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Look ma, hair!

I have wigs! My amazing friend and I went wig shopping yesterday and, since they were so cheap for stuff that felt not half bad (they're both made from Kanekalon and are oh, so so shiny), I got two. One sleek asymmetric crop/bob and one shoulder length layered style with a fringe. They both need to be trimmed, which I'm having done on Friday by a salon I found through Trevor Sorbie's My New Hair project. The fringe on the longer one reaches somewhere near my nose when I wear it right and… Continue

Added by Cal on December 12, 2009 at 5:55am — 9 Comments

Head tattoo

iv been thinking of geting a tatto on my head just as a way to make me proud to show my head more or justify others looks when i do but at the same time hate the nigitive stereo types i allready get



was wandering others opions on this or if you have it done lets see thanks, marcus

Added by Marcus on December 11, 2009 at 9:36pm — 6 Comments

Writing about Alopecia

Right now I am a film major at the University of Michigan. I am taking a screenwriting class where I have to write a full 90 page screenplay. My professor told us to write about what you know so it's simple but also make it interesting. I've decided to write about a 17 year old girl named Alex who has just be diagnosed with Alopecia as she goes into her senior year of high school. I would like to thank everyone who I have met with Alopecia for helping me through this writing process and being… Continue

Added by Kelci on December 11, 2009 at 1:22am — 3 Comments

Sleeping in wigs?

I have recently bought a revlon, synthetic, monotop wig. does anybody have the experience of sleeping in wig. its so difficult to remove the tape everyday. so i m planning of sleeping in the wig. Does anyone have idea about how long the wig is going to last?
looking forward for replies............
thanks

Added by Anji chh on December 9, 2009 at 12:48am — 9 Comments

Attempting to date again - did I make a mistake?

For the past 3 years I went all the emotions that go with having alopecia--sadness, anger, depression, finally acceptance. With that acceptance came a new found feeling of self worth so I decided a couple months ago to attempt dating again though I wasn't sure how I would tell people about my alopecia. After talking with several people who gave me good advise on this topic I entered the dating scene again. Well I am 0-4 when it comes to dating. After several conversations with men and/or…

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Added by Stephanie on December 8, 2009 at 7:00pm — 12 Comments

No Hat, No Wig, No Problem

So this weekend I went to DC and stayed at the Gaylord National Resort. My mother had a conference there for continuing education, and I went along for the ride and the free vacation, since I'm afraid to be alone should I have another attack like the one that almost required a tracheotomy. Anyway, this resort is VERY ritzy. You know the scene in Pretty Woman where Julia Roberts first enters the hotel and goes "Wow!" Like that.



I'd had pain on the drive down. What should have… Continue

Added by Andrea on December 8, 2009 at 7:46am — 4 Comments

What he said today

I like to write about my boyfriend because I think it's important for women to know that there are some really great men out there...and you shouldn't let alopecia stop you from snagging a good one ; )



My bio hair was blonde...thats how my boyfriend met me years ago...as a blonde. Last 2 yrs, I have had brown hair (wigs)...and Im contemplating blonde again. I asked John which hair color he likes best. He said " I like you best with no hair...you are so cute with no hair"



;… Continue

Added by Lee on December 8, 2009 at 2:20am — 7 Comments

Painful alopecia or cicatricial alopecia?

So my spots hurt so bad. The pain ranges from a feeling of tight skin to sore/bruis-ie sensation to can't sleep on my pillow, to straight up pain like someone is poking a needles in my head. Is this a part of alopecia areata or do I possibly have Cicatricial alopecia? Any thoughts?

Added by Margeaux on December 7, 2009 at 11:51pm — 3 Comments

A little scared today

so the battle continues, I'm loosing a lot of hair and not sure what to do, I'm trying not to stress like I did the last time it all happened!!
I just don't want to wake up one morning and not be able to hide the thinning (have no new patches). I don't know if I should go back to the dermatologist, don't know if it is really worth as he wont be able to do anything.

Added by Bel on December 7, 2009 at 4:06pm — 3 Comments

Dilemma

I had planned to buy a wig, not a pricey one or anything that I'd wear every day, just one to get me through a week at home over Christmas. I'm mostly OK with being bald in public where I live now; it's a pretty laid back city and I work in a very bohemian shop. But my family live in a very small insular little town (from whence I gleefully escaped earlier this year) and the thought of going out bald there gives me a whole body shudder. I'm pretty confident, but not that confident and I… Continue

Added by Cal on December 6, 2009 at 1:05pm — 7 Comments

Telling people

Well, since I got my wig I've become more open with AA, I accept it more and I don't really care what people think of it, everyone I've told it reacted well to it.

