All Blog Posts (5,826)

Tape extensions

This is kinda crazy but I am so against wearing a wig. However I was wondering if I could use the seamless hair extensions all over my head to make it more realistic and would stay on for a month or so? Has anyone heard of it or tried it? Its just an idea but if I could do it I would. My mom is a hairdresser so i think she could get them for dirt cheap if not free.

Added by Ashley on November 8, 2012 at 5:00pm — 1 Comment

Thinning hair

Hello All

I'm new to this site. Just wanted to share some of my feelings. I'm a 28 yr old girl , living in Mauritius. I have recently observed that I'm losing my hair. I had so beautiful thick hair. I just can't imagine within a year it has become so thin. I've passed some difficult time this year and this stress has really affected my life. I am ever more stressed now upon seeing my very thin hair.

I've seen a doc and tried so many stuff and nothing is working. Recently, my bf…

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Added by LUV on November 7, 2012 at 11:30am — No Comments

Covering bald spots?

What can you do or use to cover those bald spots that stand out even after shaving?

Added by ivan on November 7, 2012 at 6:30am — No Comments

Decisions decisions decisions

I have currently made the decision to stop treatment after I am finished with my prednisone (you have to be weened off of it). Again. I feel like I should keep up with the treatments because my hair has started to grow again but at the same time I feel like I am going against who I really am. As you can see, I am so indecisive about myself which is super strange because back in high school I was all, NO HAIR, DON'T CARE! BRING ON THE MONKEY HATS. I think I have only become insecure because…

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Added by Megan Bry on November 4, 2012 at 8:50pm — 1 Comment

Prosthetic wig?

Any suggestions on where and how to start my search for a prosthetic wig?? Anybody have good experiences with them? Advice needed! Thank u!!!!

Added by Cupcake on November 4, 2012 at 10:30am — 6 Comments

Alopecia clinics in Germany

Hello I have suffered with alopecia for nearly ten years. I wear a full lace wig and I am really happy with it. I have this system for 5 years now and it is the best method to cover up my alopecia and help me lead a normal life. I have a re groom on my system every 6 weeks at a specialist salon close to my home.

I am moving away to Germany at the end of next week to work for 3 months, I am excited to be going but stressed about getting my hair done out there.

I was just…

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Added by Lyd on November 4, 2012 at 10:00am — No Comments

New Michigan support group

Hello alopecia world community! I am starting an alopecia support group in Ann Arbor. The group will have its first session in January. For more information, contact me by email caitm.riley@gmail.com or message me and I will give you my number.

Caitlin Riley
Support Group Leader
National Alopecia Areata Foundation

Added by Caitlin Riley on November 4, 2012 at 6:30am — 1 Comment

Strange areas of growth

I have had Alopecia for 10 years now. This small area of my chin and upper lip are the only areas I can grow any hair! So weird that it forms a perfect patch.

Anyone else have strange areas of growth like this? Lets all share and have fun with this!…

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Added by Craig on November 1, 2012 at 2:30pm — 8 Comments

Kayla Martell

Hello everyone. If inspiring stories are what you want then look to Kayla Martell for inspiration. Kayla Martell is an incredibly resilient individual. She was diagnosed with Alopecia when she was 11 and has not let it slow her down. She didn't let it stop her from competing in the Miss America Pageant and was voted Miss Delaware 2010 and a Miss America Pageant Finalist in 2011. Check out the links below to find out more about Kayla and her journey. I wish you all the best!…

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Added by KG on November 1, 2012 at 10:00am — No Comments

We all know this

Well... We have all heard this a zillion times... But it always brings a smile on my face...
"I am not bald. I am just taller than my hair!"

Added by Swasti Shree Sharma on November 1, 2012 at 10:00am — 3 Comments

Nothing good to say

I have rarely considered myself a man of few words. But in this case I will. I have had alopecia totalis for over 40 yrs; no hair anywhere. And even though I have grown up, much of the world has not. I know that if I had to do it all over, I would probably made a much better go of my life, despite my condition. But no man is an island. We are all social beings and what people say to us, both to our face, and behind our back, when they think we cannot hear, permeates into us and our…

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Added by Mark S. Hansen on October 31, 2012 at 4:00pm — 14 Comments

Anyone else have success with steroid shots?

