All Blog Posts (5,826)

Parents of New York kids with alopecia

Hello everyone, my name is Lavonia I am searching for children with alopecia to possably make a new friend with alopecia. My daughter has AA and I want her to meet other kids with the disease so they won't feel alone. She is seven years old.I feel meeting other kids with this disease wiil incourage them to be themselves.this will better them in many ways . So what do you say parents? We are all in this together.

Added by Lavonia on May 16, 2013 at 10:28am — No Comments

Going BALD for my daughter

Hello everyone, my seven year old daughter was diagnosed with AA on both sides of her temple and nape she is balding. She has long hair so we can cover it with her hair and head bands for now.because Alopecia is unpredictable i do not know if all her hair will eventually come out. But I don't want her to feel like she has to cover her balding spots or her bald head for that matter. She also lost most of her eyebrows and eyelashes.i dont want her to have a low self esteem because of her…

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Added by Lavonia on May 16, 2013 at 10:00am — 5 Comments

My story

it started off when my sis saw a bald spot in my hair when i was 13 and we were going to swim at the hotel pool.

i was surprised and didnt know what to make of it.. it started getting worse as time went on and no one really did anything about it.. now I'm 19, its so bad that i had to get a wig.. alot of peopledont really know about it but some saw it and some i told about it. my ex best friend calls me patches and tries to make my life hell, and this one girl tried pulling off my…

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Added by Fatimah on May 16, 2013 at 8:56am — 2 Comments

My hair regrowth effort

I have diffuse hair loss and logitudinal ridges in my nails (along with other symptoms of anemia) due to low ferritin levels... I tried Rogaine and it didn't work for me. I can't go on Propecia because I'm a female. I've been losing my hair since I was 12 because my low ferritin, but I never did anything about it until this year at age 22. The reason I tried rogaine was because doctors told me it's genetic (even though everyone in my family has thick hair!) until one doctor did some blood…

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Added by Sar90 on May 16, 2013 at 1:00am — No Comments

Sick and tired of being sick

It's been a while since I posted on here, and I felt its about time I do. Since September I have been in and out of hospitals, different specialist, and I think my PCP and I see each other more than I see my best friend. LLLOOONNNGGG story short, I have been diagnosed with Fibromyalgia (OUCH!), POTS, and a severe case of restless body syndrome. I am currently on Short Term Disability, have been since January, with currently no sign of me going back to work any time soon. Because of the POTS…

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Added by Tamara on May 15, 2013 at 11:00am — 2 Comments

Photographer's stunning images of alopecia sufferers as part of project to create awareness about the condition | Mail Online

It's a hair loss condition that often robs sufferers of their self-esteem and confidence.

Now a photographer has taken this stunning gallery of images of people with alopecia to raise awareness about the condition.

Click here to read more at DailyMail.co.uk.

Added by rj, Co-founder on May 14, 2013 at 1:35pm — No Comments

Sorry I'm not on a lot and I don't really know how to use the website but I just need a few friends out there :)

Sorry I'm not on a lot and I don't really know how to use the website but I just need a few friends out there :)

Added by Sam on May 13, 2013 at 4:57pm — No Comments

Job interviews

After several job interviews, some were successful, I manage baldness now by explaining the situation very simply and quickly at the beginning. Two minutes of explanation are enough to enable my interviewer to focus at other, really important subjects for the job.

Added by Christa M. on May 13, 2013 at 4:35pm — 4 Comments

:-)

2 weeks after finding another bald patch, I decided had enough of having 'hair to hide' so went for a very short cut as not having it run my life.......2 weeks later I can feel the itching tell tale sign, and feel my hair starting too grow back on the area :-)

Added by Jo-Anne on May 13, 2013 at 1:45pm — 2 Comments

Seeking some advice

Really struggling tonight, looking back at me before I lost my hair, and I was so damn beautiful I can hardly believe it. I feel like growing hair is like winning the lottery... does anyone know if people who have been completely bald have grown their hair back? I feel incomplete... I am afraid to go ahead with life, I feel fake without hair. 

Added by Keshia on May 13, 2013 at 1:24am — 2 Comments

Help!

Hi!

I'm almost 19 years old and I've never had a boyfriend. It makes me sad because I feel lonely and I'm afraid a guy won't want to date me or love me because of my alopecia/wearing a wig. It seems as if guys are so into look these days... I don't know what to do! Please help me, I could really use some cheering up at the moment!

