay for one every 2 years . My dads work changed the insurance stuff .… Continue

Added by Mackenzie on March 2, 2011 at 10:00am — 9 Comments

Surprising myself

Last night I attended a church activity attended by a bunch of the women from my area's congregation. The lady that put the night together had requested "interesting facts" about ourselves a few weeks prior to the activity and I don't know why, but I decided that I was going to share something about my hairy (or lack thereof) situation. The fact I gave her was "I shave my head on a regular basis." Most of the women that I knew would be in attendance don't know about my Alopecia, and the few… Continue

Added by Amber W. on March 2, 2011 at 9:00am — 4 Comments

How do you tell others?

Hi,



First, I have to make clear that I might spell alot of words wrong....so dont mind my grammar, please :-).



Yesterday I told a good friend of mine how I have been feeling the couple of weeks. Lately I have been feeling insecure about mine alopecia areata. I say its mine alopecia areata, because for a while I have been feeling like I am the only one with this disease. I have read stories, blogs and bio's of people on this website. It gave me so much comfort that I am not… Continue

Added by Ashley on March 1, 2011 at 5:44am — 14 Comments

I have decided that I need a wig

I have been bald since August 29, 2010. I shaved everything and stopped shaving in October, no new growth. My oldest son will be start Kindergarten in the fall, he has done really well with my hair loss and even talks to his friends about it. I have decided to get a wig for him though, so that he wont have to answer so many questions. I dont think it is fair for him. I have done fine going bald and mostly scarf and hat less most of the time but I do get the "how far into treatment are you"… Continue

Added by Julia S on February 28, 2011 at 11:09am — 7 Comments

Not sure what to do

So I have been bald since 09/02/10 and haven't worn a wig (except on Halloween) and I don't wear scarves. I have random strangers coming up to me telling me how beautiful I am and how well I pull off my "haircut". Well last night my step father says to me "Maybe you should buy a wig to wear when you go out with Jeremy (my boyfriend). He might feel uncomfortable being out with you without your hair, you should really think about his feelings." First off, I have NO idea where that came from. My… Continue

Added by Tamara on February 28, 2011 at 9:11am — 8 Comments

Transition

I am excited for it to be one week from today. I'll have been "bald" for a full 24-hours by then. Its funny that its been two weeks or so since I noticed my spots got so bad that its time for me to take down what's left of my hair. I decided to go back to my hometown, New York City to my hairdresser of over twenty years to buzz my hair off. It may seem like I'm making a big deal or ritual of all this, but, it is a big deal. I was diagnosed with alopecia areata 18 years ago. Its been slow going.… Continue

Added by Lili Añel (aka Eulalia) on February 27, 2011 at 5:15pm — 6 Comments

Marlene revisited

There have been a number of blogs / discussions recently regarding various aspects of being openly bald. I thought it would be opportune to re-post a blog I posted on another site a while ago. This provoked a furious reaction from a Marlene Dietrich fan. So please bear in mind that I am a fan of Marlene Dietrich myself, and this is in no way meant to be an insult to her memory. You can find copies of her performing the original version of the song on Youtube, and it is highly… Continue

Added by David B327 on February 27, 2011 at 4:45am — 7 Comments

Wigs (again)

Just went to try on wigs with my husband in tow. He liked what he saw unfortunately, the stylist had sold the particular wig I wanted to try on and show my husband!!! She will order one and we will go back next week.



Funny thing is, after all that and a trip out to dinner, I was walking my dogs when a gentleman complemented me on my hair (what little I have still have). So I think I will keep what I have, and wear a wig when I want a change of style or need more cover-up. Feeling… Continue

Added by Anne Williams on February 26, 2011 at 8:54pm — No Comments

What a roller coaster

Hi, My name is Patricia & I am a 30 year old married women with 2 beautiful children aged 2 & 4.

Ok, well this all started out as one tiny little patch that fell out back in 2000. I would say it fell out when my parents separated. Grew back fell out. Thats was the cycle, but I had no concern as it was 20cent piece in size and it was at the back. With long hair it wasnt visible. 5 years later I was getting married & again I discovered another patch appearing to the side over my… Continue

Added by Patricia on February 26, 2011 at 7:19pm — 2 Comments

This is negative. If you're looking for something more positive, don't read!

Im finding this harder the longer it goes on

Im sick of the looks i get,

Im sick of doctors telling that my problem is in my head and that other people dont notice,

im sick of having to not draw attention to myself

" " " not having confidence

having to explain that its not cancer

sweating,ie my hair on my head used to absorb it, now if im doing any sort of work or if someone asks an awkward question which makes me fluster and get hot under the collar the sweat… Continue

Added by pat j madden on February 26, 2011 at 5:19pm — 56 Comments

A shiny little martian

I had AU when I was first got this, eons ago, but now I have AA (fuzzy regrowth at the back meaning i have to shave it every few days) - and more importantly, eyebrows.

I am so damn glad I have eyebrows and long eyelashes. really.

But now my AA is changing. I can feel bits of my regrowth shrinking over the last couple of weeks. I had a sideburn type thing down near my left ear which is now gone and there's an empty spot right at the crown of my head. Now my patches have… Continue

Added by Georgia Gardner on February 25, 2011 at 7:36pm — 7 Comments

Model scouts

hey everyone!! just wanted everyone's opinion on something--real quick!! there is a modeling scouting event going on next month ( around the end of the month, details aren't clear yet) and I was wondering, should i go bald or wear a wig?? I'm not sure how they will respond to my err 'baldness' lol...so what do you all think??

Added by Alexis on February 24, 2011 at 12:00pm — 9 Comments

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