I have been struggling with AA since I was 14 I just turned 18 in July. Before I went to get shots I shaved my head to a quarter inch so if the shots worked my hair would be about the same length. I've been going to get shots for three months now for AA. I had lost about 80% of my hair, my left eyebrow was 90% gone and my bottom left eyelash was gone. Since the shots I've only really only got one "spot" left on the left side of my head above my ear it seems to be stubborn but looks to have…

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Added by Ryan on October 31, 2012 at 1:26pm — 2 Comments

Turmoil of feelings!

I've been extremely honest with my friends, sometimes even pushed myself a little bit too hard. I push myself to be ok with this and most days I can accept it or forget about it. But I'm never happy about it. Sometimes I realise I don't have any hair or catch a glints of myself in the mirror and I get sad. Most days its fine but once in a while as I said I get sad.

I walk around like I have a full head of hair, not pretending that I do but like its the most natural thing in the world…

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Added by Marinetta on October 31, 2012 at 5:39am — 3 Comments

When is it time to get a wig?

It's getting colder. The wind is blowing, not every where you go has the heat on yet and while I struggle with the bald head I love it at the same time.

This will be my first winter without hair and it doesn't look like it will come back anytime soon, so daily I struggle with the thought of buying a wig.

What have other people done to make sure they get the right one? Online shopping? In store searches?

Does a wig ever feel like it is the right thing or like a great…

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Added by HilEspi on October 30, 2012 at 7:16pm — 7 Comments

Doctor Dy here I come!

I am having a wonderful Halloween weekend here at college. I was able to do so many fun things with my hair! :) I have to admit, I am extremely nervous for my doctor's appointment on Friday. I have to decide whether or not I want to continue prednisone or if I want to quit again. They want to do shots in my head but last time those were very painful and only helped on the small spots, not on the large one on the side of my head. I guess you could say it's decision time but really there…

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Added by Megan Bry on October 28, 2012 at 11:58pm — No Comments

Survivors unite!

alright ladies and gents... I've been dealing with this for 15 years. I'm a survivor. Don't have any hair, but don't need it! let's fill my page with positivity. Let's get some stories on here about loving yourself and surviving!It doesn't matter if you're bald, not, or in between. I want to hear all about loving your self!

Added by Sarah Bitar on October 28, 2012 at 9:30pm — 4 Comments

My hair is growing

So , my hair is growing back again. I dont know if it will stay or not, but it does not matter so much any more. I hav e found out that i'm just fine either way. The funny thing is that i use to be blond, very Swedish blond, and the new hair is in different shades of gray. Its ok. It still isn't so much that I can be outside without a scarf ore a cap, its far to cold för that. My grandchildren likes to feel the hair it's very soft.The future will show what becomes of this.

Added by Renée on October 28, 2012 at 3:30pm — No Comments

Hopeful stories wanted

I am very thankful for this website and for the support of my fellow members. It can be very therapeutic at times!! But, I also find it can be very depressing, so I do take long breaks from it. I hear the voices of those who have accepted their condition, no longer fight it for various reasons, and I fully understand and support their positions, but that's not where I am today. I am not ready to give up hope. While I have lost well over half of my hair and still shed, I also have good hearty…

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Added by Tracey on October 27, 2012 at 2:00pm — 46 Comments

Back on the wagon

The last couple of days I've been slacking on my anti-inflammatory diet, and it all started with some cardamom pear cupcakes someone brought into work (sigh). Then yesterday, I ate a carb and sugar laden breakfast, tried to get back on track with a healthy lunch, but ended up giving in to a butter drenched dinner with two martinis and ended the day with a mug of hot chocolate. Oh, dear. It was fun while it lasted. This morning, I awoke with a persistently itchy scalp and double the shedding…

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Added by Tracey on October 27, 2012 at 1:30pm — 4 Comments

FDA hearing testimony on alopecia areata

For those who may not have seen this -

Alopecia areata may soon be getting significantly greater research funding and study. As you receive this e-news today, October 25, Jan Wolf of Vienna, Virginia has just shared her alopecia areata experiences and insights at the Food and Drug Administration’s Public Meeting on Patient-Focused Drug Development. She was accompanied by Ashley Zink, 15, of Mount Airy, Maryland, as we wish to emphasize how often alopecia areata strikes children. FDA…

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Added by Chris on October 26, 2012 at 8:00am — 2 Comments

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