Now that I know that I thought it was time to tell my class about it. So last Thursday we had gymnastics. I told the teacher (who's also my mentor guy, do he already knew about everything) and he put the class together on the bench.

He told them that we thought we could trust them and hoped that they wouldn't react in a… Continue

Added by Lionel on December 5, 2009 at 6:40pm — 8 Comments

Moving forward, always bring about a time of reflection for me

On November 30, I was accepted as an US permanent resident. Although it was great news to know that I could now really start my life here. It also bought feelings of missing my family and friends back in Canada. It was as if it was a realization, even though I have been here for months!



Yesterday, my sister left me a phone message, asking for a…

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Added by Cheryl, Co-founder on December 4, 2009 at 6:00pm — 5 Comments

Interested in vacumm wigs

I think I would like too try a vacuum wig, I understand they are expensive......something I could save for......any info out there on them from someone who uses them

Added by charlene lewis on December 4, 2009 at 4:45am — 2 Comments

Life

So, at the beginging of November I was laid off from my job. It has been a wonderful oppurtunity because now I have to do what I planned on doing in a few months. The problem is I know what I want but, I have to take all these baby steps to get it. I wish it would come quicker than what it's coming. As for my future in Wisconsin, I don't plan on staying here much longer after I finish my degree but, I don't know where I want to go. I haven't be able to travel much since I was fifteen and I am… Continue

Added by Rob Scoville on December 3, 2009 at 3:11pm — 1 Comment

10 tips for getting the most out of Alopecia World

Here’s how you can get the most out of Alopecia World:

1. Treat all members of Alopecia World with the utmost dignity and respect at all times.

2. Complete your personal profile and upload a profile photo. You may also upload additional photos and videos that are…

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Added by Alopecia World on December 3, 2009 at 2:30pm — 2 Comments

Polyana Positive gets Punched!

This stuff sucks. There, I said it. That's how I feel today.



My whole life I've been a self-proclaimed Polyana Positive. I'm pretty much CHOOSE to put positive spin on everything. It's my nature but it's also a choice. This ability has carried me through many challenges growing up. You know, really hard stuff that takes years of counseling to clear up. And I still look on the bright side. I am a mentally and emotionally healthy, stable, strong person. I've done lots of healing work… Continue

Added by Alicia Duncan on December 2, 2009 at 8:01pm — 14 Comments

A nice experience at the gym - Rock the bald look, get jewelry from strangers

I had a really nice experience today at the gym that I want to share. I was wearing my tank top that I had made on Cafe Press. On the front it says: "Yes, I'm bald...get over it." On the back it says: "No hair. No problem." As usual, my bald head was uncovered. I was most of the way through my weight training.



A woman I don't know came up to me and took off her necklace and handed it to me. It's a beautiful, delicate silver piece. She told me that her sister is a jewelry designer,… Continue

Added by Mary on December 2, 2009 at 7:09pm — 20 Comments

As obvious as the sun

Although my hairloss is as obvious as the sun my family will not discuss it. I find that when I bring up the subject they just stare at me with loving eyes and quickly change the subject. When an aquaintance asks or mentions the change they quickly jump in to divert the conversation. I guess they are protecting me from what they feel is uncomfortable and humiliating. In my hairloss journey I'm at the point that I do want to talk about it. There really is no use in secretly crying and suffering… Continue

Added by Angela on December 2, 2009 at 6:17pm — 2 Comments

I've been prescirbed Lansoprazole and Prednisolone

Does anyone have any experience taking these?

I went to my dermatologist today. I have a history of traction alopecia, but he wants me to take these. I think he wants to rule out areata.

My hair was pulled too tightly as a child, so I started losing my hair. But I think he wants to rule out aa, are there other ways he can do this? As I don't like to take medication in case of side affects.

Kind regards.

Added by Undiscovered on December 1, 2009 at 2:25pm — 3 Comments

Accepting or not accepting

At the moment I'm not really sure where I am!

Sometimes I say I've accepted my hair loss and other times I feel inexplicably sad and sorry its all gone. My friends say they don't know how I have cope so well, and I can honestly say, I think I have coped well but sometimes, just sometimes, I wonder whether I have truly accepted my hairloss...sounds wierd maybe...just don't really know where I am at the moment.



Its definitely like an unexpected voyage of self-discovery. As a… Continue

Added by Sarah on December 1, 2009 at 6:42am — 8 Comments

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