All Blog Posts (5,826)

Second time around with alopecia totalis

I was first diagnosed with Alopecia areata in late 2010, with two nickel size patches of hairloss. It wasn't until March 2011 that all my hair fell out and I was then diagnosed with Alopecia totalis.

My hair started growing back early this year and was hoping to finally shed my wig for the first time in two years. But, the hair loss started again three weeks ago. So, now I am back where I started.

This time around is both harder and easier. I know what to expect as far as the hair…

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Added by Yellow Daisy on December 13, 2012 at 10:00pm — 2 Comments

Metorologist Rhonda Lee: Was she fired for defending her hair?

Meteorologist Rhonda Lee: Was She Fired for Defending Her Hair?

By Lylah M. Alphonse, Senior Editor, Yahoo! Shine | Secrets to Your Success – 4 hours ago...

This isn't the first time meteorologist Rhonda Lee's short hair has affected her job, she says. (Photo: Facebo …When a viewer took meteorologist Rhonda A. Lee to task online for having short hair, rather than for any job-related issues, she defended herself. But instead of supporting Lee or even deleting…

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Added by You can do it : ) on December 13, 2012 at 8:00pm — No Comments

Efforts rewarded

I have been doing a lot of outreach in the subject of Alopecia Awareness. Well not as much awareness as acceptance. Because that is the hard part. Awareness is easy compared to acceptance. Not only other people accepting your blatant difference but you the alopecian accepting what is happening to your body. Not hating the changes--because that will only poison you. You need the healing salve of acceptance (however reluctantly it may come) to help ease the pain of hairloss. Does that make…

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Added by Laura Adams on December 9, 2012 at 3:39am — No Comments

Stay blessed

by Alyx Arnett

When Angenetta Whites’ hair began coming out in patches as a young girl, her mother’s first thought was ringworm—an infection of the skin that is readily treated and rarely progresses. However, doctors came back with a diagnosis much more unsettling—alopecia.

While several doctors explained to Whites’ mother what this autoimmune disease was that causes hair loss, Whites sat scared still in the waiting room, unaware of the torment that lay ahead of…

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Added by Glimpses of Light on December 6, 2012 at 11:00pm — No Comments

NBA star Charlie Villanueva and alopecia

Alopecia Areata Story Click on the text and read this inspiring story about Charlie Villanueva, an NBA basketball player with Alopecia. He uses his disease to connect with kids in a positive way. Great story...

Added by Tim Valentine on December 5, 2012 at 11:30am — 2 Comments

New here, questions, opinions please. :)

Hi There,

I joined a couple of months ago and have been kind of quietly checking things out but now feel comfortable to post here. Here's my story in a nutshell.

I noticed a small spot around my crown in April of this year and within 6 or 7 weeks it was about the size of a lemon(weird comparsion? lol). While I knew deep down it was AA as I was a hairstylist for a handful of years and know all about conditions of the scalp, I needed a disgnosis. Low and behold it was AA. I got…

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Added by Katelyn on December 4, 2012 at 4:24pm — 10 Comments

Wierd week

So - it has been a weird week.

First - I have been thinking very hard about the awesome things associated with AU such as the fact that I never, ever have a bad hair day. I have also realized when you are bald people seem to think you are prettier than before - are their expectations of beauty less than when you had hair? Like it is so shocking that a bald woman can be attractive? Not sure. They should look at this website and see all the breath taking pictures of bald women! Also…

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Added by ASRN on December 3, 2012 at 11:00pm — No Comments

Alopecia wristband

I just finished ordering the "I heart someone with Alopecia wristbands. I think it's a very good way to show your support if you know someone close to you that has Alopecia. Wearing the band allows me to teach people about what Alopecia is because everyone seems so curious about what my wrist band stands for. Click Here to get the wristbands!

Tim

Added by Tim Valentine on December 3, 2012 at 8:00pm — 6 Comments

Another perspective

Just a thought to share with fellow Hairloss sufferers. I aiming this post mainly at those of you who are struggling to come to terms with your Hairloss. Maybe it's just happened suddenly... You're in shock, as expected. Maybe you lost your hair many years ago or it has progressively worsened as time has past and you simply cannot come to terms with your condition. Hairloss is so upsetting and knocks your confidence especially when you haven't got the answers... Why has this happened to me? How… Continue

Added by Mama Parsinc on November 30, 2012 at 5:12pm — 2 Comments

Thinking about wearing wigs?