Added by Devon on May 12, 2013 at 10:21pm — 5 Comments

Day 2 - May 9th, 2013 - The Cancelled Appointment

Day 2 -  May 9th, 2013 - The Cancelled Appointment

My boyfriend and I both work on the same project on nightshift. We took half a shift off so that we could get home by midnight and go to my 10:30 am appointment, which was an hour away from our house. On the way there, I noticed a missed call from an unknown number but i didnt really pay much attention to it.

When we got to the office, we found out that the Doc…

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Added by User306 on May 12, 2013 at 9:11pm — 1 Comment

Day 1 - May 8th, 2013 - Discovery...not exactly a "eureka!" moment

Day 1 -  May 8th, 2013 - Discovery...not exactly a "eureka!" moment

 

It was 6:45am, somewhere on Main Rd. in Chance Cove, NL. I was on my way home from work after a long 13hr night, full of formen and craft that are grown men but have no trouble acting like babies! haha!

[Sidetrack]They're a funny bunch though, and always bring me treats. I just wish they would treat me like an Engineer and not their personal secretary,…

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Added by User306 on May 12, 2013 at 9:08pm — No Comments

They say good things happen all at once

For the last two weeks I had seen very small hair growing in my left eyebrow, I didn't believe myself and I didn't even wanted to talk about it to anyone, and now I am seeing hair growing in my right eyebrow also my eyelashes, but so far still there's no progress in my head hair, hopefully it will grow back... And the other thing is that I am scoring high marks in my school, I feel so energetic and very overwhelmed these days... I really hope that we are will have some good news in the very…

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Added by Yuri Kim on May 12, 2013 at 5:30pm — 6 Comments

Self-image

I hate the way I look sometimes. I look in the mirror and think ugly. I do wear a wig, and I can't decide if it is the alopecia that is indirectly making me feel bad, or just a natural female thing to do. I sometimes see myself in my wig and think I look like someone in drag, I don't know if I see the wig for what it is, fake, but I see beyond the wig and look at my face and hate it... 

I look at my body and this is something I can control yet I seem out of control and just see myself…

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Added by KFlame on May 11, 2013 at 6:00pm — 11 Comments

Hard times

Well i have not been on here for a while. Nor have i made one of these for a long time. So lets just start by saying if you do not want to be depressed or feel bad then you might not want to read this. There are many things in one's life that people cant change and Alopecia is one of them. Many people on this site find happiness. Many people on other sites find happiness. What happened to me wasn't because of this site. Ever since i was a kid i had Alopecia. Doctors told my parents that my…

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Added by T on May 11, 2013 at 3:30pm — 10 Comments

What to say to others

Granddaughter is having a hard time when other people come to her and tell her they are sorry that she is going though cancer.  She also had a lady come up to her and say to her "isn't that a wig?" And then she pulled it off her head.  It was in a mall!  This devastated my 11 yr old gd and she left the mall.

 

What would you do?

Added by grandma concerns on May 11, 2013 at 12:22pm — 14 Comments

Other medical issues

I find that over the last few years I am suffering oddish medical issues. It seems after I push myself a bit, the next day I'm tired. That is pretty normal.,,, but, I find that my blood feels like it's boiling. I can't pin point to what is going on, but find it's an all over malaise. I've had alopecia for 43 yrs, mostly universalis, and do know my average body temperature is 95. and I have seen it 94. Because I"m still menopausal, the hot flashes begin to come, and it appears it's fed by the…

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Added by willow on May 11, 2013 at 10:33am — 3 Comments

I don't know why my mother thinks I am making her suffer

Everytime I talk to mom about my state, she goes like "why are doing this to me? Why are you making me suffer so bad?" But I am not making her suffer, I just don't know why is she thinking like this, ever since my father had died two years ago, she started acting so nervous and putting blame on me having this disease... She has this weird thought that I am making my hair fall on purpose to get her attention and to make her suffer. I just don't see the point in this, instead of feeling less…

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Added by Yuri Kim on May 8, 2013 at 5:00am — 19 Comments

I had these grand plans to get my hair to grow and I have failed at it

I had these grand plans to get my hair to grow and I have failed at it.I've watched as these spots have roamed around to different areas. Now \\I'm beginning to see patches on legs and on my arms. Iguess I just have to accept this. My depression in not complete and i have left work, not wanting to venture out of my home.people hear have been so cruel.What do we have left? what do i have left anymore? I am such pit of depression that i acnt get myself out of.

Added by michael on May 8, 2013 at 1:00am — 4 Comments

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