Wow purchased a 100% hand tied equal lace font unit. I have worn other lace front units over the last three four years which I've loved and received so many compliments. I used to have 'big hair' so I choose the 'big' hair styles of wigs, of course I've had to build up to big hair so not to arouse suspicion....Just tried and I am blown away buy the amazing look and feel of the unit. I'm delighted with how confident I feel wearing wigs. If your considering a wig certainly give it a go. I'm so… Continue

Added by Mama Parsinc on November 30, 2012 at 4:46pm — 1 Comment

God can heal alopecia

A lot of people seem to think that God brings sickness upon people or He uses it as a punishment if you do something wrong but this is not the case. God LOVES us soooo much, He wants us to be healthy and well, and He wants to have a relationship with us and fellowship with us! it is satan who brings sickness upon people because his goal is to steal, kill and destroy (JOHN 10:10).The devil wants to take us out and he uses anything he can to do so including sickness. Alopecia and every other…

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Added by Alexis on November 30, 2012 at 2:00pm — 6 Comments

Question ?

I do not understand why my hair and hair that had started to grow, fall?
I'll have to go back to work, and I can not stand the wig, the devices that shake your head! and you ... ? how do you do?
I 9 diseases, so now I'm tired, I hurt, and I'm depressed!

Added by coccinelle on November 30, 2012 at 11:30am — No Comments

Everyone please watch this video!

She is just amazing. It brings tears to my eyes every time I watch it.

Added by Megan Bry on November 29, 2012 at 8:30pm — 56 Comments

Well life has changed!

WELL AFTER TWO YEARS AWAY IM NOW A MOMMY, AFTER ALL MY NIGHTMARE DATES I GOT BACK WITH MY EX AND AFTER A YEAR, IVE HAD A BEAUTIFULL BABY BOY BOBBBY, MY HAIR HAS GROWN BACK AND FELL OUT AGAIN, AND TO TOP ALL CAUGHT MY LITTLEONES DAD CHEATING ON ME, HOWEVER THATS ALL IN IN THE PAST AND IM NOW VERY HAPPY WITH BEING A SINGLE WORKING MOM, NEW HOME AND GREAT JOB.

IM LOVING LIFE, DONT CARE WHETHER MY HAIR GROWS OR NOT AS IM PROUD OF MY DOME !!! AND THERE ARE MORE IMPORTANT THINGS TO WORRY…

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Added by claire on November 29, 2012 at 4:30pm — No Comments

Lace front wigs and shaving

Please can someone offer me any advice. I have been suffering from alopecia since 2007. My hair constantly sheds a lot thins out grows back. Trouble is I have to keep it very short as its not in long before its shedding again. Prior to this I had long hair. I hate the constant shedding and uncertainty. I have been diagnosed with a chronic TE. I have decided because I get so depressed and hate taking my wig off that ive ordered a custom made lace front wig. Apparantly I can keep this on for…

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Added by Karin Fitzgerald on November 29, 2012 at 9:34am — 1 Comment

Research summit

Alopecia Areata Research Summit November 29 & 30, 2012

From Basepairs to Bedside: Innovations in the Immunology & Clinical Science of Alopecia Areata

The purpose of this summit, sponsored by the National Alopecia Areata Foundation (NAAF), is to unite a variety of people within and outside the field of alopecia areata to develop research avenues in immunology and clinical science and to advise NAAF on spending its research dollars strategically in both areas. The National…

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Added by Tallgirl on November 29, 2012 at 12:30am — 1 Comment

12 year anniversary

Today marks 12 years from the day that I found my first bald spot. I distinctly remember being 14 and my mother was blowdrying my hair when she found the dime sized patch.

A year followed of doctor's dismissals, then creams, then cortisone injections before I quit all treatments. By Nov 27 the following year I was nearly bald and began wearing a wig within a month. I was completely bald all over within the new year.

I have never had regrowth beyond maybe a tiny patch that lasts…

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Added by Casey on November 27, 2012 at 11:30am — 4 Comments

Why so much emphasis on hair and not other style changes?

Every winter I change my hair extensions out and wear a wig. With my puny hair, I feel it is best to give it a rest from extensions, and also at the ranch my own hair with extensions does not hold well in the wind and rain.

I love my wigs, but every year it is the same process of getting used to the comments others make about my new hair. Some people are very kind, others not so much. I have learned from past experience that this goes with the territory.

I can't help but wonder why…

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Added by chris for hair on November 26, 2012 at 11:00am — 8 Comments

At the doctor

Ive been to see the doctor finaly. She didnt tell me anything that I didnt allready know.
So I keep up my good mood and go on.
Its geting closer to x-mas and I look forward to that. I love x-mas.
Have a nice december all of you.

Added by Renée on November 25, 2012 at 1:30pm — No Comments

John seriously ill

Hi all, for those of you who know my husband John he is seriously ill right now in the ICU at hospital. He's made some good friends here and I thought you all should know. I haven't been on AW much lately so I may not be here again for a few days. Love to you all....

Added by Pat on November 25, 2012 at 3:40am — 12 Comments

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